Trustee with responsibility for governance

Harry’s HAT is a UK-based charity focusing on paediatric hydrocephalus.

Our mission is to make life better for children and their families who are affected by hydrocephalus. We work towards this through:

1. Awareness: delivering workshops and training to help people understand paediatric hydrocephalus.

2. Research: supporting research and funding training for professionals in health, social care and related fields.

3. Signposting and support: helping families find organisations that can offer advice, guidance and peer support.

4. Campaigning for early diagnosis of the condition.

We are now recruiting a Governance Trustee to strengthen our Board and help ensure our governance framework remains robust as the charity grows.

The Governance Trustee will play a key role in supporting good oversight, strong policy development and effective decision-making across the organisation.

Key responsibilities of the role:

• Supporting the Board in maintaining strong and effective governance.

• Helping review and develop the charity’s policy framework, including safeguarding, governance, finance and operational policies.

• Ensuring policies are reviewed regularly, compliant with current legislation and embedded in day-to-day practice.

• Working closely with fellow Trustees and the CEO to ensure decisions reflect our mission, vision and values.

• Contributing to the work of the Fundraising and Risk Group, ensuring governance considerations inform the group’s discussions.

Attending and actively participating in:

• Six Board meetings per year (usually held on the third Sunday of every other month from 18:00–19:30 via Teams).

• Quarterly Fundraising and Risk Group meetings (1.5 hours, evening).

• Two 1-2-1 meetings per year with the Chair of Trustees.

• The charity’s AGM and any additional meetings or events as needed • Providing occasional input on matters raised by the CEO, Trustees, staff and volunteers.

• Acting as an ambassador for Harry’s HAT and representing the charity with professionalism and warmth.

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