Volunteer roles

Volunteer Treasurer / Trustee Opportunity

Darlington Assistance for Refugees (DAR) is seeking an experienced and dedicated Volunteer Treasurer to join its Board of Trustees. This is a unique opportunity to contribute valuable financial expertise to a volunteer-led charity that supports refugees and asylum seekers in the Darlington area.

The Role
DAR is looking for an individual with strong financial management skills who can offer approximately 5–10 hours per week and attend around 14 evening meetings annually. The successful candidate will play a crucial role in maintaining the charity’s financial health and compliance.

About DAR
DAR is a volunteer-driven organisation committed to welcoming those seeking sanctuary and supporting them to rebuild their lives in the UK. With over 75 active volunteers engaged in mentoring, English language teaching, guidance, fundraising, and campaigning, the charity plays a vital role in the local community. The Treasurer will be key to ensuring DAR’s work is financially sustainable and strategically guided.

Key Responsibilities

As Treasurer:

• Maintain accurate financial records and prepare regular financial reports

• Oversee financial procedures and ensure compliance with statutory obligations

• Manage bank accounts, donations, and petty cash

• Process invoices promptly

• Uphold financial integrity in line with DAR procedures

• Provide sound financial advice to the Board of Trustees

As a Trustee:

• Ensure the organisation complies with its governing documents and relevant laws

• Help pursue DAR’s charitable objectives

• Support strategic decision-making related to finance and broader charity activities

• Act as an ambassador for the charity and support its mission in advocating for displaced individuals

Ideal Candidate Profile

• Experience managing a finance function or operating at a senior financial level

• Strong leadership experience in a business or charitable context

• Excellent written and verbal communication skills

• Collaborative and persuasive, with the ability to influence and support decision-making

• Approachable and empathetic, with sensitivity to others’ experiences

DAR particularly welcomes applications from individuals with lived experience as refugees or asylum seekers.

�� Calling Social Impact Influencers – Help Us Change How The UK Gives ��

We’re building something different.

Unify Giving allows donors to directly support individuals experiencing homelessness, domestic violence, and financial crisis — with full transparency, dignity, and trust. 100% of donations go straight to the person in need.

But to reach more people, we need voices. Real voices.

That’s why we’re building our Social Impact Influencer Squad — a network of mission-driven creators and storytellers who want to use their platforms to help us grow, reach new donors, and expand our recipient base across the UK.

✅ Who we’re looking for:

• Individuals with 5k+ engaged followers (Instagram, TikTok, LinkedIn, YouTube etc.)

• Passionate about social impact, homelessness, domestic violence support, or financial inclusion

• Want to use your voice to help real people — directly

✅ What you’ll do:

• Help share our mission with your community

• Highlight stories of individuals we support (all fully anonymised and approved)

• Be part of a new model for giving — one that puts dignity and transparency first

✅ Why it matters:

Every share helps us expand, onboard more charity partners, and reach individuals who urgently need support. This isn’t just charity — it’s a whole new infrastructure for giving.

If this sounds like you, we’d love to chat ��

On Sunday 7 September, we'll once again be cheering on our team of amazing Team Mencap runners as they take on the Great North Run 2025. For this, we'll have a cheer point on route to encourage, support, and thank our runners. The Great North Run is one of Mencap's big fundraising running events and we want to give our Team Mencap runners as much support as possible by having a big cheer point on route. Showing support is so important to runners and your enthusiasm and energy will encourage our runners all the way to the finish line.

We'll provide you with full details and a brief ahead of event day, including how to get there, what to wear, and what to bring, but here is all the key information you need to know right now:

What: The Great North Run 2025

Date: Sunday 7 September 2025

Time: 10:30am to approx 2:00pm

Where: Coniston Road, NE10 0XB (the What3Words location is ///other.worm.trade)

Our events are vital to Mencap, bringing people together to share experiences, launch programmes and celebrate successes! They also often help to raise funds for our services, such as the Mencap Direct helpline, advocacy services, and national campaigns such as Treat me Well.

