Volunteer volunteer roles for the Health sector in All international

Beacon for Rare Diseases hosts The Resources Hub, a 100% free and accessible e-learning platform created to support the rare disease community, including:

• Patient groups, patients and families
• Researchers and life science professionals
• Rare disease advocates

The Resources Hub brings together over 100 free resources, including written courses, video guides, webinars and recordings from events and conferences. These resources are designed to support people at every stage of their rare disease journey, whether they are just getting started or are part of a well-established organisation.

We are incredibly proud of the breadth and quality of what’s available on the Hub. However, much of our long-standing content is under-promoted, meaning that people don’t always find the right resource at the right time.

“The Resources Hub provides invaluable resources to help patient group leaders navigate challenges such as caring responsibilities, health issues, and employment.”

“It breaks down topics relevant to the rare community in a way that's easy to digest and empowering to take action!”

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About the role

We are looking for a social media volunteer to help us shine a light on the wealth of content already available within the Resources Hub.

In this role, you will:

• Spend time exploring our existing Resources Hub content
• Write 1–3 social media posts per resource, tailored for different platforms
• Help us build a reusable library of social media posts that we can draw on to promote resources when they are most relevant

This role is about helping people discover support that already exists, making it easier for patient groups and advocates to find information that could make a real difference to their work.

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Who this role would suit

This is a specific, project-based placement and would suit someone who already has experience in communications, social media or content creation.

You’ll be someone who:

• Enjoys writing clear, engaging social media copy
• Understands how to adapt messaging across different platforms
• Is comfortable working independently and managing their own time
• Can take guidance on tone and branding and run with it

While we don’t have capacity to provide training, you won’t be left on your own. We will:

• Provide clear direction on priorities and approach
• Share brand guidance and examples
• Review initial work to make sure everything feels aligned
• Have routine check-ins, provide feedback, and an end-of-placement review

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Time commitment and flexibility

​This is a fully remote volunteering role, which we ideally hope can be completed within around three months. We anticipate a minimum commitment of approximately two hours per week, though a shorter, more intensive placement could also be arranged to suit the volunteer. We are open to having more than one volunteer on this project and do not expect a single person to work through the entire Hub.

Please note: we are looking for this placement to begin as soon as possible. 

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Why volunteer with Beacon?

By volunteering with Beacon, you will:

• Help improve access to free, high-quality resources for the rare disease community
• Support patient groups, patients and advocates to build confidence and capacity
• Gain experience working with a well-established national charity
• Take on a clearly defined project with flexible working

Shooting Star Children’s Hospices is seeking an experienced and dedicated academic with a strong interest in paediatric palliative care, or related field to join our Research Governance Committee as a Volunteer Academic Member. This is an excellent opportunity to contribute to the strategic development of research at a research active children’s hospice, to ensure that our research activities meet the highest standards of integrity, ethics and governance. 

You will work with the Committee Chair, the Research Fellow, and other committee members to support research that makes a meaningful difference to children with life-limiting conditions and their families as well as bereaved families, including those where a child died unexpectedly. 

Appointment to the Committee will be subject to confirmation by the Shooting Star Children’s Hospices Trustee Board.

Duties and key responsibilities

· Participate in quarterly meetings: Attend and contribute to online committee meetings held four times per year (papers and slide deck will be prepared by the Chair). 

· Review research proposals: Provide expert review of project proposals, contributing to the assurance of ethical and governance standards. 

· Support research oversight: Help ensure that all research complies with regulatory and ethical requirements and reflects best practices. 

· Contribute academic expertise: Share your knowledge and experience to strengthen the quality and impact of the charity’s research portfolio. 

· Promote collaboration: Encourage partnerships between Shooting Star Children’s Hospices and wider academic, clinical, and research communities. 

· Champion good governance: Actively promote equity, transparency, and excellence in research oversight. 

Essential skills and experience

· Proven experience in academic research, research governance, and research ethics. 

· Strong academic background in higher education, and health or social care research. 

· In-depth understanding of research compliance frameworks (e.g., GDPR, HRA, UKRIO, Caldicott Guidelines, or equivalent). 

· Ability to evaluate research proposals and provide constructive feedback. 

· Excellent communication and collaboration skills. 

· Confidence using virtual meeting platforms and digital collaboration tools. 

Desirable attributes

• Academic research background with a track record of publications in the area of paediatric palliative care or related field.

• Previous experience serving on or chairing a research committee or governance board.

• Commitment to promoting equity, diversity, and inclusion in research.

Commitment

• Quarterly committee meetings (Approximately 1 hour per meeting).

