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Do you want to make a real difference to the lives of people affected by kidney disease?
We’re looking for an experienced manager who wants to be part of work that genuinely transforms lives.
About Kidney Care UK
There are 7.2 million people with some form of chronic kidney disease (CKD) in the UK, equivalent to 1 in 10 people. There are one million people in the UK who have CKD but are not aware of it.
Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease.
About the Patient Support Service
The Patient Support Service provides practical, emotional and financial support for anyone affected by chronic kidney disease. Whatever the need presented, we empower people living with CKD and their families and carers to understand their options and make informed choices to positively navigate their experience of CKD. We’ll walk alongside them for as long as they need us to.
About the role
We are looking for a passionate and inspirational individual to lead our Patient Support service across Scotland & Northern Ireland. You and your team will reach kidney patients at their point of need and ensure they are supported or signposted to the services that will improve their wellbeing and maximise outcomes in line with the objectives of the service as directed by the Programme Manager/Head of Service.
Alongside our other Regional Managers, you will be the national face of Kidney Care UK patient support services, raising awareness of the service and the Charity and building strong relationships with the kidney patients, renal units, Kidney Patient Associations (KPAs), health professionals and other kidney stakeholder groups in your regions.
Key Responsibilities
- Lead a team of five Patient Support Officer’s to deliver an accessible, valued and effective service across your designated region. Responsibility for the training, development and wellbeing of the regional team.
- Lead the delivery of Kidney Care UK service and funder required outcomes into service delivery aligned with the Kidney Care Patient Support service strategy.
- Through in-person attendance at stakeholder events and meetings, build strong relationships with key decision makers and influencers in health and care commissioning and delivery in your region.
- Develop and maintain effective monitoring and measurement to demonstrate the outputs and effectiveness of the service and its impact on patient experience and outcomes.
- Using data and insight, report internally and externally with updates on regional issues, needs and challenges to inform service development.
- Manage the budget designated for your region, keeping accurate records of expenditure and reporting.
- Act as an organisational Designated Safeguarding Person in accordance with policy and procedures.
About you
We’d love to hear from you if you have:
- Understanding of the workings of NHS patient care pathways.
- Experience of delivering patient support services in a kidney or related health condition environment.
- Understanding of kidney disease and the needs of people with kidney disease, their families and their carers.
- The ability to influence, inspire and effectively manage a team.
- Excellent interpersonal skills including the ability to listen, with experience in building credibility with senior external stakeholders and managing relationships with diplomacy.
Experience of working within an NHS charity or large health related fundraising environment is highly desirable,as is understanding of relevant UK benefits legislation and entitlements.
Please note: You must live within one of the regions (Scotland or Northern Ireland) and have the ability to travel within those regions independently and on a regular basis. There may also be some travel across the UK.
What we offer
Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:
- Flexi-time – we are flexible about start and finish times, and flexible about your location.
- Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
- Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
- Health cashback plan – ability to claim back a wide variety of routine medical treatments.
- Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
- Cycle2Work scheme
- Learning and development – you’ll be able to access the full benefits of our membership of Fundraising Everywhere, Charity Comms and NVCO.
Apply today
If you feel the role is for you we’d love to hear from you.
Press Apply, where you will be asked to upload a recent CV which includes a cover letter. In your cover letter please demonstrate in no more than 2 sides of A4 how you meet the person specification within the job description.
CVs submitted without a cover letter will automatically be rejected.
Closing Date: 10th August (9am)
Provisional Interview Dates:
Ist stage interviews: 17th or 18th August TBC
2nd stage interviews 26th August TBC
Please note we will be reviewing applications as they come in and may choose to close the advert early.
We look forward to hearing from you.
Registered Charity
101 - 500
We are the UK's leading kidney patient support charity
The client requests no contact from agencies or media sales.
Thank you!
Job Purpose
Sequence ME & Long Covid is one of the most ambitious whole-genome sequencing studies ever undertaken into ME and Long Covid, co-led by Action for ME. Building on the success of DecodeME, this proposed £20 million study will use large-scale, long-read whole-genome sequencing to analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid - making it the world's largest 'long-read' whole-genome sequencing study of any disease.
