Trustee volunteer roles in hackney, ceredigion

We're on a mission to "remix young lives" from disadvantaged backgrounds across London. By providing positive role models, comprehensive personal development, and vital employability skills, we aim to guide, nurture, and inspire young people towards brighter futures. We're in our crucial set-up phase, and we need your leadership and expertise to help us get registered, establish robust governance, and prepare for launch.

This is a unique and impactful opportunity to apply your professional skills at the highest level, directly influencing the strategic direction and foundational success of a charity poised to make a deep, positive impact for generations.

WHO WE'RE LOOKING FOR:

We are building a diverse and collaborative team and need a leading force to drive and steer our new youth charity in the form of YOUTH CHARITY MANAGER and help us set up REMIX as a registered charity in England.​ We strongly encourage applications from individuals who reflect the rich diversity of London's communities, including those with lived experience relevant to our mission.

YOUR ROLE AS OUR YOUTH CHARITY MANAGER:

In this critical initial phase, you will be responsible for:

• Leading the Charity Setup: Overseeing Charity Commission registration, developing key policies and procedures (including robust safeguarding), and establishing operational frameworks.

• Driving Fundraising Strategy: Actively seeking and securing initial seed funding to enable the charity's launch.

• Programme Development: Refining and preparing our mentoring, personal development, and employability programmes for launch.

• Building Core Partnerships: Establishing relationships with community groups, schools, businesses, and other organisations.

• Recruiting Key Volunteers: Attracting and onboarding our initial cohort of mentors and operational volunteers.

• Working Closely with the Board of Trustees: Reporting to and collaborating with the Board to ensure good governance and strategic alignment.

• Steering, Directing and Guiding REMIX: Leading the day to day aspects of the management of REMIX, including steering and guiding the team to make REMIX a huge success.

WHAT WE OFFER:

• The incredible opportunity to be a founding leader of a charity poised to make a significant difference in young people's lives across London.

• A chance to utilise your professional skills for profound social good and see your impact firsthand.

• Collaboration within a passionate, dedicated, and diverse team.

• The deep satisfaction of knowing you are directly contributing to social mobility and creating pathways to success for disadvantaged youth.

This is a voluntary role, with an active contribution to specific areas aligned with your expertise. We are flexible and understand the demands of professional life.

READY TO REMIX YOUNG LIVES WITH US?

If you are a strategic thinker, a passionate advocate for young people, and ready to lend your expertise to help REMIX flourish, we want to hear from you.

Join us in building a future where every young person in London has the chance to thrive.

REMIX

EMPOWER. INSPIRE. TRANSFORM.

EHRAC is a team of experts in international human rights law and international mechanisms. We support and collaborate with human rights defenders in Ukraine and the South Caucasus to litigate ground breaking strategic cases to secure justice and challenge impunity. 

EHRAC’s Advisory Board provides guidance to the Co- Directors on issues of finance, operations, communications and strategic direction, and provides insight and advice on the situation in EHRAC’s target region. 

The Advisory Board member with financial management experience maintains an overview of EHRAC’s financial affairs. They ensure that effective and appropriate financial measures, controls and procedures are in place and provide support to EHRAC’s finance and grants team on an adhoc basis.

As well as attending the main meetings of the Advisory Board, they will join the Subcommittee, which consists of three Advisory Board members and meets quarterly (online or in person).

REMIX is a new youth social mobility charity start-up on a mission to "remix young lives" from disadvantaged backgrounds across London. We aim to guide, mentor, and inspire young people through positive role modelling, comprehensive personal development, and vital employability skills. We have our logo, but we need your creative expertise to bring our brand to life with an impactful, youth-friendly identity.

This is an incredible opportunity to apply your design skills to a meaningful social cause, helping us create a visual language that will attract young people to our programmes, inspire people to volunteer with us, and excite supporters to donate.

WHO WE'RE LOOKING FOR:

We need a creative, and detail-oriented designer who understands how to connect with a youth audience through visuals. We have a logo already but need to create a positive youth brand around it.

In this vital set-up phase, you will be instrumental in:

• Developing a Brand Styling Guide: Collaborating with our team to build a comprehensive visual identity guide. This includes defining our brand colours, typography, imagery style (including photography and illustration direction), logo usage, and overall design principles to ensure a cohesive, youthful and impactful look.

