Research officer jobs in peterborough, cambridgeshire

Job Title: Policy & Research Officer
Location: Remote (with UK and international travel, candidate must be UK-based)
Hours: Full-time  
Salary: £30,000 - £33,000 
Reports to: Head of Insight & Advocacy 

About Us 

Metabolic Support UK is the leading organisation for people living with inherited metabolic disorders (IMDs) and their families. We provide expert support and advocacy, champion research, and work with health services and policy-makers to ensure people with IMDs and their families get the care they need and deserve. 

The Role 

We are looking for a curious and committed Research & Policy Officer to help us build the evidence base to improve the lives of people affected by IMDs. Reporting to the Head of Insight & Advocacy, you will play a key role in delivering our research projects, keeping tabs on relevant policy developments, and helping shape our responses to consultations. 

Key Responsibilities 

Research (under supervision of the Head of Insight & Advocacy): 

• Support the design, planning, and delivery of qualitative and quantitative research projects 

• Conduct literature reviews, stakeholder mapping, and data analysis 

• Contribute to survey development, focus groups, and interviews with people living with IMDs, families, clinicians and other stakeholders 

• Assist with analyses and write up findings in accessible and engaging ways for different audiences 

• Ensure all research is ethical, inclusive, and relevant to the needs of the IMD community 

Policy Monitoring and Response: 

• Track developments in policy relevant to rare diseases and inherited metabolic conditions 

• Summarise key policy updates for internal and external audiences 

• Support the drafting of consultation responses, position statements, and policy briefings 

• Contribute to campaigns, stakeholder engagement, and policy influencing activities 

• Help ensure the voice of the IMD community is reflected in national and local policy discussions 

About You 

We are looking for someone who is: 

• Organised, analytical, and enthusiastic about improving lives through research and policy 

• A strong communicator – able to write clearly and concisely for different audiences 

• Comfortable working with data, both qualitative and quantitative 

• Keen to learn, with some experience in research or policy (academic, charity, health, or public sector settings) 

• A team player who enjoys collaborating and supporting others 

Desirable experience: 

• Background in public health, health policy, social research, or similar 

• Experience working with or for people living with a disorder, carers, or people with rare or long-term conditions 

• Familiarity with the NHS, health inequalities, or rare disease policy 

What We Offer 

• A chance to make a meaningful difference in a growing, agile charity 

• A friendly and supportive team culture 

• Flexible working arrangements 

• Opportunities for learning and professional development 

Flexible home working, with requirement for travel to BDA Office Birmingham twice a month.

Salary £50,755 per annum - full time 36 hours per week (job share will be considered)

Benefits include: 30 days holiday, working flexibly policy, non-contributory healthcare benefits and a company pension scheme.

Deadline for applications:    Friday 23rd May 2025

Interview Date:  Thursday 5th June 2025

We are the British Dietetic Association (BDA). We are an award-winning not-for-profit organisation, based in Birmingham, employing dedicated, dynamic and professional staff who deliver services for our membership of more than 12,000 dietetic professionals.

We are the leading organisation of nutrition professionals in the UK; representing the entire nutrition and dietetic workforce across all sectors. Our vision is to improve the health of the UK population by protecting and improving health and care services, developing health and social care policy, improving the impact of dietetics and promoting positive discussion on food, nutrition, wellbeing and health.

Role details:

The BDA is seeking a new Research Manager to work as part of the Education and Professional Practice Team, leading on the research and impact activities of professional dietetic practice. The role will also provide line management within the team.

The role will support the BDA’s Strategic Plan 2024-34 and lead the growth and delivery of the annual Research Symposium. The role will suit a candidate with a sound understanding and experience of the breadth of dietetic practice and research, and the factors that influence it. Working innovatively the post holder will develop and progress research within dietetic practice, building confidence in the dietetic workforce to be research active.  

 Ideal candidate:

We are looking for somebody who is an expert in research methodologies, and appraisal and is comfortable setting and influencing research strategy.  Ideally we would like somebody who has or is studying for their doctorate in dietetics and experience working in a practice setting would be advantageous. This is a senior internal and external facing role working alongside the Director of Education Practice and Research, and the Education and Practice Managers. The candidate will enjoy supporting colleagues and members to engage and deliver research related projects, and demonstrate impact through evidence-based practice.

In return, we offer exciting opportunities to raise the profile of research, innovate, and build purposeful external stakeholder relationships. The BDA have a collection of small departments who all work closely together and have a ‘one team’ ethos. The role will require somebody who enjoys the challenges that come with delivering and reporting on strategic targets and measuring impact.

For full details of the role, please download and refer to the Job Description.

We would strongly encourage any dietitian interested in the role to contact the BDA for an informal, confidential discussion about this post and opportunities for flexible working. Please refer to our website for contact details.

The job advert is shown on the BDA website, and for discussion about the role, please telephone the Birmingham office number and ask for Najia.

Please note: Only applicants who submit a covering letter will be shortlisted for interview.

The Casework and Research Manager will lead Humanists International's efforts in supporting Humanists at Risk through strategic engagement, research, and the management of key publications, particularly the Freedom of Thought Report. This role involves coordinating all Humanists at Risk support in accordance with the organization's new two-tiered strategy (https://humanists.international/blog/a-necessary-evolution-in-our-support-for-humanists-at-risk/), direct liaison with stakeholders, contributing to organizational strategy, and line management responsibilities.

