30 Senior regional corporate fundraising executive jobs

The Executive Director will provide strategic, operational and financial leadership for East London Dance, working in close partnership with the Creative Director & CEO to deliver the organisation’s vision and business plan, strengthening its position as an Arts Council England National Portfolio Organisation. The role leads people, culture, finance, governance, risk, operations, fundraising and stakeholder engagement, ensuring the organisation remains financially sustainable, well-governed and equipped to deliver high-quality artistic and community programmes.

As a senior ambassador, the Executive Director builds strong relationships with funders, partners, trustees and stakeholders, while fostering an inclusive, collaborative and values-led culture. The role creates the conditions for a thriving team, turning creative ambition into organisational reality and supporting East London Dance’s long-term success.

We’re looking for someone who can help turn our ambition into a sustainable, thriving future – building the relationships and the funding that will carry us forward, and doing it alongside a team that already cares deeply about the organisation.

If you’re someone who loves building things, who knows how to bring people and money together, and who wants to help shape what east London’s cultural life looks like for years to come – we’d love to hear from you.

Job requirements:

Must bring substantial senior leadership experience, ideally Director, Deputy CEO or equivalent level, with evidence of strategic planning, organisational growth and performance management. Must have a proven track record in fundraising, business development and income generation, including securing funding, managing funder relationships and identifying new commercial or partnership opportunities; experience leading high-performing teams, managing change and strengthening organisational culture; strong financial acumen, including understanding budgets, balance sheets and financial decision-making; knowledge of charity governance, safeguarding, health and safety, data protection and risk management frameworks; experience working with Boards of Trustees. Must demonstrate commitment to diversity, equity and inclusion, possess excellent written and verbal communication skills, be confident using Microsoft Suite, and have knowledge of ACE funding and reporting requirements.

Job Responsibilities:

Provides strategic, operational and financial leadership with Creative Director & CEO. The role translates the Business Plan into action, leads staff, freelancers and consultants, and develops an inclusive, high-performing culture. Key responsibilities include workforce planning, recruitment, HR compliance, performance management and staff wellbeing. The role oversees organisational systems, administration, IT and the operation of Talent House, including health and safety, compliance, venue hire and stakeholder relationships. They co-lead budgeting, forecasting, financial reporting, cash flow monitoring and audit processes, while driving fundraising and income generation across grants, trusts, partnerships, sponsorship and earned income. The role also leads governance, risk management and business continuity planning, supports the Board of Trustees, develops strategic partnerships, represents the organisation externally and strengthens its profile, impact and long-term sustainability.

Apply via the East London Dance Website by Thursday 8 October, 12 Noon

Join one of the South West's most ambitious and community-focused theatres.

The Roses Theatre in Tewkesbury is looking for a Development Manager to help grow philanthropic income and supporter engagement as we build an exciting future for our charity.

Working closely with the CEO, Marketing Manager, trustees and colleagues across the organisation, you'll lead the cultivation, stewardship and growth of individual giving, patron schemes, corporate support and donor development. You'll also play an important role in trusts and foundations fundraising, helping to secure investment in our artistic, community and participation programmes.

This is a genuine growth opportunity. Perhaps you've been in a Development Officer role at a medium or large charity and are ready to take on more responsibility. Or perhaps you've built expertise in one area of fundraising and are looking to broaden your experience across individual giving, corporate partnerships, trusts and foundations, and donor stewardship. Either way, this role offers the chance to develop your skills within a supportive and ambitious organisation.

We're looking for someone who is an excellent relationship-builder, organised and proactive, with a passion for connecting people to great causes. You may come from the arts, charity, education or commercial sectors. What matters most is your ability to build lasting relationships, identify opportunities and help turn them into sustainable income.

As part of a small and collaborative team, you'll have the opportunity to make a tangible impact on the future of a thriving regional theatre with deep community roots and bold ambitions for the years ahead.

Salary: £27,000-£30,000 FTE
Hours: 0.8-1.0 FTE (4-5 days per week)
Location: The Roses Theatre, Tewkesbury, with flexible and hybrid working available
Contract: Permanent (subject to funding)
Job Share: Applications for job share arrangements are welcome
Start Date: ASAP / Autumn 2026

The Roses Theatre is a Disability Confident Employer and is committed to creating a diverse, inclusive and equitable workplace. We actively welcome applications from people of all backgrounds.

