Remote volunteer roles

About Us
ThriveSpark Southampton is a community interest company dedicated to empowering, supporting, and celebrating individuals with ADHD across Southampton and the surrounding area. We work to create a city that understands and embraces neurodiversity through education, advocacy, and community engagement.

The Role
We are seeking a passionate and creative Director of Communications and Marketing to join our voluntary management board. This role is ideal for someone who believes in the power of storytelling, connection, and visibility to create change.

As Director, you will lead the development of ThriveSpark’s communications strategy - ensuring our message is clear, engaging, and inclusive. You’ll oversee brand identity, digital marketing, press and media engagement, and internal communications, helping us to reach and inspire our community.

Key Responsibilities

• Develop and implement an accessible and vibrant communications strategy.

• Oversee the organisation’s digital presence, including website and social media.

• Support campaigns, events, and fundraising through creative marketing initiatives.

• Build relationships with local press, partners, and stakeholders.

• Ensure that all communication reflects ThriveSpark’s values and neurodiverse-friendly ethos.

What We’re Looking For

• Experience or strong interest in communications, marketing, or public relations.

• Excellent written and verbal communication skills.

• Creative mindset with an understanding of inclusive and accessible design.

• A genuine commitment to supporting neurodiverse communities.

This is a voluntary role, with flexible commitment to fit around your life.

Location: Online (Google Meet & Google Classroom)

Commitment: Approx. 4 hours per week

Start Date: Junuary

About the Role

We are seeking enthusiastic and committed Volunteer English Instructors to join our teaching program. Instructors are needed for all levels (ABC through Advanced).

Responsibilities:

Deliver two live online English classes per week (1 hour each).

Dedicate approx. 2 hours weekly to grading, feedback, and communication.

Work collaboratively with co-instructors and program coordinators.

Provide a culturally sensitive and inclusive learning environment.

Requirements:

Strong proficiency in English (spoken and written).

Prior teaching/tutoring experience preferred, but not required.

Ability to commit to 4 hours weekly.

Confidence using online platforms such as Google Meet and Google Classroom.

Professional, reliable, and adaptable to diverse student needs.

About the Students

Majority are beginners.

Around 60% are aged 16–26.

Students are based internationally and may face internet limitations.

Benefits:

Flexible online teaching schedule.

Comprehensive curriculum and ongoing support provided.

Valuable international teaching experience.

The opportunity to make a meaningful difference in students’ lives.

The Director of Compliance is a voluntary member of ThriveSpark CIC’s management (directory) board. They provide independent oversight and advice to ensure the company meets its legal, regulatory and ethical obligations, protecting beneficiaries, volunteers, staff, and the reputation of the organisation.

Key Responsibilities

• Regulatory oversight: Ensure timely and accurate filings and compliance with the CIC Regulator and Companies House, including annual reports, accounts, and the community interest test.

• Policy and controls: Lead periodic review of governance, risk, and compliance policies (e.g. safeguarding, data protection/UK GDPR, health & safety, finance, fundraising, whistleblowing, conflicts of interest).

• Risk management: Maintain the risk register; advise on mitigations; report material risks to the board with clear actions and timelines.

• Data protection & information security: Oversee GDPR compliance, DPIAs where relevant, incident response and retention schedules; liaise with the Data Protection Lead/Officer (if appointed).

• Safeguarding: Champion safeguarding standards and escalation pathways; ensure training and incident logging are in place and reviewed.

• Board assurance: Establish a light-touch annual compliance calendar; provide concise assurance reports and recommendations.

• Training & culture: Promote a proportionate, values-led compliance culture; support induction of new trustees/directors on compliance matters.

• External liaison: Act as a point of contact with regulators, insurers, auditors/examiners, and pro bono advisers where required.

Time Commitment & Terms

• Time: Approx. 4–6 hours per month (board meetings plus occasional task-and-finish work around filings or policy refreshes).

• Term: Initial three-year term, renewable by mutual agreement.

• Remuneration: This is an unpaid voluntary role. Reasonable out-of-pocket expenses are reimbursed.

• Location: Remote with occasional in-person meetings/events (as agreed).

• Reporting: To the Chair of the Board.

• Eligibility: Must meet the legal requirements to serve as a company director in the UK and not be disqualified. References may be requested.

Person Specification

Essential

• Governance & regulation: Practical understanding of UK company governance, ideally within charities/CICs, including filings and the role of the CIC Regulator.