We hold lots of events throughout the year, including bike rides and runs from 10km all the way up to Marathons. We also do art showings, bucket collections, garden parties, Christmas wrapping sessions, and lots more!

You'll be part of a diverse and inclusive team alongside volunteers with and without a learning disability. You will represent Mencap and help to promote our work and raise awareness for people with a learning disability at iconic events across England, Wales and Northern Ireland.

What you'll be doing:

• Cheering our runners
• Making lots of noise with clappers and whistles
• Waving flags
• Thanking people for running for Mencap​

As a Mencap Volunteer you will be:

• Friendly and Approachable
• Reliable, Kind and Patient
• A good communicator (including listener)
• Willing to volunteer within guidelines and to take direction where necessary
• Accepting of others who might be different to yourself

As a Mencap volunteer you will:

You'll get a Mencap t-shirt to wear

• You'll get to meet new people and be part of a team
• You'll get a sense of pride and achievement from supporting our runners
• You'll feel supported, appreciated, and valued
• You'll be able to claim travel expenses (up to £10)

About Mencap

Mencap is the leading learning disability charity in England, Wales and Northern Ireland. We work with people with a learning disability and their families to challenge prejudice and change laws, and we directly support thousands of people to live their lives as they choose.

We have an ambitious vision for the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.

Volunteering with us is YOUR opportunity to help us achieve this, whilst having the chance to develop your skills, meet new people and join a passionate and dedicated team.

Be the Welcoming Face of Sense Scotland!

Looking for a way to give back and make a difference in your community? Join us as a Volunteer Receptionist and help create a warm, welcoming environment for everyone who walks through our doors. Whether you're retired, between jobs, studying, or simply want to give your time for a good cause, we’d love to hear from you!

We’re looking for volunteers who can give 6–12 hours a week, Monday to Friday. Whether that’s a couple of mornings, afternoons, or full days, we’ll work around what suits you.

Why Volunteer with Sense Scotland?

At Sense Scotland, we support children and adults with complex needs to live their best lives. As a volunteer receptionist, you’ll be the warm, welcoming face that greets visitors, families, and the people we support, helping everyone feel at ease the moment they arrive.

We’re currently looking for Volunteer Receptionist to support our Touchbase Fife Service, based in Kirkcaldy.

Volunteering with us is a great way to:

• Give back and feel good about it

• Meet new people and grow your confidence

• Gain (or refresh) admin and reception experience

• Be part of something truly meaningful

What you'll be Doing

You’ll help our office run smoothly by:

• Greeting and welcoming visitors with a friendly, professional manner

• Answering and directing phone calls

• Keeping our front desk area tidy and organised

• Logging visitors and issuing badges

• Handling mail and deliveries

• Assisting with general admin tasks like photocopying, filing, and scanning

• Helping prepare meeting rooms with refreshments or equipment when needed

Who We’re Looking For?

You don’t need to have loads of experience—we’ll support you along the way—but if any of the following sounds like you, you’ll be a great fit:

• A people person who loves a chat and makes others feel welcome

• Reliable and happy to roll up your sleeves to help out

• Organised, detail-oriented, and good at juggling small tasks

• Comfortable using a PC and familiar with basic Microsoft programs

• Previous reception or office experience is a bonus, but not essential

What You'll Get in Return

• The chance to make a real difference in people’s lives

• A friendly and supportive team environment

• New skills and valuable experience to add to your CV

• Opportunities for learning and personal development

• Confidence building in a professional setting

• A free Sense Scotland volunteer t-shirt

Ready to get involved?

Just fill in our quick application form and we’ll be in touch to invite you for an informal chat. Volunteering roles are subject to references and a disclosure check—we’ll guide you through the process to keep things simple.

Barefoot and Free is a small UK-based charity that gifts unforgettable staycations to families with neurodivergent children or children affected by trauma.