Key Responsibilities:

• Coordinate and oversee the delivery of General Support to Humanists International's Members and Associates worldwide, including the provision of advice, guidance, and signposting to relevant resources.

• Coordinate the provision of direct, individualized casework support to leaders and officers of Humanists International's Member and Associate organizations who are facing significant risk due to their humanist activities or identity. This includes assessing needs, developing support plans, and ensuring timely and effective intervention.

• Develop and implement training programs for members and associates to enhance their capacity to support humanists at risk within their communities.

• Foster and strengthen partnerships with other human rights organizations to maximize the collective impact of our support efforts.

• Contribute to the development and maintenance of a comprehensive online resource library providing information on safety, security, advocacy, and support for humanists globally.

• Liaise and collaborate with staff in other humanist organizations to ensure coordinated and effective support for individuals at risk, aligning efforts with the new strategic framework.

• Develop and deliver fortnightly briefings to internal staff on relevant casework and risk-related matters, including updates on the implementation of the new support tiers.

• Prepare and present regular reports, statistical analyses, and updates on Humanists at Risk, and the effectiveness of the new support strategy, to the CEO and Board of Directors.

• Represent Humanists International at key stakeholder meetings, including platforms such as the EU Temporary Relocation Platform, building and maintaining effective relationships while articulating our revised approach to support.

• Lead the collection of compelling testimony and documentation for the Humanists at Risk campaign and the Freedom of Thought Report.

• Manage, edit, and oversee the entire production cycle of the Freedom of Thought Report, ensuring its accuracy, quality, and timely publication.

• Provide overall project management and strategic direction for the Freedom of Thought Report, including budget oversight and timeline management.

• Work collaboratively with the Fundraising and Communications Officer to ensure the research and findings effectively inform fundraising and public awareness initiatives.

• Directly line-manage and mentor the Freedom of Thought Report Researcher, providing guidance and support to ensure high-quality research output.

• Act as a representative for their area of work on the Management Team, actively contributing to strategic planning, policy development, best practice implementation, budgeting processes, and organizational decision-making, particularly in relation to the Humanists at Risk program.

• Manage and monitor relevant project budgets, ensuring responsible and effective resource allocation for both general support initiatives and any limited individual casework.

• Provide direct line management to staff, consultants, paid interns, and volunteers as required, fostering a productive and supportive working environment.

• Attend relevant conferences, seminars, and other events to raise awareness of the challenges faced by Humanists at Risk and promote Humanists International's work, clearly articulating our new strategic approach to support.

Person Specification:

Essential:

• Education: A Master's degree in International Law, International Relations, Human Rights, or a closely related field; OR a Bachelor's degree in a relevant field with a minimum of 3 years of demonstrable experience in a related role.

• Strategic Understanding: A clear understanding of strategic planning and the ability to implement organizational strategies within their area of work.

• Legal Expertise: Excellent understanding of international human rights law, and refugee and asylum law and frameworks.

• Communication Skills: Exceptional written communication skills and an excellent command of English (native or near-native proficiency).

• Language Skills: Fluency in other languages, particularly French, Spanish, or Arabic, is a significant asset.

• Casework Coordination/Management Experience: Proven experience in coordinating or managing casework or support programs, ideally within a human rights, equality, or asylum-related context.

• NGO Knowledge: A strong understanding of the landscape of international non-governmental organizations, their roles, and their operational scope.

• Analytical and Synthesis Skills: Demonstrated ability to synthesize complex information from various sources and communicate it clearly and effectively to both specialist and non-specialist audiences.

• Analytical Skills: Excellent analytical and problem-solving skills.

• Research and Drafting Skills: Strong research, analytical, and drafting skills with a proven ability to produce high-quality written materials.

Desired:

• Humanist Knowledge: Experience with or a strong understanding of humanism and the role and objectives of humanist organizations.

• Alignment with Values: Excellent understanding of, and demonstrable sympathy with, the philosophy, values, and policies of Humanists International.

• Organizational Skills: Highly organized, efficient, and able to work independently, managing multiple priorities effectively.

• Communication Style: A clear, persuasive, and confident communicator with strong interpersonal skills.

Sepsis Research, FEAT is a dynamic and ambitious charity dedicated to combating sepsis through awareness, innovative research, and community support. Founded in 2013 by a sepsis survivor, Sepsis Research FEAT is dedicated to combating sepsis through awareness, innovative research, and community support. The charity funds world-leading research to improve sepsis outcomes, runs public awareness campaigns, and engages with patients, carers, and healthcare professionals. Recent achievements include identifying top research priorities with the James Lind Alliance and delivering educational initiatives across the UK. Their vision is to #stopsepsisnow and make significant strides against this 'hidden killer'. We are currently seeking a visionary and strategic leader to join our team as CEO (Freelance), with the goal of scaling our operations and increasing our annual turnover from £300k to £1M by 2030.

Key Responsibilities:

· Advocacy and Representation: Act as the public face of the charity, representing its interests at events, in the media, and with policymakers.