• Risk & controls: Experience designing or assuring proportionate policies, procedures, and a risk register for a small organisation.

• Data protection: Working knowledge of UK GDPR and information governance (e.g. DPIAs, data breaches, retention).

• Safeguarding awareness: Familiarity with safeguarding principles and incident escalation in community settings.

• Analytical judgement: Able to balance compliance with operational pragmatism; turns regulation into clear, workable steps.

• Communication: Clear, concise writer and confident board-level communicator; able to brief non-specialists.

• Independence & integrity: High ethical standards; able to challenge constructively and manage conflicts of interest.

Desirable

• Sector experience: Prior board or committee experience in a CIC, charity, or social enterprise.

• Professional background: Qualifications/experience in law, audit, risk, governance, data protection, or safeguarding.

• Fundraising & finance: Awareness of fundraising compliance (incl. Gift Aid rules) and basic charity/CIC finance.

• Lived experience: Insight into the communities we serve and commitment to equity, diversity and inclusion.

• Change management: Experience embedding new policies/training in small teams or volunteer-led contexts.

Personal Qualities

• Calm, thorough, and solutions-focused.

• Respectful challenger who builds trust.

• Values-driven; committed to the CIC’s social purpose.

How to Apply

Please send a brief CV and a short statement (max. 500 words) outlining your relevant experience and why you’re interested in the role. Include any potential conflicts of interest. Interviews will be informal and focused on fit, approach, and availability.

Chair of the Board of Trustees

Remuneration:

Travel and subsistence will be paid for attendance at meetings in accordance with the ARFID Awareness expenses policy where required. Board members are not remunerated for their Board/trustee work.

Reports to:

Board of Trustees

Regular Liaison with:

• Board of Trustees
• Executive Directors

Duration of appointment:

Three-year term (with a possible extension of a further three years)

Overview:

Established in 2019 and supporting a community of over 30,000 families ARFID Awareness UK is the only registered UK charity dedicated to raising awareness and further information about Avoidant/Restrictive Food Intake Disorder.  As a not-for-profit, we provide individuals, parents, carers and medical professionals with up-to-date relevant information, research and support.

We are equally committed to supporting medical professionals across varying specialities, by equipping them with the information they need to ensure that their patients receive an early diagnosis and have access to appropriate care.

Our charitable aims are to:

1. Raising awareness about the condition within the medical and associated professions and the general public in such ways as the trustees shall determine;
2. Providing advice and information in such ways as the trustees shall determine to enable and empower parents and carers to advocate for the children in their care;
3. Facilitating research into the condition, the useful results of which will be published for the public benefit;
4. Potentially providing grants of financial assistance to enable economically disadvantaged families to obtain necessary treatment and medication unavailable via the NHS.
5. Advancing the education of the public in the subject of ARFID.

With regards to our structure, we are a Charitable Incorporated Organisation (CIO). As a CIO, our Charity Trustees are protected with limited liability, and whilst they are responsible for helping to manage the organisation, they do not hold dual roles of Company Director as they might with other charity structures.

Our mission is to remove the uncertainty, ambiguity and frustrations experienced by parents, carers and individuals over obtaining a diagnosis and treatment by providing general advice that may improve their journey.

Time Commitment:

Trustees meet twice a year virtually. Meetings last approximately 2 hours.

The Remuneration Committee meets once per year virtually. Meetings last approximately 1 hour.

In addition, Trustees are expected to allow time for reading of papers and preparation for meetings, attending events training and induction.  As a small charity there may also be a requirement for additional input of approximately 1-2 hours per month specific to your professional background and expertise as we continue through a period of growth.

Purpose of the role:

Board of Trustees

The Board of trustees (the Board’) is the body with the legal duty to protect the mission and vision of ARFID Awareness UK and to ensure that it is run in accordance with legal requirements.

The role of the Board is to provide good governance and leadership by: 

• Shaping ARFID Awareness UK’s organisational strategy 
• Approving organisational statutory policy
• Ensuring the organisation’s financial stability and sustainability 
• Appointing the Executive Director/s (overseen by the Chair of the Board on behalf of the Board) 
• Providing support and constructive challenge to the Executive Director/s and their staff
• Setting and monitoring procedures for assessing and managing risk 
• Taking advice from Board members and external specialist advisors 
• Monitoring strategy performance 
• Representing ARFID Awareness UK externally where necessary

As a charity CIO, Board members are charity trustees only. They do not represent any group or organisation in this role and they must act in good faith and in the best interests of ARFID Awareness UK.

