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This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The BDFA is seeking a new Volunteer Treasurer/Trustee to join our passionate and dedicated Board.
URGENTLY REQUIRED
As a trustee, you will play a key role in shaping the strategic direction of the BDFA, ensuring strong governance, and helping to improve the lives of children, young people, and families affected by Batten disease across the UK.
The overall role of Treasurer is to maintain an overview of the organisation’s affairs, ensure its financial viability and ensure that proper financial records and procedures are maintained.
As our Treasurer, you will:
- Oversee, approve and present budgets, accounts and financial statements
- Assure that the financial resources of the organisation meet its present and future needs
- Prepare and present financial reports to the Board
- Ensure that appropriate accounting procedures and controls are in place
- Have oversight of and give guidance to BDFA Accounting & Financial Administration Officer
- Attend board meetings
- Present financial overview at the AGM
Ideal Background:
Fully qualified chartered accountant/financial qualifications and experience. Some experience of charity finance and fundraising.
We welcome suitably qualified applicants who share our commitment to inclusion, integrity, and advocacy, and who are willing to contribute their time, skills, and experience to drive meaningful change.
Trustees meet regularly (virtually and occasionally in person) and contribute to board discussions, sub-committees, and strategic projects, including attending our in person meeting once a year.
This is a voluntary role, but the personal and social impact is immeasurable.
URGENTLY REQUIRED
About us
Batten disease is a very rare genetic disorder that affects the brain and nervous system. Symptoms sometimes begin in infancy and sometimes later in childhood, after apparently normal early development. Occasionally it may start in adulthood. In individuals suffering from Batten disease, nervous system function steadily declines, causing a wide variety of neurologic problems, including loss of vision and seizures. The life expectancy of a child born with Batten disease can vary, depending on the form of the disease and the age of onset. Some children die in early childhood, while others may be able to live into their teens or twenties.
The BDFA was registered as a charity in 2001 and our mission is “to enable children and adults who are affected by Batten disease to live life to the full and to provide families with the care and support they need so that they do not walk this path alone.” The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.
Work Location: Remote
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Accounting for International Development is seeking an experienced charity finance professional to support a UK-registered charity working internationally to strengthen responsible, low-impact small-scale fisheries.
The organisation works with coastal communities, fishery stakeholders and market actors to improve fisheries practices, support responsible sourcing, strengthen policy engagement and contribute to better livelihoods and food security.
They are now looking for a remote volunteer to review and strengthen their finance systems, reporting routines and use of Xero. Some finance processes, reporting and budget monitoring are currently managed outside the system, and they would value an experienced finance professional who can help them improve consistency, accuracy and the usefulness of financial information provided to senior management and Trustees.
This is not a day-to-day finance role. The assignment is intended as an independent review and strengthening exercise, working with the Managing Director, Finance Manager and selected Trustees to identify practical improvements and develop a realistic action plan.
Key areas of support may include:
- Reviewing current finance processes, month-end routines and reporting timelines.
- Reviewing how Xero is currently being used, including any processes or reporting managed outside the system.
- Supporting improvements to monthly management accounts and Board reporting.
- Reviewing internal controls, financial procedures and consistency of finance processes.
- Identifying key financial risks, control gaps or areas where processes could be strengthened.
- Advising on forecasting, budget monitoring and how project managers provide information to the finance team.
- Supporting the Finance Manager to strengthen monthly reporting and budget versus actual monitoring.
- Providing practical suggestions, templates or examples where helpful.
- Helping develop a clear, proportionate action plan with priorities and timelines.
We are looking for someone with:
- Senior charity finance experience.
- Strong financial management, management accounts and Board reporting experience.
- Experience reviewing or improving finance systems, processes, controls and reporting routines.
- Good working knowledge of Xero.
- Understanding of UK charity finance, trustee reporting and governance expectations.
- Experience with international charities or organisations operating across multiple countries would be helpful.
- A practical, diplomatic and collaborative approach.
The assignment is expected to involve up to 75 hours of remote support over around 3 to 4 months. The organisation expects a minimum commitment of around 4 hours per week, with the exact schedule and workplan to be agreed between the volunteer and the organisation.
This would be a good opportunity for a senior charity finance professional who enjoys helping organisations strengthen their systems, reporting and governance in a practical and supportive way.


