Trustee volunteer volunteer roles

We're seeking a trustee with experience in arts, culture, philanthropy or charity governance to complete the board of a new international arts charity supporting emerging artists. As a trustee you'll play an essential role in shaping the early direction of ellipse art projects UK and helping us open new opportunities for emerging artists from Southeast Asia, Africa, in the UK.

This year, we're launching our UK charity alongside our existing French endowment fund, submitting our registration to the Charity Commission, and preparing our first major partnership with a cultural non profit organisation in London. The board will lead these foundational decisions. For this reason, we're looking for a trustee with experience in UK charity governance, ideally in the arts or culture sector. If you have set up or grown a UK charity before, even better.

Our board is intentionally small: three to four trustees, meeting two to three times per year (in person or online). We are just starting out and hoping to build a friendly, engaged and collaborative board, one that combines the strategic ambition of our founders with the calm, informed guidance of experienced trustees like you.

The mandate is three years, renewable.

China Plate are looking for new Trustees to join our friendly and dynamic Board. If you are interested in the ways arts and culture can have a positive impact on the world, we’d love to hear from you.

China Plate is an arts charity based in Birmingham and working across the West Midlands, the UK and internationally. We’re producers: we work with people to make creative projects happen. Our projects include theatre shows, training programmes, audio anthologies, short films and bus stop galleries.

Our artistic programme is underpinned by our four core values: creativity, optimism, integrity and inclusivity. We’re now looking for new Trustees who share these values and who, like us, are interested in bringing communities together to produce creative projects that fire the imagination, make positive change and are open to all.

Our Trustees meet four times a year to discuss the company’s strategy and progress, and to ensure we are meeting all our legal requirements. These Board meetings are hybrid: you can join us online or in our Birmingham office.

Trustees are not paid: they are volunteers who give their time to support charities. However, at China Plate we can cover costs like travel expenses for meetings and events. If Trustees have access requirements – for example if you require BSL interpretation, captioning, or information provided in particular formats – we will also put these into place.

You do not need to have been part of a Board before to join. You could be based in the West Midlands or elsewhere in the UK. We are looking to recruit new Trustees from either inside or outside the arts sector, including those who may not yet be familiar with our work. We’re interested in hearing from anyone who shares our values, is excited by what we’re doing and is keen to support, question and challenge us.

We would particularly like to recruit one Trustee who is a young person (18-30) who has previously taken part in one of China Plate’s Training & Development programmes – such as The Optimists, Young Producers, or our internships and placements.

Deadline to apply is 12pm (midday) on Wednesday 30th September 2026.

If you’d like to find out more, please visit our website to download the Trustee Recruitment pack.

If you’d like to have a conversation about the role prior to applying, please email our Executive Director Chloe. 

Chair of Trustees – Mary Frances Trust

Location: Surrey/Hybrid

Time commitment: Approx. 1–2 days per month

Remuneration: Voluntary role (reasonable expenses reimbursed)

Term: Three-year term, with potential for reappointment for up to two further terms.

We are open to reasonable adjustments and flexible approaches to the role.

About Mary Frances Trust

Mary Frances Trust (MFT) is a mental health and emotional wellbeing charity that works alongside people experiencing any kind of emotional or mental health issues, supporting them for as long as needed to restore and maintain their wellbeing. We provide a range of community-based services, co-produced with people with lived experience of mental health issues. We work closely with partners across the health sector (including NHS), local authority and the voluntary sector.

We believe that anyone experiencing mental or emotional health issues should feel confident to ask for help and receive appropriate support for as long as needed, to live a fulfilling life.

Our values are: Inspiring, Inclusive, Agile and Respectful.

We are a charitable company limited by guarantee with a Board of Trustees responsible for our overall governance, strategy and compliance.

Board culture: Our Board is friendly, established and committed, working collaboratively to provide strong governance and support MFT’s mission.

Please note, Mary Frances Trust reserve the right to close this vacancy early if we receive sufficient applications for the role.