About us

Greyhound Rescue Wales (GRW) is Wales’ leading charity dedicated to rescuing, rehabilitating and rehoming greyhounds and lurchers. Founded in 1993, we have spent more than three decades championing the welfare of sighthounds and working towards our vision: a Wales without greyhound racing, where every greyhound and lurcher has a home and receives the best possible care.

In April 2026, after 25 years of determined campaigning to improve welfare and regulation within the racing industry, legislation to ban greyhound racing in Wales was finally passed. This landmark achievement marks the beginning of a new chapter for GRW as we expand our reach and capacity across the UK to ensure every greyhound leaving the racing industry has a rescue space, medical support and rehabilitation on the journey towards their forever home.

To help us grow sustainably and strengthen our long‑term impact, we are now seeking to develop our fundraising team with the creation of a Head of Fundraising role. You will lead and work closely with the Trusts & Foundations Officer, Sponsorship & Individual Giving Officer and Community & Events Fundraiser to deliver an annual income target of £400K+.

Role

The Head of Fundraising is a senior leadership role with overall accountability for the strategic development, operational effectiveness and performance of all fundraising activity at Greyhound Rescue Wales (GRW).

The role will drive, lead and grow our fundraising strategy and has responsibility for developing diverse, sustainable income streams and building strong relationships with supporters, partners, and funders.

The role holds end‑to‑end accountability for income delivery across trusts and foundations, community and event fundraising, and sponsorship and individual giving.

The Head of Fundraising provides clear leadership to the fundraising team and has line management responsibility for:

• Trusts and Foundations Officer
• Community and Events Fundraising Officer
• Sponsorship & Individual Giving Officer

Please see attached the full job description and person specification

Location: Somerset Heritage Centre, Brunel Way, Norton Fitzwarren, Taunton, TA2 6SF
Salary: £39,909
Hours: 37 hours per week, Monday to Friday (occasional evening and weekend work)
Contract: Permanent

To apply please complete the South West Heritage Trust application form which can be found together with the recruitment pack in the links at the bottom of this advert. Please note that CVs are not accepted as applications

About the role

South West Heritage Trust is seeking an experienced and motivated Fundraising Manager to help strengthen our long-term financial sustainability and grow our charity fundraising activity. This is an exciting opportunity to join the Trust at a key point in its development and to shape our approach to fundraising as our first dedicated fundraising professional.

Working closely with colleagues across the organisation, the Fundraising Manager will identify and secure funding from trusts and foundations, develop opportunities for individual giving and legacy support, and establish effective systems and processes to support successful charity fundraising. The role will build a strong pipeline of funding opportunities to support exhibitions, learning programmes, collections work and the Trust’s wider strategic priorities.

This post sits within the Central Services team and reports to the Head of Development and Partnerships.
The South West Heritage Trust is a charity which delivers a broad range of heritage services across Somerset and Devon. We are a growing organisation, founded on services that were previously delivered by Somerset and Devon County Councils. With a turnover exceeding £5 million, we manage and run three museums (including the Museum of Somerset), two Archives and Local Studies services and look after the historic environment in Somerset.

We are committed to building an organisation as diverse as the communities we serve. Your application for this role will be welcomed whatever your background and regardless of age, disability, sex, gender reassignment, sexual orientation, pregnancy and maternity, race, religion or belief, and marriage or civil partnership.

If you would like to have an informal discussion or experience any difficulties with the recruitment process, please contact Ann Bradford (HR and Governance Manager)

As we enter an exciting new phase of growth, we're looking for an ambitious and relationship-driven professional to help us build sustainable, diversified income streams that will enable us to increase our impact and reach even more families facing childhood cancer.

We are transforming the way we generate income by focusing on long-term partnerships, smarter use of data and technology, and sustainable fundraising models that maximise impact whilst protecting team capacity. This role will play a key part in helping us achieve that vision.

We're looking for someone who can spot opportunities, build meaningful partnerships, develop long-term supporter relationships and help shape the future of income generation across the charity.