• Designing Core Communication Materials: Creating templates and initial designs for:

  • Social media posts: Engaging graphics for Instagram.

  • Information booklets: Designing layouts for programme information, volunteer guides, or impact reports.

  • Presentation templates: Creating professional and appealing templates for pitches to funders and partners.

• Ensuring Brand Consistency: Helping to apply the new brand identity across all our communications, ensuring everything we produce feels distinctly REMIX.

• Visual Storytelling: Translating REMIX's mission and impact into compelling visual narratives that resonate with our audiences.

WHAT WE OFFER:

• The unique chance to define the visual brand of a brand-new charity, directly shaping how we are perceived by thousands.

• An incredible opportunity to apply your design expertise to a profound social cause, seeing your work directly attract young people, inspire volunteers, and secure vital support.

• High levels of creative input and ownership in a dynamic start-up environment.

• Collaboration with a passionate and strategic Board of Trustees and the founding team.

• The deep satisfaction of knowing your designs will help "remix young lives" and build a brighter future for London.

This is a voluntary role to help us establish our core brand identity and initial materials. We are flexible and can work around your availability, including the hours you can support us with. We're also ok if you're only able to support us with only one of these items.

READY TO DESIGN A BRIGHTER FUTURE WITH REMIX?

If you are a talented and passionate graphic designer eager to leave your creative mark on a transformative cause, we'd love to hear from you.

Help us design the visual identity that will inspire and empower us to "remix young lives" across London!

REMIX

EMPOWER. INSPIRE. TRANSFORM.

We're looking for 2-3 detail-oriented and strategic Search Engine Optimisation (SEO) Specialist Volunteers to help optimise our online presence and ensure our campaigns and content reach the communities that need them most and increase the charity’s search engine results rankings. The SEO Specialist Volunteers will play a key role in enhancing the visibility and searchability of Burning Nights CRPS Support’s website and digital content.

The SEO Specialist Volunteers will be volunteering within the Communications & Marketing Team to implement SEO best practices, conduct keyword research, improve site structure, and analyse web performance – all to ensure our content reaches a broader audience and amplifies the voice of our charity’s supporters online.

Key Tasks and Objectives

• Competitor and Keyword Research: Conduct keyword research to inform website content and campaign strategies.
• On-page optimisation: Optimise existing content for improved search engine ranking (meta tags, meta descriptions, headers, alt text, etc.)
• Monitor and analyse SEO performance using tools such as Google Analytics, Google Search Console, and SEMrush.
• Technical SEO Implementation: Identify technical SEO issues and collaborate with content teams to resolve them.
• Backlink and Off-Page SEO: Assist in developing backlink strategies and improving domain authority.
• Support the content team in creating SEO-optimised articles and pages.
• Provide monthly reports on SEO performance and suggest improvements.
• Stay up to date with SEO trends, Google algorithm updates, and emerging best practices.

Key Skills or Qualifications

• Excellent understanding of SEO principles and search engine algorithms.
• Proven experience in conducting SEO audits, strategy development, and implementation.
• Experience using SEO tools such as Google Search Console, Google Analytics, Ahrefs, or SEMrush or similar platforms.
• Previous experience in digital marketing, content strategy, or technical SEO.
• Ability to perform keyword research and competitor analysis.
• Familiarity with HTML, CSS, and content management systems (ideally Django framework).
• Strong analytical skills and attention to detail.
• Excellent written communication and reporting skills.
• Evidence of organisational skills, with good attention to detail.
• The ability to work independently, turning recommendations into action without needing constant oversight.
• A passion for using your skills to support patients and families impacted by a debilitating pain condition and help save lives.
• Passion for creating inclusive and accessible digital spaces.
• Highly organised, self-motivated, and able to work independently.
• Enthusiastic about supporting a small charity.
• Willing to learn, adapt, and collaborate with a supportive team.

Desirable Experience

• Experience of Google Ads for nonprofits.
• Experience of using Django framework websites.
• Familiarity with accessibility best practices and inclusive web design.
• Experience working with or volunteering for nonprofit / charitable organisations.
• Demonstrable IT skills, particularly Google Drive and Microsoft.
• Good research and information management skills.
• An understanding of the charity sector and/or fundraising.