We are seeking creative and committed Volunteer Fundraisers to help us grow our small charity.

This is a remote volunteer role ideal for someone looking to use their creative fundraising knowledge to make a meaningful impact.

Role Overview
As a Volunteer Fundraiser at Barefoot and Free, you will be reuired to come up with fun ideas to fundraise, be able to engage people to fundraise and encourage new supporters.

Key Responsibilities

• Plan, organise and execute virtual and in-person fundraising events (eg raffles, quizzes, sponsored challenges)
• Liase with fundraisng volunteers (eg sponsored runners etc)
• Ensure events run smoothly by preparing, schedules, materials and plans. 
• Act as a main point of contact for invividual fundraisers and teams
• Regukar communication to offer encouragement and guidence.
• Procatively check they have everything they need (eg fundraisng pack, marketing materials) 
• Create.design a central fundraising tracker (eg excel or similar) 
• Log all fundraising activities, targets, deadlines ad progress updates 
• Collaborate with the social media volunteers (if applicable) to amplify campaigns
• Support the recruitment of new fundraising volunteers

What You’ll Bring

• Clear friendly written and verbal communication
• Ability to confidently engage with fundraisers, donors and team members remotely
• Excellent time management and ability to co-ordinate multiple activities at once
• Structured approach to planning events and tracking fundraising progress
• Strong communication skills, self-motovated with the ability to work independently with minimum supervision
• A passion for charitable work and a willingness to contribute time and skills

Time Commitment
This is a flexible remote role. We ask for a commitment of 2 to 5 hours per week. We are happy to work around your availability.

What You’ll Gain

• A chance to use your skills for a good cause

• Hands-on experience in event planning, fundraising, and project coordination, ideal for CVs, job applications, or future charity roles.

• Remote, flexible volunteering that fits around your schedule — ideal for students, parents, or professionals looking to give back.

• Experience working in the charity sector

• Portfolio development and references on request
• Being part of a friendly supportive team making a difference

To apply please send a recent C.V along with a short note about yourself & with examples of any fundraising, event planning you have carried out.

We look forward to hearing from you.

Came to Believe Recovery UK (CTBR UK) is a not-for-profit organisation helping people break free from addiction through immersive residential retreats and online support. We’re looking for new trustees to join our team and help us build our organisation and reach.

If you care about changing lives by making long-term addiction recovery more accessible, want to use your skills for good, and enjoy being part of a positive, purpose-led team — this could be a brilliant fit.

Who We Are

CTBR UK runs non-clinical retreats and meetings for people recovering from all forms of addiction. Our programme is built around the 12 Steps and spiritual principles, delivered in a supportive, welcoming and down-to-earth way, where all are welcome regardless of beliefs or faith.

We’ve supported hundreds of people on their journey toward  freedom — and we’re just getting started.

We’re currently preparing to register as a  charity, with big plans to:

• Grow our support across England and Wales
• Build long-term sustainability through funding and partnerships
• Strengthen our governance and accountability as we scale
• Keep our retreats open, accessible, and inclusive for all

Who We’re Looking For

You don’t need to have been a trustee before – although prior experience is welcome. We're especially interested in people with skills in any of the following areas:

• Business, operations or charity leadership
• Finance or bookkeeping
• Fundraising, bid writing or donor development
• Legal expertise (especially charity or contract law)
• HR or volunteer coordination

If you're organised, thoughtful, and comfortable working as part of a small remote team, you'll fit right in. We're also keen to hear from people who have worked in community support, health and wellbeing, or have experience working with vulnerable adults in third-sector projects.

What You’ll Do as a Trustee

As a trustee, you’ll help guide the direction of CTBR UK as we continue to grow. You’ll:

• Help shape our future plans, activities and strategy
• Offer support and oversight to ensure we stay on track and legally compliant
• Use your skills and voice to improve what we do
• Work alongside our small, motivated, and friendly team

We meet a minimum of quarterly online and keep in touch where appropriate between meetings. There’s no fundraising requirement or large time commitment.

