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Amersham, Buckinghamshire (Hybrid)
c. £75,000 per year
Full-time or part-time
Permanent
Job description
An exciting opportunity!
This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.
As our next Chief Executive, you will
- Define and deliver the MPS Society’s strategic vision.
- Provide confident oversight of governance, finance, compliance and reporting.
- Effectively manage the operational alignment between the MPS Society and RDRP.
- Always keep the members and family voice at the heart of strategy, service design and decision-making.
- Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
- Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
- Collaborate with other rare disease bodies, patient organisations and other key audiences.
- Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
- Encourage an open, supportive work environment allowing creativity and building staff confidence.
- Help shape the future of the MPS Society.
About you
- Self-motivated, with the drive to lead the organisation through a period of change and transition.
- Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
- Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
- Strong self-awareness, with insight into their own leadership style and impact on others.
- Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
- A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
- Genuine passion for the Society's mission, with a family and member-first ethos.
- Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
- A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
- Confidence speaking publicly on behalf of the organisation and the people it represents.
Why join us?
A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.
- Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
- A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
- Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
- A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
- A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
- Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.
Benefits
Join us and you will be working for a caring charity offering:
- A competitive salary
- Generous annual leave
- Extra leave between Christmas and the New Year
- Contributory pension
- Life assurance (subject to the conditions of the scheme)
- Employee assistance programme offering support 24/7
Further information
The successful candidate must be eligible to work in the UK.
The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.
Salary to be agreed depending on experience and will be pro-rata for part time hours.
This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.
This senior role requires flexibility in working hours and location. It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.
This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.
For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart. Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.
Application Instructions
Please include your CV with a supporting statement of no more than 800 words. Your supporting statement should include an answer to the question below:
The MPS Society supports individuals and families affected by mucopolysaccharidoses (MPS) and related disorders. What interests you about coming to work in this area, and what motivates you to contribute to supporting individuals and families affected by these conditions?
Organisation
MPS SOCIETY
View profile
Registered Charity
21 - 50
Registered Charity
21 - 50
To transform lives through specialist knowledge, support and advocacy, and research.
Posted on: 04 September 2026
Closing date: 25 September 2026 at 23:30
Job ref: 2026CEO
Tags: Campaigns, Communications, Policy, Advocacy, Business Development, Operations, Compliance / Quality, Data Protection, Health / Medical, Learning Disability, Risk Management, Safeguarding, Strategy, Youth / Children, Governance / Management
The client requests no contact from agencies or media sales.
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Newport, Newport (Hybrid)
£44,558 - £45,895 per year
Full-time or part-time (Full time 37.5 hours per week (part time and flexible working options considered))
Contract (9 month contract (maternity cover))
Job description
Job title: Services Manager (Maternity Cover)
Salary: £44,558 – £45,895
Hours: Full-time 37.5 hours per week (part time or flexible working options considered)
Location: Home-based ideally Wales or Midlands area, but any location will be considered, with travel around England and Wales
Contract: Fixed term – 9 months from December 2026
Are you an experienced employability service manager who would be able to confidently step into a 9-month maternity cover position and oversee a team of up to eight passionate and person-centred Employment Consultants, helping them deliver personalised, high-quality support to veterans and their families? You will also have the opportunity to contribute to our services development and continual improvement programme.
At The Poppy Factory, we believe that everyone who has served our country deserves the opportunity to build a fulfilling life beyond the armed forces. For over a century, we have stood alongside veterans and their families, evolving our services to support veterans and adult family members to overcome barriers to employment and transform their lives.
What we're looking for
- A collaborative mindset: You will thrive working as part of a team with colleagues based across the UK who support each other in what can sometimes be a challenging role. You enjoy building strong partnerships, and work effectively with colleagues and external organisations to enhance the services we offer.
- Motivation and commitment: You understand that supporting people facing complex challenges can be demanding, and you're ready to bring the energy, empathy and resilience needed to support your team to succeed.