Key Benefits

• Volunteer as part of a forward-thinking, supportive team.
• Unique opportunity to directly contribute to strategic SEO recommendations, and the implementation of those changes to increase the charity’s visibility.
• At Burning Nights CRPS Support you’ll use your SEO skills for a mission with a real, measurable impact. This is more than just a volunteer role, it’s an opportunity to change and save lives.
• Make a meaningful difference in the lives of patients and families impacted by a severe pain condition.
• Building your network and forming connections with like-minded people and organisations.
• Enhance your CV and gain skills that are transferable to a variety of career paths.
• Receive training and ongoing support from our team.
• Experience the personal satisfaction and fulfilment that comes from helping others.

Training and Support

• Full induction to our organisation, as well as check-ins, ongoing training, supervision and support from the Communications & Marketing Lead Volunteer, Volunteer Co-ordinators, Trustees and the Volunteer Team.
• This a remote volunteering opportunity with regular online team check-ins and collaborative sessions with a supportive, creative, and inclusive team environment.
• Relevant and ongoing training for your volunteer role.
• Regular updates on charity activities.
• Support, advice and guidance from Charity team.
• After 3 months volunteering, all volunteers are eligible for additional training courses (reasonable cost).
• Out-of-pocket expenses, approved in advance will be reimbursed.

Climate and nature are urgent, motivating issues, so we attract great volunteers. We want to fulfil our potential by making sure we get the best out of our fantastic people and all the future ones we attract by keeping them happy and active. That is the role.

What will you be doing?

EcoCounts is a group of volunteers working together to embody EcoCore’s approach to the climate crisis. EcoCore covers a lot of ground because the climate and biodiversity crisis is so all-encompassing, which means we have a lot of varied and different volunteer tasks available, ranging from carbon footprint data collection, setting up sub-teams of friends or colleagues or doing social media or running workshops. 

Your responsibilities would be to create volunteer tasks from our work streams, which would include things like: 

• creating a role description for each volunteer task to give a good outline of everything required and expected

• keeping track of what volunteers are active on

• encouraging and inspiring volunteers to deliver on commitments

• creating an incentives or rewards framework for volunteers, potentially working with supporting businesses to agree on gift vouchers, tokens etc

• managing a small budget

• building up a social network with events, collaborations and other inputs

• using our social media accounts to advertise, to celebrate achievements etc

• help other directors, trustees & secretary keep reporting, stats, and feedback on activities up-to-date

Goals

1. Our 2025 target is 100 people doing their carbon footprints

2. We’re looking for 20 coordinators

3. We have about a dozen volunteering roles to fill beyond the two above

What are we looking for?

1. You should be a people-person with experience of managing people. You should be happy to put in the time and effort communicating with the volunteers both all-together and individually in a way that gets the best results from them.

2. Personal change is only one of the five ways that we can change society - we don't focus on personal change alone, we want to change our community, our local businesses and our local government.

3. You should check out our manifesto on the About page to make sure you agree with the ways we advocate for the way forward in the climate crisis – are you happy what we suggest is one of the best approaches?

What difference will you make?

Society has got itself into a dangerous situation with the climate crisis and EcoCounts aims to create a way out. We need all sorts of different people, not just climate nerds and sustainability fanatics, although of course that doesn't hurt. The person we need right now is someone who knows what people need to keep them happy and effective as a volunteer for us.

Being a volunteer-based organisation at this stage still, that might make the volunteer chief of staff the most important person we have. Of course we all consider each other equal. Being small and dynamic means EcoCounts can offer the flexibility for you to do an excellent and fulfilling job.

Rewards

Once you have found your feet, we can offer references, recommendations or certifications on any of the public platforms that we use, like Linkedin and Reach Volunteer. We are also building a social network and plans for regular events, so we hope you will also find our group socially rewarding.

Nistad Foundation | Remote | Voluntary | Part-Time

Are you passionate about ethical technology and shaping the future of AI? The Nistad Foundation is looking for a dedicated Non-Executive Director to help guide our mission of promoting Responsible, Ethical, and Safe AI across the globe.

About Us

We’re a forward-thinking charity working across the US, UK, and Africa, empowering communities through digital skills, ethical AI advocacy, and inclusive tech leadership. We focus on supporting youth and women, closing the digital divide, and influencing policy for a safer AI future.