Chair duties:

• Chair and facilitate board meetings
• Provide inclusive leadership to the organisation and the Board by ensuring that everyone remains focused on the delivery of ARFID Awareness UK purpose and delivering strategic and charitable aims
• Ensure that the Board is effective in its task of setting and implementing the organisation’s direction and strategy
• Support each trustee to fulfil their duties and responsibilities for the effective governance of ARFID Awareness UK
• Support and constructively challenge the Executive Director/s to ensure that ARFID Awareness UK operates in line with statutory and legal requirements and is effective in its outputs
• Ensure financial probity and that all resources are focussed on achieving the aims and objectives of the organisation for the benefit of the membership and delivery of charitable objects
• Appoint the Executive Directors
• Appoint and support the ARFID Awareness UK Treasurer
• Act as an ambassador of ARFID Awareness UK
• Ensure the smooth running of Board meetings, fostering a collaborative and inclusive environment
• Ensure robust and compliant governance arrangements in adherence with charity and statutory regulation
• Lead Board development activities

Alongside the Executive Director:

• Planning the annual cycle of board meetings and other meetings where required
• Developing the board of trustees including induction, training, appraisal and succession planning
• Addressing conflict within the board and within the organisation,

Where staff are employed:

• Liaising with the Executive Director/s to oversee the organisation’s affairs and to provide support as appropriate.
• Leading the process of supporting and appraising the performance of the Executive Director/s

Person Specification:

Essential:

• Significant experience of charity governance and trusteeship, demonstrating understanding of best practice and regulatory compliance
• Proven experience of chairing boards, committees or senior leadership teams effectively
• Track record of supporting small to medium organisations through periods of growth, change and development
• Strong strategic thinking and planning skills with ability to provide vision and direction
• Excellent facilitation and interpersonal skills, able to build consensus and manage diverse perspectives
• Confident and effective communication skills including active listening and constructive challeng.
•  Ability to work effectively as a member of a diverse team whilst maintaining independence and accountability as Chair
• Understanding of the legal duties, responsibilities and liabilities of charity trusteeship and Chair role

Desirable:

• Senior leadership experience in the charity or non-profit sector
• Experience of supporting and appraising Executive Directors or senior leaders
• Knowledge of the healthcare sector and/or ARFID
• Understanding of charity finance, risk management and compliance frameworks

This role is advertised as part of TPP's Free Giving Back Services. This volunteer advertisement copy has been supplied to TPP and applicants apply direct to the organisation. Please contact the organisation directly if you have any questions about this volunteer role.

About the Role

We are Buttons & Bubbles C.I.C. and our mission is to increase inclusion and representation for disabled families across society. We offer a variety of services including bespoke characters, workshops, free resources, events, sensory trails, and more.

We want to collaborate with more organisations, schools, and hospitals to spread the word about our work and services. To do this, we are looking for volunteers to join our outreach team and support these efforts.

Who Are We Looking For?

• Enthusiastic about increasing representation and inclusion

• Interested in development, with possible experience working with schools, hospitals, or in business development

• Strong communicator (verbal or other forms such as Sign Language, Eye Gaze, etc.)

• Creative thinker who can bring fresh ideas to the team

• Collaborative and team-minded

What Do We Expect?

• Willingness to undertake our virtual training programme

• Have an Enhanced DBS check (preferably on the update system) or be willing to complete one with us

• Sign our volunteer contract (we are happy to discuss reasonable adjustments if needed)

• A positive and inclusive attitude toward disability and illness

What Can You Expect?

• A supportive, kind, and nurturing team that values its volunteers

• Flexibility- contribute at times that suit you

• Supportive approach to accessibility and accommodations

Benefits of Volunteering with Buttons & Bubbles C.I.C

• Make a tangible difference in your community

• Develop skills in outreach, communication, and partnership building

• Enhance your CV and demonstrate reliability to future employers

• Explore new areas of interest and take on additional tasks if desired

• Build confidence while contributing to meaningful work

*This is an initally voluntary role for a charity (community interest company), initally. 

We are seeking a reliable and detail-oriented Company Secretary to join our Board of Directors. This is a key governance role ensuring that the organisation meets its legal, regulatory, and reporting obligations as a Community Interest Company. The successful candidate will support good governance, maintain statutory records, and help ensure the smooth running of board operations.