The Role

We’re seeking a Chair of Trustees to provide leadership to the Board as MFT embarks on its next phase of growth and development. This is an exciting strategic role offering the opportunity to drive meaningful change and shape the future of our organisation. You will work closely with a committed team of Trustees, staff and volunteers to set direction, provide governance and ensure MFT continues to deliver real impact for the Surrey community.

The Chair will:

• Lead the Board and support the organisation to fulfil its charitable purpose.
• Ensure effective working relationships between the Board and staff, volunteers, the Advisory Group, Members and key external stakeholders.
• Act as spokesperson and figurehead for the charity where appropriate.
• Supervise and support the Chief Executive, including an annual performance review.
• Plan and prepare Board meetings and the Annual General Meeting (AGM) with the Chief Executive and other staff members as appropriate.
• Chair Board meetings effectively ensuring balanced discussion, clear decisions and actions are assigned and followed through.
• Lead regular reviews of Board effectiveness and support good succession planning for the Chair role.
• Work closely with the Chief Executive and fellow Trustees to ensure MFT meets its legal, regulatory and constitutional duties while staying true to its vision and values.

Person Specification

In addition to the skills and experience required of all MFT Trustees, the Chair will bring:

• Strong governance and leadership capability.
• The ability to chair meetings well and enable inclusive, balanced discussion and clear decisions.
• Sound judgement, and the ability to support and constructively challenge the Chief Executive.
• Tact, diplomacy and strong interpersonal skills.
• Understanding of the mental health and wellbeing sector and/or the wider voluntary sector context.
• The time and capacity to commit to around 1–2 days per month.
• Commitment to MFT’s values and to improving mental health and wellbeing in the Surrey community.

Previous experience as a Chair or Vice Chair (in a charity, public, or non-profit setting) is desirable, but we also welcome applications from candidates who can demonstrate strong governance and leadership experience and the ability to step into this role.

Additional experience that would strengthen the Board (desirable):

• HR / people governance experience.
• Capacity to support Board‑level oversight of complaints or appeals (staff or client related) where matters are escalated.
• Experience of Co‑production, lived‑experience‑led work, or collaborative approaches to service design and governance.
• Lived experience of mental health issues and/or caring experience (we value lived experience alongside governance and leadership skills).

Time Commitment

The Chair is expected to commit approximately around 1–2 days per month.

These include:

• Preparing for and chairing approximately six Board meetings a year.
• Attending the Annual General Meeting (in the autumn).
• Regular meetings with the Chief Executive.
• Occasional representation at external meetings and events.

Eligibility

You must be eligible to serve as a Charity Trustee and Company Director under UK law and be willing to complete the necessary eligibility and declaration checks.

All successful candidates will be required to undertake Enhanced Disclosure and Barring Service (DBS) checks as well as reference checks. These will be a condition of any offer of volunteering post being made.

Equality, Diversity and Inclusion

We welcome applications from people of all backgrounds and perspectives. We strongly encourage applications from people with lived experience of mental health issues.

We welcome applications from people under‑represented in charity governance (including disabled people, people from minoritised ethnic communities, and people with lived experience of mental health challenges).
 

We are seeking an inspirational Chair of Trustees and a Vice Chair to lead Studio Upstairs into its next exciting chapter.

This pivotal role requires integrity, compassion, and strategic vision to ensure our much-loved arts and mental health charity fulfils its charitable objectives, maintains the highest standards of governance, and continues to thrive as a respected and trusted organisation.

The Board of Trustees plays a vital role by steering and supporting the charity development. 

We are seeking to appoint a Chair,Vice Chair or initially to join the board as a Trustee.. The Studio Upstairs Board is drawn from a diverse range of backgrounds and has a variety of skills. To complement the current Board, we would envisage that the Chair had a wide experience of running organisations and a particular interest in the charity sector. We are keen to hear from candidates with skills in the areas of Corporate Governance and Business Development ie: Charity Financial Management, Partnership working or Fundraising as well as those within Digital Technologies, Health or Legal expertise.

Studio Upstairs exists to transform lives through creativity. We have branches in Bristol and London. We are a trusted arts and mental health charity offering open studios and a creative community. We help people overcome challenges through therapeutic art practice and supportive peer interaction.