· Strategic Leadership: Develop and implement a comprehensive growth strategy to achieve the charity's financial goals.

· Fundraising and Development: Lead fundraising initiatives, including donor engagement, grant applications, and corporate partnerships.

· Financial Management: Oversee the charity's financial health, ensuring effective budgeting, financial planning, and reporting.

· Team Management: Inspire, mentor, and manage a dedicated team of staff and volunteers, fostering a positive and productive work environment.

· Stakeholder Engagement: Build and maintain strong relationships with key stakeholders, including donors, partners, and the community.

· Operational Oversight: Ensure the efficient and effective operation of the charity, including program delivery, compliance, and risk management.

Qualifications and Experience:

· Proven experience in a senior leadership role, preferably within the non-profit sector.

· Demonstrated success in fundraising and revenue generation.

· Strong financial acumen and experience in financial management.

· Excellent communication and interpersonal skills.

· Ability to think strategically and drive organizational growth.

· Passion for the charity's mission and values.

Personal Attributes:

· Visionary and strategic thinker

· Inspirational and motivational leader

· Strong ethical standards and integrity

· Collaborative and team-oriented

· Resilient and adaptable

Introduction to TDS

TDS is a not-for-profit organisation with a clear social purpose: to raise standards in the private rented sector. Established to create a fairer and more professional rental market by protecting deposits and resolving deposit disputes, TDS has since expanded its mission. Today, we invest in a range of additional services and initiatives that further our commitment to improving the sector.

Key initiatives relevant to this role include:
- Developing an influential research programme to ensure that laws and regulations are informed by robust evidence.
- Funding a range of projects and organisations through our two independent charities.
- Leveraging our direct communication channels with millions of tenants, landlords, and letting agents to educate and inform all parties.

JOB DESCRIPTION

Key initiatives relevant to this role include:
- Developing an influential research programme to ensure that laws and regulations are informed by robust evidence.
- Funding a range of projects and organisations through our two independent charities.
- Leveraging our direct communication channels with millions of tenants, landlords, and letting agents to educate and inform all parties.

Introduction to the Role

We are looking for a Research and Policy Officer (Maternity Cover) to join our expanding Policy and Research department, which also oversees the TDS Charitable Foundation. This is a pivotal role supporting our mission to improve standards in the private rented sector through impactful research, thought leadership, and policy engagement.
The successful candidate will play a key part in delivering our research programme, including overseeing flagship projects like the Voice of the Tenant and Voice of the Landlord surveys, and producing high-quality qualitative and quantitative research.

You will also support the smooth running of the Charitable Foundation’s grant-making and governance activities and contribute to our work influencing policy and practice across the UK’s private rented sector.
This is a great opportunity for someone passionate about housing, with a solid grounding in research and an interest in policy, to join a values-driven organisation delivering real-world impact.

PRINCIPAL RESPONSIBILITIES

Research
1. Collaborate with external research contractors to deliver the regular ‘Voice of the Tenant’ and ‘Voice of the Landlord’ Survey.
2. Ensure the research findings are widely disseminated through different channels, including events, publications, briefings and digital content.
3. Help identify research gaps and contribute to the development execution of new research projects or commissioning of external research.
4. Conduct proactive desk-based research to identify emerging trends, new policy developments, and partnership opportunities relevant to the Foundation and the sector.
5. Undertake in-house research activities, such as literature reviews, focus groups, stakeholder interviews, where required.
6. Contribute to the drafting and production of high-quality research reports and briefings, ensuring clarity, accessibility, and relevance for policy and practice audiences.

Policy
7. Monitor and analyse relevant legislative and regulatory developments, consultations, and debates, identifying implications for the sector and TDS’s work.
8. Support the development of TDS’s policy positions by preparing briefings, drafting responses to consultations, and summarising evidence from research.
9. Help communicate TDS’s policy insights and positions clearly and effectively to internal stakeholders, partners, and decision-makers.

Charity co-ordination
10. Act as a key point of contact for grant-funded projects, supporting projects to share progress and impact, and identify any support needs.
11. Help to Coordinate the TDS Charitable Foundation’s quarterly Board of Trustee meetings, including preparing board papers, taking minutes, and following up on actions.

PERSON SPECIFICATION

Essential characteristics

1. Qualifications and experience
Essential:

• Educated to degree level in a relevant subject.
• At least 3 years’ experience in research, social policy or similar role (or equivalent post-graduate study).
• Knowledge of research design
• Proven track record of producing content to communicate to different audiences.
• Experience of building relationships with external stakeholders.

Desirable:

• Knowledge of the housing sector or charitable work.

2.  Job Knowledge
Must be able to:

• Demonstrate excellent verbal and written communication skills.
• Show an ability to build relationships with stakeholders.
• Demonstrate organisational skills to help coordinate multiple projects.
• Utilise strong IT skills including sound knowledge of MS Office.
• Prove ability to write content for different audiences.

3. Communication
Must be able to:

• Work as part of a team;
• Have good interpersonal skills, communicating effectively with colleagues, funded projects and other stakeholders.

4. Equal Opportunities

• Must be able to demonstrate a commitment to equal opportunities, diversity and inclusion.

