Senior patient involvement officer jobs

Join Beacon to drive projects that place patients at the heart of translational research, shaping progress and improving outcomes with and for rare disease communities.

OVERVIEW OF THE ROLE

Beacon, now in its second decade of operation, has experienced substantial growth over the last three years, including an organisational rebrand and expansion into international projects. We are now recruiting a Senior Patient and Scientific Engagement Officer to play a central role in delivering ambitious projects that put patients at the heart of translational research.

This role sits at the crossroads of patient involvement and scientific communication, building meaningful collaborations between patients, researchers, and other stakeholders. You’ll provide essential operational support and subject expertise to ensure projects run smoothly and reflect the real-world needs of the rare disease community.

You will contribute primarily to two of Beacon’s major collaborative initiatives: REMEDi4ALL, a European-wide drug repurposing platform with over 25 partner organisations, and the LifeArc Translational Research Centres for Rare Disease (LifeArc TrC4RD), a UK-wide partnership. In this role, you will work directly and regularly with partners across these consortia, encompassing patient group leaders, patient representatives, academic researchers, clinical trialists, and beyond. You will act as a vital interface between patients and researchers in both projects, coordinating activities, facilitating collaboration, and embedding patient perspectives throughout the work. While these will be your main focus, you will also support other initiatives across the charity, particularly those aimed at advancing scientific understanding of rare diseases and strengthening patient involvement in research.

This is a varied position offering the chance to apply and further develop your expertise across areas such as patient and public involvement, scientific content development, training, and stakeholder engagement. We are looking for someone with a strong grasp of both the scientific and patient landscapes, who can balance attention to detail with big-picture awareness and work confidently in highly collaborative settings with multiple partner organisations. This role offers a unique opportunity to make a tangible contribution to advancing rare disease research and ensuring patients’ voices drive progress across the UK and Europe.

See our full job description for more information on REMEDi4ALL and The LifeArc TrC4RD

MAIN DUTIES AND RESPONSIBILITIES

Your main responsibilities will span aspects of project delivery, stakeholder engagement, and patient-centred scientific support. In this role, you will:

• Support the delivery of Beacon’s work within REMEDi4ALL and the LifeArc TrC4RD, collaborating directly with partners across these consortia to coordinate activities and ensure timely delivery of shared goals.
• Assist in the preparation of project materials, reports, and updates for consortium meetings and communications.
• Write, review, and refine accessible, patient-facing materials that explain complex scientific concepts and research projects clearly.
• Help design and deliver patient engagement strategies for major collaborative projects, ensuring patient perspectives are embedded throughout.
• Support and liaise with REMEDi4ALL Patient Champions and the LifeArc Patient Engagement Group, including coordinating mentorship, facilitating input into project teams, and managing communications.
•  Build and maintain strong working relationships with patient advocates, researchers, funders, and partner organisations, ensuring clear communication and effective collaboration.
• Contribute to the planning and delivery of multi-stakeholder meetings, workshops, and webinars that bring together patients, researchers, and other partners to discuss research priorities and approaches.
• Support the creation and delivery of training materials, sessions, and talks for patient groups, researchers, and other stakeholders on topics such as patient and public involvement (PPIE) and rare disease research.
• Participate in project discussions to understand current patient engagement and provide input or signposting to improve engagement and support.
• Represent Beacon and its work at consortium meetings, external conferences, and events – both as a delegate and, where appropriate, as a speaker.
• Support other Beacon-led projects as required, particularly those focused on advancing patient knowledge, engagement, and scientific understanding.
• Provide hands-on support for the on-the-day delivery of Beacon events, training programmes, and other charity activities.

 PERSON SPECIFICATION

This is a mid-to-senior level role. Candidates should have professional experience in scientific engagement, patient involvement, or research coordination, and be ready to contribute confidently to collaborative consortium projects with external partners.

We are looking for someone with a strong commitment to patient-centric approaches, who is willing to advocate for patients’ perspectives and priorities, while also navigating the need for compromise and collaboration across multiple organisations.

Essential

• Relevant professional experience (e.g., life sciences, medical communication, translational research, or patient engagement), ideally accompanied by a scientific qualification.
• Experience in patient and public involvement or patient engagement within research, ideally in health contexts.
• Strong understanding of scientific processes, translational research, or clinical research, with the ability to communicate complex concepts clearly to non-specialist audiences.
• Ability to work effectively within multi-partner or consortium projects, collaborating with external organisations.
• Confidence in liaising with a wide range of stakeholders, including patients, researchers, funders, and partner organisations.
• Experience developing accessible, patient-centred materials, training, or communications.
• Excellent organisational skills, with the ability to manage multiple tasks and deadlines while maintaining attention to detail.
• Strong interpersonal skills and confidence in building relationships across diverse groups.
• Ability to work independently and proactively, while contributing effectively as part of a team.
• Commitment to patient-centred research and improving outcomes for the rare disease community.
• Flexibility to travel for in-person meetings, workshops, and events within the UK and internationally multiple times a year.

 Desirable

• Experience supporting or delivering training sessions, workshops, or webinars for patient or professional audiences.
• Familiarity with drug repurposing, translational research, or rare disease research environments.
• Experience managing or contributing to multi-stakeholder research projects.
• Experience working or volunteering in the charity or not-for-profit sector.
• An understanding of rare diseases, health charities, or small-organisation dynamics

WORKING AT BEACON

Beacon is a small, tight-knit team, with a friendly atmosphere and strong commitment to our beneficiaries. We aim to give all employees opportunities to pursue their interests, develop their skills, and shape their career path.