The Opportunity

As our Regional Partnerships & Fundraising Manager, you will be responsible for driving sustainable income growth through:

• Corporate partnerships and sponsorship opportunities
• Payroll Giving and employee engagement programmes
• Strategic trusts and grants oversight
• Regular Giving growth and supporter development
• Regional relationship building and network development
• Pipeline management, forecasting and income planning
• Lead and develop our Charity Fundraiser, providing coaching, mentoring and support to build a high-performing fundraising function capable of delivering sustainable long-term growth.

As a member of our Senior Leadership Team, you will play an active role in the strategic leadership of the charity, helping to shape organisational priorities, champion collaboration and contribute to future growth.

About You

We would love to hear from you if you have:

• Experience in business development, account management, fundraising or partnership development
• A track record of securing income, sponsorship, partnerships or commercial opportunities
• Strong relationship-building and networking skills
• Confidence engaging with senior stakeholders and decision makers
• Experience managing pipelines and using CRM systems effectively
• A collaborative and proactive approach with a focus on finding solutions
• The ability to turn opportunities into long-term relationships

Whether your background is in charity fundraising, commercial partnerships, sales, account management or business development, we are interested in people who can build relationships, create opportunities and deliver sustainable growth.

Why Join Us?

This is a unique opportunity to join a purpose-led charity at a pivotal stage in its development. You'll have the opportunity to shape and influence the future direction of fundraising, partnerships and sustainable income growth across the charity.

You'll be joining a collaborative and ambitious team that believes in:

• Working smarter, together
• Building sustainable growth
• Developing strong partnerships
• Using data and insight to make informed decisions
• Creating a positive and supportive culture
• Making a meaningful difference to children and families affected by cancer

Most importantly, you'll help ensure that no family faces childhood cancer alone.

Every partnership secured, supporter retained and income stream developed will help us reach more families affected by childhood cancer.

Volunteer It Yourself (VIY), a UK-wide not-for-profit organisation linked to youth skills and employment, volunteering and construction, is looking for a passionate fundraising manager to drive our income streams and play a crucial role in helping to grow our income.

As the Fundraising Manager you will be responsible for identifying and securing new funding opportunities, developing existing opportunities and funding streams, writing and submitting funding applications and proposals and managing the ‘income’ pipeline.

We’re seeking someone ambitious who has proven experience in securing grant funding and bid writing preferably across multiple sectors/income streams, ideally including the public sector and local authorities and corporate CSR and sponsorship programmes. You will identify, cultivate, apply to and steward funders , securing both restricted and unrestricted income to support VIY’s vital work.

You will play a pivotal role in delivering sustainable income growth and supporting VIY’s ambitious plans for the future.

Sightsavers is looking for an experienced and strategic Head of Major Donor Fundraising to lead the next phase of growth for our high value individual giving programme. This role can be worked full time or part time, with a minimum of four days per week, and is UK based with regular travel to our Haywards Heath office.

As part of the Fundraising and Marketing directorate, you will develop and deliver a long-term major donor strategy, lead a specialist team and personally manage a focused portfolio of high value donors and prospects. The role will focus on supporters giving £10,000 or more per year, while also strengthening nurture and loyalty programmes that help build a sustainable future pipeline of philanthropic support.

Working closely with colleagues across fundraising, technical leadership, programme delivery, finance, planning and senior leadership, you will identify compelling funding opportunities and help build strong cases for support. You will also represent Sightsavers externally with donors, prospects, philanthropy advisers, wealth advisers and sector networks.

We would like to hear from confident and collaborative senior fundraisers with experience of leading or managing a high value fundraising programme. You will bring a strong track record of securing, cultivating and stewarding significant gifts, including six-figure prospects, alongside the ability to use data and insight to manage pipelines, forecast income and support decision-making. You will also bring the relationship-building skills to work effectively with trustees, senior leaders, high net worth individuals and external advisers.

Application and interview process
To apply, please complete an application through our recruitment portal by uploading an up-to-date CV and answering the job-specific questions. We are particularly interested in understanding your motivation for applying. We anticipate a two-stage interview process, with first interviews from w/c 12 October and second-round interviews expected w/c 19 or 26 October 2026. The process will include a role-specific presentation task at first interview stage, and one interview will be held in person at our Haywards Heath office. We would like the successful candidate to start by the end of January 2027.