5. Required behaviour and attitude

• Applicants must be able to:
• demonstrate an affinity for customer excellence
• recognise the importance of fairness in all of our work
• demonstrate how they are making a difference in the work that they do
• is able to articulate the importance of teamwork
• are committed to excellence in all that we do;
• help create a great place to work.

TDS offers a plethora of benefits inclusive of:

• 33 days holiday inc bank holidays
• BUPA Private healthcare
• BUPA Wellbeing cash plan
• Pension Scheme
• Additional day off for your birthday
• Plus many more!

Hours of the role
35 hours per week. Monday to Friday, 9am to 5pm.

To apply, please submit your CV and a covering letting outlining how your skills and experience match the person specification.

TDS is committed to equality, diversity and inclusion in our workforce and to be truly representative of all sections of society and our customers.

About the Degrees Initiative  

The Degrees Initiative is a UK-based NGO that builds the capacity of developing countries to evaluate solar radiation modification (SRM), a controversial proposal for reducing some impacts of climate change by reflecting sunlight away from the Earth. Degrees is neutral on whether SRM should ever be used, but we believe that developing countries should be empowered to conduct their own research and to play a central role in SRM discussions.  

Degrees’ programmatic work is centred on capacity-building through research grants and North–South and South-South collaboration schemes, outreach activities, and cross-cutting community-building. As part of this, Degrees runs workshops in the Global South that bring new voices into the SRM conversation, and our research funds support scientists and other experts in developing countries as they research what SRM could mean for their regions and become part of a global research community.

The Programmes Officer role offers a fantastic opportunity for the right candidate to help scale up the organisation’s work, building on the successes of the last decade, and to help the most climate-vulnerable countries make their own minds up about SRM.  

the3million is the largest grassroots organisation for EU citizens* in the UK, formed after the 2016 referendum to protect the rights of people who have made the UK their home. 

Our work ranges from organising EU citizens’ communities and informing people about their rights, to holding the Government to account on the implementation of the Withdrawal Agreement and advocating for social justice.

We are now looking for a Research and Policy Manager to lead on evidence-based research and support in the analysis of government policy and legislation which impacts EU citizens in the UK. 

We are looking for a creative problem solver who is detail orientated and approaches research through an investigative lens. 

This work often intersects with the wider issues of social justice, migrant rights, race equality, and data rights. 

You will work closely with the Head of Policy and Advocacy to direct strategic research initiatives, presenting recommendations to influence decision-makers and guide advocacy efforts, ensuring the3million’s campaigns are informed and led by robust evidence of EU citizens’ lived experience. 

*the3million uses ‘EU citizens’ as shorthand for EU, EEA and Swiss citizens who were resident in the UK before 31 December 2020, and their family members (of any nationality) with derived rights.

Main duties and responsibilities: 

1. Strategic research and issue analysis

You will lead on the3million’s research, working closely with the Head of Policy and Advocacy to ensure our work is shaped by lived experience, analysing issues experienced by EU citizens related to applying for immigration status, proving their rights and accessing services in the UK. 

• Collect, analyse and categorise issues raised by EU citizens through the3million’s reporting channels, including highlighting correlations to equality characteristics such as race and ethnicity, age, gender etc (including our ReportIt! system, email, social media and listening campaigns). 
• Interview EU citizens who report issues, sharing information about rights, signposting to relevant legal advice organisations.
• Identify trends in the challenges faced by EU citizens, documenting these in detail, analysing systemic issues.
• Provide strategic guidance on how research findings can inform the3million’s advocacy, campaigns and communications activities.

2. Policy development and advocacy

• Contribute to the production of high-quality policy briefings, reports and strategic recommendations that are clear, actionable and directly relevant to stakeholders including the Government.
• Support in the research and analysis of government policy developments, legislative changes and public consultations affecting EU citizens in the UK, specifically on areas related to immigration and welfare, assessing their potential impact.

3. Report writing and presentation 

• Lead on the development of in-depth reports and support in the production of policy papers and position statements, presenting complex data into clear and accessible documents.
• Present research findings and policy recommendations at meetings and events, effectively communicating complex issues to audiences. 
• Contribute to the production of advocacy materials, including media briefings, campaigns’ resources and informational content for the3million’s website, social media channels and for event distribution.

4. Stakeholder engagement 

• Build and maintain relationships with key stakeholders, including civil society organisations and other advocacy groups.
• Collaborate with other team members within the organisation to ensure research and policy recommendations are effectively integrated into the3million’s community organising activities, campaigns and strategic communications.

5. Monitoring and evaluation 

• Report on the progress and outcomes of research and policy activities regularly, within the organisation and to the3million’s funders. 

6. General responsibilities 

• Represent the views of the3million in the media, when appropriate.
• Provide assistance in other areas of the3million’s work as and when deemed necessary by the CEO.

