Secretary

Secretary of Trustees

Location: Remote (UK/Ireland-based)

Time Commitment: Approx. 1–2 days per month

Term: 3 years (renewable)

Voluntary Role (Unpaid)

The Role

We are seeking a new Secretary of Trustees to support the governance and administration of the charity. This is a vital role that ensures the smooth running of trustee meetings and compliance with legal and regulatory requirements.

The Secretary will work closely with the Chair, Treasurer, and other trustees to maintain accurate records and facilitate effective communication.

Key Responsibilities

Governance & Compliance

• Ensure the charity complies with statutory and regulatory requirements, including filing with the Charity Commission.
• Maintain up-to-date records of trustee appointments and declarations of interest.

Meeting Administration

• Organise and schedule trustee meetings and the Annual General Meeting (AGM).
• Prepare and circulate agendas, minutes, and supporting documents.
• Record accurate minutes and actions from meetings.

Communication & Coordination

• Act as the main point of contact for trustee communications.
• Support the coordination of trustee activities and follow-up on agreed actions.
• Liaise with external stakeholders as needed (e.g. Charity Commission, VHL Alliance).

Documentation & Record-Keeping

• Maintain the charity’s governing documents and policies.
• Ensure secure and accessible storage of key documents and records.

Person Specification

We are looking for someone who:

• Has strong organisational and administrative skills.
• Is detail-oriented and reliable.
• Communicates clearly and professionally.
• Has experience of minute-taking and document management (not necessarily in a charity setting).
• Is committed to the values and mission of VHL UK/Ireland.
• Ideally has lived experience of VHL or a related condition (not essential).