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Join BBS UK and help deliver compassionate support within NHS highly specialised clinics, supporting children and families living with Bardet-Biedl syndrome.
At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our charity provides specialist support services that help children, young people and families feel informed, supported and able to navigate complex health and care systems, working in partnership with NHS Highly Specialised BBS Clinics.
We are seeking a compassionate and organised individual to join our Clinics Support Team as a Patient Liaison Officer (PLO). This role offers a unique opportunity to deliver charity-led support within specialist paediatric clinics at Great Ormond Street Hospital, working alongside NHS multi-disciplinary teams while remaining part of a close-knit and supportive charity team.
About the Role
As a Patient Liaison Officer, you will play a vital role in ensuring families feel prepared, supported and heard before, during and after their clinic appointments. You will provide emotional and practical support, advocacy and system navigation, helping families to understand their care and access appropriate support, while referring more complex casework to BBS UK’s specialist Advice Service.
You will:
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Support families before, during and after NHS Highly Specialised BBS clinic appointments
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Facilitate clinic attendance by preparing families for appointments, addressing concerns and helping to reduce “Did Not Attend” rates
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Attend specialist BBS clinics at Great Ormond Street Hospital, and St Thomas' Hospital, providing on-the-day support to families and clinicians (Approximately 2-4 days per month)
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Act as a key point of contact between families and clinical teams, supporting communication and information-sharing
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Provide light-touch advocacy, information and signposting in relation to health, education, social care and local authority support
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Identify unmet needs or emerging issues during clinic interactions and refer families to the BBS UK Advice Service for specialist advocacy and follow-up
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Support families during key transition points, particularly the move from paediatric to adult services
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Maintain accurate and confidential records using BBS UK’s CRM system (CharityLog)
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Contribute to service evaluation, quality improvement and the wider work of BBS UK
This is a home-based role with attendance at clinics in central London and occasional travel to other clinic sites and BBS UK events. Travel expenses will be reimbursed in line with BBS UK policies.
Who We’re Looking For
We are looking for an experienced individual with a background in supporting children and families, who can work confidently in a clinic-based, people-facing role.
Essential Experience & Skills
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Experience working with children, young people and families, ideally within health, social care, education or the voluntary sector
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Strong communication skills, with the ability to engage sensitively with families experiencing distress or uncertainty
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Experience providing emotional and practical support to individuals with complex or long-term conditions
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Ability to organise and manage multiple tasks, prioritise effectively and work independently
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Good IT skills, including Microsoft Office and case management/CRM systems (e.g. CharityLog)
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Understanding of safeguarding principles and professional boundaries
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A strong commitment to improving outcomes for people living with rare or complex conditions
Desirable Experience & Skills
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Knowledge of Bardet-Biedl Syndrome or other rare or genetic conditions
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Experience working alongside or within NHS services or multi-disciplinary teams
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Understanding of education, health and social care systems in England
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Experience supporting families affected by disability or visual impairment
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Ability to travel for work, including clinic attendance (travel expenses reimbursed)
Why Join BBS UK?
BBS UK is a small, dedicated charity making a meaningful difference to the lives of children, young people and families affected by Bardet-Biedl Syndrome. Our Clinics Support Team is widely recognised by families and clinicians as an essential part of the specialist BBS service.
By joining us, you will:
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Have a direct and positive impact on families at critical points in their care journey
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Be part of a supportive, values-driven charity team
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Work flexibly from home while delivering face-to-face support in specialist clinics
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Receive training, supervision and ongoing professional development
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Contribute to a nationally recognised rare disease support service
Additional Information
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DBS Check: An enhanced DBS check is required for this role
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Safeguarding: Completion of safeguarding training within the first month of employment
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Flexible Working: Occasional evening or weekend work may be required, with time off in lieu provided
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Hours: This is a permanent, part-time role (20 hours per week)
How to Apply
If you’re passionate about supporting children and families living with a rare condition and would like to be part of a dedicated charity team, we’d love to hear from you.
If you would like to discuss the role before applying, details can be found in the application pack.
Application Deadline: 8th February 2026
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.

The client requests no contact from agencies or media sales.