Sightsavers is a Disability Confident employer. We welcome applications from candidates with diverse backgrounds and experiences and are committed to making reasonable adjustments throughout the recruitment process.

Role 

Bowel Research UK are looking for a manager with experience across either philanthropy, corporate partnerships or both to join their Fundraising team in a new role.

This role will lead and manage the corporate and philanthropy income streams, building on existing successes, spotting opportunities to engage new partners and donors, and nurture green shoots. 

This role, with support from the Head of Fundraising and Communications, will develop, embed and lead the corporate and philanthropy strategy. As such, Bowel Research UK needs an experienced corporate and/or philanthropy fundraiser with well-developed relationship management skills. Someone who is excited by the opportunity of shaping, developing and elevating these important supporters for the charity.

This role will manage two direct reports across community fundraising, challenge events, supporter care and data. Experience managing staff or volunteers would be helpful, but Bowel Research UK are open to applications from candidates for whom this would be a development area.

Equally, Bowel Research UK are open to applications from those looking to develop their expertise and will be fully supported, should they not have equal experience in corporate partnerships and philanthropy. The ideal candidate should be able to demonstrate experience across areas such as prospecting, pitching and account management. 

Application notes 

Please download the Candidate Info Pack provided for further information about the role, timelines and next steps.

To progress your application, please contact THINK Recruitment at organise an informal screening call. Please note, we cannot shortlist candidates who have not had a screening call so please allow enough time to have a call before the deadline for expressions of interest.

If you need assistance with downloading the pack or any reasonable adjustments to ensure you can engage with the selection process, please contact THINK Recruitment and our team will support you.

Deadline for expressions of interest: EOD Friday 2nd October 

Closing date for full applications: Midnight Monday 5th October 

Interviews are expected to be two stages, with Stage 1 being virtual via Teams and Stage 2 in person in London.

Yorkshire Wildlife Trust is one of the UK’s fastest growing nature conservation organisations and seeks to appoint a Fundraising Research Officer.

This is a unique opportunity to join the Fundraising Team at Yorkshire Wildlife Trust, and we can’t wait to have you on board. As a member of a dynamic and fast-paced team, you’ll provide critical support in researching and mapping our internal and external networks, in addition to delivering essential work to grow the Trusts philanthropic portfolio.

A curious and inquisitive mindset is key to this role, with a desire to fact find and build connections across Yorkshire and beyond. You will have a natural skill for data processing and communication, whilst also being able to creatively interpret your findings and write reports. You will lead, develop and implement research processes and cooperate collaboratively with colleagues of all levels. You will have your finger on the pulse of fundraising sector trends and be able to provide insight in risk research, due diligence and marketing. We are a very creative and ambitious team, and so a common-sense approach to problem solving and enthusiasm are essential for success in this role.

Research skills are essential to this role, and so an undergraduate degree is required, with desired experience at postgraduate level, too.

How to apply:

Please submit an up-to-date CV and supporting statement. When writing your supporting statement, please ensure you describe your relevant knowledge, skills and experience aligned to the Person Specification within the Job Description. Please be aware that if you only submit a CV, your application may not be considered.

Please DO NOT include any personal details (name, address etc) on your supporting statement.

Closing date: Sunday 4th October at midnight

We reserve the right to close this vacancy early should we receive a high volume of suitable applications. We therefore encourage interested candidates to apply as soon as possible.

Interview date: Tuesday 20th October

Please note that applications received after the closing deadline may not be considered. The Trust regrets that it is unable to give feedback on unsuccessful applications.

We want our people to flourish, just like nature, and so we are committed to creating a movement that recognises and truly values individual differences and identities. We value diversity and creating an inclusive culture where everyone can be themselves and reach their full potential.

We are also a member of the Disability Confident Scheme. This means we are committed to offering an interview to disabled applicants who meet the minimum criteria for the post. Where a post is oversubscribed (i.e. there are more candidates meeting the minimum criteria than we can offer interviews to), we will carefully balance inviting a mix of the highest scoring disabled and non-disabled applicants.

