About us
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, uniting patient voices to campaign for timely diagnosis, better care, and improved access to treatments.
We host Rare Disease UK (the national campaign for implementation of the UK Rare Diseases Framework) and SWAN UK (the only dedicated support network for families of children with undiagnosed genetic conditions) and we run the annual Rare Disease Day campaign.
About the role
This is a creative and purpose-driven role at the heart of our charity’s communications. As Senior Communications Officer, you’ll help us tell powerful stories, share our impact, and build connections with our members, supporters and partners.
You’ll lead on producing engaging digital content, managing our social media and newsletters, and keeping our website fresh and accessible. You’ll also support light-touch fundraising campaigns, helping us grow our income and supporter base.
This is an ideal role for someone who enjoys combining creativity with strategy, you’ll use your writing, design and digital skills to make our work visible and compelling, while ensuring the voices of those living with rare conditions remain at the centre of everything we do.
You’ll work closely with the Head of Membership and Communications and our new Director of Engagement and Impact, contributing ideas that strengthen how we engage all our audiences.
About you
We’re looking for someone who is:
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A strong communicator with at least two years’ experience in a communications role.
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Skilled in producing visual and written content for websites, social media and newsletters.
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Confident using digital tools (e.g. Canva, Adobe suite, Wordpress/Drupal).
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Organised, creative, and comfortable working both independently and collaboratively.
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Motivated by making a difference for people affected by genetic, rare and undiagnosed conditions.
Experience in the health, social care or charity sector would be an advantage, but curiosity and empathy matter just as much as direct experience.
What we offer
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Generous pension (5% employer, 3% employee)
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25 days annual leave (pro rata) plus bank holidays
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Full office closure over Christmas and New Year
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Flexible, home-based working with supportive team culture
Location: Home-based (UK) – occasional travel required
Salary: £29,705 (pro rata £23,764 for 0.8 FTE)
Contract: Permanent, 28 hours per week (0.8 FTE)
Closing date: 27 November 2025
Registered Charity 
11 - 20
The client requests no contact from agencies or media sales.
Thank you!
Race Against Blood Cancer, a small but mighty charity with huge potential, is seeking a new General Manager to lead the organisation.
The cure for chemotherapy-resistant blood cancers - such as lymphoma, leukaemia and myeloma - relies on finding stem cell donors with a similar ethnic background; currently 4 in 5 patients with Global Majority heritage do not find a match. Through donor recruitment & education, community engagement and by building strategic partnerships, RABC works to increase the volume and ethnic diversity of people who register as potentially life-saving donors; we believe every blood cancer patient deserves an equal chance of finding a potentially life-saving stem cell match.
ABOUT THE ROLE
The charity has an ambitious plan to build on its success and do even more to improve outcomes for blood cancer patients from Global Majority communities. Working with a group of committed professionals and a small team, you’ll use your existing charity sector experience to implement our new growth strategy as well as having responsibility for the day-to-day running of the organisation. This is an ideal opportunity for someone who is looking to move into their first charity leadership role or for a candidate who has a real passion to reduce health inequalities.
KEY RESPONSIBILITIES
- Leadership of our small, committed team of employees and contractors
- Operational implementation of the three-year organizational strategy to fulfil our ambitious growth aspirations
- Acting as the key contact for our registry partners and representing the charity among our wider stakeholders
- Implementation of good governance throughout the organization and keeping the board abreast of operational progress, challenges and opportunities
- Financial and budgetary management
- Leading on fundraising and communications for the organisation.
To apply for this position please send a copy of your CV, along with a supporting statement (max two pages) outlining your interest and suitability for the role. Please use the role description below as the base of your application.
Please note, applications without a supporting statement will not be considered.
Closing date for applications is 5pm on 28 November 2025. However, applications are considered on a rolling basis, so the closing date is subject to change. Should you be interested in the role, please apply as soon as possible.
The client requests no contact from agencies or media sales.