Bradford and Airedale Citizens Advice & Law Centre are a leading provider of legal advice and information, supporting thousands of clients every year. We are a busy, client focused and dynamic service with a track record of delivering high quality advice. This is a central role within the organisation. As a Client Services Officer, you will be friendly and welcoming. You will be the first point of contact for clients, and external stakeholders accessing the service via any channel (face to face, telephone and digital). This can be a challenging but rewarding role with plenty of contact with our clients, volunteers and paid staff. Our Client Services Officer team play a crucial role in the day to day running of our service. You will provide cover for our busy reception area, support clients who attend our drop-in sessions and process referrals which are received into the service. The post holder will be able to manage a demanding and varied workload, demonstrate confidence, flexibility and an overall can-do approach to tasks.
- We are interested to hear from people who ideally have experience of working within a similar client focused environment, where confidentiality is essential and are confident in dealing with clients who may be vulnerable or have multiple needs.
- The successful candidate will be supported through their on-the-job initial training period and encouraged to continually develop during their time with us.
Closing Date: 9.00 am Monday 26thJanuary 2026
Interviews: Tuesday 10th February 2026
We are looking for a Quality and Service Improvement Officer on a part-time basis to fulfil a job-share.
In this important role, you will manage the quality review process by providing expert advice and guidance and support the delivery of the caller feedback service.
You’ll be a key driver of Samaritans’ aim to improve the consistency and quality of our services, ensuring excellent service delivery to all our callers in their time of need.
Contract
- £16,500 - £17,500 per annum plus benefits (£33,000 - £35,000 FTE)
- Part time (17.5 hrs per week)
- Permanent
- Hybrid working with link to Ewell office
- In-person working: Meeting in person and working collaboratively are things we value. We work in person around 2 days or more per month.
- We are passionate about flexible working, talk to us about your preferences
What you’ll do
- Provide expert guidance to staff and volunteers in relation to quality reviews
- Manage the planning and administration of the quality review process
- Maintain and update quality review resources
- Champion quality improvement and development
- Coordinate the caller feedback process
- Engage with callers to gather feedback
- Communicate with branches and hubs to resolve complaints
What you’ll bring
- Proven experience of quality assurance or quality management
- Experience of engaging with service users to gather feedback, including vulnerable individuals
- Understanding of performance data and reporting methods
- Ability to manage difficult conversations with sensitivity
- Strong organisational skills with the ability to manage tasks and projects concurrently
- Good practical knowledge of data protection legislation
Full Job Description and Person Specification available below
Criminal record check (DBS)
We take safeguarding seriously at Samaritans and follow safe recruitment practices. As this role has direct contact with children and adults at risk, this role will require an Enhanced DBS check with Adults and Children’s Barred Lists.
At offer stage, as part of the conditional job offer, we will require the candidate to disclose in full, spent and unspent convictions by completing a declaration form. The declaration form will only be seen by those who need to see it as part of the recruitment process.
Why Samaritans?
At Samaritans, you’ll be part of a people-first organisation deeply committed to inclusion, compassion and learning. You’ll contribute to a team where your voice matters, your expertise makes a difference, and your work helps save lives.
We welcome applications from individuals with lived experience and encourage those from underrepresented communities to apply. We are committed to creating an environment where all our people feel seen, heard and supported.
You’ll join a values-led organisation with a powerful mission and a collaborative culture. We offer flexible hybrid working, excellent benefits, and the chance to make a tangible difference in suicide prevention across the UK and Ireland.
For further information about Samaritans, including our charity structure, values, employee benefits, and application process, please read our recruitment brochure attached below. You can also visit our careers website to access this.
We recognise the enormous benefits and the social justice imperatives of ensuring diversity at every level of our organisation. Samaritans is wholly committed to inclusion and diversity and to building a culture and environment where everyone is appreciated for the unique person they are. To ensure Samaritans is representative of those we support and who support us, we particularly welcome applications from disabled, racialised minority and LGBTQ+ candidates, as these people are under-represented at Samaritans.
Apply now
If this sounds like the opportunity for you, please apply. You will be asked to some answer short application questions and to upload your CV.
We kindly ask that you don’t rely on AI tools for your application answers, or to generate interview answers. We want to see your own unique ideas and writing skills. We want your application to stand out from the rest and showcase your own strengths.
Applications close: Monday 19th January 2026 at 09:00am
Interviews: w/c 26th January 2026
We prevent suicide through the power of human connection. Connecting people in crisis with trained volunteers who will always listen.



The client requests no contact from agencies or media sales.