What You’ll Do

As a Trustee, you’ll:

Governance and Compliance

• Ensure good governance practices are upheld, aligning with the foundation’s charitable mission and ethical standards.
• Confirm compliance with the Nistad Foundation's governing document, charity law, company law, and other relevant legislation.
• Monitor and manage risks, ensuring timely remedial action when needed.

Board Participation and Oversight

• Prepare for and actively participate in board meetings, contributing to discussions, working groups, and the development of board papers.
• Contribute to setting the foundation’s strategic direction and evaluating performance against charitable objectives.
• Provide ongoing monitoring and support for the Executive Director’s performance.

Financial and Resource Management

• Maintain oversight of the foundation’s budget and financial health, ensuring sustainability and stability.
• Ensure the effective and responsible use of the foundation’s assets, financial resources, and material and human resources.

Advisory and Strategic Support

• Offer guidance in areas of specific expertise, advising the Executive Director and staff on relevant policies and procedures.
• Lead and contribute to developing policies and procedures that reflect good practice, ensuring their implementation.

Advocacy and Fundraising

• Act as an ambassador for the foundation, advocating for its work and ethical values.
• Assist in diversifying and developing sustainable funding streams by promoting the
• foundation among personal and professional contacts.
• Support fundraising efforts by identifying opportunities, fostering relationships, and
• providing strategic insight.

Strategic Development and Performance

• Collaborate with the board to identify and monitor strategic risks, ensuring the foundation’s mission and reputation remain safeguarded.
• Contribute to the ongoing evaluation and refinement of the foundation’s strategic direction, ensuring alignment with charitable objectives.

What We’re Looking For

We’d love to hear from you if you have:

• Experience in charity governance, especially in tech, policy, or social impact
• A strong interest in ethical AI and digital inclusion
• Skills in finance, fundraising, partnerships, or policy
• A network you’re happy to leverage for a good cause

Why Join Us?

This is your chance to make a global impact in one of the most important conversations of our time. You’ll help shape the future of AI while supporting underrepresented communities to thrive in the digital age.

Ready to make a difference?

 Apply now and be part of a movement for ethical and inclusive technology.

Are you passionate about animal welfare and wanting to make a difference to the lives of cats and kittens in the York area? Join us as a Foster Coordinator to support the rescue, rehabilitation and rehoming of cats and kittens. 

Role overview:​

As the Volunteer Foster Coordinator, you will play a vital role in managing our foster program for cats in our care. This position is essential for ensuring that our cats are placed in loving, temporary homes while they await adoption. You will collaborate closely with foster carers, potential adopters, and other volunteers to create a supportive environment that benefits both the cats and their fosters.

Key responsibilities:​​

• ​Foster management: Oversee the onboarding and ongoing support of foster carers.

• Communication: Serve as the primary point of contact for foster carers, addressing any questions or concerns and providing necessary updates. Communication will primarily occur through email and messaging platforms, access to facebook and Whatapp is essential.

• Training and support: Provide guidance and resources to foster carers on cat care, behaviour, and best practices to ensure the well-being of the cats in their care and ensuring our policies and procedures are upheld.

• Record keeping: Maintain organised and accurate records of foster placements, including intake forms, health updates, and feedback from foster homes.

• Coordination of resources: Ensure that foster homes have the necessary supplies (food, litter, etc.) and access to veterinary care as needed.

• Post-Foster follow-up: Check in with fosterers to gather feedback and facilitate any transitions to permanent homes, ensuring a smooth process for both the cats and their fosters.

What we’re looking for:​​

• Passion for animal welfare: A strong commitment to the well-being of cats and a desire to support their journey to permanent homes.

• Excellent communication skills: Ability to build rapport and communicate effectively with foster carers and the volunteer team.

• Organisational skills: Strong attention to detail and the ability to manage multiple foster placements simultaneously.

• Computer proficiency: Familiarity with Microsoft Word, Excel, and communication platforms such as email and social media.

• Previous experience in animal rescue: Preferred but not essential; a willingness to learn and grow in this role is important. It is essential, however, to have experience and knowledge of cat health and behaviour.

Why Join us?​​

• Make a difference: Play a crucial role in the lives of cats and their foster families.

• Gain experience: Develop valuable skills in animal rescue and foster care management.

• Community support: Become part of a dedicated team of animal lovers and advocates.

