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Family Support Coordinator
Dravet Syndrome UK
Key Information
- Location: Home-based/remote, with travel to national events throughout the year both for the Family Services and occasional travel for the wider needs of the organisation
- Salary: £28,000 - £32,000 per annum
- Hours: 40 hours per week
- Contract: Permanent
- Working Pattern: Monday-Friday, 9am-5.30pm, with occasional evenings and weekends (TOIL provided)
About Us
Dravet Syndrome UK (DSUK) is the leading UK charity supporting people affected by Dravet Syndrome, a rare and severe form of epilepsy that impacts the whole family. Founded by parents in 2008, we provide family support, professional education and fund vital research to improve lives and create hope for the future. [Family Sup...JD v1 (1) | Word]
About the Role
We're looking for a compassionate and organised Family Support Coordinator to help deliver practical, emotional and financial support to families affected by Dravet Syndrome.
Working closely with the Head of Family Services, you'll be a key point of contact for families, supporting enquiries, coordinating grants, managing online communities, helping organise family events, and ensuring families can access the information and support they need.
This is a varied and rewarding role combining family support, community engagement, event coordination and administration.
Key Responsibilities
Family Support
- Manage a caseload of families, providing practical and emotional support.
- Respond to enquiries and signpost families to appropriate services.
- Support newly diagnosed families, bereaved families, and those navigating transition to adulthood.
- Maintain accurate records using the charity's CRM system.
Grants & Community Support
- Coordinate family grant applications and payments.
- Moderate and support the charity's private Facebook community.
- Collect feedback and help improve family services.
- Escalate safeguarding concerns in line with policy.
Events & Engagement
- Support the delivery of the Annual Family Weekend Away and other family events.
- Assist with webinars, support programmes and educational activities.
- Build positive relationships with families and volunteers.
- Attend key family-facing events across the year.
Administration
- Support reporting, record management and service administration.
- Ensure compliance with safeguarding, GDPR and organisational policies.
- Attend team meetings, training and charity events.
About You
Essential
- Experience supporting children, adults and families.
- Experience supporting people with complex medical, learning or additional needs.
- Strong communication, organisational and relationship-building skills.
- Ability to provide empathetic, person-centred support.
- Experience using Microsoft Office and CRM/database systems.
- Understanding of safeguarding, confidentiality and GDPR.
- Ability to work independently and manage competing priorities.
- Willingness to travel and work occasional evenings and weekends.
Desirable
- Background in Health & Social Care, Mental Health, Community Development, Counselling or Education.
- Experience organising events or community activities.
- Knowledge of Dravet Syndrome or other neurological conditions.
- Full UK driving licence and access to a vehicle.
Why Join Us?
- Make a meaningful difference to families affected by a rare and life-limiting condition.
- Join a supportive and flexible remote-working charity.
- Play a key role in delivering services that support hundreds of families across the UK.
- Be part of a passionate team committed to improving lives through support, education and research.
Registered Charity 
6 - 10
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Os ydych yn drefnydd sy’n canolbwyntio ar bobl ac yn mwynhau meithrin cysylltiadau a chreu effaith, byddem wrth ein bodd yn clywed gennych.
Volunteers are at the heart of our work. Each year, they support over 70,000 young people to build confidence, develop skills and explore their futures through insight talks, workshops and events.
We’re looking for a Volunteer Coordinator to grow and support our network across Wales. This is a new role, created as we invest in strengthening how we recruit, prepare and engage our volunteers, with the opportunity to shape how this work develops.
In this role, you’ll build relationships with employers, public sector organisations and community groups to recruit volunteers from a wide range of industries. You’ll manage onboarding, support volunteers to feel confident and well-prepared to work with young people, and work closely with our Volunteer Manager and Programme Team to match volunteers to opportunities across Wales.
You’ll play a key part in ensuring volunteers have a positive, high-quality experience – providing ongoing support, responding to feedback, and helping us continuously improve how we engage and retain our network. Alongside this, you’ll track activity, maintain accurate records, and contribute to understanding our reach and impact.
We’re looking for someone who is highly organised, proactive and great with people, confident building relationships, managing multiple priorities and communicating clearly. You’ll bring experience of working with volunteers, or in a coordination or partnership-focused role, and have a genuine motivation to support young people to achieve their potential. And, we'd love someone who is confident communicating in the medium of Welsh.