Key Responsibilities

• Ensure compliance with Companies House and the Office of the CIC Regulator, including timely submission of:

  • Annual accounts

  • Confirmation Statements

  • CIC34 Community Interest Report

• Maintain accurate statutory records (registers of directors, people with significant control, and key company documentation).

• Arrange and document board meetings, including issuing agendas, papers, and minutes.

• Advise the Board on governance requirements, policies, and regulatory responsibilities.

• Ensure decisions taken by the Board are properly documented and filed.

• Support the Managing Director with board administration and governance processes.

• Maintain up-to-date records of policies and organisational documents.

• Manage official correspondence on behalf of the organisation where required.

Person Specification

Essential

• Strong organisational and administrative skills

• Excellent written communication and attention to detail

• Understanding of confidentiality and data protection requirements

• Ability to work collaboratively with board members

• Commitment to good governance and ethical practice

Desirable

• Previous experience as a Company Secretary, charity trustee, or governance officer

• Knowledge of company law or CIC structures

• Familiarity with charity or social enterprise governance

Our Purpose

ADHDadultUK is a UK-based charity run by adults with ADHD for adults with ADHD.

We provide evidence-based resources, support, and advocacy for adults living with ADHD, helping them navigate the challenges and barriers they face due to this neurodevelopmental condition.

Our Vision

“A society where every adult with ADHD is supported to thrive” 

 At ADHDadultUK, our vision is a world where adults living with ADHD are recognised, understood, and fully supported.

We see a future where these individuals lead fulfilling lives, unhampered by societal barriers or misconceptions about their condition.

Our vision extends to creating environments – in workplaces, communities, and families – where the unique strengths and talents of adults with ADHD are celebrated and harnessed for societal benefit. 

Our Mission

“To provide comprehensive support, resources, and advocacy for adults with ADHD across the United Kingdom” 

Our mission is to empower and advocate for adults with ADHD by providing accessible, evidence-based psychoeducation, resources, and peer support. We work to amplify the voices of the ADHD community, challenging stigma and advocating for better recognition and services within the healthcare system and beyond.

We aim to: 

1. Educate – Increase awareness and understanding of ADHD among the public, employers, and healthcare professionals.
2. Support – Signpost to a range of services, including counselling, coaching, and peer support groups, to help adults with ADHD navigate challenges and capitalize on their strengths.
3. Advocate – Champion the rights of adults with ADHD, lobbying for policy changes to ensure equal opportunities in employment, education, and healthcare.
4. Research – Collaborate with academic and medical institutions to further research on adult ADHD, promoting evidence-based practices and treatments.
5. Community Building – Foster a strong, vibrant community where individuals with ADHD can share experiences, offer mutual support, and feel a sense of belonging.

Our Ambition

“To be a leading voice and support network for adults with ADHD in the UK” 

Our ambition is to establish ADHDadultUK as the foremost evidence-based authority and support network for adults with ADHD in the United Kingdom.

We aspire to:

1. National Reach – Expand our services to be accessible to adults with ADHD in every region of the UK, ensuring no one is left unsupported.
2. Influence Policy – Become a key influencer in shaping policies that affect adults with ADHD, ensuring they are fair, inclusive, and supportive.
3. Broaden Understanding – Significantly enhance public understanding and acceptance of ADHD through campaigns, educational programs, and partnerships.
4. Innovative Solutions – Lead in developing innovative support solutions and resources tailored to the unique needs of adults with ADHD.
5. Global Collaboration – Engage in international collaborations to share knowledge, best practices, and advocate for global change in ADHD support.

By achieving these ambitions, ADHDadultUK will drive positive change, not only for adults with ADHD but for society as a whole, fostering inclusivity, diversity, and understanding. 

Who are we?

We are Buttons & Bubbles CIC. We work with children, young people, families and other professionals associated and affected by illness and disability. We have several different services including inclusive characters, sensory workshops, resources, events, advocacy and more.

What are we looking for?

Do you enjoy art? Graphic design? Are you an amazing illustrator? Then we might just have a project for you. One of our aims is to have every type of disability in every culture, religion and ethnicity depicted through our characters. And yes, we know that’s going to mean a lot of hard work and a lot of characters! But NO we are not asking you to complete this entire project!

We’ve created 11 characters so far that depict a variety of conditions. We want to look at potentially re-developing these characters and starting work on some new ones!

What do we expect?

• Be willing to undertake our training programme which will be done virtually and at a time to suit you.