• Ongoing training & development: Receive support and guidance from experienced volunteers and trustees.

We are looking for someone with a recognised financial qualification or substantial relevant charity financial experience to be our next treasurer, to ensure an effective handover from our current treasurer who comes to the end of their maximum term in October 2025.

Although this is an unpaid voluntary position, reasonable travel expenses will be covered.

Treasurer’s Duties

• Provide strategic financial advice, support and challenge to the board, Chief Executive and Head of Finance
• Maintain an overview of the organisation's financial affairs focusing on maintaining the organisation’s financial viability
• Review quarterly management accounts and advise on their implications and any necessary actions
• Represent and advise on all financial matters including the annual report and accounts
• Work closely with the Chair, CEO and Head of Finance to ensure the smooth financial running and continued financial health of the charity
• Help to deliver the strategy, focusing on increasing impact and sustainability through strengthening income streams and having a secure financial position

Time Commitment
The successful candidate will be required to attend:

• three two-hour teleconference Finance Sub Committee meetings and one face-to-face meeting per year (historically held in London);
• three two-hour teleconference Board meetings per year and one face-to-face meeting (historically held in London);
• Annual Conference in person, annually in November.

What are we looking for?

• Formal financial qualifications and experience are desirable, and it would be useful to have experience of charity finance.
• As an organisation, we work remotely, using IT solutions such as Teams, Zoom and SharePoint therefore location is not relevant, although you should be comfortable with the use of these technologies.
• The Treasurer must be able to analyse proposals and examine their financial consequences and report on these to the board.
• The Treasurer must be willing to be available occasionally for advice and enquiries as appropriate.

What difference will you make?
As a small charity, your contribution will be significant and effective. As part of Helplines Partnership’s Board, you will be helping directly to ensure the effectiveness of the organisation.

Equality, diversity and inclusion

HLP is committed to Equality, Diversity and Inclusion (EDI), supporting a fairer society through our work.

The aim of our board to reflect the diversity of our helpline communities and sector and to expose bias, provide richer discussions with well-rounded perspectives that will help trustees in their decision-making, which in turn will increase the charity’s legitimacy and impact.

We would particularly like to hear from people who:

• Are looking to be part of the strategic leadership of an established and highly respected charity
• Have, or are seeking to develop, experience in a non-executive role
• Are willing and able to devote the necessary time
• Care about mental wellbeing and helplines and feel motivated by our vision, mission and values

An informal discussion will be offered to interested candidates.  

All unsuccessful candidates will be told as soon as possible about their application status.

We appreciate any volunteering help that you can offer YBTC and want to make sure that our

volunteers have a positive experience with us. We pledge to support you as much as we can.

We want to ensure that volunteering with us does not feel too daunting, so the exact tasks might

vary depending on your circumstances. However, some typical tasks may include:

· Helping with event preparation

· Manning checkpoints

· Walking support

· First-aid support

· Marshals

· Support drivers

· Helping with community stalls

We are looking for people who are:

· Warm and non-judgemental

· Willing to learn about the work of YBTC

· Able to communicate with a range of different groups

· Good team players, able to work with other staff/volunteers

· Reliable and able to commit to agreed requirements

We can offer you the following:

· Induction and ongoing training

· Ongoing support and supervision in your role

· The opportunity to learn new skills

· YBTC commitment to health and safety

About Yorkshire’s Brain Tumour Charity

Background

Founded in 2003 and originally named Andrea’s Gift and later Brain Tumour Research and Support

Across Yorkshire, Yorkshire’s Brain Tumour Charity (YBTC) is Yorkshire and Humber’s leading

brain tumour charity. Offering practical, financial and emotional support to both adult and child

brain tumour patients, together with their families.

We fund brain tumour research in Yorkshire; we hope this research, dedicated to identifying new

approaches to the discovery and treatment of brain tumours, will improve outcomes for patients.

At YBTC we are a small team who are growing to meet the needs of those affected by a brain

tumour in Yorkshire. Around 15 new cases of primary brain tumour are diagnosed in the region

every week.

Our charity values are:

Integrity, Compassion, Community & Ambition.

Our Vision/Mission

To improve the lives of people impacted by a brain tumour in Yorkshire, through local support and research.

We appreciate any volunteering help that you can offer YBTC and want to make sure that our

volunteers have a positive experience with us. We pledge to support you as much as we can.