Person specification 

Knowledge and experience:

• Experience (2+ years) working within research or investigative settings 
• Proven track record in producing research reports and presenting research findings

Skills: 

• Expertise in investigative research and analysis, including the ability to summarise complex information and communicate it effectively to different audiences
• Excellent attention to detail 
• Excellent writing skills, with the ability to produce high quality reports and other written materials
• Strong presentation skills
• Ability to build rapport with research participants through individual or group interviews
• Proficient in using spreadsheets for data analysis
• Awareness of research ethics and data protection

Personal attributes: 

• A deep commitment to migrants’ rights and a passion for social justice
• Ability to manage multiple priorities, work independently and thrive in a fast-paced environment
• Strong interpersonal skills, with the ability to engage effectively with diverse stakeholders, external partners, and community groups

Desirable 

• Experience working on immigration policy, human rights, or social justice
• Experience of obtaining information through Freedom of Information requests 
• Experience of building research tools and developing creative methods and techniques of research
• Knowledge of the Citizens’ Rights Part Two of the Withdrawal Agreement, its current implementation in the UK, and the EU Settlement Scheme

Before you apply

One of the3million’s core values is equity - we are people led, we value diversity and are enriched by differences. We strive to listen to, engage with and represent the broadest range of people. 

We recognise our team is not currently representative of communities that experience racism and that our own ways of working may replicate wider societal oppression and injustices. We are actively working towards becoming an anti-oppressive organisation, including taking steps to create a more inclusive recruitment process.

You may not have worked in an organisation whose focus is campaigning for migrants’ rights. Or you may have experience in a grassroots setting which is not formalised. Please still consider applying as many other settings offer transferable skills.

If you are from a background that is underrepresented in the migration sector - for example you are from a community that experiences racism, or you have lived experience of migration, or you are a disabled person, or you did not go to University or had free school meals as a child - we strongly encourage you to apply.

We believe our work will be stronger with greater diversity. the3million welcomes the whole person to work, and we understand that each of us brings our experiences, our backgrounds and our own unique lens to what we do.

Working conditions

Position: Full time 
Duration: Initial 12 months contract, with possibility of extension, subject to funding
Salary: £38,419 per year
Location: Remote, must be UK based. Travel may be required (all travel expenses covered)
Benefits: 28 days holiday + bank holidays, contributory pension scheme, flexible working patterns.
Reporting to: Head of Policy and Advocacy
Preferred start date: 7th July 2025
Interviews will be held on 28th, 29th and 30th May.

About Twins Trust

Twins Trust is at the heart of the multiples’ community, supporting families with twins or triplets, influencing the healthcare system and campaigning on behalf of our community.

Multiple birth families face unique challenges and we’re there for them, every step of the way. With over 40 years’ experience, we tailor our services to our families’ needs. 

Twins Trust has over 15,000 members who access our amazing community, information and courses and exclusive discounts.

Fundraising Officer

This is an exciting opportunity to join an ambitious and talented fundraising team

We are looking for an experienced Fundraising Officer to join our small and friendly fundraising team. You will support the High Value Partnerships Manager and Community Fundraising Manager, both of which are already well-established income streams with lots of great potential. It’s a great opportunity to work across varied income streams including Corporate, Trusts & Grants, Community, Fundraising Events and Individual/Regular Giving.

Contract: Permanent
Hours:  37 hours per week (negotiable for the right candidate)
Flexibility: We are a flexible employer and most of our staff are juggling things (including caring for multiples!) We are great at making jobs work around life.
Salary: £24,000 - £27,000
Reports to: Community Fundraising Manager  
Work location: Hybrid/remote. Office space in London Bridge, although entirely remote option is fine. Travel to partner meetings/events will also be required.
Closing date: Sunday 8th June
Interview dates: First-round interviews will be virtual and take place in mid June

Purpose of the role

• Reporting to the High Value Partnerships Manager you will provide support across our two priority Fundraising streams – Community Fundraising (Community, Events and Individual/Regular Giving) and High Value Partnerships (Trusts, Grants, Corporate and Sponsorship).
• Conducting prospect research (Corporate and Trusts/Grants) creating a pipeline of targeted opportunities, and submitting applications for lower level funding
• Providing excellent relationship management to those in our community who fundraise for us, whether that’s as a Regular Giver or Marathon runner
• Providing support to the Manager planning Fundraising Events, recruiting participants, attending and cheering on our fundraisers and thanking our supporters
• Accountable for delivering our annual raffle and ongoing Lottery programme
• Support the wider Development team with admin relating to Fundraising

Ideal candidate

The ideal candidate will have experience either in supporting the delivery of High Value partnerships or Community Fundraising. They will be able to demonstrate how they have researched partnerships and/or submitted funding applications, providing excellent stewardship and creating meaningful partnerships that lead to long term support for the charity.

Person specification

Essential

• Experience of donor stewardship
• Excellent relationship building skills
• Ability to research and find vision aligned funders
• Ability to project manage the delivery of partnerships and/or events
• Excellent writing, communication skills and attention to detail
• Able to collaborate with a team of various disciplines or work independently as required
• Ability to multi-task and manage several different priorities at once
• Enthusiasm for the issues we work on

Desirable

• Working understanding of admin processes relating to fundraising
• An understanding of GDPR in relation to fundraising
• Experience working in a CRM (Microsoft Dynamics experience a plus)

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases. 

Are you a visionary, hands-on leader with a bold passion for transforming childhood cancer outcomes? We're looking for a driven and dynamic CEO to lead our small but mighty charity through its next phase of growth and impact.