• Reviewing project proposals (Approximately 1 hour per month).

• Email communication and ad hoc queries (Approximately 1 hour per month).

• 2–3 years in the role would be appreciated for both parties to gain the most out of this experience.

• This is a voluntary role. Reasonable expenses related to attendance and participation will be reimbursed. 

We are growing our volunteering team and looking to recruit 2 Lead Volunteers for our Content Team. We’re looking for two people who have a passion for promoting a charity supporting a rare condition and have the ability to support a volunteering team as well as plan and use communication tools such as websites, Canva and other digital platforms.

This is a flexible volunteering opportunity, which means your commitment can be balanced around your lifestyle - being part of a team to ensure that communications to our community and supporters are up to date and timely.

You will provide leadership for your team and support the development of a communications plan for the charity.

Key Tasks and Objectives

• Lead a team of content writer volunteers.
• Lead and co-ordinate internal projects, activities and campaigns that help build awareness of our organisation and its aims.
• Building, leading and inspiring the content team, ensuring goals are agreed and communicated to support the achievement of our overall aims and projects.
• Ensuring all content is on-brand, consistent in terms of style, quality and tone of voice, and ideally optimised for search and user experience for channels of content including on our website, in our members' magazine as well as supporting the content for social media .
• Supporting the development of a communications strategy, focusing on the content section.
• The implementation of a functional content calendar
• Establishing workflow for requesting, creating, editing, publishing, and repurposing content
• Operate as the point of contact for content volunteers in the team.
• To also be an active part of the content team as a content writer.
• Identifying, initiating and leading on content projects which align to the strategy and realise our goals.
• Collaborate with the team
• To contribute to the Annual Report or other reporting documents.
• Protecting our charity brand identity, ensuring it is delivered consistently, both internally and externally.
• Promote the charity across all our channels and forms of communication.
• Ensure effective, regular communication to both internal and external audiences.
• Support the review of progress and effectiveness of the Communications Strategy on an annual basis.

What are we looking for?

About You

To be successful in this role you will:

• Have a real enthusiasm for excellence, innovation, continuous improvement and change.
• Be a team leader who is positive, hands-on and able to get the best out of a team.
• Have excellent interpersonal skills and are adept at building relationships with different stakeholders.
• Have the ability to think strategically but also enjoy being at an operational level to support your team and key stakeholders.
• Have a high level of attention to detail.
• Have the ability to prioritise, plan and organise projects and to manage expectations.

Experience and Skills

• The ability to communicate (verbal and non-verbal) to a wide variety of audiences including the public, various forms of media and on an individual basis.
• Experience in building and leading a team.
• Previous experience of working or volunteering for charities and/or volunteer organisations is desirable but not required.
• Creativity 
• Good IT skills.
• Ability to motivate and enthuse others.
• To be a part of a team.
• Previous experience in marketing, communications, or related fields.
• Strong leadership skills with the ability to motivate and inspire volunteers.
• Experience of using Canva or similar design packages.
• A strong network of PR and media contacts would be highly advantageous.

What's in it for you?

This role is a fantastic opportunity to volunteer with a small but ambitious charity, developing and honing your skills around leadership in the Third sector.

Getting the right story in print and online can be challenging, especially when dealing with a rare health condition, but it is definitely rewarding.

You will gain experience in the charity sector, gain new or update your writing skills, a broader C.V., and a sense of accomplishment from using your skills to help people affected by a very painful condition.

You would be leading our small, friendly, forward-thinking charity team, focused on reaching people who may not have heard about the charity or about the condition. You would also have a key role in developing a communications and marketing strategy for a small charity. This is an excellent opportunity for you to make a real difference to a rare condition.

Key Benefits

• Gain valuable experience in communications and marketing, plus charity team leadership.
• Make a meaningful impact on the fight to support the CRPS community.
• Develop professional skills and expand your network.

We're growing our volunteering team and looking to recruit 2 Lead Volunteers for our Communications & Marketing Team (and 2 Lead Volunteers specifically for Content.) The successful candidates will have the overall responsibility for the Charity’s communications and marketing. We’re looking for someone who has a passion for promoting a charity supporting a rare condition and can support a volunteering team as well as plan and use communication tools such as websites, social media, Canva and other digital platforms.

This is a flexible volunteering opportunity, which means your commitment can be balanced around your lifestyle - being part of a team to ensure that communications to our community and supporters are up to date and timely.

You will provide leadership for your team and support the development of a communications plan for the charity.

Key Tasks and Objectives

● Lead a team of communications and marketing volunteers.