We want to ensure that volunteering with us does not feel too daunting, so the exact tasks might

vary depending on your circumstances. However, some typical tasks may include:

· Asking people you know who might be willing to have a collection box in their business

· Approaching local businesses to display the boxes and collect loose change from their customers

· Building and maintaining relationships with your box holders to inspire loyalty and encourage people to continue giving year after year

· Collecting the boxes in your area as and when required and taking to your YBTC contact

We are looking for people who are:

· Have a warm, friendly and confident outlook

· Willing to learn about the work of YBTC

· Able to communicate with a range of different groups

· Are creative and imaginative – spotting opportunities to boost your distribution

· Are well organised and enjoy meeting new people

· Reliable and able to commit to agreed requirements

We can offer you:

· Induction and ongoing training

· Ongoing support and supervision in your role

· The opportunity to learn new skills

· YBTC commitment to health and safety

Founded in 2003 and originally named Andrea’s Gift and later Brain Tumour Research and Support

Across Yorkshire, Yorkshire’s Brain Tumour Charity (YBTC) is Yorkshire and Humber’s leading

brain tumour charity. Offering practical, financial and emotional support to both adult and child

brain tumour patients, together with their families.

We fund brain tumour research in Yorkshire; we hope this research, dedicated to identifying new

approaches to the discovery and treatment of brain tumours, will improve outcomes for patients.

At YBTC we are a small team who are growing to meet the needs of those affected by a brain

tumour in Yorkshire. Around 15 new cases of primary brain tumour are diagnosed in the region

every week.

Our charity values are Integrity, Compassion, Community, & Ambition.

Our Vision/Mission

To improve the lives of people impacted by a brain tumour in Yorkshire, through local support and

research.

Are you an enthusiastic and skilled funding grant writer? Be a part of our small but committed team as a pro-active grant writer volunteer for a small national charity supporting people affected by a debilitating pain condition.

We are looking for 2 skilled grant writer volunteers who can take the lead in researching appropriate funds and writing grant bids to help us continue offering our support services and resources and helping us create new programmes and services to support patients and their families who have been affected by a poorly understood chronic condition; Complex Regional Pain Syndrome (CRPS).

As our Grant Writer you will be responsible for identifying appropriate grant opportunities, and managing the grant development and proposal process from research to submitting grant applications with any supporting documents.

As our grant writer, you will:

• Identify appropriate sources of funding where we fit their criteria 
• Write appropriately tailored grant/funding bids that meet funders’ interests and requirements and to write any additional documents in support of funding bids
• Help develop a Trusts and Foundations strategy to help create and maintain strong and diverse income that meets Burning Nights CRPS Support’s funding needs
• Create a calendar of grant deadlines and track submitted funding proposals
• Help us develop a case for support 
• Report on grant usage and impact
• Review all grant/bid feedback and ensure knowledge is shared, so that learning informs us for future approaches to grants

If you are an experienced grant writer or you just enjoy researching and persuasive writing then we would love to hear from you.

We are looking for a volunteer who has:

• Experience of being a grant writer, project proposal writer and editing skills
• Excellent writing, analytical, and research skills are essential
• Creative and persuasive written and spoken communication skills 
• Self-motivated and highly-organised
• Ability to work remotely
• Ability to search online databases and other sources to identify appropriate funds
• Ability to understand and appeal to funders’ differing needs
• Ability to organise your own work, track and report back regularly 
• Experience setting up funding email templates (desirable)
• Ability to quickly understand the needs of our organisation  and our service users
• Understands the resource constraints of a small charity and can work with these
• Open to feedback
• Ideally have good network with people, organisations and charities which can help us to support our projects
• Determination to get the job done

Skills

• Project proposal writing
• Grant writing and knowledge of charity grant giving culture
• Good networking skills and contacts with grant giving organisation
• Marketing and communications
• Content writing and story-telling
• Good online fundraising skills
• Good editing and proof reading skills and attention to detail
• Team player who is comfortable working with various volunteers within Burning Nights CRPS Support to collate information required to write funding applications

If you don't have the exact experience, but are interested to volunteer with us, please apply! We would be thrilled to find out about how your interests and experience match with our needs or what we are doing.

