Trustee role volunteer roles in brentwood, essex

Summary: Driving medical communication and patient-led research agenda for a complex medical condition 

Description: You could make a real difference to the lives of patients and doctors struggling with a rare disease. That's what we do at Mast Cell Action - a charity dedicated to supporting the Mast Cell Activation Syndrome (MCAS) patient community and improving the evidence base for the disease.

We work hand-in-hand with doctors and patients to develop materials that truly make a difference. And with the help of our medical advisory panel, we're constantly improving our activities to better serve our community.

But we're not done yet. We're looking for someone with a genuine interest in this area, with medical, health, NHS, and research experience to join our team. You'll be responsible for developing and executing our strategy to engage with the medical community, research organisations, NHS policymakers, and our community as a whole.

You'll lead multiple projects, collaborating with doctors to better understand and define our community, as well as initiating and executing new projects. And with your expertise, you'll ensure that all our communications are evidence-based and informative.

So, if you're passionate about making a real difference, come and join us at Mast Cell Action. Together, we can create a brighter future for patients and doctors alike.

You will lead a team of passionate volunteers and interns, working closely with our Operations Director to drive our mission forward. One of your key responsibilities will be to nurture and grow our Medical Advisory Panel, working hand-in-hand with supportive doctors and medical institutions. You'll be the face of the charity, representing us in all our interactions with these key stakeholders.

You’ll report directly to our trustee board, ensuring that all of our activities are aligned with our overall strategy and goals.

We're looking for a dynamic individual who can inspire and motivate their team to achieve great things. If you're passionate about healthcare and have experience working with medical institutions, this is the perfect opportunity for you. So why not join us at Mast Cell Action and help us make a real difference in the lives of patients and doctors?

What impact will they have?

At Mast Cell Action, we know that communicating, engaging, and educating the medical community and policy makers is crucial if we want to improve support for MCAS patients. And that's where you come in.

As our communications expert, you'll play a pivotal role in advancing patient care over time. You'll work closely with doctors, medical institutions, and policy makers to raise awareness of MCAS and advocate for better support for patients.

By effectively communicating the importance of MCAS and engaging with key stakeholders, you'll help improve patient outcomes and quality of life in the long run.

If you're passionate about making a real difference and have experience in healthcare communications, this is the perfect opportunity for you. 

About the volunteer 

What skills should they have

We are looking for a volunteer who has experience in the NHS and medical/research environment. If you're someone who can assess a situation and develop a clear strategy to achieve the desired outcome, we want to hear from you.

As our ideal candidate, you're an effective communicator who can engage with doctors and produce written and visual materials that really make an impact. You're also a team player who can work effectively as part of a multidisciplinary team.

Managing projects and team members is second nature to you, and you're able to keep everyone on track and motivated. And with your awareness of the political and economic landscape in the area of complex diseases, you can navigate through any obstacles that come your way.

If you're passionate about making a real difference in the lives of patients with complex diseases and have the experience we're looking for, we want you on our team at Mast Cell Action.

Skills

Medical related background 

Medical writing skills

Project management 

Team management 

Analytical and conversant with research methodologies

Where and when

Work remotely, flexible hours 

Meetings in London 

Trips to medical conferences around uk

Reasonable Expenses covered.

Are you an enthusiastic and skilled funding grant writer? Be a part of our small but committed team as a pro-active grant writer volunteer for a small national charity supporting people affected by a debilitating pain condition.

We are looking for 2 skilled grant writer volunteers who can take the lead in researching appropriate funds and writing grant bids to help us continue offering our support services and resources and helping us create new programmes and services to support patients and their families who have been affected by a poorly understood chronic condition; Complex Regional Pain Syndrome (CRPS).

As our Grant Writer you will be responsible for identifying appropriate grant opportunities, and managing the grant development and proposal process from research to submitting grant applications with any supporting documents.

As our grant writer, you will:

• Identify appropriate sources of funding where we fit their criteria 
• Write appropriately tailored grant/funding bids that meet funders’ interests and requirements and to write any additional documents in support of funding bids
• Help develop a Trusts and Foundations strategy to help create and maintain strong and diverse income that meets Burning Nights CRPS Support’s funding needs
• Create a calendar of grant deadlines and track submitted funding proposals
• Help us develop a case for support 
• Report on grant usage and impact
• Review all grant/bid feedback and ensure knowledge is shared, so that learning informs us for future approaches to grants

If you are an experienced grant writer or you just enjoy researching and persuasive writing then we would love to hear from you.

