Project support officer volunteer volunteer roles in Edinburgh

We’re looking for a new Brand, Communications and Creative Trustee who can use their skills to support our growing charity. In early 2026, CLAPA relaunched with a new brand identity. This role will ensure that our team are supported in brand and content strategy and making the most of the new brand for growth and engagement.

The Brand, Communications and Creative Trustee will participate in all areas of the charity’s governance with a special interest in brand strategy, content, communications and creative to support with the Board’s understanding and interpretation.

The Board of Trustees is responsible for the overall governance and strategic direction of the charity, developing CLAPA’s aims, objectives and goals in accordance with the governing document, legal and regulatory guidelines. You would be joining our board at an exciting time, as we continue to implement our 5-year strategy for 2025-2030.

About CLAPA

The Cleft Lip and Palate Action (CLAPA) is the national charity for people affected by cleft lip and palate in the United Kingdom.

CLAPA supports people affected by cleft to take control of their journey, connect with others, and use their voices to impact the future of care. Our vision is that no one affected by cleft lip and palate in the United Kingdom will go through their journey alone.

Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis? 

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.

Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.

We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.

The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.

1. Treasurer

We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.

In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board. 

2. Young Trustee

• Recent personal experience of the impact of living with endometriosis whilst at school
• Ability to bring insight and perspective about the experiences of a wide range of younger people living with endometriosis, including diagnosis
  May 2026
• Willingness to take on an advocacy role and to share your story in the media and in other ways to support Endometriosis UK’s campaigning and communications work
• Please note that legally trustees must be over the age of 18 in England and that we will provide support to young trustees who are new to trusteeship.

3. Endometriosis UK Trustee

• Personal or professional experience of diversity and inclusion issues
• Currently living in England, Northern Ireland, Scotland or Wales
• Charity Trustee experience
• Charity Senior Management experience
• HR expertise
• NED experience
• Experience of grant making / philanthropy

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.

The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.

Role- Head of Governance and Legal (Voluntary)

Reporting- CEO/CPO

Location- Remote, UK-based

Commitment: We estimate this role requires 4–6 hours per week, with flexibility to manage your own time. All meetings are remote and scheduled in advance.

Compensation: Voluntary role (non-paid)

About YouthAdvantage UK

YouthAdvantage UK is a volunteer-led, research-based organisation championing the rights and wellbeing of young people aged 11 to 25 across the UK. We influence national policy, deliver grassroots projects, and elevate youth voice in key debates; from education to mental health, climate action to justice reform.

We are seeking a passionate, committed Head of Governance & Legal to join our senior leadership team and help shape the strategic foundations that support our work.

About the role

As Head of Governance & Legal, you will lead a small team focused on risk, compliance, and governance excellence. You will ensure our work is rooted in sound legal and ethical frameworks and will support our growth with robust, transparent policies and guidance. You’ll also provide strategic support to our Board of Trustees and act as the senior point of contact for all legal matters.

This is an ideal opportunity for a governance, legal, or compliance professional looking to gain sector leadership experience while supporting a values-driven youth organisation.

 What you’ll gain

• Strategic leadership experience in a national charity
• A portfolio of governance and legal work with social impact
• Board-level exposure and public recognition of your contribution
• A flexible and supportive remote-first culture
• Testimonials, references, and public acknowledgment upon completion
• A chance to help shape youth policy at a systemic level

What you’ll do

• Lead and support the Governance & Legal Support Manager and team
• Design, update, and implement governance frameworks and organisational policies
• Maintain regulatory compliance across charity law, safeguarding, and data protection
• Liaise with the Board of Trustees - prepare agendas, minutes, and reports
• Oversee legal documentation and contracts
• Maintain and review the organisation’s risk register
• Build relationships with regulators and external legal advisors
• Embed a culture of accountability, transparency, and ethical practice

Who we’re looking for

We welcome applications from a broad range of professional backgrounds. You might be:

• An experienced lawyer, company secretary, or governance lead
• A compliance or legal professional seeking strategic exposure
• A postgraduate in law or non-profit management looking for leadership experience
• Returning to work and keen to rebuild your senior-level skillset
• Recently semi-retired and passionate about giving back

 Essential:

• Experience in governance, legal, or compliance leadership (minimum 12 months)
• Familiarity with UK charity law and regulatory frameworks
• Ability to lead and support others with tact and clarity
• Strong written and verbal communication skills
• Commitment to equity, youth empowerment, and ethical standards

To Apply

If you’re interested, just send us your CV and a few lines about why the role appeals to you — this can be a short paragraph in your email or a separate note. If you'd prefer an informal chat before applying, we’d love to hear from you. Just drop us a message and we’ll arrange a time.

Volunteer Acknowledgement

Although this is a volunteer role, we’re committed to recognising your contribution. Upon successful completion of your commitment, you can request:

• A LinkedIn testimonial or written reference
• A public thank-you post on our social media
• Permission to list your role with YouthAdvantage UK on your CV and LinkedIn

This is an exciting moment for us at SICK!, and we are thrilled to invite passionate, forward-thinking individuals to join our Board.

With our unwavering focus on mental and physical health, disability, inequality, and social change, our work has never been more relevant. We are proud of the growing impact we’re making locally and globally, and this is being recognised by our partners and funders who are investing in our long-term vision for the future.

Including Arts Council England who have committed to investing in our work as a National Portfolio Organisation 2023-2028.

In 2026, we present the latest iteration of SICK! Festival - with Beat One taking place throughout May.

Central to this is our Creative Resuscitation (CPR) model, which shifts us from a biennial, month-long festival to a year-round rhythm of seasonal “beats”. This structure is designed to disrupt unsustainable cycles, deepen relationships, and embed community voice and public outcomes across everything we do.

This festival, under SICK!’s new leadership, marked a pivotal moment in our journey as we deepen our commitment to engaging with pressing societal issues and sparking meaningful conversations.

We are looking to recruit new trustees, including but not limited to, with skills and professional qualifications in finance/accountancy, experience in communications or development and fundraising.

As an organisation, we are committed to ensuring our Board reflects the diversity of the communities we serve. We are actively encouraging applications from people facing racism, those who identify as LGBTQIA+, individuals from lower socio-economic backgrounds, and those with disabilities. We would also welcome applications from people with connections to Moston, Harpurhey, and Charlestown.

Join us and play a crucial role in shaping the future of SICK! as we continue our mission to challenge

perceptions, inspire action, and bring about real change.

We look forward to hearing from you.