Other Information

This role is done remotely using Zoom, Slack and email. You would be working closely with the charity’s Chair and with other trustees. However we would have regular updates and remote meetings as needed so we know you are getting the support you need.

We have an induction process that will help successful applicant to understand how our Charity operates and full support of all our volunteers.

Minimum of 3-6 hours per week for this role

Ideal commitment of 3 months or more (but not specific)

Summary: Driving medical communication and patient-led research agenda for a complex medical condition 

Description: You could make a real difference to the lives of patients and doctors struggling with a rare disease. That's what we do at Mast Cell Action - a charity dedicated to supporting the Mast Cell Activation Syndrome (MCAS) patient community and improving the evidence base for the disease.

We work hand-in-hand with doctors and patients to develop materials that truly make a difference. And with the help of our medical advisory panel, we're constantly improving our activities to better serve our community.

But we're not done yet. We're looking for someone with a genuine interest in this area, with medical, health, NHS, and research experience to join our team. You'll be responsible for developing and executing our strategy to engage with the medical community, research organisations, NHS policymakers, and our community as a whole.

You'll lead multiple projects, collaborating with doctors to better understand and define our community, as well as initiating and executing new projects. And with your expertise, you'll ensure that all our communications are evidence-based and informative.

So, if you're passionate about making a real difference, come and join us at Mast Cell Action. Together, we can create a brighter future for patients and doctors alike.

You will lead a team of passionate volunteers and interns, working closely with our Operations Director to drive our mission forward. One of your key responsibilities will be to nurture and grow our Medical Advisory Panel, working hand-in-hand with supportive doctors and medical institutions. You'll be the face of the charity, representing us in all our interactions with these key stakeholders.

You’ll report directly to our trustee board, ensuring that all of our activities are aligned with our overall strategy and goals.

We're looking for a dynamic individual who can inspire and motivate their team to achieve great things. If you're passionate about healthcare and have experience working with medical institutions, this is the perfect opportunity for you. So why not join us at Mast Cell Action and help us make a real difference in the lives of patients and doctors?

What impact will they have?

At Mast Cell Action, we know that communicating, engaging, and educating the medical community and policy makers is crucial if we want to improve support for MCAS patients. And that's where you come in.

As our communications expert, you'll play a pivotal role in advancing patient care over time. You'll work closely with doctors, medical institutions, and policy makers to raise awareness of MCAS and advocate for better support for patients.

By effectively communicating the importance of MCAS and engaging with key stakeholders, you'll help improve patient outcomes and quality of life in the long run.

If you're passionate about making a real difference and have experience in healthcare communications, this is the perfect opportunity for you. 

About the volunteer 

What skills should they have

We are looking for a volunteer who has experience in the NHS and medical/research environment. If you're someone who can assess a situation and develop a clear strategy to achieve the desired outcome, we want to hear from you.

As our ideal candidate, you're an effective communicator who can engage with doctors and produce written and visual materials that really make an impact. You're also a team player who can work effectively as part of a multidisciplinary team.

Managing projects and team members is second nature to you, and you're able to keep everyone on track and motivated. And with your awareness of the political and economic landscape in the area of complex diseases, you can navigate through any obstacles that come your way.

If you're passionate about making a real difference in the lives of patients with complex diseases and have the experience we're looking for, we want you on our team at Mast Cell Action.

Skills

Medical related background 

Medical writing skills

Project management 

Team management 

Analytical and conversant with research methodologies

Where and when

Work remotely, flexible hours 

Meetings in London 

Trips to medical conferences around uk

Reasonable Expenses covered.

Job Description:
Youth Advantage UK is seeking a volunteer Director of National Impact to develop and lead its National Impact Directorate in identifying and delivering on opportunities for the organisation to grow its impact. The successful candidate will be responsible for ensuring the Directorate’s two Departments (Research and Project) produce high-quality research and related projects and events able to influence decision-making and policy on a national scale in line with the organisation’s strategic priorities. Working closely with the COO and the Policy and Ethics teams, the ideal candidate will use their prior experience to effectively guide and strengthen the organisation’s ability to enable evidence-based, national change. They should have excellent writing and speaking skills, IT literacy, and the ability to work well independently and in a team.

This role reports directly to the Chief Operating Officer.

Responsibilities:

● In line with the organisation’s strategic priorities, to lead the National Impact Directorate in designing, developing and implementing impactful research and project objectives.

