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Job Purpose
Sequence ME & Long Covid is one of the most ambitious whole-genome sequencing studies ever undertaken into ME and Long Covid, co-led by Action for ME. Building on the success of DecodeME, this proposed £20 million study will use large-scale, long-read whole-genome sequencing to analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid - making it the world's largest 'long-read' whole-genome sequencing study of any disease.
Current funding supports project mobilisation, partnership development, and the development of the Long Covid arm of the study, including agreeing case definitions and gathering expressions of interest from people with Long Covid. Phase 2 has recently been confirmed, backed by £4.75m from the UK government and a further £174,414 from the WE&ME Foundation, and will focus on sequencing 6,000 ME/CFS samples previously collected through DecodeME using Oxford Nanopore's long-read sequencing technology, running alongside Phase 1.
You will play a pivotal role supporting the Sequence ME & Long Covid project in several different ways. Working closely with the project's management team and other team members, you will help ensure the smooth day-to-day running of this landmark study, providing administrative support to the various people and partners involved in delivering it.
As a self-starter, you will manage a range of tasks including meeting scheduling, taking meeting minutes, preparing governance documents, event administration, and broader project support - no two days will be the same.
You will need to maintain a high level of confidentiality at all times, particularly when supporting governance meetings and handling sensitive project documentation.
As a team player, you will provide comprehensive, confidential and organised administrative support, developing a deep understanding of the project and building strong, effective working relationships with colleagues, researchers and external partners.
Remote working at home can be challenging for some and works incredibly well for others. You will need to be able to work independently, use your own initiative, and remain proactive in maintaining good levels of communication with colleagues.
Key Duties
- Help monitor inboxes and respond to routine project enquiries in a timely and sensitive manner, escalating more complex matters as appropriate
- Assist the project's management team and other team members with meeting scheduling and diary coordination
- Take accurate minutes at project, management and other project-related meetings, and follow up and track resulting actions to completion
- Prepare, format and proof-read governance documents and papers
- Maintain and update project databases including the Teams channel, ensuring documents are saved correctly, other management information/recording systems to ensure accurate and timely record-keeping. Help with the tracking of expressions of interest from potential study participants.
- Provide administrative support for project events - from planning and logistics through to on-the-day support
- Help prepare presentations, slide decks and briefing materials for internal meetings, funders, partners and participant-facing communications
- Support the drafting, formatting and coordination of project communications, such as updates for partners, funders or the wider ME and Long Covid community
- Support coordination between internal teams and external partners, including research and funding partners
- Maintain project files and documentation in line with agreed communication operating procedures with internal and external partners ensuring information is well organised, up to date and easy for the team to access
- Maintain confidentiality at all times and in line with relevant policies and procedures, ensuring compliance with GDPR and that all data consent processes have been followed in relation to data protection
- Positively promote the work of the Sequence ME & Long Covid project and Action for ME at all times
- Undertake any other reasonable activity in line with the responsibilities of the post, as requested by the CEO, Business Development & Partnerships Manager, Senior Research Manager or the project's Management Team
Person Specification
Essential skills and experience
- Organisational skills - Highly organised with the ability to manage multiple tasks across a fast-moving research project, with attention to detail and accuracy maintained under pressure
- Communication - Excellent verbal and written communication skills, with the ability to interact effectively with diverse audiences including researchers, funders and people affected by ME and Long Covid
- IT literacy - Proficient with common office software, including Microsoft Office (Word, Excel, Outlook, Teams, PowerPoint), and able to quickly learn relevant project management, database or communications systems as needed
- Problem-solving - A creative and solution-focused mindset to address challenges and find innovative ways to improve processes
- Adaptability - Capable of managing changing priorities, working flexibly, and adapting to the needs of a fast-paced, ambitious research programme
- Initiative - A proactive approach, with the ability to work independently and take initiative, while also following clear instructions when given
- Teamwork - A collaborative team player with a proven ability to work effectively as part of a team, including a remote-working team spanning multiple partners and stakeholders
- Interest in the sector - A genuine interest in health research, the Third Sector, and a desire to take action to improve the lives of people with ME and Long Covid
- Experience - Demonstrable ability to be an effective administrator, ideally within a charity, research, or project environment. Experience supporting governance processes, events, or communications would be an advantage but is not essential
Desirable skills and experience
- Experience providing administrative support for scientific or research-related projects
- Experience writing and communicating with non-specialist or general audiences
Registered Charity
21 - 50
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
About Prostate Cancer Research:
Prostate Cancer Research (PCR) is a research and patient engagement organisation dedicated to creating a future where prostate cancer no longer threatens lives. Through research, innovation, policy & advocacy, and patient empowerment, we work to accelerate breakthroughs in prevention, diagnosis, treatment and care, while ensuring that the benefits of progress reach every community affected by the disease. Our goal is simple: to detect prostate cancer earlier, improve outcomes, reduce inequalities and transform the future of care for all men affected by prostate cancer.