In addition to the full board meetings  there may be occasional committee meetings or meetings of specific task groups. It is expected that the Chair will also maintain regular contact with the Managing Director and other Board members.

The Board Meetings are to be held four to six times a year in London (currently online). 

A clear empathy with the aims of the charity are essential. You can find out more about our work on our website. 

The shortlisted candidates will be offered an opportunity to discuss the role informally prior to an interview. 

For more than a century, the RAF Benevolent Fund has stood beside the RAF Family;
through war and peace, hardship and change. From the first day in uniform to the final
years of life, we have been a constant source of emotional, practical and financial support.
Today, our work reaches serving personnel, veterans, families and the bereaved in more
than 30 countries.
We are seeking a Welfare and Safeguarding Trustee for an initial term of four years,
(ideally) commencing 1 October 2026.
You will have a relevant background with safeguarding experience (such as nursing, medical,
social care, teaching or other healthcare professional, ideally at a senior level). You will
understand the needs of those who are vulnerable whether its due to age, health and
wellbeing or socio-economic factors and will have the skills and knowledge to advise and guide
on appropriate strategies to ensure the Fund is best able to meet those needs. It is key that
you are able to provide relevant specialist knowledge, support and information and to clearly
articulate issues relating to safeguarding which will be invaluable to the Fund in ensuring it
complies with all legal and good practice requirements in relation to safeguarding and that it
has clear and up-to-date policies and procedures.
Interested?
If you have the experience we are seeking and are as passionate about the RAF Family as we
are, we would love to hear from you. To apply please send an up-to-date CV and covering
email / letter outlining how your background, skills, experience meets the person
specification (see final page) to Lisa Harmshaw (email address in role information attached) our Head
of Governance. If you have any questions about the role or would like to have an informal
discussion prior to applying, please contact Lisa on phone number given in role information attached or via email.
We welcome applications from anyone who has the experience we are seeking, irrespective of
background, community, industry or protected characteristics. If you require any reasonable
adjustments as part of your application process, please let us know. We operate safer selection
practices; this will involve the successful candidate being required to have a Disclosure and
Barring Service check.
Applications will be considered on a rolling basis, and this position will remain open until we
have found our ideal candidate. No agencies please.

We are seeking an experienced finance professional to join our Board of Trustees and provide strategic financial oversight to support the Trust’s long-term success and sustainability.

As a Trustee, you will play a key role in shaping the Trust’s vision, ensuring strong governance, and helping to deliver positive outcomes for our pupils, staff, and communities. Working collaboratively with fellow Trustees and senior leaders, you will contribute to effective decision-making and provide independent scrutiny and challenge where appropriate.

Key Responsibilities

Trustees collectively provide:

• Strategic Leadership – setting the Trust’s vision, values, culture, and long-term strategy.
• Accountability and Assurance – overseeing performance, risk management, and organisational effectiveness.
• Stakeholder Engagement – ensuring meaningful engagement with key stakeholders to support informed decision-making.

As the Finance Specialist Trustee, you will bring professional financial expertise to the Board, supporting robust financial governance, sustainability, and effective stewardship of resources.

What We Are Looking For

We welcome applications from individuals with strong financial knowledge and experience, who can provide strategic insight and independent judgement. Previous board experience is desirable but not essential.

Trustees are responsible for the governance of a charitable company and must ensure that the Trust complies with all relevant legal, regulatory, and statutory requirements. Trustees work closely with the Trust’s governance professionals and, where necessary, seek advice from external professional advisers.

This is an excellent opportunity to use your financial expertise to make a meaningful contribution to education and community outcomes.

We are looking for someone who:

• Professional experience in finance, accounting, audit, or financial management
• Ability to analyse complex financial information and communicate key issues clearly to non-finance specialists
• Understanding of governance, risk management, and assurance frameworks
• Commitment to the values, vision, and objectives of the Trust

Desirable criteria:

• Experience working within the public sector, charity, or education finance environment
• Knowledge of academy trust funding arrangements and financial frameworks
• A recognised professional finance qualification (e.g. ACA, ACCA, CIMA) or equivalent experience

Shortlisting: TBC

Interviews: TBC

All applicants short listed will be required to take part in a formal interview.