Current funding supports project mobilisation, partnership development, and the development of the Long Covid arm of the study, including agreeing case definitions and gathering expressions of interest from people with Long Covid. Phase 2 has recently been confirmed, backed by £4.75m from the UK government and a further £174,414 from the WE&ME Foundation, and will focus on sequencing 6,000 ME/CFS samples previously collected through DecodeME using Oxford Nanopore's long-read sequencing technology, running alongside Phase 1.
You will play a pivotal role supporting the Sequence ME & Long Covid project in several different ways. Working closely with the project's management team and other team members, you will help ensure the smooth day-to-day running of this landmark study, providing administrative support to the various people and partners involved in delivering it.
As a self-starter, you will manage a range of tasks including meeting scheduling, taking meeting minutes, preparing governance documents, event administration, and broader project support - no two days will be the same.
You will need to maintain a high level of confidentiality at all times, particularly when supporting governance meetings and handling sensitive project documentation.
As a team player, you will provide comprehensive, confidential and organised administrative support, developing a deep understanding of the project and building strong, effective working relationships with colleagues, researchers and external partners.
Remote working at home can be challenging for some and works incredibly well for others. You will need to be able to work independently, use your own initiative, and remain proactive in maintaining good levels of communication with colleagues.
Key Duties
- Help monitor inboxes and respond to routine project enquiries in a timely and sensitive manner, escalating more complex matters as appropriate
- Assist the project's management team and other team members with meeting scheduling and diary coordination
- Take accurate minutes at project, management and other project-related meetings, and follow up and track resulting actions to completion
- Prepare, format and proof-read governance documents and papers
- Maintain and update project databases including the Teams channel, ensuring documents are saved correctly, other management information/recording systems to ensure accurate and timely record-keeping. Help with the tracking of expressions of interest from potential study participants.
- Provide administrative support for project events - from planning and logistics through to on-the-day support
- Help prepare presentations, slide decks and briefing materials for internal meetings, funders, partners and participant-facing communications
- Support the drafting, formatting and coordination of project communications, such as updates for partners, funders or the wider ME and Long Covid community
- Support coordination between internal teams and external partners, including research and funding partners
- Maintain project files and documentation in line with agreed communication operating procedures with internal and external partners ensuring information is well organised, up to date and easy for the team to access
- Maintain confidentiality at all times and in line with relevant policies and procedures, ensuring compliance with GDPR and that all data consent processes have been followed in relation to data protection
- Positively promote the work of the Sequence ME & Long Covid project and Action for ME at all times
- Undertake any other reasonable activity in line with the responsibilities of the post, as requested by the CEO, Business Development & Partnerships Manager, Senior Research Manager or the project's Management Team
Person Specification
Essential skills and experience
- Organisational skills - Highly organised with the ability to manage multiple tasks across a fast-moving research project, with attention to detail and accuracy maintained under pressure
- Communication - Excellent verbal and written communication skills, with the ability to interact effectively with diverse audiences including researchers, funders and people affected by ME and Long Covid
- IT literacy - Proficient with common office software, including Microsoft Office (Word, Excel, Outlook, Teams, PowerPoint), and able to quickly learn relevant project management, database or communications systems as needed
- Problem-solving - A creative and solution-focused mindset to address challenges and find innovative ways to improve processes
- Adaptability - Capable of managing changing priorities, working flexibly, and adapting to the needs of a fast-paced, ambitious research programme
- Initiative - A proactive approach, with the ability to work independently and take initiative, while also following clear instructions when given
- Teamwork - A collaborative team player with a proven ability to work effectively as part of a team, including a remote-working team spanning multiple partners and stakeholders
- Interest in the sector - A genuine interest in health research, the Third Sector, and a desire to take action to improve the lives of people with ME and Long Covid
- Experience - Demonstrable ability to be an effective administrator, ideally within a charity, research, or project environment. Experience supporting governance processes, events, or communications would be an advantage but is not essential
Desirable skills and experience
- Experience providing administrative support for scientific or research-related projects
- Experience writing and communicating with non-specialist or general audiences
Registered Charity
21 - 50
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.