Build Up aims to build the power of young people to shape where they live and to change who can make decisions about London. We are recruiting a Head of Income Generation to shape and lead an ambitious fundraising vision to grow our impact across London.

The Role

This is an exciting new position in our team, created to help build our case for investment, tell our story and harness the support of new audiences. You will develop and deliver a 3-year fundraising strategy that unlocks new opportunities, diversifies income and builds lasting funder relationships. With consultancy support on communications and evaluation, you’ll have the tools to make a powerful case for our work.

Candidates are welcome to discuss the role with our Director before applying - contact details are in the job description.

Who You Are

You’ll have a proven track record in leading fundraising strategy, securing charitable investment and writing successful grants. Alongside trusts and foundations, you’ll bring experience across other income streams (like corporates or major donors). You’ll balance strategy with delivery, thrive under pressure, and be excited by funding young people’s ideas. Our approach is innovative and we are looking for someone that can create clear, inspiring narratives that unlock new opportunities.

About Build Up

Build Up works to build the power of young people to shape where they live, and to change who can make decisions about London. Regeneration leaves young people behind. We support young people to take action by advocating for, designing and building local spaces to meet their needs.

Our approach is unique – and it works. Young people gain skills, leadership and power over decisions that affect them, while local communities benefit from genuinely inclusive spaces designed by and for local residents.

Why Join Us

At Build Up your work has a visible, lasting and personal impact - your ideas will genuinely shape our development. We’re a small, collaborative and passionate team with a flexible approach to work - we welcome proposals for non standard work patterns.

Key Details

This role is available on a 4 OR 5 day a week contract, subject to candidate preference.

Salary: £50,000 - 54,000 (pro rata) + 8% employer pension contribution
Full / part-time: 4 days (30 hrs) or 5 days (37.5 hrs) per week
Holiday: 32 days plus public holidays (pro rata)
Work pattern: Flexible
Location: Hybrid – at least 1 day per week in our Elephant & Castle office
Contract: Permanent

To Apply

For more information and to apply, please see the job description.

Applications close Sunday 20th September 2026.

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Want to use your fundraising experience to create real, visible change for thousands of Sri Lankan street dogs? Join a small, ambitious charity where your ideas, relationships and fundraising expertise can have a direct impact.

WECare Worldwide is looking for an experienced and hands-on Head of Fundraising to join us for a 12-month maternity cover and take ownership of our fundraising strategy and income generation.

We are a UK- and Sri Lanka-registered animal welfare charity providing international-standard veterinary care to street dogs in Sri Lanka. We are a small and collaborative organisation, so this is a role for someone who enjoys combining strategic fundraising leadership with hands-on delivery. You will work closely with the CEO and colleagues across WECare to help shape how we grow our income, while remaining actively involved in the day-to-day fundraising work needed to deliver results.

A major focus will be our individual giving and digital fundraising, including online donations, regular giving and fundraising appeals. This is currently one of our most important sources of income, and we’re looking for someone who can help us strengthen supporter engagement, improve donor journeys and identify opportunities to grow sustainable income.

You’ll also play a key role in developing our grants and trusts & foundations income, from identifying opportunities and building compelling applications through to reporting and stewardship. Alongside this, you’ll nurture and develop major donor relationships and explore the right corporate partnership opportunities for WECare.

This is very much a role for someone who enjoys both thinking strategically and getting things done. You might be developing the fundraising plan one day, working on a significant grant application the next, reviewing digital fundraising performance, shaping an appeal or speaking directly with a donor or potential partner.

You’ll work with colleagues across the organisation to turn the incredible work happening on the ground in Sri Lanka into compelling stories, funding propositions and campaigns that inspire people to support WECare.

We’d love to hear from you if you have a strong track record in fundraising, particularly across individual giving, trusts and foundations, major donors or other high-value income streams. You’ll be commercially aware, comfortable working with targets and forecasts, confident building relationships and happy taking initiative in a fast-moving environment.

Most importantly, we’re looking for someone who genuinely wants to make an impact. WECare is an ambitious organisation with big plans, but we remain small enough that the person in this role can make a tangible difference to both our fundraising direction and the animals our work exists to help.

Location: Remote
Contract: Fixed-term, 12-month maternity cover
Reporting to: CEO

Please see the full Job Description for further details about the role and experience we’re looking for.