We are looking for a volunteer who has:

• Experience of being a grant writer, project proposal writer and editing skills
• Excellent writing, analytical, and research skills are essential
• Creative and persuasive written and spoken communication skills 
• Self-motivated and highly-organised
• Ability to work remotely
• Ability to search online databases and other sources to identify appropriate funds
• Ability to understand and appeal to funders’ differing needs
• Ability to organise your own work, track and report back regularly 
• Experience setting up funding email templates (desirable)
• Ability to quickly understand the needs of our organisation  and our service users
• Understands the resource constraints of a small charity and can work with these
• Open to feedback
• Ideally have good network with people, organisations and charities which can help us to support our projects
• Determination to get the job done

Skills

• Project proposal writing
• Grant writing and knowledge of charity grant giving culture
• Good networking skills and contacts with grant giving organisation
• Marketing and communications
• Content writing and story-telling
• Good online fundraising skills
• Good editing and proof reading skills and attention to detail
• Team player who is comfortable working with various volunteers within Burning Nights CRPS Support to collate information required to write funding applications

If you don't have the exact experience, but are interested to volunteer with us, please apply! We would be thrilled to find out about how your interests and experience match with our needs or what we are doing.

Other Information

This role is done remotely using Zoom, Slack and email. You would be working closely with the charity’s Chair and with other trustees. However we would have regular updates and remote meetings as needed so we know you are getting the support you need.

We have an induction process that will help successful applicant to understand how our Charity operates and full support of all our volunteers.

Minimum of 3-6 hours per week for this role

Ideal commitment of 3 months or more (but not specific)

Role: Director of Local Operations

Job Description:
Youth Advantage UK is seeking a volunteer Director of Local Operations to develop and lead its Local Operations Departments (England and Wales; Scotland and Northern Ireland) in identifying and delivering on opportunities for the organisation to have an impact at a local level through commissioned research projects. The successful candidate will be responsible for ensuring these Departments produce high-quality research projects which meet the goals agreed with the commissioning organisations and grow Youth Advantage’s reputation and reach in line with its strategic policies. Working closely with the COO and the Policy and Ethics Departments, the ideal candidate will use their prior experience to effectively guide and strengthen the organisation’s ability to enable evidence-based, positive local change. They should have excellent writing and speaking skills, IT literacy, and the ability to work well independently and in a team.

This role reports directly to the Chief Operating Officer.

Responsibilities:

● In line with the organisation’s strategic priorities, to lead the Local Operations Department in designing, developing and implementing impactful research and project objectives.

● To line manage the Head of Local Operations (England and Wales) and the Head of Local Operations (Scotland and Northern Ireland), supporting them to effectively manage their own teams and to develop and implement the frameworks necessary for producing top quality research projects based around both desktop research and fieldwork.

● To work with HR in creating a strong Local Operations Department composed of individuals with the appropriate skills and expertise. To ensure these volunteers are appropriately supported and trained during their period of service.

● To work alongside the Policy Department to source potential commission and project opportunities, shaping the focus and output of the Local Operations Department accordingly.

● To develop short- and long-term strategies in relation to the Department’s activity, ensuring that these align with the wider strategies of the organisation.

● To liaise with the Policy and Ethics Department of the organisation on an ongoing basis, ensuring that their advice is incorporated into Departmental decisions and output.

● To take responsibility for relationships with key external stakeholders, at all times representing the organisation positively and professionally.

● To work on an on-going basis with the other members of the organisation’s Senior Leadership Team in determining its strategic priorities and incorporating these into the Department.

● To monitor, analyse and respond to external trends which impact on the organisation’s strategies and the Local Operations Department’s activities.

● To work closely with the organisation’s Communications Department in developing and implementing effective strategies to raise the organisation’s profile and impact.

● To create blogs and articles on related issues and to find and distribute information on related topics which may be of interest to the other organisation members.

● To support the Chief Executive Officer in presenting local operations strategies to Youth Advantage’s Trustees.

Requirements:

● Experience in research and planning, leading key campaigns or programmes.

● High-level understanding of carrying out quality desktop research and related fieldwork, ideally in an area related to the organisation’s priorities.

● Excellent knowledge of a range of methods and approaches to effectively disseminating research results.

● Excellent leadership and organisational skills, with proven experience of setting priorities and motivating team members.

● Excellent writing and speaking skills.

● IT literacy, including proficiency with Microsoft Office and Google Suite.

● Ability to work well independently and in a team.

● Strong attention to detail and organisational skills.

● Ability to prioritise tasks and manage time effectively.

Benefits

● Gain valuable experience in leading a research and project team.

● Opportunity to work with a dedicated and passionate team.

● Flexible working hours.