We offer flexible working practices to help our staff balance their personal and professional lives, including hybrid working (50% split between home and office working) and flexible hours. We also recognise the substantial benefits of in-person collaboration and communication for the organisation, team morale, and for individual staff development, and are committed to maintaining this as a core part of how we work.

After the initial in-person onboarding period, we’d like this role to be based in the office for around 2–3 days a week on average (though not necessarily every single week) to support effective teamwork, strong communication, and smooth daily operations.

BENEFITS

• 25 days holiday, plus bank holidays and Christmas to New Year closure 
• Flexible working practices including hybrid working and flexitime
• Time off in lieu to support appropriate work/life balance
• 5% pension contribution 
• Annual training budget to support personal and professional development 
• A close knit and friendly small team environment 
• Frequent opportunities to meet with beneficiaries and expand your professional network
• Employee Assistance Programme (EAP) including access to mental health support, 24/7 GP service, discounted gym membership, shopping savings and more

The Florence Nightingale Foundation is seeking an active registrant of the Nursing and Midwifery Council (NMC), with a Postgraduate qualification in a relevant discipline such as healthcare leadership, organisational development, or education to be our Head of Leadership Development, responsible for ensuring that our programmes and opportunities are truly world class.

The Florence Nightingale Foundation (FNF) was launched in 1934. We support and develop nurses and midwives as leaders, to promote health, improve care and save lives across the world, maintaining Florence Nightingale’s legacy. The Florence Nightingale Foundation Academy was launched in 2020 and offers a comprehensive portfolio of leadership development opportunities, including our prestigious scholarships as well as outstanding online, hybrid and in-person programmes, webinars and conferences. Academy membership connects senior nurses and midwives across the UK and internationally, helping to shape and guide national and global healthcare agendas.

We are seeking a Head of Leadership Development who will provide senior leadership as part of the Academy team, responsible for ensuring that all our programmes and opportunities are truly world class. Your leadership contribution will support continued integration of the functions of FNF’s Academy, evolution and growth of our programmes portfolio, and build our world class team.

As an active registrant of the Nursing and Midwifery Council (NMC), with a relevant Postgraduate qualification in a relevant discipline such as healthcare leadership, organisational development, or education, you will use your significant experience in designing and delivering leadership development programmes and proven track record in quality assurance to drive the continued development of our programme portfolio.

As an expert leadership development practitioner with deep knowledge of adult educational principles and an advanced professional skillset, you will be able to integrate and apply your personal experience of senior organisational leadership into your personal leadership development practice and guide the practice of others. Your track record of business development and income generation through delivery of compelling proposals will help you to cultivate a robust pipeline of sustainable income opportunities.

The Research Team is pivotal to ensuring that research funded by Children with Cancer UK is at the
forefront of the children and young person’s cancer research area. You will have the opportunity to be at
the cutting edge of cancer research in children and young people and work closely with members of the
scientific community, surrounded by people working towards the same mission.
The post-holder will be responsible for line managing 2-3 members of the Research Team, providing them
with support and identifying areas and opportunities for them to expand and develop their experience
and skillset.

Communications and Impact Lead

Full time (part time will be considered)

Hybrid (with a minimum of 2 days in our office on the Cambridge Biomedical Campus)

Permanent contract

£43,000- £46,000 per annum (depending on skills and experience)

Do you want to make a difference to healthcare globally? Do you have skills and experience in Communications, Marketing and Monitoring, Evaluation & Learning? Come and join a brilliant team working from the Cambridge Biomedical Campus and with partners across the world.

For nearly twenty years, Cambridge Global Health Partnerships (CGHP) has been strengthening health systems across the world through education, reciprocal learning, and relationship building. CGHP uses a health partnership model - working with hospitals, governments and health organisations in Cambridgeshire and East of England region and in low- and middle- income countries (LMIC) to provide specialist expertise, support shared learning and encourage sustainable change. This is a two-way process involving NHS staff, trainees and students working with LMIC partners using a hybrid working model combining online working and exchange visits. CGHP is a charitable programme based on the Cambridge Biomedical Campus and is a linked charity to Addenbrooke’s Charitable Trust.

We are recruiting for a Communications and Impact Lead who will lead these functions within CGHP and will be a member of the CGHP Senior Leadership Team. You will work at a tactical and strategic level with responsibility for increasing understanding of our impact and raising our profile to enable CGHP to achieve our strategic ambition. The role will ensure effective impact measurement, communication, promotion, marketing and engagement to support our goals. The role requires excellence measuring impact and communicating with people and groups on all issues and at all levels and. Creativity in communication to effectively tell our story will be key, as will confidence and understanding of monitoring, evaluation and learning.

We are looking for someone imaginative, creative, and dynamic with excellent organisational skills who can ensure that our impact is measured and recognised, and our story is heard. The position is the ideal role for someone who has a combination of skills and experience of communications, impact analysis and project management.

To see a full job description and person specification please visit our website

The closing date for applications is 28th September 2025, however we reserve the right to close this vacancy once a sufficient number of applications have been received or a successful candidate is found.

Application Process: Please send your CV and a covering letter explaining why you are a good fit for the role by email