As CEO, you will shape and execute an ambitious strategy to accelerate change in the childhood cancer space—through fundraising and grant-giving, policy influence, partnerships, and compelling digital storytelling and campaigning. This is a rare opportunity to lead from the front, catalyse meaningful change, and work directly with researchers, funders, and leading hospitals and universities.

Key Responsibilities

• Lead the charity with integrity, compassion, and vision—building a high-impact organisation centred on outcomes and change.

• Manage the Azaylia PhD Scholarship grant-giving fund with transparency and in alignment with the charity’s funding criteria.

• Design and execute a robust income strategy across corporates, trusts, foundations, major donors, crowdfunding, events, and sponsorships.

• Leverage your network to secure and steward significant gifts and partnerships, particularly in the childhood cancer space.

• Develop digital and in-person campaigns that inspire action, influence policy, and build coalitions for change.

• Actively engage in every aspect of the charity’s operations—from strategy to hands-on delivery, in a lean and resource-limited environment.

• Guide our growing social media presence with a focus on mission-driven engagement, supported by data and storytelling.

• Build strong relationships with high-profile ambassadors, media, and influencers to amplify our voice and cause.

• Ensure financial sustainability through effective planning, budgeting, and income diversification.

• Create a purpose-driven, supportive, and high-performing team culture rooted in transparency, equity, and empathy.

Ideal Candidate Profile

• Proven success in multi-channel fundraising, with a track record of securing and growing major gifts.

• Existing relationships with high-net-worth individuals, foundations, and stakeholders in the childhood cancer space.

• Deep understanding of systems change, with experience in driving policy and institutional transformation.

• Professional experience in the childhood cancer, paediatric healthcare, or rare disease sector.

• Expertise in financial management, charity governance, and regulatory compliance.

• Excellent leadership and team-building skills with the ability to nurture and retain top talent.

• Confident operating autonomously in a remote setting, with strong organisational and self-management abilities.

• Passionate about eradicating childhood cancer and creating systemic change for affected families and communities.

What We Offer

• A unique leadership role with high visibility and potential for sector-wide impact.

• Flexibility in a remote working environment, with occasional domestic travel.

• A passionate, values-driven team committed to collaboration, bold thinking, and impactful outcomes.

About The Azaylia Foundation

The Azaylia Foundation was founded by Ashley Cain and Safiyya Vorajee after the passing of their eight-month old daughter, Azaylia. Childhood cancer is the number one killer of children in the UK, yet it receives less than 3% of cancer research funding. Backed by a large community of supporters, The Azaylia Foundation is committed to reversing this systemic underfunding through advocacy, PhD research grants, and family support for treatments not freely available via the NHS. Our flagship programme, The Azaylia PhD Scholarship Program, aims to fund 20 new childhood cancer PhDs and their research over a period of 5 years.

Harris hill is seeking a Partnership and Philanthropy Officer for up to 6 months, 22.5hpw, to support a charity in Bath, although ideally hybrid, will consider remote based.

The role is to be payrolled via the agency however, they are also considering freelancer who would like to bill them directly. The pay rate is £15.77ph plus holiday pay, or £20.86ph freelance.

Duties:

To work with our Senior Philanthropy Specialist, Database Manager and Supporter Engagement Team to identify new potential major donors from our database
To support in organising cultivation events for P&P Team audiences both in-person and online
To help prepare written updates and reports for our stakeholders
To undertake research on individuals, corporates, trusts and foundations
Undertake any other reasonable tasks as requested by managers.

Experience and skills

Strong interpersonal skills
Strong research skills
Ability to prioritise own workload to meet targets and deadlines
Excellent organisation and administrative skills, with high standards of accuracy and attention to detail.
Ability to work with and understand data.
Excellent time-management skills.
IT proficiency to a self-supporting standard in Microsoft Office applications (MS 365, MS Dynamics).
 

Knowledge
Effective use of research to find suitable funding opportunities
Appreciation of the use of technology and automation to support fundraising.
Personal Attributes
Team player happy to support colleagues across the team.
A confident individual, who is able to prioritise their work and is target driven and solution focused.
Self-motivated and able to work effectively remotely.
Resilience, determination, enthusiasm and the ability to cope well under pressure.
 

Desirable
Previous fundraising experience in Philanthropy, Trusts and Foundations, and / or Corporate.

If you would like to find out more about this amazing role, please apply for further information.

Salary: £39,000 - £43,000 depending on experience
Location: Contracted to our Peterborough office with the flexibility for hybrid working
Hours: Full time, 37.5 hours per week
Benefits: We want all our employees to feel valued and engaged and are committed to offering a positive working culture along with a good work-life balance. As well as ensuring they pay their employees fairly, they offer the following benefits: Flexible working, Generous annual leave, Private Medical Insurance, including dental and optical, Pension Scheme, Sick Pay, Death in Service, Employee Assistance Programme, Bike Loan Scheme, Cycle2Work Scheme, Eyecare, Discount Portal.

Closing date: Wednesday 14 May 2025

Telephone interviews will be held week commencing 19 May 2025

Interviews will be held week commencing 26 May 2025 in our office in Peterborough

No agencies please

Be a part of an energetic and vibrant team who are driven by the desire to improve the lives of people living with kidney disease. Our vision is the day when everyone lives free from kidney disease.