Why Join Us?

• Be part of a growing, values-driven recovery movement
• Play a real role in changing lives — and building community
• Share your skills where they matter
• Learn new things, gain trustee experience, and work with a supportive board
• Help shape the future of addiction recovery in the UK

Ealing Foodbank is looking for Trustees. We would particularly welcome applications from those with experience in one (or more) of the following areas: fundraising and communication.

Who we are

Ealing Foodbank is a local charity, serving people in Ealing who need emergency food. We are open 8 times a week at 7 locations around Ealing. We give out around 1300 food parcels a month. We want to make sure people visiting the foodbank get the right help to resolve their crises where possible. We work together with Crosslight advice (debt and benefit advice) and Ealing Law Centre (housing and benefit advice) to achieve this.

Being a trustee

As a trustee you can use your skills to contribute towards supporting those in crisis in our local community.

As Trustee you will be expected to:

• Understand and support Ealing Foodbank’s work and aims
• Reflect our vision, values, strategy and policies
• Work closely with the rest of the board to formulate and review our strategic aims
• Ensure our policies and practices are in line with our aims
• Ensure Ealing Foodbank functions within the necessary legal and financial requirements
• Ensure resources are used effectively and efficiently
• Monitor and evaluate the performance of the organisation
• Make time to read necessary paperwork
• Attend board meetings
• To help promote the organisation to a wide audience of potential funders and beneficiaries and community stakeholders
• Use your skills, wisdom to benefit the board and organisation
• Fulfil other duties as required occasionally by the board

Skills, attributes and experience

• Knowledge of (can be gained) and commitment to the work of Ealing Foodbank.
• Willingness to actively participate in discussions concerning needs of the foodbank’s beneficiaries, staff, and the trustee board.
• Willingness to act in the best interest of the charity.
• Sound, independent judgement and ability to think creatively.
• Working effectively as a team member and demonstrating a willingness to learn and develop.

Time commitment

Trustee meetings are held 6 times a year, normally in the evening from 7pm at our office. Trustees are expected to undertake additional work for the charity between meetings, subject to their availability and skill set.

 Please note the Trustee role is voluntary and unremunerated, though reasonable expenses can be reimbursed.

Applications

Applicants must have a connection with Ealing borough.

Ealing Foodbank is an independent Christian charity affiliated with the Trussell network. The Christian faith underpins everything that Ealing Foodbank does and stands for as expressed in our Vision, Mission and Values statement. We therefore ask trustees to sign our statement of faith, which we will email to you.

Please click 'how to apply' for details on how to apply.

Lifelites is looking for a new trustee to join our Board at a pivotal and exciting time of growth and change. This is a unique opportunity to help shape the future of a small but ambitious charity, making a real difference to the lives of children with life-limiting conditions.

About the role

As a trustee, you will play a vital part in overseeing our work, supporting our strategic direction, and helping us deliver on our Mission. We are particularly keen to hear from people with experience in:

• Marketing
• Communications
• Fundraising or sales

These skills could come from your professional background or from voluntary work. Direct experience in the charity sector is not essential – we’re looking for people whose skills are transferrable and whose values align with ours.

Above all, we’re seeking someone who shares our passion for improving the lives of children and families, and can bring their expertise to help us deliver our Mission.

Why join us?

Lifelites believes that every child with a life-limiting condition should be able to enjoy a childhood filled with joy, connection, and special moments with their families.

Using assistive and sensory technology, we empower children in palliative care settings to play, learn, communicate, and connect with their families. We currently reach around 13,500 children across Britain and Ireland – and we want to do even more.

We have launched a bold seven-year strategy to reach many more of the 99,000 children and young people living with life-limiting and life-threatening conditions in the UK.

As a trustee, you’ll help us achieve that goal by guiding our growth, increasing awareness, and improving our sustainability.

What’s involved?