● Lead and co-ordinate internal projects, activities and campaigns that help build awareness of our organisation and its aims.

● Run the meetings for the Communications & Marketing Team on a monthly basis.

● Regularly meet with and be the point of contact for the lead volunteers for Content, Social Media and Email Marketing to co-ordinate and plan.

● Where and if possible, to also be an active part of the Communications & Marketing Team either as a content writer, copy writer or another role.

● Identifying, initiating and leading on projects which align to the strategy and realise our goals.

● Collaborate with the team.

● To support the charity in develping a visual form of our Annual Report or other reporting documents such as grant reports.

● Support the development and implementation of the Communications Strategy.

● Protecting our charity brand identity, ensuring it is delivered consistently, both internally and externally.

● Promote the charity across all our channels and forms of communication.

● Ensure effective, regular communication to both internal and external audiences.

● Review progress and effectiveness of the Communications Strategy on an annual basis.

What are we looking for?

About You

To be successful in this role you will:

● Have a real enthusiasm for excellence, innovation, continuous improvement and change.

● Be a team leader who is positive, hands on and able to get the best out of a team.

● Have excellent interpersonal skills and adept at building relationships with different stakeholders.

● Have the ability to think strategically but also enjoy being at an operational level to support your team and key stakeholders.

● Have a high level of attention to detail.

● Have the ability to prioritise, plan and organise projects and to manage expectations.

Experience and Skills

● The ability to communicate (verbal and non-verbal) to a wide variety of audiences including the public, various forms of media and on an individual basis.

● Experience in building and leading a team.

● Previous experience of working for charities and/or volunteer organisations is desirable but not required.

● Creativity regarding message management and medium.

● Good IT skills.

● Ability to motivate and enthuse others.

● To be a part of a team.

● Previous experience in marketing, communications, or related fields.

● Strong leadership skills with the ability to motivate and inspire volunteers.

● Experience of using Canva or similar design packages.

● A strong network of PR and media contacts would be highly advantageous.

What's in it for you?

This role is a fantastic opportunity to volunteer with a small but ambitious charity, developing and honing your skills around leadership in the Third Sector.

Getting the right story in print and online can be challenging, especially when dealing with a rare health condition, but it is definitely rewarding.

You will gain experience in the charity sector, gain new or update your writing skills, a broader C.V., and a sense of accomplishment from using your skills to help people affected by a very painful condition.

You would be leading our small, friendly, forward-thinking charity team, focused on reaching people who may not have heard about the charity or about the condition. You would also have a key role in developing a communications and marketing strategy for a small charity. This is a fantastic opportunity for you to make a real difference to a rare condition.

Key Benefits

● Gain valuable experience in communications and marketing, plus charity team leadership.

● Make a meaningful impact on the fight to support the CRPS community.

● Develop professional skills and expand your network.

Are you an enthusiastic and skilled funding grant writer? Be a part of our small but committed team as a pro-active grant writer volunteer for a small national charity supporting people affected by a debilitating pain condition.

We are looking for 2 skilled grant writer volunteers who can take the lead in researching appropriate funds and writing grant bids to help us continue offering our support services and resources and helping us create new programmes and services to support patients and their families who have been affected by a poorly understood chronic condition; Complex Regional Pain Syndrome (CRPS).

As our Grant Writer you will be responsible for identifying appropriate grant opportunities, and managing the grant development and proposal process from research to submitting grant applications with any supporting documents.

As our grant writer, you will:

• Identify appropriate sources of funding where we fit their criteria 
• Write appropriately tailored grant/funding bids that meet funders’ interests and requirements and to write any additional documents in support of funding bids
• Help develop a Trusts and Foundations strategy to help create and maintain strong and diverse income that meets Burning Nights CRPS Support’s funding needs
• Create a calendar of grant deadlines and track submitted funding proposals
• Help us develop a case for support 
• Report on grant usage and impact
• Review all grant/bid feedback and ensure knowledge is shared, so that learning informs us for future approaches to grants

If you are an experienced grant writer or you just enjoy researching and persuasive writing then we would love to hear from you.