This role would suit someone who enjoys working collaboratively, is comfortable working across a wide geography, and is motivated by creating opportunities and delivering impact.
If you’re motivated by purpose, confident bringing people together, and want to play a key role in expanding our impact across Wales, we’d love to hear from you.
_____________________________________________
We carry out social media checks on shortlisted candidates as part of our recruitment process, using only publicly available information and in line with our data protection responsibilities.
While we don’t specify this in our person specification, we are particularly interested to hear from applicants who have experienced some of the challenges that young people across Wales face today.
The client requests no contact from agencies or media sales.
Thank you!
Individual Giving Officer
We are looking for an Individual Giving Officer to join an ambitious and highly motivated team responsible for delivering an ambitious and growing Individual Fundraising programme.
Position: 000022 Individual Giving Officer
Location: Home-based, UK, Nationwide. However, occasional travel will be required as part of this role (may include team meetings or other work-related meetings)
Hours: Full-time, 35 hours per week
Salary: Circa £35,600 per annum (inner London weighting £3,950 per annum or outer London weighting £2,457 per annum may be applied in accordance with where you live)
Contract: Permanent
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Health Cash Plan, flexible working opportunities available.
Closing Date: 19 July 2026
Interview Date: Monday 27 and Tuesday 28 July 2026. Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.
The Role
Working alongside other officers, you will report to either the Individual Giving Lead responsible for our cause-related products or the Individual Giving Lead responsible for our gaming products. Due to the demands of the role we are looking for someone with a willingness to work flexibly with regard to working patterns when required, to support the needs of the team and the ongoing success of the programme.
You’ll be:
- Using your fundraising and marketing experience and skills to create successful campaigns and complex supporter journeys to help us grow our income and supporter engagement. (Working collaboratively with our Digital and Social Teams, as well as external media agencies).
- Helping deliver on our multi million annual plans to retain and recruit new supporters using the most effective techniques and channels, including Face to Face.
- Enthusiastically managing and delivering a range of fundraising and engagement campaigns and communications to develop and maximise support from our loyal supporters via multiple channels, including telephone, mail, digital, and SMS.
- Comfortable with figures and spreadsheets, as you’ll be diving into the data and managing campaign costs.
- Responsible for maintaining and reporting accurate campaign results and reviews.
- Always looking out for new opportunities, using our sprint pipeline methodology (testing, solving, learning from experiments) before scaling.
- Ensuring our campaigns are fully compliant at all times.
About You
We’re looking for an individual who:
- Has great experience and knowledge of fundraising, direct marketing and project management, and can bring a real enthusiasm to the team. This role has a specific focus around supporter acquisition which includes face to face, paid digital, direct mail, telemarketing and eMarketing.
- Is fantastic at organising and prioritising a busy workload and knowledgeable of project management. Loves attention to detail and can work on several projects at once whilst thinking outside the box, as things can change quickly!
- Loves data and insight and enjoys applying that insight to campaign testing.
- Is a great all-round communicator, with both internal and external audiences.
Applications
Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.
If you are applying under the Disability Confident scheme, please indicate this in your supporting statement, and in the main body of your email when applying for the role.
You will be able to view the role profile when you apply.
Stroke Association
Finding strength through support
The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
We’re here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of our supporters and donors that we can provide vital support.
Stroke Association is driven by our ambition to improve the lives of everyone affected by stroke. This means we’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by Our approach to solving inequity in stroke, we are prioritising listening to, and learning from, lived experience across our charity.
We are working to improve the representation of this lived experience at all levels within the Stroke Association and we are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how we work.
We are a Disability Confident employer, and we are making great progress focusing on flexible working, reasonable adjustments and access to work. Our charity has a variety of staff network groups and we're committed to continuously improving our diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.
You may also have experience in areas such as Service Coordinator, Stroke Support, Stroke, Care Team Leader, Support Team Leader, Volunteering Manager, Volunteer Coordinator, Support Group, Support and Advice, Social Care, Carer Support, Support Service, Service Manager, Service Lead, Coach, Mentor.
Please note this role is advertised by the recruitment agency acting for the client – Not For Profit People.