• Have an Enhanced DBS check (preferably be on the update system)

• Sign our volunteer contract. (If you disagree with anything in it please do discuss it

  with us and we will be happy to have a conversation and make small changes if

  appropriate).

• A positive attitude to disability and illness. We are happy to answer questions on this.

  What can you expect?

  • A community group that does not currently operate a rota system of any kind. You don’t have to regularly commit your time.

• A kind, caring, nurturing company who cares about people, staff and volunteers. Our aim is to keep your wellbeing at the centre of our work.

• A very positive and proactive approach to disability and illness. Any and all accommodations will be made that you require. If there is anything you wish to discuss in private please email us and we will arrange a confidential chat.

Benefits to Volunteering with Buttons & Bubbles CIC

• Gaining valuable experience and improving your confidence

• Allows you to explore potentially different areas of interest.

• Make a difference to community

• Develop your current skill set and gain new skills.

• Displays your level of commitment to future employers.

• Displays your ability to balance and schedule your time effectively when seeking future employment.

About the Role

We are Buttons & Bubbles C.I.C. and our mission is to increase inclusion and representation for disabled families across society. We offer a variety of services including bespoke characters, workshops, free resources, events, sensory trails, and more.

We are looking for volunteers to help us apply for and secure funding to support our valuable work. This role can be done remotely, with no fixed rota, and the amount of time you give is flexible.

Who Are We Looking For?

• Interested in fundraising or securing funding

• May have experience in the community or charity sector

• Legal or corporate background, or studying law or similar subjects

• Willingness to learn, motivated, and proactive

• Organised and detail-oriented

• Positive attitude and collaborative

What Do We Expect?

• Willingness to undertake our virtual training programme at a time convenient to you

• Have a basic DBS check (preferably on the update system) or be willing to complete one with us

• Sign our volunteer contract (we are happy to discuss reasonable adjustments if needed)

• A positive and inclusive attitude toward disability and illness

What Can You Expect?

• A supportive, kind, and nurturing team that values its volunteers

• Flexibility – contribute at times that suit you

• Supportive approach to accessibility and accommodations

Benefits of Volunteering with Buttons & Bubbles C.I.C.

• Make a tangible difference in your community

• Develop skills in fundraising, research, and grant applications

• Enhance your CV and demonstrate reliability to future employers

• Explore new areas of interest and take on additional tasks if desired

• Build confidence while contributing to meaningful work

About the Role 

We are Buttons & Bubbles C.I.C. We aim to increase inclusion and representation for disabled families across society. We have several different services including bespoke characters, workshops, free resources, events, sensory trails and more. 

As Buttons & Bubbles continues to grow, we are looking for people who can grow our Linkedin network and also general leads into development and business opportunities

Who Are We Looking For? 

• Someone who is passionate about our mission of inclusion, representation, and belonging. 

• Knowledge of lead generation 

• Knowledge of strategic planning and growth 

• Knowledge of Linkedin 

• Comfortable making initial contact with other professionals and organizations 

• UK based 

What Do We Expect? 

• Must be willing to undertake our training programme, which will be completed virtually at a time that suits you. 

• Have a DBS check (preferably be on the update service) or be willing to complete one with us. 

• Sign our volunteer contract. (If you disagree with anything in it, please discuss it with us, we’re happy to make small changes where appropriate.) 

• Have a positive attitude toward disability and illness. We’re always happy to answer questions about this. 

What Can You Expect? 

• A kind, caring, and nurturing company that values its people, staff, and volunteers. Our aim is to keep your wellbeing at the centre of our work. 

• A community group that does not currently operate a rota system of any kind. Therefore, you don’t have to commit your time regularly only when it suits you. 

• A positive and proactive approach to disability and illness. Any and all accommodations you require will be made. If you’d like to discuss something privately, please email us to arrange a confidential chat. 

Benefits of Volunteering with Buttons & Bubbles C.I.C 

• Make a difference in your community. 

• Have a positive impact on people’s lives. 

• Develop your current skills and gain new ones. 

• Demonstrate your commitment and reliability to future employers. 

• Show your ability to balance and manage your time effectively. 

• Build your confidence. 

• Explore new areas of interest by taking on additional tasks if you wish. 

About the Role 

We are Buttons & Bubbles C.I.C. We aim to increase inclusion and representation for disabled families across society. We have several different services including bespoke characters, workshops, free resources, events, sensory trails and more. 

As Buttons & Bubbles continues to grow, we are looking for someone who has experience of building websites to help revamp and update our current one. Our aim being to make it more accessible for disabled families and adults. 