• The Board meets in person at least four times a year, plus an annual away day.
• Trustees are also expected to join one of our committees and may occasionally support specific projects.
• Most additional meetings take place online.
• This is a voluntary role, but reasonable expenses are covered.

Our commitment to diversity, equity and inclusion

Diversity. Equity. Inclusion. These words are engrained in our services and our culture. As an organisation that seeks to empower children and young people with life-limiting conditions and complex disabilities, we are similarly committed to these values in the way we recruit and develop our people, build our teams, work in partnership and cultivate success. We actively welcome, nurture and celebrate the different abilities, sexual orientation, ethnicity, faith, and gender of candidates, existing staff, stakeholders and volunteers.

Who are we?

We are Buttons & Bubbles CIC. We are dedicated to increasing inclusion and representation across society for disabled families.

What are we looking for?

We are looking for volunteers to help source, sell and send clothes on Vinted to raise money four services. This isn’t about you listing your own clothes but about sourcing items others can donate that we can then sell.

Who are we looking for?

• Enjoys fundraising but is looking for something that’s a little bit different
• Enjoys being organised
• Likes flexibility in a role
• Collaborative

What do we expect?

• Must be willing to undertake our training programme which will be done virtually and at a time to suit you.
• Have a basic DBS check (preferably be on the update system)
• Sign our volunteer contract. (If you disagree with anything in it please do discuss it with us and we will be happy to have a conversation and make small changes if appropriate).
• A positive attitude to disability and illness. We are happy to answer questions on this.

Interested?

Email us and lets chat! 

Ever been told you have a calming presence or you're great at putting individuals at ease?

Join as a volunteer friend at the QE Hospital in Birmingham. You don’t need a medical background or all the answers – just a kind heart, a listening ear and a little time to give. Be there when it matters and join our Companion Volunteer Team

What you’ll do: 

• Visit different patients at QE Birmingham Hospital
• Offer thoughtful and light-hearted conversation
• Create a sense of calm over a cup of tea/coffee
• Listen to stories, memories, or just talk about the everyday

You’d be a great fit if you’re:

• Patient and non-judgmental
• Emotionally steady in sensitive moments
• Able to commit to 3 hours a week
• Comfortable with email and completing a brief visit report
• Respectful of boundaries and confidentiality

What you’ll gain:

• A deep sense of purpose
• Thorough training and continued support
• A friendly network of volunteers
• Recognition for your time
• Expenses reimbursed monthly

Kindness doesn’t have to be big to be life changing.

Need more information?

If have questions about this opportunity or just want to understand what it's all about before applying, please get in touch.

We’re looking to recruit additional trustees to join our board. We want our board to have a diverse range of experiences and backgrounds, so if you think you’re not a typical trustee, then you might be just what we’re looking for!

You don’t need to have had experience of Citizens Advice, or of being a Trustee – just a commitment and enthusiasm to help us shape the work and strategic direction of our forward-thinking charity.

Becoming a Trustee will give you the opportunity to gain experience in leadership, governance and strategy and is a great way to give something back to your local community – some employers may even give you time off to volunteer for a local charity.

Citizens Advice Winchester District provides free advice to over 5,000 local people each year, many of whom are in desperate or challenging situations and have nowhere else to turn.

We are seeking an experienced Events & Community Fundraising Officer (Volunteer) to join our Fundraising team on an unpaid, volunteer basis. This will be remote support, unpaid volunteering on average 8 hours or 1 day per week to drive funding for our International WASH projects.

EQUAL AQUA is an award-winning NGO providing equal access to water, sanitation and hygiene (WASH) in Uganda. Equal Aqua is managed by an international team of 30+ volunteers, based mainly in the UK and Uganda, but spanning over 10 countries.We are looking to expand and diversify our team of volunteers – seeking candidates with knowledge and skills in various fields, and a deep passion for our cause. 

