People living with Parkinson's value the services and opportunities Parkinson’s UK provides, delivered by committed and skilled colleagues, volunteers and partner organisations. Following an investment of 1.5 million we have the opportunity to build on the quality and reach of our community services.
We’re looking for someone with first level NMC registration, who has a highly specialised knowledge of Parkinson’s, and recent experience of supporting a wide range of people with Parkinson’s from diagnosis to end of life within health and social care settings.
About the role
You’ll provide expert nursing advice, support and information on Parkinson’s and related conditions to people contacting Parkinson’s UK national helpline.
You’ll empower people affected by Parkinson’s, their families, friends and carers to live lives that are as fulfilling as possible whatever that means to them; and that they feel able to take an active role in their treatment and become their own advocate in health and life, wherever possible.
What you’ll do:
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Provide expert telephone nursing advice, support and information on Parkinson’s, signposting clients to appropriate internal and external resources as necessary.
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Develop and update professional knowledge of all aspects of Parkinson’s and Parkinsonism to ensure that the information and advice provided is accurate and based on best available evidence.
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Undertake national helpline work to ensure cover across the helpline’s working hours and in line with guidance and as part of a dedicated team.
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Maintain your own knowledge of the work of the charity and other health and social care providers.
What you’ll bring:
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Ability to provide information on Parkinson’s medications without prescribing or recommending specific drugs.
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Knowledge of the importance of raising safeguarding concerns.
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Experience of providing telephone support, including use of active listening and questioning skills, and demonstrable digital competence, including online case management systems
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Ability to cope with challenging or emotional situations and/or people.
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Able to work collaboratively and in partnership with others.
This is an exciting time for Parkinson’s UK and we would love you to join us!
Please apply by sending us your CV, together with a detailed supporting statement which will fully demonstrate how you meet all the criteria of the role, as stated in the "What you'll bring" section of the job description.
The successful candidate will be required to:
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Provide their own broadband service with a minimum download speed of 2Mb
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Have a confidential space in which to work
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Provide occasional cover on Saturdays and/or Bank holidays
We are also ideally looking for someone who can work every Friday - but this is not mandatory and please still apply if this wouldn’t suit you.
This role will require an enhanced Disclosure and Barring Service (DBS) check. You’ll be required to apply for one; refusal to do so will result in the offer being withdrawn.
Anyone can get Parkinson’s. It’s vital that the people who work for Parkinson’s UK are representative of our diverse community. We actively encourage people from all sections of the community to apply, regardless of race, ethnicity, gender identity, age, disability, sexual orientation, or religion.
An inspirational charity is seeking an inspirational CEO. The Amber Trust is a unique charity, dedicated to funding music opportunities for blind and partially sighted children and young people.
Job title: Chief Executive Officer
Reporting to: Board of Trustees through the Chair
Location: Flexibility to work remotely with at least one day per week in our SW London and other locations for meetings as required
Hours:,30 – 37.5 hours per week TBA with candidate
Contract: Permanent
Salary range: £55 - £60K pro-rata (depending on experience)
Charity overview
The Amber Trust provides musical opportunities for blind and partially sighted children, including those with additional disabilities, via its Music Awards and Music Services.
Amber Music Awards fund instrumental and singing lessons, the purchase of musical instruments and specialist software, funding for concert tickets, and travel to musical activities for vision impaired children throughout the UK. In addition, there are structured programmes in its Music Services.
‘Little Amber’ is a service that offers music resources and quarterly sessions with a specially trained music practitioner to children under five and their families. ‘AmberPlus’ provides music resources and sessions offered on a termly basis to children over five who also have complex needs.’ ‘With Music in Mind’ is a new service for visually impaired children and young people with life-limiting neurodegenerative disease. Amber’s workshop scheme offers music sessions for groups of children in schools, charities and community organisations.
We have also developed extensive online music resources for teachers that are freely downloadable from anywhere in the world.
The Charity has a turnover of around £400k, employs a small central administrative team, and, for the music services, works through a large network of self-employed practitioners.
Role purpose
The Chief Executive Officer is responsible to the Board of Trustees for leading The Amber Trust, developing and realising Amber’s vision and strategy, and playing a key ambassadorial role with funders and other senior stakeholders. The CEO is responsible for the management of the charity and its staff and the execution of Amber’s targets, plans and policies, ensuring that resources are used to best effect in meeting the needs of beneficiaries. The CEO is responsible for initiating and overseeing new initiatives that will ensure Amber plays a leading role in the field of music and blindness in children and young people into the future.
