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National Tremor Foundation, Remote
Unpaid role, expenses paid
Posted today
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Page 5 of 5
Remote
Unpaid role, expenses paid
Voluntary
Job description

About the National Tremor Foundation: 

The National Tremor Foundation (NTF) is a leading charity dedicated to providing support and advocacy for individuals living with neurological tremor-related conditions, including Essential Tremor (ET) and other movement disorders. Our mission is to improve the lives of those affected by tremor through research, education, and the provision of vital services.

Position Overview: 

The National Tremor Foundation is seeking a passionate and dedicated individual to join our Board of Trustees

Trustees provide strategic leadership and governance, ensuring that the Foundation fulfils its mission and objectives while adhering to legal and regulatory requirements. This is an exciting opportunity to make a meaningful impact on the lives of people living with all kinds of neurological tremors.

Key Responsibilities: 

  • Strategic Leadership: Work closely with the Chairperson and other trustees to provide strategic direction and oversee the implementation of the Foundation’s mission, vision, and values. 

  • Governance and Oversight: Ensure that the Foundation complies with all legal and regulatory requirements and uphold the highest standards of governance. This includes financial oversight and reviewing organisational performance. 

  • Fundraising and Advocacy: Support fundraising efforts by leveraging personal networks, helping raise the Foundation’s profile, and engaging with key stakeholders. Advocate for the needs of people living with all kinds of neurological tremor. 

  • Policy and Program Development: Contribute to the development and review of policies and programs that meet the needs of those living with neurological tremors and their families and care giver. 

  • Risk Management: Ensure that the Foundation is effectively managing risks and developing strategies to mitigate them. 

  • Collaboration and Support: Engage with staff, volunteers, and the community to support the delivery of services and activities. 

Skills and Experience: 

  • Experience in Governance: Previous experience in a trustee or non-profit governance role is highly desirable, although not essential. 

  • Commitment to the Mission: A passion for improving the lives of individuals living with neurological tremors and a commitment to the mission of the National Tremor Foundation. 

  • Skills in Leadership: Strong leadership, communication, and decision-making skills. The ability to build relationships and work effectively with diverse stakeholders. 

  • Financial Acumen: Experience with financial oversight and the ability to understand budgets and financial statements. 

  • Fundraising or Advocacy Experience: Experience in fundraising, marketing, or advocacy would be beneficial but is not essential. 

  • Personal Qualities: A collaborative and solution-oriented approach, with a strong commitment to inclusion, diversity, and empathy for those affected by tremor conditions. 

  • Medical Knowledge: Having a medical background would be advantageous for this role, especially someone that is aware of the current care pathways and treatment options for neurological tremors.

Time Commitment: 

Trustees are expected to attend at least four Board meetings per year (approximately 2 hours each), plus additional time for fundraising activities and events. Trustees will also be required to attend our annual conference and other ad-hoc meetings as necessary. Trustees are also expected to take on a portfolio lead and provide support to the General Manager to deliver on this. 

Term: 

Trustees are appointed for a three-year term, with the possibility of reappointment for a further term. 

Posted by
National Tremor Foundation View profile Organisation type Registered Charity Company size 6 - 10
Posted on: Friday, 2 May 2025
Closing date: 23 May 2025 at 17:00
Tags: Advice / Information, Advocacy, Engagement / Outreach, Governance / Management

The client requests no contact from agencies or media sales.