CAHN is seeking an ambitious, creative and experienced Head of Fundraising & Events to lead our fundraising and events portfolio and help drive the organisation’s next phase of growth.

You will lead fundraising development, identify new income opportunities, build strong relationships with funders, corporate partners and supporters, and deliver high-profile events that generate income, engagement and impact.

Working closely with senior colleagues and external stakeholders, you will combine strategic thinking with hands-on delivery to grow sustainable income, strengthen partnerships and maximise opportunities for CAHN.

We are looking for a confident and results-driven professional with a proven fundraising and events track record, excellent relationship-building skills and a passion for tackling health inequalities affecting Black Caribbean and African communities.

This is your opportunity to use your expertise, creativity and leadership to help create lasting change.

Julie’s Bicycle is seeking a visionary, collaborative and values-led Chief Executive to lead the organisation into its next chapter.

About Julie’s Bicycle

Julie’s Bicycle is a pioneering not-for-profit organisation mobilising the arts and culture sectors to take action on the climate crisis. For nearly two decades, we have been at the forefront of the creative climate movement, working to put culture and creativity at the heart of climate action. We believe culture has the power to challenge, inspire and move people; to shape how we think, feel and act; and to help transform our future now.

Our work brings together cultural and environmental expertise to support practical action, build leadership, inform policy and strengthen collective impact. Through our programmes, tools, training, consultancy, campaigns and partnerships, we support artists, creative organisations, policymakers and changemakers to respond to the climate, nature and justice crises with confidence, imagination and purpose. To date, Julie’s Bicycle has worked with thousands of organisations and individuals, in the UK and globally, helping to equip people, places and policies with the knowledge and power to drive sustainable change.

Why this opportunity has arisen

This is a defining moment for Julie’s Bicycle. After 19 years of inspirational founding leadership, our Founder and Chief Executive, Alison Tickell, is stepping down from the role. As we approach our 20th anniversary, Julie’s Bicycle is renewing its strategy and theory of change. The climate, nature and justice crises continue to evolve, and so too must the leadership, partnerships and solutions needed to create meaningful change. This creates a significant opportunity for a new Chief Executive to honour a powerful legacy while shaping a bold, clear and ambitious next chapter for the organisation.

What we are looking for

We are looking for an exceptional Chief Executive who can provide strategic and organisational leadership, strengthen Julie’s Bicycle’s voice and influence, and ensure the organisation continues to deliver impact at the intersection of culture and climate. The successful candidate will work closely with an experienced Board and dedicated staff team to refine and deliver our next phase of strategy, sharpen our priorities, build sustainable income and communicate our distinctive value with clarity and conviction.

This is both an outward-facing and deeply organisational role. Externally, our next Chief Executive will be a visible and credible advocate across culture, climate and environmental networks, able to build partnerships, engage funders and policymakers, convene people around shared purpose, and speak persuasively about the role of arts and culture in responding to the climate crisis. Internally, they will inspire, empower and support a talented and values-led team, strengthening leadership capability, systems, decision-making and accountability while protecting the inclusive, creative and collaborative culture that makes Julie’s Bicycle special.

We are keen to hear from experienced senior leaders with a track record of organisational and people leadership, strategic development, partnership building and income generation. We expect our CEO to demonstrate a strong understanding of the relationship between culture, climate and wider social and environmental change, and to bring a deep knowledge and experience of the UK cultural landscape and key institutions and stakeholders, and/or a deep knowledge and experience of national and international climate policy and advocacy environments. However, we are also keen to hear from you if you are passionate about the intersection of culture and climate/environmental issues, but would benefit from a period of phased support to fully immerse yourself in the breadth of issues, sectors and contexts in which JB operates.  

This is an opportunity to lead a pioneering organisation with purpose and ambition: protecting what makes Julie’s Bicycle distinctive, strengthening the foundations that will help it thrive, and turning the power of culture into meaningful and lasting climate action.

To learn more about the opportunity and how to apply, please download the full appointment brief.

Closing Date:  18 October 2026

People Beyond Profit Conversations:  22 October2026 - 5 November 2026

JB Interviews:

First stage:  12 November 2026

Second stage:  19 November 2026

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.