Additional Information:

Hales Valley Trust is committed to safeguarding and promoting the welfare of children and expects all staff and volunteers to share this commitment. All offers of employment are subject to an Enhanced DBS check, and where applicable, a prohibition from teaching check will be completed for all applicants.

This post is exempt from the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (2013 and 2020).This means that certain convictions and cautions are considered ‘protected’ and do not need to be disclosed to employers, and if they are disclosed, employers cannot take them into account.Guidance about whether a conviction or caution should be disclosed can be found on the Ministry of Justice website.

SSAFA, the Armed Forces charity, is seeking a Information Systems & Analytics Trustee to join our purpose-driven and passionate Council (Board of Trustees). Are you ready to play a leading role in shaping the strategic direction of the UK’s oldest national tri-service charity?

Founded in 1885, SSAFA, the Armed Forces charity, provides practical, financial and emotional support to serving personnel, veterans and their families. Today, we remain a trusted source of help for those who serve or have served, and for the families who stand beside them.

Our work is underpinned by our values of understanding, commitment, integrity and compassion, and delivered by a diverse network of volunteers and employees across the UK and worldwide.

Role Responsibilities

As a Trustee, you will:

• Provide strategic leadership, aligning with the Charity Governance Code principles of organisational purpose, leadership and integrity
• Ensure effective stewardship of the charity’s resources and long-term sustainability
• Safeguard SSAFA’s reputation, values and charitable purpose
• Promote a culture of integrity, accountability, and inclusive decision-making at Board level
• Ensure compliance with charity law, regulatory requirements and governing documents

We are seeking individuals who can contribute to high-quality governance in line with the Charity Governance Code, to:

• Provide advice on digital technology, transformation and innovation to improve service delivery
• Provide oversight and guidance on AI, data and digital risks
• Support compliance with legal and regulatory requirements in the digital environment
• Provide assurance on cyber security resilience
• Work alongside the Executive and IT function to strengthen SSAFA’s digital capability

Why Join Us

You will join a committed and purpose-driven Board, operating in accordance with recognised governance best practice. This is an opportunity to help shape the strategic future of SSAFA and ensure it continues to deliver impact for the Armed Forces community, now and in the future.

Closing date: Midnight on 1 September 2026

Interviews: Face to face interviews will be held in October 2026.

Volunteer Opportunity – Treasurer Trustee
Independent Arts Isle of Wight

Do you have financial skills and experience that could help strengthen creativity, wellbeing, and
community connections across the Isle of Wight?

Independent Arts is seeking a Treasurer Trustee to join our Board and help support the charity’s
continued growth and sustainability.

Independent Arts works with people of all ages and backgrounds, using creativity and
participation in the arts to improve wellbeing, reduce isolation, build confidence, and
strengthen communities. We believe that creativity can have a positive impact on people’s lives,
and we are looking for someone who shares our values and wants to make a meaningful
contribution.

As Treasurer Trustee, you will play an important role in helping the Board oversee the charity’s financial affairs, ensuring strong financial governance and supporting informed decision-making. You will work alongside fellow trustees and staff to help ensure the organisation remains financially sustainable and able to continue delivering its valuable work across the Isle of Wight.

We are looking for someone who can offer:
• Experience in finance, accounting, budgeting, business planning, or financial
management
• The ability to understand and explain financial information clearly
• Strategic thinking and sound judgement
• A collaborative approach and willingness to contribute to Board discussions
• Commitment to good governance and the aims of Independent Arts
Previous charity trustee experience or a professional accounting qualification would be
welcome but is not essential. We encourage applications from people with relevant skills and
practical experience from a range of professional and personal backgrounds.

