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Ataxia UK Research Manager
This is a part-time 12 month fixed term maternity cover post
Salary: £44,000 pa pro-rata
Conditions: 25 days annual leave pa pro-rata (not including Bank Holidays)
5% employer contribution to a personal pension plan.
Hours: 21 hours pw with provision for flexible working in line with Ataxia UK’s policy. Some out of hours work may be required for which time off in lieu will be granted.
Location: Hybrid working between home and office: Ataxia UK Office, 12 Broadbent Close, London N6 5JW.
Reporting to: Director of Research
About Ataxia UK
Ataxia is the umbrella term for a group of neurological conditions and Ataxia UK is the UK’s leading ataxia support and research charity. Ataxia UK collaborates with the global ataxia community through our Research team, and we are on the board of the international non-profit association, Euro-ataxia. Our Services team focuses on helping people affected by ataxia across the UK live well with their condition. Our Helpline and Advocacy services provide information, and one-to-one support on a range of issues, while our Community Engagement services deliver activities, events and volunteering opportunities that bring the ataxia community together and help reduce isolation.
Job Description
Research:
The post-holder is expected to gain an understanding of the ataxias, keep updated with developments in the ataxia research area, and liaise effectively with researchers and other stakeholders.
Research Grants Programme:
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To support the Director of Research in implementing Ataxia UK’s research strategy
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To manage the Research Communications Officer in implementing the peer review process (e.g. by identifying/ liaising with peer reviewers and keeping a database of potential peer reviewers)
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To support the Scientific Advisory Committee by attending meetings, and manage the Research Communications Officer providing papers and writing minutes
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To liaise with researchers funded by Ataxia UK
Global collaborations:
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To represent Ataxia UK or stand in for the Director of Research on research projects (eg: representing the patient perspective)
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To manage the meetings of the Pharma Strategy Advisory Group
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To support the Director of Research in working with pharmaceutical and biotech companies to advance ataxia research
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To assist the Director of Research in other research related-initiatives where required
Research communication:
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To manage the Research Communications officer in communications to people affected by ataxia (via Ataxia UK’s magazine, e-newsletter and website)
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To represent Ataxia UK at ataxia meetings/conferences, write reports and do oral presentations
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To assist in the organisation of Ataxia UK’s Research conferences
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To make presentations to communicate research advances to people with ataxia and their families at Ataxia UK’s conferences
Support for people with ataxia:
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To support Ataxia UK’s Helpline team to respond to research enquiries from people with ataxia
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To manage Ataxia UK’s Internal Ethics Committee
Improving healthcare:
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To coordinate annual reviews of current Ataxia Centres, and accreditation reviews of new Ataxia Centres
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To coordinate the Ataxia Grand Rounds programme
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To manage the updating of Ataxia UK’s Medical Guidelines and similar publications
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To support the Director of Research in the development of new projects and policy work aimed at improving the healthcare of people with ataxia as required
Other:
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Participate in supervision, and staff meetings as required
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Undertake professional development and training
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To manage the Research Communications Officer
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Comply with the data protection regulations, ensuring that information on clients, supporters, employees and volunteers remains confidential
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Implement Ataxia UK’s health and safety policy and procedures, ensuring that all practices and procedures are undertaken in accordance with a healthy and safe working environment and that all staff and volunteers for whom you may be responsible are aware of their responsibilities in respect of their role, monitoring data and recommending action as required
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Administer and organise own work to ensure that it is accurate and meets quality targets, agreed deadlines and reporting requirements
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Take responsibility for personal learning, training and development, and support the learning and development of others and the whole organisation
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Work to embed a culture of inclusion and collaboration, within and beyond Ataxia UK
Note: This job description sets out the duties of the post at the time it was drawn up. Such duties may vary from time to time without changing the general character of the duties or the level of responsibility entailed. Such variations are a common occurrence and cannot themselves justify a reconsideration of the grading of the post. Ataxia UK reserves the right to update the Job Description from time to time to reflect these changes in or to the post after consultation about any proposed changes.
Person specification
Qualifications and experience
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Degree and higher degree in a relevant biological science or in medicine (PhD desirable)
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Experience of working in a research environment, in a hospital or for a medical research charity
Essential Skills
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Ability to write clear, concise, accurate English
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Ability to communicate effectively with both researchers and lay people
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Ability to do oral presentations to large audiences
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Ability to work independently
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Excellent organisational skills
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Ability to use Microsoft Office packages
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Ability to maintain databases and generate reports
Perspectives
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Support for the ethical use of animals in medical research and human embryonic stem cell research
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Commitment to diversity and inclusion and knowledge and understanding of the barriers faced by people with a disability
Personal qualities
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Flexible approach to work
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Adaptable to changing working hours to support work with international partners
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Willing to travel nationally and internationally with overnight stays
Benefits of working for us
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25 days annual leave pro rata (rising to 30 with a length of service)
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Extra holiday day for your birthday
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Access to a free Employee Assistance Programme & Employee Hotline
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Flexible hybrid working
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Pension scheme
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Enhanced maternity and co-parental leave
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Cycle to work scheme
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Training and development opportunities
Accredited Living Wage Employer
Please submit a cover letter explaining how you are suitable for the post and why you are interested in applying to be a Research Manager at Ataxia UK.
We are planning on holding the interviews on 6th October.
Registered Charity 
11 - 20
The client requests no contact from agencies or media sales.
Thank you!