- Adaptability: You will often need to balance competing priorities or quickly shift focus depending on the needs of the team you will be supporting and the clients they are working with.
- An empowering approach: You believe in people and their potential. Whether supervising your team or developing services, your goal is to support others to grow, achieve and thrive.
Why should you apply?
- A chance to make a lasting impact: Your work will help veterans and their families move forward in life with confidence and dignity.
- Competitive salary and benefits including generous holiday and pension contributions.
- A welcoming and empowering culture, with regular opportunities for team connecting and shared learning throughout the year.
- Flexibility and variety: a mix of travelling in your area, home working and to the Poppy Factory in Richmond, London
- Autonomy and influence: The opportunity to shape your region, build meaningful partnerships, and develop services that meet real needs.
- Be part of an iconic charity with over a century of history supporting the Armed Forces community.
For further information, including the full job description for the role, please refer to the candidate pack.
Due to the travel requirements of the role and the region covered, it is essential that the post holder is able to meet these requirements through their own transport arrangements.
How to apply
To apply for this position please click "Apply for this job" to submit your CV and a covering letter outlining how you meet the essential criteria in the person specification. Please address your covering letter to Debbie Boughtflower, Director of Operations.
Top tip: we don't recommend using AI to generate your covering letter (we've seen a lot of covering letters and we promise, we can tell!) - we want to know what makes YOU a good fit for the role, and AI covering letters can't capture your personality, values and qualities, or what makes your specific combination of skills and experience an ideal candidate.
The closing date for applications will be 23 September 2026. Please note, we cannot accept late or incomplete applications. Only applications submitted through the online process will be considered.
Online interviews will be held on 1 or 2 October 2026, with potential second interviews on 12 October 2026 in person @ The Poppy Factory in Richmond, London.
To arrange an informal conversation about the role, please contact Kirsty Gronow
No agencies please.
The successful candidates will be subject to an enhanced DBS check.
Organisation
The Poppy Factory
View profile
Registered Charity
51 - 100
Registered Charity
51 - 100
The Poppy Factory supports veterans with health conditions and their families into employment, helping them overcome any barriers.
Refreshed on: 04 September 2026
Closing date: 23 September 2026 at 16:44
Tags: Advice / Information, Advocacy, Employment, Mental Health, Mentoring / Coaching, Wellbeing, Social / Support Work
The client requests no contact from agencies or media sales.
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Job description
As our Associate Director of Children’s Services, you have a key role to play in the leadership, operational management, and strategic direction of Chestnut Tree House. We are looking for an individual who shares our passion for excellence, innovation and continuous improvement. Whether through clinical leadership, service development, strengthening quality standards or supporting our workforce, this role offers a unique opportunity to make a significant contribution to our future.
At the heart of everything we do is a commitment to kindness, respect, integrity and collaboration. We want every colleague to feel valued, supported and empowered to reach their full potential while delivering the very best outcomes for those in our care.
As a leader within Southern Hospice Group, you will:
- Lead the planning, performance and delivery of Children’s services, holding accountability for quality, patient outcomes, financial control, income and contract compliance.
- Build and sustain strong partnerships with commissioners and system partners, developing and negotiating proposals that expand service reach and impact.
- Lead service improvement and innovation and share learning across the organisation.
- Provide visible, values-led people leadership, creating a culture of accountability, collaboration and continuous improvement across all teams.
You'll be
- Passionate advocate for babies, children and young people
- Child and family centred
- Significant experience in children's palliative/end of life care or children with complex care needs
- Compassionate but accountable leader
- Strategic but operationally grounded
- Professional curiosity, always seeing ways to innovate and improve
- Track record of effective performance management across quality, workforce, operations and finance
- Effective communicator, able to influence and build strong teams
- Experience of leading and supporting teams through change
- Builds effective relationships with key stakeholders across the group and externally
- Confidence in financial leadership, including budget management, income generation and commercial decision making.