JOB SUMMARY: 

Join our team as a Volunteer Events & Community Fundraising Officer, working alongside the Fundraising Manager to develop and expand our community engagement and events portfolio. Play a pivotal role in creating innovative fundraising products, fostering relationships within our local communities, and supporting key fundraising initiatives to drive income growth and supporter engagement. 

ROLE & RESPONSBILITIES  

• Collaborate with the Fundraising Manager to design and implement community and events strategies, including the development of new fundraising products and campaigns. 

• Identify, cultivate, and maintain relationships with local schools, community groups, corporate partners, and individual fundraisers to generate new income streams. 

• Develop engaging supporter journeys to inspire memorable experiences, encourage repeat contributions, and deepen supporter loyalty. 

• Support the team in planning and delivering special events, including the annual fundraiser concert, Water Wheel, and other high-profile fundraising activities. 

• Secure new corporate partnerships through sponsorships, Charity of the Year and other award programs, and collaborative fundraising initiatives. 

• Lead and coordinate supporter-led fundraising activities, fostering volunteer involvement and building a vibrant, diverse supporter community aligned with our mission. 

• Assist with planning, promotion, and execution of both EA-organized and third-party fundraising events. 

KEY REQUIREMENTS 

ESSENTIAL 

Experience: 

• Demonstrated success in achieving or surpassing fundraising or sales targets within the charity, nonprofit, or commercial sectors. 

• Proven experience working in supporter-focused environments. 

• Solid project management skills, with the ability to coordinate multiple activities simultaneously. 

• Experience working within high-performing teams, including remote working arrangements. 

Skills: 

• Excellent networking and relationship management capabilities. 

• Strong verbal and written communication skills, including presentation abilities. 

• Proficiency in IT tools such as Windows, MS Office, and fundraising databases, particularly Raiser’s Edge (or similar). 

• Exceptional time management and prioritization skills. 

Knowledge: 

• Good understanding of the charity sector, including its challenges and opportunities. 

• Knowledge of regional and corporate fundraising practices. 

• Familiarity with sector legislation and best practices related to fundraising, data protection, health and safety, etc. 

• Deep understanding of EA’s vision, mission, and achievements. 

DESIRABLE: 

• Willingness to work flexible hours, including evenings and weekends, and to travel as needed. 

• Previous experience within the voluntary or charity sector is advantageous. 

COMPETENCIES 

• Proven ability to motivate and influence supporters to meet and exceed fundraising targets. 

• Confident in asking supporters for donations and ongoing support. 

• Skilled in creating compelling, engaging fundraising products. 

• Ability to match supporters' interests with suitable fundraising opportunities to maximize income. 

• Strong organizational skills to effectively allocate time and resources for maximum impact. 

• Recognizes and celebrates supporters' contributions to foster ongoing engagement. 

BENEFITS 

• At EAU all volunteers work remotely & flexibly, enabling you to balance work, holiday & personal commitments anywhere in the world.

• Join a diverse international community & gain a sense of fulfilment by contributing directly to impactful programmes that EAU delivers.

• Increase your opportunities for personal growth through exposure to new skills, experiences & perspectives that working for an NGO can bring.

• We also offer opportunities for networking, internships, mentoring & training to support you in your role.

Our Vision: To become a leading organisation in Uganda in addressing inequalities in WASH, and interrelated issues of gender and sustainability 

Our Mission: We will achieve this by working with partners and local communities to develop the required WASH skills, knowledge and practical interventions

Objectives: 

• To improve access to safe and sustainable WASH for those facing the greatest inequalities in Uganda 

• To strengthen the participation of local communities in WASH, in particular women and girls, and displaced peoples 

• To take action to protect the natural environment, reduce pollution and tackle climate change 

KEY ACHIEVEMENTS: 

• 32,866 people with improved access to safe water 

• 11,044 people with improved sanitation 

• 11,755 people with improved WASH knowledge and skills 

• 3,877 people with improved menstrual hygiene knowledge 

• British High Commission award winner 

VALUES:

At Equal Aqua we champion bottom-up grassroots development. To make this possible, we have created a proactive and friendly environment, which strives to create practical and lasting solutions to WASH-related issues. Each member of Equal Aqua is passionate about WASH inequalities, and our values are a central basis for inspiration and the culture of the organisation. 

