Trustee

Metabolic Support UK are excited to share that we are looking for new Trustees to join our board.

Following the retirement of several Trustees we’re keen to broaden the range of skills and experiences represented. Our work is guided by people with lived experience, and our Board of Trustees plays a central role in shaping our strategy and ensuring that our values are embedded across everything we do.

We welcome applications, particularly from those with expertise in the following areas:

• Charity fundraising: Leadership in a fundraising environment, ideally within the charity sector.
• Clinical Dietitians: Experience of supporting patients with IMD's with a understanding of the challenges faced around diet and IMD's.
• Young adult with a diagnosed IMD: who has lived experience of an IMD and has navigated the process of healthcare from paediatric to adult care.
• Researcher: Experience of Rare Disease treatment research.

Appointments are made on merit, and we are committed to creating a diverse, inclusive Board that truly reflects the communities we serve.


About Metabolic Support UK

Metabolic Support UK is the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs.

Since its inception in 1981, our organisation has strived to support those in the rare community, expanding new-born screening, accelerating the development of orphan drugs, and acting instrumentally in establishing EURORDIS, ensuring people living with IMDs have the best quality of life possible.

Metabolic Support UK Board of Trustees
Metabolic Support UK Board of Trustees are a group of dedicated volunteers who are committed to the charities aims.

The Trustee meets four times a year (virtual), with meetings held during the week from approximately 2.30-4.30pm

Trustees are encouraged to participate in charity campaigns and attend flagship events, e.g., our Annual Community Conference. Trustees are not paid, but out-of-pocket expenses are reimbursed. Trustees serve a three year term.