Who Are We Looking For? 

• Someone who is passionate about our mission of inclusion, representation, and belonging. 

• Knowledge of accessibility 

• Knowledge or experience of making websites more accessible is desirable 

• Willingness to learn 

• Happy to suggest improvements 

• Able to work in a team as well as indipendantly 

• Uk based 

What Do We Expect? 

• Must be willing to undertake our training programme, which will be completed virtually at a time that suits you. 

• Have a DBS check (preferably be on the update service) or be willing to complete one with us. 

• Sign our volunteer contract. (If you disagree with anything in it, please discuss it with us, we’re happy to make small changes where appropriate.) 

• Have a positive attitude toward disability and illness. We’re always happy to answer questions about this. 

What Can You Expect? 

• A kind, caring, and nurturing company that values its people, staff, and volunteers. Our aim is to keep your wellbeing at the centre of our work. 

• A community group that does not currently operate a rota system of any kind. Therefore, you don’t have to commit your time regularly only when it suits you. 

• A positive and proactive approach to disability and illness. Any and all accommodations you require will be made. If you’d like to discuss something privately, please email us to arrange a confidential chat. 

Benefits of Volunteering with Buttons & Bubbles C.I.C 

• Make a difference in your community. 

• Have a positive impact on people’s lives. 

• Develop your current skills and gain new ones. 

• Demonstrate your commitment and reliability to future employers. 

• Show your ability to balance and manage your time effectively. 

• Build your confidence. 

• Explore new areas of interest by taking on additional tasks if you wish. 

About the Role 

We are Buttons & Bubbles C.I.C. We aim to increase inclusion and representation for disabled families across society. We have several different services including bespoke characters, workshops, free resources, events, sensory trails, and more. 

 
As Buttons & Bubbles continues to grow, we are looking for a volunteer who enjoys research and admin to identify potential funding opportunities for us from looking at some of the databases we have access to. 

Who Are We Looking For? 

• Someone passionate about our mission of inclusion, representation, and belonging. 

• No prior experience is necessary, but enthusiasm for research and understanding of guidelines is required 

• Able to work independently and as part of a team. 

• A dedicated person, who approaches research projects with a positive attitude. 

• Preferred but not essential: has carried out a research project previously such as within education or in their profession 

• UK Based 

What Do We Expect? 

• Willingness to complete a virtual training program at a convenient time. 

• Have a DBS check (preferably on the update service) or be willing to complete one with us 

• Sign our volunteer contract (we are happy to discuss reasonable changes if needed). 

• A positive and inclusive attitude toward disability and illness. 

What Can You Expect? 

• A supportive, kind, and nurturing team that values its volunteers. 
• Flexibility - there is no fixed rota, so you can contribute at times that suit you. 
• Supportive approach to accessibility and accommodations. 

Benefits of Volunteering with Buttons & Bubbles C.I.C 

 
• Make a tangible difference in your community. 
• Develop research, admin, and organisational skills. 
• Enhance your CV and demonstrate reliability to future employers. 
• Explore new areas of interest and take on additional tasks if desired. 
• Build confidence while contributing to meaningful work. 

Treasurer Role Description

Role Title  

Treasurer - ARFID Awareness UK

Board/Committee

Board of Trustees & Remuneration Committee

Remuneration  

Travel and subsistence will be paid for attendance at meetings in accordance with the ARFID Awareness UK expense policy where required. Board members are not remunerated for their Board/trustee work.

Responsible to 

The Chair of the Board of the Trustees 

Regular liaison with 

· Board of Trustees

· Executive Director/s

· Motion Accountancy

Duration of appointment 

Three-year term (with a possible extension of a further three years)

Overview

Established in 2019 and supporting a community of over 30,000 families ARFID Awareness UK is the only registered UK charity dedicated to raising awareness and further information about Avoidant/Restrictive Food Intake Disorder.  As a not-for-profit, we work to provide individuals, parents, carers and medical professionals with up-to-date relevant information, research and support.

We are equally committed to supporting medical professionals across varying specialities, by equipping them with the information they need to ensure that their patients receive an early diagnosis and have access to appropriate care.

Our charitable aims are to:

1) Raising awareness about the condition within the medical and associated professions and the general public in such ways as the trustees shall determine;

2) Providing advice and information in such ways as the trustees shall determine to enable and empower parents and carers to advocate for the children in their care;

3) Facilitating research into the condition, the useful results of which will be published for the public benefit;

4) Potentially providing grants of financial assistance to enable economically disadvantaged families to obtain necessary treatment and medication unavailable via the NHS.