What you’ll gain from the role:
• The opportunity to make a meaningful impact within the local community
• Experience of charity leadership and governance
• The chance to use your professional skills for social good
• The opportunity to work alongside a passionate and committed Board and team
• A chance to support creativity, wellbeing, and inclusive community development across
the Isle of Wight

Time commitment
This is a voluntary role. The Treasurer Trustee will be expected to attend quarterly Board and
finance committee meetings and review papers in advance, with additional time required to
support the CEO in financial planning, Board and annual reporting activities.
Independent Arts is committed to equality, diversity, and inclusion and welcomes applications
from people of all backgrounds, experiences, and communities.
 

Inclusive Boards is delighted to support Phyllis Tuckwell Hospice Care in their search for a Trustee.

Phyllis Tuckwell is an independent Hospice Charity based in Farnham, Surrey. They offer specialist palliative care in a compassionate and friendly environment. They aim to provide equitable supportive and end of life care to those with an advanced or terminal illness and to their families.

Their services help around 2,000 people each year and include a newly built hospice which can accommodate 18 in-patients, a living well centre, outpatient appointments, and a community service, including our Hospice Care at Home team.

About the Trustee opportunity

Phyllis Tuckwell  is currently seeking to appoint a Trustee who is an experienced qualified accountant and business professional and has:

• a clear understanding of our mission to put the patients and their families at the centre of any decisions made;
• compassion with a respect to the nature of Palliative care;
• knowledge of the Charities Statement of Recommenced Practice (SORP);
• strategic finance experience, business acumen, and the ability to communicate complex financial information effectively to trustees from a range of professional backgrounds;
• a desire to work collaboratively with fellow Trustees and volunteers;
• strategic thinking for the charity’s long-term aims;
• integrity so that decisions made by the Board are in the best interest of the Charity;
• good governance to ensure we comply with our legal and ethical goals and; 
• the time and commitment needed to join our high-performing Board.

They would especially welcome interest from individuals who have personal experience of caring for a loved one, as this perspective would bring additional value and understanding to the role.

The Board usually meets 4 times each year. In addition to which Trustees are expected to attend the annual Strategy Away Day with the Senior Management Team and sit on at least one of the quarterly sub committees, many of which can be held via Teams. Trustees are also encouraged to play an active role in the life of the Hospice including attending fundraising events, joining in with staff and volunteer events and working alongside the senior team to act as a sounding board.

Phyllis Tuckwell is committed to equality and diversity within their workforce and all volunteering opportunities. They welcome expressions of interest from individuals with a range of backgrounds and particularly encourage ethnic diversity, disabled people and those from under-represented backgrounds, communities and groups to apply.

Why we want you

Join the Make-A-Wish UK Volunteer team on Sunday 13th September 2026 and cheer on our incredible runners at The Great North Run Cheer Spot!

We would be so grateful for your support, and your presence will make all the difference to our #WishHero runners. It’s one of the best days that is full of joy, and your time will help us to grant more wishes!

Arrive: 10:00am Approximate Finish: 3:00pm Location: Tyne Bridge, Newcastle-Upon-Tyne Nearest train station: Newcastle Station

Bring your energy, your enthusiasm, and your friends and family too if you like! Join us now for an amazing volunteering experience

What you will be doing

• Cheering on our runners at the cheer spot
• Representing Make-A-Wish UK on the day with your fellow volunteers

The skills you need

• A commitment to our values and behaviours
• Excellent communication skills
• A warm, enthusiastic and friendly manner

What's in it for you

• Join an inspiring and magical organisation, where you will help children experience the anticipation and long-lasting effects of a wish
• Develop new skills and gain new experiences and relationships

Disclaimer

Make-A-Wish is committed to attracting and recruiting diverse candidates as it’s important that our trustees, employees, ambassadors and volunteers reflect the communities we serve at every level within the organisation. The organisation is committed to safeguarding and promoting the welfare of children and young people and expect all staff and volunteers to share this commitment. The relevant disclosure check will be requested where required.

Inclusive Boards is delighted to be supporting Lincs & Notts Air Ambulance in their search for two new Trustees.

