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310

Advice and information manager jobs in Feltham, greater london

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Surrey Community Action, Guildford, Surrey (Hybrid)
£62,000 per year
We are looking for a CEO to lead us into an exciting future, supporting and developing the voluntary sector and communities of Surrey.
Posted 1 week ago

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The Access to Justice Foundation, London (Hybrid)
£35,646 per year
Posted 2 weeks ago Apply Now
Royal Society of Tropical Medicine and Hygiene, Bloomsbury (On-site)
£32,000 - £35,000 per annum
Posted 2 days ago Apply Now
The Academy of Medical Sciences, London (Hybrid)
Starting from £44,340 + benefits
A unique opportunity to shape conversations across the life sciences and contribute to improving health through evidence-informed policy.
Posted 2 days ago
Closing tomorrow
Tower Project, London (On-site)
£25,207 per year
Posted 4 weeks ago Apply Now
Closing in 6 days
Get Golfing CIO, Hampton (On-site)
up to £45,000 per annum
Seeking an experienced Charity Delivery Lead with 3+ years of impact-focused expertise to drive the success of our community programs.
Posted 1 week ago Apply Now
Legal Action Group, London (On-site)
£34,000 - £36,000 per year (pro rata full time)
Posted 1 day ago
The Nia project, London (Hybrid)
£29,000- £32,000 (unqualified £29,000-£30,000) (qualified £30,000-£32,000
Fantastic opportunity to advocate for women who have been subjected to sexual violence, at a leading feminist organisation
Posted today
Page 11 of 21
Wolfram Syndrome UK
Remote
£14,100 - £15,600 per year
Part-time (0.5 FTE)
Permanent

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Job description

Wolfram Syndrome UK (WSUK)

WSUK is a small national charity based in West Sussex that supports children, young people and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK provides current, accurate and family-friendly information, raises awareness of WS among health professionals and the public, and helps to fund WS research. For further information visit the Wolfram Syndrome UK website 

WSUK Adult Support Co-ordinator Role

WSUK is seeking a part-time adult support co-ordinator (2.5 days per week, working over 4-5 days, 0.5 FTE, £14.1k-£15.6k per annum), based in the Midlands area. This home-based role will provide support to WS affected adults and their families to help improve the quality of their lives. Through liaising with professionals (including the WS expert clinical team at Queen Elizabeth Hospital (QEH), Birmingham), external or advocacy organisations, this role will help facilitate access to the services to which WS affected adults and their families are entitled. The adult support co-ordinator will help adults and their families to increase their confidence and independence in living with their condition. This role will also act as an important point of contact for WS affected adults, providing advice and support in confidence.

Skills and experience

Applicants should have several years’ experience in a similar position, working with people affected by sensory loss, long-term medical / genetic condition, or disability. Applicants should also have a strong desire to help improve the lives of adults living with a long-term condition or disability and be confident in talking with people with a range of abilities and diverse cultural backgrounds.

Applicants should have experience in working effectively as part of a remote team, be confident in working independently and in managing conflicting priorities.

Some limited UK travel will be required (particularly to meet WS affected adults during their WS clinic visit at QEH, Birmingham (6 clinics per year) and the annual WS conference. An enhanced DBS check will be required.

Application resources
Organisation
Wolfram Syndrome UK View profile Organisation type Registered Charity Company size 1 - 5
Posted on: 24 March 2026
Closing date: 17 April 2026 at 12:58
Job ref: ASC 2026
Tags: Advice / Information, Fundraising, Advocacy, Blind, Deaf, Health / Medical, Wellbeing, Events / Activities

The client requests no contact from agencies or media sales.