5) Advancing the education of the public in the subject of ARFID.

With regards to our structure, we are a Charitable Incorporated Organisation (CIO). As a CIO, our Charity Trustees are protected with limited liability, and whilst they are responsible for helping to manage the organisation, they do not hold dual roles of Company Director as they might with other charity structures.

Time Commitment

Trustees meet twice a year virtually. Meetings last approximately 2 hours.

The Remuneration and Finance, Risk and Investment Committee meet once a year virtually. Meetings last approximately 1 hour.

In addition, Trustees are expected to allow time for reading of papers and preparation for meetings, attending events training and induction.  As a small charity there may also be the requirement for additional input up to 10 hours per annum as required specific to your professional background and expertise

Purpose of the role: 

Trustee (general)

The overall aim of the trustee role is to provide strong leadership, direction and expertise to the governance of ARFID Awareness UK. 

The Board of trustees (‘the Board’) is the body with the legal duty to protect the mission and vision of the FSRH and to ensure that it is run in accordance with legal requirements.

The role of the Board is to provide good governance and leadership by: 

· Shaping ARFID Awareness UK’s organisational strategy 

· Approving organisational statutory policy

· Ensuring the organisation’s financial stability and sustainability, and agreeing the annual operational budget 

· Appointing the Executive Director/s (who is overseen by the Chair of the Board on behalf of the Board) 

· Providing support and constructive challenge to the Executive Director/s and their staff team 

· Setting and monitoring procedures for assessing and managing risk 

· Taking advice from Board members and external specialist advisors 

· Ensuring oversight of the financial position of the charity and providing updates to the Board where appropriate.

As a charity and CIO Board members are charity trustees only. They do not represent any group or organisation in this role and they must act in good faith and in the best interests of ARFID Awareness UK.

Treasurer

· Chair the Remuneration and Finance, Risk and Investment Committee (FR&IC):

· To review progress of financial elements of the operational plan and make recommendations to the Board of Trustees.

· To review the strategic plan in context of financial and budgetary impact. 

· To review the annual budget and make recommendations to the trustees.

· To receive and review proposals for new expenditure outside of the annual budget

· Advise the Remuneration Committee on the affordability of any changes to pay and or benefits.

· To receive reports at each meeting on financial performance and report as required to the Trustees

· To develop an Investment Policy and strategy

· To review the draft annual accounts along with the audit report, ensuring they are in accordance with relevant accounting standards and Charity Commission guidance

Person Specification 

Essential:

· A financial accountancy qualification or equivalent experience (eg ACA, CIMA)

· Experience of investment, strategic planning and budgetary planning 

· Ability to work effectively as a member of a diverse team whilst keeping in mind the responsibility of being an individual trustee

· Experience of guiding an organisation through growth and change

· Confident and effective communication skills including listening skills

· Understanding of the legal duties, responsibilities and liabilities of trusteeship 

Desirable:

· Knowledge or experience of the charity sector 

· Knowledge of the healthcare sector and/or ARFID

· Experience of board or committee membership in a charity, public sector or commercial organisation.

To apply please email your CV and covering letter to XXXX by 17 November 2025.  Interviews are likely to take place the first week of December.

Role Title  

Chair of the Board of Trustees

Board/Committee

Board of Trustees 

Remuneration  

Travel and subsistence will be paid for attendance at meetings in accordance with the ARFID Awareness expenses policy where required. Board members are not remunerated for their Board/trustee work.

Responsible to 

Board of Trustees

Regular liaison with 

· Board of Trustees

· Executive Directors

Duration of appointment 

Three-year term (with a possible extension of a further three years)

Overview

Established in 2019 and supporting a community of over 30,000 families ARFID Awareness UK is the only registered UK charity dedicated to raising awareness and further information about Avoidant/Restrictive Food Intake Disorder.  As a not-for-profit, we provide individuals, parents, carers and medical professionals with up-to-date relevant information, research and support.

We are equally committed to supporting medical professionals across varying specialities, by equipping them with the information they need to ensure that their patients receive an early diagnosis and have access to appropriate care.