About  Lincs & Notts Air Ambulance

The Lincs & Notts Air Ambulance (LNAA) is one of the UK’s leading Helicopter Emergency Medical Service (HEMS) charities, providing rapid, life-saving critical care across Lincolnshire and Nottinghamshire, 24 hours a day, 365 days a year. Our Helicopter and Critical Care Cars take the expertise of the hospital directly to the scene of the emergency, reaching any point in our two counties in under 20 minutes. Each mission costs approximately £4,000, and with over 32,000 missions since our founding in 1994, our service is made possible entirely through the generosity of the communities we serve.

LNAA is in a period of significant growth and transformation. We celebrated our 30th anniversary and our 30,000th mission in 2024 and were rated Outstanding by the Care Quality Commission in 2025 – a milestone that reflects the exceptional standards across our entire organisation. Looking ahead, our five-year strategy focuses on expanding our service further, including the introduction of a second helicopter in 2027 to ensure we can be by the side of even more patients when they need us most.

About the Trustee roles

To support this ambitious strategic direction, LNAA is seeking to appoint two new Trustees: one Generalist Trustee who will bring broad strategic leadership experience and sound governance judgement, and one specialist Trustee with expertise in Digital Technology and AI.

Role 1: Generalist Trustee

A strategic and collaborative leader, bringing broad experience, sound judgement and the ability to contribute constructively to Board discussion across a range of areas.

Essential:

Senior-level strategic leadership or governance experience. Ability to contribute broad perspective, constructive challenge and sound judgement to Board discussions.

Desirable:

• Experience in areas such as Finance, Aviation, Commercial leadership, Marketing or another relevant discipline.
• Familiarity with the charity or not-for-profit sector.

Role 2: Digital Technologies / AI Expertise

Use your skills and expertise to provide insight into digital transformation, AI innovation and emerging technologies, ensuring our work remains relevant, ethical and future-ready.

Essential:

• In depth knowledge of Digital and AI technologies, including strategy and emerging trends.
• Experience providing strategic oversight or advisory input at board or senior level.

Desirable:

• Awareness of ethical and regulatory issues around AI and digital transformation.
• Track record in driving digital innovation, ideally in a non-profit or public sector setting.

HELP US LAUNCH MINDSET — AND CHANGE MEN & BOYS’ LIVES IN LONDON

We’re ideally seeking Trustees based in London, but we welcome passionate volunteers from across England who can join meetings virtually and help steer the future of a charity with huge potential.

We’re MINDSET Charity, a bold new start‑up in London on a mission to equip and empower men and boys with the tools they need for better mental health, stronger resilience and long‑term personal growth.

We’re building a stigma‑free movement — a space where men and boys can learn real, practical, non‑clinical skills that help them build better habits, better mindsets and better lives. From 1:1 Life Coaching, to 6‑ and 12‑week self‑improvement programmes, to school workshops for teenage boys, we’re creating something powerful.

And right now, we’re getting ready to launch — and we need Trustees who can help shape our direction, strengthen our governance and guide us as we build a charity that will transform lives across London.

YOUR IMPACT WILL BE HUGE

Joining MINDSET as a Trustee at this early stage means you’re not stepping into a traditional board role — you’re becoming part of the founding leadership of a charity with ambition, energy and purpose.

Your decisions will directly influence:

• how quickly we can register as a charity;

• how strong and safe our governance becomes;

• how effective and impactful our programmes are;

• how we grow, scale and innovate;

• how we support men and boys across London for years to come.

This is your chance to help build a charity from the ground up — shaping its culture, its strategy and its future.

THE ROLE: TRUSTEE (VOLUNTEER)

1. A strategic leader.
2. A guardian of good governance.
3. A champion for men and boys’ wellbeing.

As a Trustee, you’ll help guide MINDSET’s vision, ensure we operate safely and responsibly, and support our start‑up charity as it builds momentum towards launch.

You’ll work closely with the Founder and Leadership Team, offering insight, oversight and support as we develop programmes, strengthen operations and build our organisational infrastructure.

This role is perfect for someone who wants to use their experience, judgement and passion to help shape a charity with real purpose.

WHAT YOU’LL HELP US BUILD

1. Governance & Strategy

• Helping shape our early strategy and direction.

• Ensuring strong governance and responsible decision‑making.

• Supporting charity registration and compliance.

• Helping us build a safe, ethical and effective organisation.