The Health data specialist will play a key role in our ambitious 2020-2030 strategy. We're seeking a passionate and detail-oriented individual who thrives on leveraging health data to drive positive change.

In this new role, you’ll ensure Kidney Research UK has access to and uses external health data effectively to provide high-quality evidence and insight to a wide audience and remains intelligence-led across all its operations.

The post-holder will deliver a core health data intelligence service, ensuring the Policy, Programmes and Communications Teams, along with the wider staff group, have access to a wide range of high-quality health analytics assets. The role will lead on delivering discrete pieces of original quantitative analysis, along with supporting analytics work led by other team members. The role will also involve supporting or leading the delivery of any required data analysis or health economics work, as required.

This will include the management of our health statistics sign-off process, reviewing other colleagues’ use of quantitative health data evidence for external-facing resources and leading on commissioned health economics projects.

A commitment to continuous learning and a collaborative spirit is key. You'll possess excellent communication and problem-solving skills, with experience in Microsoft 365 applications, ideally including Power BI, Excel, and SharePoint. Confidence querying databases is equally important, as is the ability to collaborate effectively with a diverse range of data owners and stakeholders.

The ability to showcase insights through clear and informative visualisations - charts, tables, and dashboards - is essential for both internal and external audiences.

If you are interested in the position, please complete the online application form and submit together with your CV.

We are committed to providing equal opportunities for everyone and encourage applications from all sections of the community.

About Kidney Research UK:

Kidney Research UK is the leading charity in the UK focused on funding research into the prevention, treatment and management of kidney disease. Our vision is the day when everyone lives free from kidney disease and for more than 60 years the research, we fund has been making an impact. But kidney disease is increasing as are the factors contributing to it, such as diabetes, cardiovascular disease and obesity, making our work more essential than ever.

At Kidney Research UK we work with clinicians and scientists across the UK, funding and facilitating research into all areas of kidney disease. We collaborate with partners across the public, private and third sectors to prevent kidney disease and drive innovation to transform treatments.

Over the last ten years we have invested more than £71 million into research. We lobby governments and decision makers to change policy and practice to ensure that the estimated 7.2 million people living with all stages of kidney disease in the UK have access to the most effective care and treatment, and to make kidney disease a priority.

Most importantly, we also work closely with patients, ensuring their voice is heard and is at the centre of everything we do, from deciding which research to invest in to how we plan our priorities and our work across the charity.

Those patient contributions are vital, always helping us and our partners to understand what life is like with kidney disease, always ensuring we see the patient behind the treatment and always reminding us that behind every statistic and every number is a person – the patients and the carers who inspire our mission and push us forward to make a difference and change the future of kidney disease.

You may also have some experience in the following: Health Data Analyst, Health Intelligence Analyst, Healthcare Analytics Specialist, Data Insights Officer – Health, Health Evidence & Insights Lead, Strategic Health Data Analyst, Population Health Analyst, Health Research Data Officer,  Public Health Intelligence Officer, Charities,  NFP, etc.

REF- 221 129

I am excited to be working with an amazing research-focused charity in search of a highly organised and proactive Executive Support Officer. This is an immediate start 6-month contract, the role is part-time (4 days a week), remote working with occasional/monthly travel to London and the South East. This role will see you support senior leadership and the board across governance, fundraising, communications, research coordination, events, and general operations.

Key Responsibilities
Governance & Administration
•  Organise and minute board and committee meetings
•  Maintain governance records and support trustee recruitment
•  Manage filings with Companies House and the Charity Commission
Fundraising & Events
•  Support donor communications and contact management
•  Help coordinate fundraising events and produce fundraising materials
•  Assist in preparing impact reports
Marketing & Communications
•  Maintain website and social media content
•  Disseminate research outputs and organisational updates
•  Ensure GDPR compliance across databases
Research Support
•  Assist in coordinating research meetings and participant engagement
•  Support research-related event delivery
General Operations
•  Maintain digital and physical filing systems
•  Support IT, software, and subscriptions
•  Handle general enquiries and day-to-day admin

Person Specification
Essential
•  Excellent written and verbal communication skills
•  Accurate minute-taking and attention to detail
•  Strong organisational and time-management abilities
•  Capable of independent and multitask-based work
•  Proficient in Microsoft Office and digital platforms

If you have the above skills and experience and are immediately available, please apply online today, I would love to have a conversation with you!
 

PRIMARY OUTPUTS

To contribute to raising funds through high-quality bid and application processes which includes supporting the development of funding applications, stakeholder engagement. Evaluation reports and research underpinned by excellent communication skills. 

To raise awareness of DMWS services through print, web and social media activity.

All the work must ensure that DMWS’ mission, values and aims are clearly articulated in a professional manner and that our vision for sustainability and growth to support our beneficiaries is successful.

To apply please submit a CV and covering letter explaining why you would be a good fit for the role. Please remember to click on ‘upload’ otherwise we may not receive your attachments.Applicants must hold a full UK Driving Licence and have access to a vehicle which may occasionally be required for this role.  Applications will be considered as they are submitted. DMWS reserve the right to close the application process early and feedback will only be provided to candidates who attend interviews.