Role Description
Accountabilities: To develop, lead and manage The Amber Trust, in particular:
Strategy
• to develop and deliver innovative projects and services in accordance with Amber’s strategy.
• to ensure Amber flourishes, meeting all its charitable objectives and its legal obligations as a charity and a company limited by guarantee, and to honour its duty of care to its staff, beneficiaries and other stakeholders;
• to maintain Amber’s ethos of providing individual and personal support to beneficiaries and their families;
• to lead Amber in the development and implementation of its long- and medium-term strategy and annual business plans in accordance with the strategic direction and policy framework agreed by the Trustees;
Fundraising and events
• to attend, represent and promote Amber at meetings, conferences and other events, enhancing its profile across the UK – occasional evening and weekend work and travel may be required for this;
• to manage volunteers and liaise effectively with fundraisers and individual donors;
• to engage in fundraising and income-generating activity to ensure the sustainability and growth of Amber, including bid writing activity;
• to monitor and evaluate the services offered by Amber as required by external funders and Trustees, writing and submitting reports to deadline
Operations
• to manage and support operations and services and to be hands-on where required to ensure these are delivered;
• to be pro-active in maintaining digital media relating to Amber and its work, including (but not limited to) its web page, Facebook, Twitter, Instagram, LinkedIn, and YouTube;
• to manage the budget prudently to ensure Amber’s financial soundness;
• to ensure efficiency and effectiveness externally in service delivery, and internally in its systems, resources and infrastructure;
• to communicate effectively and in a timely manner with Trustees, organising and contributing to regular meetings for the Board, and its Investment, Fundraising, Digital Media, Music Awards and Music Services subcommittees, including the provision of reports, financial information, data on service delivery and all other matters to enable the Trustees to fulfil their governance role.
People management
• to manage staff, setting their objectives and ensuring that these are met, and that colleagues appreciate the ethos and values of Amber, and work in accordance with its strategic objectives, with regular update meetings and an appraisal cycle, and to monitor and recommend to Trustees appropriate remuneration;
• to ensure all staff are aware of current national policies and procedures relating to safeguarding in relation to the children and young people that Amber serves, and are given training annually.
Also to undertake other such duties as may reasonably be required from time to time by the Trustees.
Person specification
The successful candidate will be able to demonstrate that they have the following essential requirements:
Essential criteria
· Proven leadership experience in the third sector
· Proven management experience in at least two organisations
· Demonstrable passion for music
· Experience of measuring the impact of charitable services and driving quality improvements
· Degree level education or equivalent
Knowledge, skills and experience
· Experience of working with trustee boards and an understanding of their role and governance experience
· Experience of programme development and the management of grants
· Familiarity with UK charity law and governance issues
· Awareness of disability issues
· A track record of successful fundraising
· Experience of staff management including personal development, objective-setting, recruitment and performance management
· A high level of computer literacy in standard office packages and CRM systems such as Salesforce ;
Competencies and personal qualities
· The capacity for innovative thinking
· The ability to motivate self and others – of developing a vision and enlisting others to share it
· The ability to see ideas through from concept to implementation and evaluation
· The capacity to operate at a strategic level and to analyse and understand complex issues;
· The ability to prepare and manage budgets;
· Strong organisational, written and oral communication skills, including experience and confidence in public speaking and in effective report writing
· The ability to work in a self-directed manner, and to develop good working relationships with stakeholders
· A commitment to equity, diversity and inclusion, treating people from all backgrounds with respect, dignity
· The right to reside and work permanently in the UK
Desirable criteria
· Experience of working with or caring for people with visual impairment
· Familiarity with the UK education system, and in particular, music education
· Knowledge of and familiarity with special education provision, incl]uding special schools
· Familiarity with other regional and national music organisations working in the field of music education.
The closing date for all applications is 9:00 am Monday, 20th May 2024. Initial interviews are planned to take place face-to-face in London on Wednesday 29th and Thursday 30th May 2024.
To apply to the role, please send a CV and covering letter, outlining your motivation for applying for the role and how you meet the essential criteria.
To apply to the role, please send a CV and covering letter, outlining your motivation for applying for the role and how you meet the essential criteria.