2. Oversight & Accountability

• Reviewing policies, procedures and safeguarding measures.

• Ensuring we meet legal and regulatory requirements.

• Supporting risk management and organisational stability.

• Helping us build systems that future teams can rely on.

3. Start‑Up Leadership

• Bringing insight, ideas and energy to a fast‑moving charity.

• Supporting the Founder and Leadership Team.

• Helping us build momentum towards launch.

• Championing our mission to improve men and boys’ mental health.

WE’RE NOT JUST LOOKING FOR ANYONE

We’re especially interested in people who:

• want to help build a new charity from scratch;

• bring strategic thinking, clarity and good judgement;

• understand governance, safeguarding or charity operations (or are keen to learn);

• can offer calm, steady leadership in a start‑up environment;

• care deeply about men’s mental health, wellbeing and personal growth;

• want to be part of a movement that will change lives.

If you’re someone who loves shaping vision, strengthening governance and building strong foundations — this is your moment.

JOIN TEAM MINDSET

Helping Men & Boys Build Better Lives.

LONDON

The BDFA is seeking a new Volunteer Treasurer/Trustee to join our passionate and dedicated Board.

As a trustee, you will play a key role in shaping the strategic direction of the BDFA, ensuring strong governance, and helping to improve the lives of children, young people, and families affected by Batten disease across the UK.

The overall role of Treasurer is to maintain an overview of the organisation’s affairs, ensure its financial viability and ensure that proper financial records and procedures are maintained.

As our Treasurer, you will:

• Oversee, approve and present budgets, accounts and financial statements
• Assure that the financial resources of the organisation meet its present and future needs
• Prepare and present financial reports to the Board
• Ensure that appropriate accounting procedures and controls are in place
• Have oversight of and give guidance to BDFA Accounting & Financial Administration Officer
• Attend board meetings
• Present financial overview at the AGM

Ideal Background:

Fully qualified chartered accountant/financial qualifications and experience. Some experience of charity finance and fundraising.

We welcome suitably qualified applicants who share our commitment to inclusion, integrity, and advocacy, and who are willing to contribute their time, skills, and experience to drive meaningful change.

Trustees meet regularly (virtually and occasionally in person) and contribute to board discussions, sub-committees, and strategic projects, including attending our in person meeting once a year.

This is a voluntary role, but the personal and social impact is immeasurable.

About us

Batten disease is a very rare genetic disorder that affects the brain and nervous system. Symptoms sometimes begin in infancy and sometimes later in childhood, after apparently normal early development. Occasionally it may start in adulthood. In individuals suffering from Batten disease, nervous system function steadily declines, causing a wide variety of neurologic problems, including loss of vision and seizures. The life expectancy of a child born with Batten disease can vary, depending on the form of the disease and the age of onset. Some children die in early childhood, while others may be able to live into their teens or twenties.

The BDFA was registered as a charity in 2001 and our mission is “to enable children and adults who are affected by Batten disease to live life to the full and to provide families with the care and support they need so that they do not walk this path alone.” The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.

Work Location: Remote

As the Guild has grown in the past few years, our risk management, financial controls, and body of policies and procedures have also matured. Following the scheduled departure of two trustees earlier this year, the Guild’s Finance Subcommittee is seeking to welcome an independent member with relevant skills to attend meetings and advise on financial matters to help us make good decisions effectively.

This voluntary role supports trustees and staff by providing independent insight, constructive scrutiny, and professional expertise on financial planning, budgeting, risk, and long-term sustainability. As a guest to Finance Subcommittee meetings, you will review financial information, contribute to discussions, and help ensure resources are used effectively to maximise our charitable impact for students.

The Finance Subcommittee currently consists of two elected Officers, two external Trustees, and may include a student trustee in future. Papers and reports are ordinarily provided by the Guild Director, who is a non-voting guest to Subcommittee meetings. The Subcommittee normally meets four times per year for around two hours.

Students’ Union experience is not essential, but we are seeking a volunteer able to operate within our distinctive context. We are particularly interested in applicants with experience in finance, accounting, audit, charity governance, or business management.