Why volunteer for EAU? 

By volunteering for EAU you will directly contribute to making tangible and positive changes to people’s lives in Uganda. Your efforts will help us to grow and empower our team of international volunteers, enabling us to reach more communities and transform more lives. You will also get to meet & collaborate with a great team of volunteers from all over the world.  If you like the sound of this role, we encourage you to apply even if you aren’t confident that you meet all of the requirements – you may be just who we’re looking for. 

*Please note that all members of Equal Aqua work remotely and on a voluntary basis. We ask that volunteers contribute on average 1 day per week and commit to the role for 12 months as a minimum. 

Interviews will take place via MS Teams where you will meet an informal panel of volunteers.  

Data Protection and Privacy: 

As a non-profit organization, we are committed to safeguarding the privacy and security of all applicants' personal information. We process your personal data in line with applicable data protection laws, including the General Data Protection Regulation (GDPR) where relevant. 

Any information you share with us during the recruitment process will be used solely for assessing your suitability for the position and will be handled confidentially. Your data will be stored securely, accessed only by authorized staff, and retained only for as long as necessary for recruitment purposes. 

You have the right to access, correct, or request the deletion of your personal data at any time. By applying, you consent to the processing of your information in accordance with these principles. 

DEI statement: 

EAU is committed to offering equal opportunities and treatment to all its volunteers. We see diversity as a strength and anyone seeking volunteering at Equal Aqua is considered based on merit, qualifications, competence, and talent. We don’t regard colour, religion, ethnicity, race, national origin, sexual orientation, ancestry, citizenship, sex, marital or family status, disability, gender, or any other legally protected status.

We are extremely proud to be an equal opportunity employer and actively encourage applications from all backgrounds. To make your recruitment experience with us accessible to you, we encourage you to let us know if you have any individual requirements.

‘Equal Aqua’ is a registered Charitable Incorporated Organisation (CIO) in the UK; it operates equally and in unison with ‘Equal Aqua Uganda’, a registered Community Based Organisation (CBO) in Uganda (‘EAU’ refers to both). 

Welcome from Chair

Welcome to Action Duchenne. I became Chair of the Charity in January 2025. By background, I am a retired GP and NHS Leader, and my grandson Sebastian has Duchenne Muscular Dystrophy.

The Charity has been going through a period of significant change, as our previous CEO has moved on and several of our Trustees have retired. It has given us the opportunity to review and refresh our focus and our ways of working together.

We have also recently been awarded significant funding from the National Lottery over the next three years to develop and expand our All Through Support programme. The programme offers tailored support to families over years as they navigate the different challenges Duchenne brings and aims to travel alongside them throughout their journeys. No other statutory or charitable organisation is able to offer this level of support.

We want to expand and develop the Trustee Board to harness a wider set of skills, expertise and experience that will enrich the charity as we go forward. It is an exciting time to join us, and to be part of something that makes a real and tangible difference.

We look forward to hearing from you.

Dr Vicky Pleydell

Background and Direction

Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families. Our core activities involve bringing people together to share their experiences and learn from one another, increasing awareness of Duchenne, and bringing together families, Clinicians and pharmaceutical companies to increase understanding of the needs of those living with Duchenne. We provide support for families from the moment of diagnosis through their whole Duchenne journey.

We have been through a period of change and development, and are now looking to expand our Trustee Board with people with the following skills:

• Finance (a Treasurer role is available)

• Charity Governance

• Fundraising

• Legal 

We have recently been awarded significant funding from the National Lottery, which is enabling us to develop and increase the reach of our programmes. 