● To line manage the Head of the National Impact Research Department and the Head of the National Impact Project Department, supporting them to effectively manage their own teams and to develop and implement the frameworks necessary for producing top quality research output (including academic articles) and subsequent events, campaigns and project relating to research findings and organisational strategy respectively.

● To work with HR in creating a strong National Impact Directorate composed of individuals with the appropriate skills and expertise. To ensure these volunteers are appropriately supported and trained during their period of service.

● To work alongside the Policy team to source potential commissions and influencing opportunities, shaping research and project focus and output accordingly.

● To develop short- and long-term strategies in relation to both aspects of the Directorate’s activity, ensuring that these align with the wider strategies of the organisation.

● To liaise with the Policy and Ethics teams on an ongoing basis, ensuring that their advice is incorporated into Directorate decisions and output.

● To take responsibility for relationships with key external stakeholders, at all times representing the organisation positively and professionally.

● To work on an on-going basis with the other members of the organisation’s Senior Leadership Team in determining its strategic priorities and incorporating these into the Directorate.

● To monitor, analyse and respond to external trends which impact on the organisation’s strategies and the National Impact Directorate’s activities.

● To work closely with the organisation’s Communications team in developing and implementing effective strategies to raise the organisation’s profile and impact.

● To create blogs and articles on related issues and to find and distribute information on related topics which may be of interest to the other organisation members.

● To support the Chief Executive Officer in presenting national impact strategies to Youth Advantage’s Trustees.

Requirements:

● Experience in research and planning, as well as leading key campaigns or programmes.

● High-level understanding of carrying out quality research, ideally in an area related to the organisation’s priorities.

● Excellent knowledge of a range of methods and approaches to effectively disseminating research results.

● Excellent leadership and organisational skills, with proven experience of setting priorities and motivating team members.

● Excellent writing and speaking skills.

● IT literacy, including proficiency with Microsoft Office and Google Suite.

● Ability to work well independently and in a team.

● Strong attention to detail and organisational skills.

● Ability to prioritise tasks and manage time effectively.

Benefits

● Gain valuable experience in leading a research and project team.

● Opportunity to work with a dedicated and passionate team.

● Flexible working hours.

Hours: Variable – depending on individual circumstances and what people can do

Location: Variable – we are looking to extend our reach of peer support walks throughout Yorkshire

Main Tasks:

We appreciate any volunteering help that you can offer YBTC and want to make sure that our

volunteers have a positive experience with us. We pledge to support you as much as we can.

We want to ensure that volunteering with us does not feel too daunting, so the exact tasks might

vary depending on your circumstances. However, some typical tasks may include:

· Support our regular wellbeing/peer support walks

· Welcome participants and help them feel comfortable, fostering a friendly and inclusive atmosphere

· Encourage conversations among participants, offering a listening ear

· Be attentive to the well-being of all participants during the walk

· Offer information on YBTC services

· Attending occasional training sessions or volunteer meetings organised by YBTC

We are looking for people who are:

· Are warm and non-judgemental

· Reliability – are punctual and committed to scheduled walks

· Collaborative mindset to work effectively with staff and volunteers

· Basic physical fitness to complete the walks, awareness of the needs of participants with

different mobility/health conditions

We can offer you the following:

· Full induction and ongoing training

· Ongoing support and supervision in your role

· Opportunity to learn new skills and meet new people

· The satisfaction of making a positive impact on those affected by brain tumours

Background

Founded in 2003 and originally named Andrea’s Gift and later Brain Tumour Research and Support

Across Yorkshire, Yorkshire’s Brain Tumour Charity (YBTC) is Yorkshire and Humber’s leading

brain tumour charity. Offering practical, financial and emotional support to both adult and child

brain tumour patients, together with their families.

We fund brain tumour research in Yorkshire; we hope this research, dedicated to identifying new

approaches to the discovery and treatment of brain tumours will improve outcomes for patients.

At YBTC we are a small team who are growing to meet the needs of those affected by a brain

tumour in Yorkshire. Around 15 new cases of primary brain tumours are diagnosed in the region

every week.

Our charity values are: Integrity, Compassion, Community & Ambition.

Our Vision/Mission

To improve the lives of people impacted by a brain tumour in Yorkshire through local support and research.