- Proven ability to influence and partner with commissioners and system stakeholders
- Highly developed people leadership skills, with the ability to engage, motivate and develop the workforce and build strong teams.
Organisation
Posted on: 03 September 2026
Closing date: 18 September 2026 at 12:00
Job ref: SHG0305
Tags: Policy, Social Care / Development, Project Management, Business Development, Care Management, Nursing, Operations, Child Protection, Culture, Early Years, Employment, Health / Medical, Safeguarding, Youth / Children, Governance / Management
The client requests no contact from agencies or media sales.
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Hove, Brighton and Hove (On-site)
Worthing, West Sussex
Arundel, West Sussex
£31,660 per year
Full-time
Permanent
Job description
You will play a key role in organising and delivering a range hospice-led events, helping to maximise income, recruit participants and provide excellent supporter experiences. You will combine strong event organisation and project management with a clear focus on fundraising, ensuring our events are delivered safely, professionally and cost-effectively whilst providing excellent stewardship to event participants to develop a stronger relationship with Southern Hospice Group.
Organisation
Posted on: 25 August 2026
Closing date: 21 September 2026 at 23:30
Job ref: SHG0281
Tags: Fundraising, Project Management, Customer support, Sustainability, Community Fundraising, Events / Activities
The client requests no contact from agencies or media sales.
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London, Greater London (Hybrid)
£35,000 per year
Full-time
Permanent
Job description
About the Holocaust Educational Trust
The Holocaust Educational Trust (HET) is a leading UK charity dedicated to promoting education and remembrance of the Holocaust through its educational programmes and advocacy efforts, challenging antisemitism and promoting tolerance and understanding to benefit future generations. Working across the UK, the Holocaust Educational Trust partners with schools, universities, communities and policy makers, to educate thousands of young people across the country. Our core educational activities include our flagship Lessons from Auschwitz Project, youth engagement activities and Testimony 360: People and Places of the Holocaust, a digital programme.
Job Description
Programme delivery
Once trained, Education Officers deliver classroom-facing and teacher-facing education across all of our core programmes – Lessons from Auschwitz; Testimony 360; Outreach and Teacher Training - drawing on their own teaching experience and understanding of effective pedagogy. Delivery of our programmes takes place both during and outside school term dates and hours. Training will be provided to deliver across all our programmes within the first six months in post.
Programme development, innovation and resource production
- Work with the Senior Education Officer to plan, develop and review programmes and resources.
- Train internal and external educators to deliver the Trust’s programmes.
Impact, Evaluation and Learning
- Understand and hold the Trust’s Theory of Change and, with the Education Team, support its delivery in practice.
- Work with the Senior Education Officer and wider Education Team to participate in impact evaluation, programme monitoring and feedback.
- Use evaluation findings to inform programme development and improvement.
Partnerships and External Relations
- Represent the Trust at national and international conferences and forums.
- Participate in collaboration with other Holocaust education organisations globally to share best practice in both Holocaust and antisemitism education pedagogy and innovation.
Safeguarding
Work with colleagues to play an active and effective role in ensuring that the Trust has the highest safeguarding standards across all programmes, adhering to legislation and best practice.
Travel requirements
The post requires regular travel within the UK and abroad, including a minimum of three one-day Poland visits per year as part of the Lessons from Auschwitz Project, attendance at the Trust’s central London office on agreed days, and occasional evening and weekend work. HET has a Time Off in Lieu policy, alongside additional systems of support to help ensure a realistic, sustainable and fair schedule of travel across the Education Officer team.
Organisation
Posted on: 02 September 2026
Closing date: 15 September 2026 at 09:00
Job ref: Education Officer
Tags: Training / Learning, Teaching, Digital, Education, History, Mentoring / Coaching, Safeguarding, Students / School, University, Youth / Children, Social / Support Work
The client requests no contact from agencies or media sales.
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