Trustee Role and Person Specification

The Trustees of Action Duchenne are pivotal roles, providing oversight and ensuring legal compliance. Board members are each expected to actively participate in quarterly meetings, and in turn are expected to dedicate sufficient time to the role.

The Trustees appointed will become Directors of the Company limited by guarantee (no. 04899036) and a Trustee of the registered charity (no. 1101971), and therefore need to be eligible to take on these roles.

All Trustees must 

• ensure that the charity is carrying out its purpose for the public benefit

• Comply with governing documents and the law

• Act in the charity’s best interests

• Manage the charity’s resources responsibly

• Act with reasonable care and skill, and

• Ensure the charity is accountable.

The Trustee role is voluntary and unpaid, but reasonable expenses will be met.

The majority of formal meetings are conducted remotely through emails and conference calls, with bi-annual away days.

Essential Criteria

Applicants must clearly demonstrate:

• A strong commitment to the holistic approach of support

• Relevant skills and experience drawn from a professional background

• A willingness to devote time to the governance of Action Duchenne, including preparing for and attending Board meetings and Away Days

• Emotional intelligence to understand the physical, mental, social and emotional challenges facing those living with Duchenne

• An understanding and acceptance of legal duties, responsibilities and liabilities associated with trusteeship, or the willingness and ability to acquire this

• Strong independent judgement and the ability to constructively challenge ideas on the Board and with the CEO

• Proven ability to work creatively and strategically in a Trustee or Board setting.

• Strong communication and analytical skills

Skills

Action Duchenne is looking for new Board members with a wide range of skills; please note these are a few areas of focus, but we are also looking for general Trustees, so please apply as we are looking to grow the Board in a number of ways.

• Finance experience and skills

• Governance experience and skills developed through time on a Charity Board

• Fundraising experience and expertise, with evidence of success across different income streams

• Legal experience

Lived experience/diversity

The Board currently has a majority of Trustees with lived experience of Duchenne, and therefore in this instance, we are looking for those without personal experience. If there is a reason relating to accessibility or diversity in which you feel you can’t apply for this role, please contact us for a chat before making your application.

Time Commitment

The Trustees currently meet monthly, and aim to move to quarterly meetings. For each meeting, there is an expectation of pre-reading and preparation, and where there is capacity and appropriate expertise, Trustees can advise on their anticipated standards relating to areas of work (safeguarding, fundraising, HR, for example).

The anticipated time commitment is likely to be 4-8 hours a month, with the away days in addition to this.

A trial period of six months is offered, to ensure the fit works for both the new Trustee and the Board, and a maximum term of three years, with the opportunity to be re-elected once, to serve for a total of two terms - six years.

How to apply

If you would like to have a chat about the role first, please contact Vicky Pleydell, Chair, via our website. Please share your CV and a short covering letter (no more than two A4 pages) noting why you would like to be a Trustee of Action Duchenne, how you align with the Charity, and what you feel you can give to the organisation through the Apply button before the closing date.

Closing date for applications

Applications will close on 9am on Tuesday 26th August, with interviews aiming to be held in the week commencing Monday 18th August.

We want to collaborate with more organisations, schools and hospitals getting the word out about our work and services. In order to do this, we need help from volunteers. 

Who are we looking for?

Outreach Assistants:
You will be enthusiastic about bringing about more representation and inclusion.

Enjoy development and may have experience of working with schools, hospitals and business development.

Be a good communicator (this does not need to be verbal communication, we recognise other forms of communication such as Sign Language, Eye Gaze, etc.)

Somebody who thinks outside the box (no robots at Buttons & Bubbles) 

What do we expect?
Must be willing to undertake our training programme

Have an Enhanced DBS check (preferably be on the update system)

Sign our volunteer contract. (If you disagree with anything in it please do discuss it with us and we will be happy to have a conversation and make small changes if appropriate).

A positive attitude to disability and illness. We are happy to answer questions on this.

If you would be interested in having more information about this opportunity or want to know what else we have (trust us there is plenty) please email