We are looking for a volunteer who has:

• Experience of being a grant writer, project proposal writer and editing skills
• Excellent writing, analytical, and research skills are essential
• Creative and persuasive written and spoken communication skills 
• Self-motivated and highly-organised
• Ability to work remotely
• Ability to search online databases and other sources to identify appropriate funds
• Ability to understand and appeal to funders’ differing needs
• Ability to organise your own work, track and report back regularly 
• Experience setting up funding email templates (desirable)
• Ability to quickly understand the needs of our organisation  and our service users
• Understands the resource constraints of a small charity and can work with these
• Open to feedback
• Ideally have good network with people, organisations and charities which can help us to support our projects
• Determination to get the job done

Skills

• Project proposal writing
• Grant writing and knowledge of charity grant giving culture
• Good networking skills and contacts with grant giving organisation
• Marketing and communications
• Content writing and story-telling
• Good online fundraising skills
• Good editing and proof reading skills and attention to detail
• Team player who is comfortable working with various volunteers within Burning Nights CRPS Support to collate information required to write funding applications

If you don't have the exact experience, but are interested to volunteer with us, please apply! We would be thrilled to find out about how your interests and experience match with our needs or what we are doing.

Other Information

This role is done remotely using Zoom, Slack and email. You would be working closely with the charity’s Chair and with other trustees. However we would have regular updates and remote meetings as needed so we know you are getting the support you need.

We have an induction process that will help successful applicant to understand how our Charity operates and full support of all our volunteers.

Minimum of 3-6 hours per week for this role

Ideal commitment of 3 months or more (but not specific)

We're looking for 2-3 detail-oriented and strategic Search Engine Optimisation (SEO) Specialist Volunteers to help optimise our online presence and ensure our campaigns and content reach the communities that need them most and increase the charity’s search engine results rankings. The SEO Specialist Volunteers will play a key role in enhancing the visibility and searchability of Burning Nights CRPS Support’s website and digital content.

The SEO Specialist Volunteers will be volunteering within the Communications & Marketing Team to implement SEO best practices, conduct keyword research, improve site structure, and analyse web performance – all to ensure our content reaches a broader audience and amplifies the voice of our charity’s supporters online.

Key Tasks and Objectives

• Competitor and Keyword Research: Conduct keyword research to inform website content and campaign strategies.
• On-page optimisation: Optimise existing content for improved search engine ranking (meta tags, meta descriptions, headers, alt text, etc.)
• Monitor and analyse SEO performance using tools such as Google Analytics, Google Search Console, and SEMrush.
• Technical SEO Implementation: Identify technical SEO issues and collaborate with content teams to resolve them.
• Backlink and Off-Page SEO: Assist in developing backlink strategies and improving domain authority.
• Support the content team in creating SEO-optimised articles and pages.
• Provide monthly reports on SEO performance and suggest improvements.
• Stay up to date with SEO trends, Google algorithm updates, and emerging best practices.

Key Skills or Qualifications

• Excellent understanding of SEO principles and search engine algorithms.
• Proven experience in conducting SEO audits, strategy development, and implementation.
• Experience using SEO tools such as Google Search Console, Google Analytics, Ahrefs, or SEMrush or similar platforms.
• Previous experience in digital marketing, content strategy, or technical SEO.
• Ability to perform keyword research and competitor analysis.
• Familiarity with HTML, CSS, and content management systems (ideally Django framework).
• Strong analytical skills and attention to detail.
• Excellent written communication and reporting skills.
• Evidence of organisational skills, with good attention to detail.
• The ability to work independently, turning recommendations into action without needing constant oversight.
• A passion for using your skills to support patients and families impacted by a debilitating pain condition and help save lives.
• Passion for creating inclusive and accessible digital spaces.
• Highly organised, self-motivated, and able to work independently.
• Enthusiastic about supporting a small charity.
• Willing to learn, adapt, and collaborate with a supportive team.

Desirable Experience

• Experience of Google Ads for nonprofits.
• Experience of using Django framework websites.
• Familiarity with accessibility best practices and inclusive web design.
• Experience working with or volunteering for nonprofit / charitable organisations.
• Demonstrable IT skills, particularly Google Drive and Microsoft.
• Good research and information management skills.
• An understanding of the charity sector and/or fundraising.

Key Benefits

• Volunteer as part of a forward-thinking, supportive team.
• Unique opportunity to directly contribute to strategic SEO recommendations, and the implementation of those changes to increase the charity’s visibility.
• At Burning Nights CRPS Support you’ll use your SEO skills for a mission with a real, measurable impact. This is more than just a volunteer role, it’s an opportunity to change and save lives.
• Make a meaningful difference in the lives of patients and families impacted by a severe pain condition.
• Building your network and forming connections with like-minded people and organisations.
• Enhance your CV and gain skills that are transferable to a variety of career paths.
• Receive training and ongoing support from our team.
• Experience the personal satisfaction and fulfilment that comes from helping others.