Research Programme Manager – Mental Health Advert
Contract: Fixed-term contract for 2 years (with the possibility of extension of up to a further 12 months)
Hours: 28 hours per week (FTE is 35 hours per week)
Location: London (hybrid), with occasional travel within the UK)
Salary: £52,467 (FTE £65,584)
Closing date: 23rdSeptember 2026
Interview Dates: Week Commencing 28th September (London Office)
Freedom from Torture has an exciting opportunity for a Research Programme Manager to join our team and play a central role in delivering an innovative international mental health research programme funded by a major UK research funder. The programme will explore whether artificial intelligence can safely and effectively support survivors of torture with managing distressing memories. Survivor co-design is central to the programme, ensuring that people with lived experience across diverse cultures, languages and backgrounds meaningfully shape innovation in mental health.
About us
Freedom from Torture is an established charity that has been supporting survivors of torture for over 35 years and has a dedicated donor base. We are committed to providing high-quality, evidence-based interventions for people who have survived torture. We provide therapies to improve physical and mental health, medically document torture, and offer legal and welfare support. Our clinical model has been co-designed with survivors of torture and includes a range of interventions, including trauma-focused therapy, psychotherapy, family and couple systemic psychotherapy, group work, pain management and health assessment.
In addition to our treatment services, we expose torture globally, campaign for the rights of survivors and work to hold torturing states to account. We use evidence from our services and survivor voices to influence national and international change, placing survivors at the centre of everything we do.
Our current strategy seeks to increase access to rehabilitation services for survivors of torture, strengthen our clinical excellence through research, and explore innovative models of service delivery that enable us to reach more people in need. This includes developing research partnerships and innovation opportunities that advance knowledge, improve practice and create meaningful impact for survivors. We undertake our work under our four core values of Hope, Compassion, Empowerment and Resolve. This is an exciting time to join Freedom from Torture and make a meaningful contribution to our future development.
We offer a competitive package, with a generous 30-day annual leave entitlement (pro rata), 6% employer pension contribution, and flexible and hybrid working arrangements.
About the role
This is a senior research programme management role supporting the delivery of a major externally funded health research programme involving multiple organisations, international collaborators and diverse stakeholder groups. The programme includes research involving human participants and brings together expertise from universities, charities, clinicians, researchers, technologists and people with lived experience.
A defining feature of this programme is its commitment to survivor leadership and co-design. Survivors of torture will play an active role in shaping, informing and governing the research throughout its lifecycle. The successful candidate will therefore work closely with survivor advisors, co-design groups and governance structures to support meaningful participation and ensure that lived experience perspectives are incorporated into programme decision-making, research development and delivery. This commitment to participation is central to the ethos, methodology and success of the programme.
Reporting to the Principal Investigator, the Research Programme Manager will act as the central coordination point across the consortium and will be responsible for leading programme planning, coordinating international partners, supporting governance structures, managing funder reporting and compliance, coordinating financial oversight, supporting research governance and ethics, monitoring programme risks and preparing high-quality reports and briefings for funders, governance bodies and senior stakeholders.
The successful candidate will work closely with Freedom Fron Torture colleagues across clinical services, survivor leadership and empowerment, fundraising, finance, research partners and organisational leadership to ensure successful delivery of programme objectives. This role offers a rare opportunity to work at the intersection of health research, innovation, survivor involvement and international collaboration.
About you
You will be an experienced programme or project management professional with a track record of delivering complex health research programmes. You will have experience of managing externally funded research programmes, working with major research funders, coordinating activity across multiple organisations, supporting governance structures, managing risk and assurance processes, and contributing to financial monitoring and reporting.
You will understand the importance of meaningful involvement of people with lived experience in research and service development. You will have experience of supporting inclusive engagement, co-design, consultation or participation activities and be committed to ensuring that diverse voices influence decision-making, governance and programme delivery.
You will bring excellent communication and relationship-management skills, with the ability to work confidently with academics, clinicians, funders, people with lived experience, senior organisational leaders and colleagues across different professional backgrounds. You will be organised, proactive and able to exercise sound judgement in a complex and fast-moving programme environment.
This role would particularly suit candidates from university or health providers research management, major health research funders, and mental or physical health clinicians with substantial research management experience.
In Return
In return, we offer a competitive package, with a generous 30-day annual leave entitlement, and 6% employer pension contribution (minimum 1% employee contribution).
Freedom from Torture is committed to showing the salary for all advertised roles and not negotiating salaries for roles, in light of evidence that this contributes to structural inequality.
Our policy is that all appointments will be at the start of the salary range but successful candidates will have the opportunity to move up the scale over time. The progression up the salary range is reviewed on an annual basis and subject to affordability. For this role, the salary range is £52,467 per annum to £60,861 per annum (FTE £65,584 to 76,077).
To view the Job Description and Person Specification, please click here
Freedom from Torture is dedicated to healing and protecting people who have survived torture. We provide therapies to improve physical and mental health, we medically document torture, and we provide legal and welfare help. We expose torture globally, we fight to hold torturing states to account and we campaign for fairer treatment of torture survivors in the UK.
We campaign for national and global change, using evidence from our services and survivor voices to protect and promote survivors' rights and hold torturing states to account. We are proud to play a significant role in the global anti-torture movement. Survivors, active and empowered, are at the centre of all of our work.
Freedom from Torture is committed to its responsibilities under safeguarding and expects all staff and volunteers to share this commitment. This post is subject to a satisfactory enhanced DBS/PVG disclosure, as well as a full employment history and up-to-date employment references.
Freedom from Torture is an equal opportunity employer. People with lived experience of torture or asylum, from Black, Asian and minority ethnic backgrounds, LGBTQIA+ individuals and people with disabilities are strongly encouraged to apply.
Please note that a CV and a cover letter addressing the Job Description and Person Specification are mandatory to be considered for this position.
We reserve the right to close the vacancy early if we receive a high volume of applications.
No agencies please.
The client requests no contact from agencies or media sales.