Our charitable aims are to:

1) Raising awareness about the condition within the medical and associated professions and the general public in such ways as the trustees shall determine;

2) Providing advice and information in such ways as the trustees shall determine to enable and empower parents and carers to advocate for the children in their care;

3) Facilitating research into the condition, the useful results of which will be published for the public benefit;

4) Potentially providing grants of financial assistance to enable economically disadvantaged families to obtain necessary treatment and medication unavailable via the NHS.

5) Advancing the education of the public in the subject of ARFID.

With regards to our structure, we are a Charitable Incorporated Organisation (CIO). As a CIO, our Charity Trustees are protected with limited liability, and whilst they are responsible for helping to manage the organisation, they do not hold dual roles of Company Director as they might with other charity structures.

Our mission is to remove the uncertainty, ambiguity and frustrations experienced by parents, carers and individuals over obtaining a diagnosis and treatment by providing general advice that may improve their journey.

Time Commitment

Trustees meet twice a year virtually. Meetings last approximately 2 hours.

The Remuneration Committee meets once per year virtually. Meetings last approximately 1 hour.

In addition, Trustees are expected to allow time for reading of papers and preparation for meetings, attending events training and induction.  As a small charity there may also be a requirement for additional input of approximately 1-2 hours per month specific to your professional background and expertise as we continue through a period of growth.

Purpose of the role: 

Board of Trustees

The Board of trustees (‘the Board’) is the body with the legal duty to protect the mission and vision of ARFID Awareness UK and to ensure that it is run in accordance with legal requirements.

The role of the Board is to provide good governance and leadership by: 

· Shaping ARFID Awareness UK’s organisational strategy 

· Approving organisational statutory policy

· Ensuring the organisation’s financial stability and sustainability 

· Appointing the Executive Director/s (overseen by the Chair of the Board on behalf of the Board) 

· Providing support and constructive challenge to the Executive Director/s and their staff

· Setting and monitoring procedures for assessing and managing risk 

· Taking advice from Board members and external specialist advisors 

· Monitoring strategy performance 

· Representing ARFID Awareness UK externally where necessary

As a charity CIO, Board members are charity trustees only. They do not represent any group or organisation in this role and they must act in good faith and in the best interests of ARFID Awareness UK.

Chair duties:

· Chair and facilitate board meetings

· Provide inclusive leadership to the organisation and the Board by ensuring that everyone remains focused on the delivery of ARFID Awareness UK purpose and delivering strategic and charitable aims

· Ensure that the Board is effective in its task of setting and implementing the organisation’s direction and strategy

· Support each trustee to fulfil their duties and responsibilities for the effective governance of ARFID Awareness UK

· Support and constructively challenge the Executive Director/s to ensure that ARFID Awareness UK operates in line with statutory and legal requirements and is effective in its outputs

· Ensure financial probity and that all resources are focussed on achieving the aims and objectives of the organisation for the benefit of the membership and delivery of charitable objects

· Appoint the Executive Directors

· Appoint and support the ARFID Awareness UK Treasurer

· Act as an ambassador of ARFID Awareness UK

· Ensure the smooth running of Board meetings, fostering a collaborative and inclusive environment

· Ensure robust and compliant governance arrangements in adherence with charity and statutory regulation

· Lead Board development activities

Alongside the Executive Director:

· Planning the annual cycle of board meetings and other meetings where required

· Developing the board of trustees including induction, training, appraisal and succession planning

· Addressing conflict within the board and within the organisation,

Where staff are employed:

· Liaising with the Executive Director/s to oversee the organisation’s affairs and to provide support as appropriate

· Leading the process of supporting and appraising the performance of the Executive Director/s

Person Specification

Essential:

· Significant experience of charity governance and trusteeship, demonstrating understanding of best practice and regulatory compliance

· Proven experience of chairing boards, committees or senior leadership teams effectively

· Track record of supporting small to medium organisations through periods of growth, change and development

· Strong strategic thinking and planning skills with ability to provide vision and direction

· Excellent facilitation and interpersonal skills, able to build consensus and manage diverse perspectives

· Confident and effective communication skills including active listening and constructive challenge

· Ability to work effectively as a member of a diverse team whilst maintaining independence and accountability as Chair

· Understanding of the legal duties, responsibilities and liabilities of charity trusteeship and Chair role

Desirable:

· Senior leadership experience in the charity or non-profit sector

· Experience of supporting and appraising Executive Directors or senior leaders

· Knowledge of the healthcare sector and/or ARFID

· Understanding of charity finance, risk management and compliance frameworks

To apply please email your CV and covering letter to XXXXX by 17 November 2025.  Interviews are likely to take place the first week of December.