Key Responsibilities 

• Contribute to the writing of consistently high-quality funding applications and bid documents which are accurate, substantiated, and contain compelling content.  Ensure these are submitted to deadline and in line with the funders criteria as well as DMWS aims. 

• Write, edit and submit evaluation reports as required by the funder – working with the Grant Manager and operational colleagues for support. 

• Develop, update, and maintain an electronic project bid library resource, including written templates and application responses. 

• Maintain an up to date register of all grant and trust fund providers applied to for projects, submission deadlines, and other relevant information, including timeframes for re-applying. 

• Research and assess potential opportunities to obtain funding from grant making trusts and foundations, organisations, in order to sustain and develop DMWS services against strategic aims. 

• Contribute to the development and updating of DMWS Website 

• Develop and promote content for DMWS Social Media channels and other communication mechanism including print and online. 

• Identify and build strong internal and external relationships. 
   

As and when required, attend at various meetings and events at headquarters or other locations. 

Work with other head office and operational colleagues to share intelligence and contribute to the delivery of DMWS Strategy and organisational sustainability. 

General Support Tasks 

• Promote the vision, mission and values of DMWS 

• Contribute creative thinking, ideas and support to colleagues to help facilitate the promotion of a positive organisational environment.

• Represent and promote DMWS and its services, working with and supporting other staff, maintaining a positive and professional approach with all contacts both internal and external. 

• Engage in, and undertake with enthusiasm, all opportunities for training and professional development in order to achieve additional skills as the role and organisation develops. 

• Adhere to the terms and conditions of employment working within the policies and procedures of DMWS. 

• Be responsible for own safety and others affected by your activities and to ensure adherence to DMWS’ policies and procedures regarding Health & Safety, GDPR, Data Protection, and confidentiality. 

• Develop and maintain effective communications within DMWS to optimise outcomes. 

• To establish and maintain links to other organisations relevant to the post, and to ensure that those links are shared as appropriate. 

• To be aware of, and work to, safeguarding principles, practice and procedures. 

The list of duties in the job description should not be regarded as exclusive or exhaustive. There will be other duties and requirements associated with the role and, in addition, as a term of employment you may be required to undertake various other duties as may reasonably be required 

Person Specification 

• Demonstrable experience of securing or involvement in funding through bid writing and funding applications. 

• Demonstrable ability to communicate compelling messages in written form. 

• Experience of coordinating and updating a knowledgebase system. 

• Experience in organising, prioritising, and managing your time effectively. 

• Creative instinct and ability to think laterally about new business opportunities. 

• Collaborative and adaptive working. 

• Experience of raising funds within the third sector. 

• Experience of research and data analysis. 

• Experience of working within the health, social care, wellbeing, or military third sector is desirable but not essential. 

• Experience of working within project delivery or project development is desirable but not essential. 

Skills 

• Strong interpersonal skills that enable you to communicate internally and externally, and the ability to engage clearly with people at all levels. 

• Excellent written and verbal communication skills. 

• Accuracy and management of deadlines. 

• Team working skills and the ability to work independently with little direction to prioritise work areas. 

• Excellent IT skills including use of Word, Excel and PowerPoint Packages. 

• Confident, self- motivated, target driven, strong team player. 

• Ability to work under pressure and to demanding deadlines, delivering objectives to agreed timescales. 

Personal Qualities 

• The ability to deal positively within deadlines and presenting information with accuracy 

• A flexible approach to work. 

• Willingness to travel to DMWS HQ and other locations as required, with some overnight stays, and occasional weekend work. 

• Proactive, committed, and forward thinking. 

• Engaging manner and personality with the ability to forge effective working relationships with a range of staff and other stakeholders. 

• Personal sensitivity, empathy, and flexibility to operate within the distinctive ethos and structure of DMWS. 

• Strong commitment to DMWS’ aims of providing medical welfare services to those in need.

BENEFITS

We offer employees the following benefits: -
• Annual Leave: We give employees 30 days a year annual leave plus Public Holidays (pro-rata'd for part-time employees).
• Pension: Auto enrolment onto DMWS workplace pension scheme – subject to eligibility. You will make a minimum contribution of 5% which DMWS will match. Contributions will be matched up to 6% by DMWS.
• Death in Service Scheme: Three times your annual salary to nominated beneficiaries - subject to eligibility.
• Flexible Working: All flexible working requests are considered - many of our staff work flexible hours and work wholly, or partly from home.
• Smart Health: Access to a 24/7 virtual GP service, with a counselling service and on-line help and support around health and well-being matters.
• Work-based Parking/Mileage: For those who pay to park at their work-base, fees are repaid through expenses. Mileage claims are reimbursed in line with HMRC guidelines.
• Enhanced Sick Pay: Enhanced sick pay scheme for all employees upon completion of their probationary period.
• Staff Recognition: Staff are regularly recognised for their work by the leadership team and their peers, via internal events, social media, and industry awards.
• Personal Development Programme: DMWS supports employee continuing professional development and training.
• Above all, being part of the DMWS team means that you are making a difference to the lives of those working on the frontline.
• Great training opportunities
• £25 contribution towards eye tests and a contribution of £50 towards glasses. (As long as they are only needed for DSE use and not otherwise needed on a standard prescription).
• Enhanced maternity / paternity / adoption family friendly benefits