Training and Support

• Full induction to our organisation, as well as check-ins, ongoing training, supervision and support from the Communications & Marketing Lead Volunteer, Volunteer Co-ordinators, Trustees and the Volunteer Team.
• This a remote volunteering opportunity with regular online team check-ins and collaborative sessions with a supportive, creative, and inclusive team environment.
• Relevant and ongoing training for your volunteer role.
• Regular updates on charity activities.
• Support, advice and guidance from Charity team.
• After 3 months volunteering, all volunteers are eligible for additional training courses (reasonable cost).
• Out-of-pocket expenses, approved in advance will be reimbursed.

Are you a Child and Young Person Clinical Supervisor interested in supporting child and young person counsellors and therapists?

Burning Nights CRPS Support has a highly skilled counselling and therapy team who provide counselling and psychotherapy to adults and children who have been impacted by a debilitating pain condition, Complex Regional Pain Syndrome (CRPS). This team is expanding rapidly and we are now looking for 1 volunteer Child and Young Person (CYP) Clinical Supervisor to join this team ensuring we can continue the provision of our vital emotional support services to this community specifically for young people. We would ideally like to take on 1 CYP Clinical Supervisor supporting a small group of CYP therapists who specialise in a range of modalities.

All our Counselling and therapy team help to develop our growing mental health support service for patients, families and carers affected by Complex Regional Pain Syndrome (CRPS). As a volunteer with the CRPS Counselling & Therapy Service, your skills and experience as a CYP Clinical Supervisor will be providing support to therapists who offer therapy to vulnerable children and young people aged 5-18.

Depending on your qualifications, skills and experience, you will provide group and 1-2-1 Supervision support for CYP counsellors or psychotherapists who provide counselling support or specialist services for children and young people. The service currently offers specialist support to anyone over the age of 5 who is affected by CRPS.

Key Tasks and Objectives

• Facilitate Clinical Supervision group sessions on a monthly basis (online) and be able to offer at least 1 or 2 supervisees on 1-2-1 basis mainly trainees

• Administer this supervision from invitation through to record keeping

• Take part in complex case allocation meetings with the Clinical Lead

• Maintain appropriate clinical records of all work and to report, along with any concerns on individuals or their practice to the Clinical Lead

• Commitment to ongoing supervision of supervision practice at Burning Nights CRPS Support as well as engaging in separate own personal supervision

• Work flexibly as part of a small team as necessary to provide maximum coverage for supervision, such as in the event of emergencies

• Abide by all Burning Nights CRPS Support policies and procedures

• Adhere to BACP, BABCP (or other appropriate therapies governing body) Ethical Framework

Key Skills, Qualifications and Experience

Essential:

• Psychotherapy/Counselling qualification with a minimum of 2 years post qualification experience in a similar field

• Qualification in Clinical Supervision - ideally level 7 or above (could also suit experienced counsellors who require a placement during Clinical Supervision placement, or experienced counsellors wishing to gain experience in supervision)

• Had experience of supervising CYP therapists 

• Accreditation/registration (or working at the level of or towards this qualification) as a Supervisor with BACP/HCPC/BABCP or equivalent

• Significant proven experience of supervising individual CYP counsellors/psychotherapists from a range of training backgrounds 

• Appropriate and proven clinical experience of working with young people with a range of difficulties including complex medical health issues, loss and bereavement. Ideally experience of working with children and young people living with or affected by chronic pain or chronic conditions

• Willingness to engage in any Burning Nights CRPS Support training

• Understanding of issues regarding confidentiality and management of risk within a counselling service

• Good administrative skills

• Understanding of the voluntary sector

• Commitment to on-going engagement in personal supervision

• Knowledgeable of and committed to equalities’ provision

Desirable:

• Appropriate and proven clinical experience of working with children and young people living with or affected by chronic pain or chronic conditions

• Being able to supervise CYP therapists in small groups

• Experience of working within a low-cost / free voluntary sector counselling setting

• Experience of working within the voluntary charity sector

Volunteer Prospect Researcher
This role supports our fundraising efforts by identifying and researching potential donors, funders, and partners. Responsibilities include online research, data analysis, and preparing prospect profiles to support strategic fundraising.

What we’re looking for:

• Strong attention to detail and good organisational skills

• Comfort working with data, research, or CRM/databases (training can be provided where needed)

• Ability to work independently and maintain confidentiality

• An interest in fundraising and supporting our mission

What we offer:

• Flexible, remote volunteering opportunities

• The chance to develop or apply valuable fundraising and data skills

• A supportive team environment and meaningful contribution to our work