About the role:
It’s been a very successful few years for PCR's Events & Community team with good results across the board, increasing income by over £1 million every year since 2023. And we recently won Fundraising Charity of the Year at the National Fundraising Awards 2026!
Now’s an exciting time to join us as we work on a new multi-year strategy and expand the team yet again, bringing in new resource to give the different activity areas space to grow and ensure we can do our best work – contributing to PCR’s lifesaving mission, developing our careers and enjoying work within an ambitious and supportive environment.
This role is new, created to focus on community fundraising which is a growing area with huge potential for PCR. We currently receive significant unsolicited income from our brilliant supporters, but there is a key opportunity to take a more proactive approach to recruiting new community fundraisers, improving their supporter experience and testing new offerings & products. You will work with the team to create and deliver a plan for this new proactive approach and will lead on day-to-day relationship management with fundraisers.
You will also lead the project management and delivery of some community-focused fundraising events. For example,our annual Snowdonia for Science event or testing new PCR-owned products which work for a community fundraising audience. We currently expect the split of time to be roughly 75% on community fundraising and 25% on events, but the two areas will be closely connected, and this split may change over time. We are excited to work with you to develop the direction of this role as the team and portfolio grows.
You will report to the Head of Events & Community and work closely with the whole team, as well as colleagues across PCR. We have flexible working arrangements, so you can choose to be office based or hybrid. The Events team currently try to work together once a week when possible, at our office in Chancery Lane, London. You’d also be needed to travel to team building and strategy days in London on an ad-hoc basis, and to supporter events across the UK when required.
Key Responsibilities
At PCR, we make team members’ development a key priority and there is always a % of time available to collaborate more widely for your development and interest. However, your main focus will initially be:
Project management and income growth
- Create and lead a plan to implement a proactive community fundraising portfolio, identifying new approaches to test and audiences to target which build towards a long-term sustainable income stream, ensuring alignment with the Public Fundraising strategy.
- Design and deliver ambitious fundraising budgets for your area which contribute net income towards PCR’s mission.
- Lead the project management and delivery of the community fundraising and events activities you are responsible for.
- This will include monitoring objectives, budgets and the bigger picture to ensure opportunities are seized & risks are minimised.
- Carry out supporter data and income processing tasks as required, including on the CRM and other internal systems.
- Work with the team to create and deliver effective marketing plans which meet recruitment targets.
- Analyse results based on KPIs & supporter feedback, proactively implementing changes & improvements.
- Ensure your fundraising activities are delivered in line with fundraising law & regulations, and with PCR’s policies.
Stewardship and relationship management
- Lead on the delivery of a great supporter experience for community fundraisers in line with our Public Fundraising manifesto, motivating fundraisers to raise more and remain loyal supporters of PCR.
- Interact with supporters via a range of communication channels and in-person, attending events and presenting about PCR’s work when required. This will include travel, for which TOIL will be given and reasonable expenses covered.
- Lead on relationship management for your area, spotting potential for fundraisers to have a greater impact with PCR as a whole, and working with colleagues in Philanthropy, Partnerships, Patient Projects & across the organisation to achieve this.
- Carry out stewardship tasks using tools like Mailchimp, GivePanel and JustGiving, for which training will be provided.
- Oversee stock management via our fulfilment house and ensure we have high-quality fundraising merchandise.
Product development and innovation
- Seize new opportunities for products, journeys or events which would engage a community fundraising audience, taking a test & learn approach. For this, there will be realistic budgets & an understanding of the investment needed for new ideas.
- Stay up to date with sector trends and maintain a strong understanding of PCR’s existing (and target) supporters to create and implement products and experiences that motivate and inspire.
- Use feedback and data to spot opportunities for the constant improvement of fundraisers’ experience with PCR.
- Work to engage supporters beyond their initial activity, testing ongoing journeys and maximising their life-time value for PCR.
Teamwork
- Alongside line managers within the team, help to oversee the relevant day-to-day work of the Supporter Engagement Officer/ Assistants who are supporting your activities, to ensure effective delivery and collaboration.
- Contribute to team strategy and capacity planning.
- Work with the team to embed our agile ways of working, modelling the principle of collective responsibility.
- Contribute to the improvement of relevant processes & infrastructure to ensure efficiency, compliance & best practice.
- Attend and actively contribute to meetings, sharing new ideas and learnings that might be useful for the wider team.
- Model PCR’s organisational values: innovation, collaboration, accountability & empathy (championing the patient voice).
The Community Fundraising & Events Manager may also get involved with other work to support Public Fundraising activities as appropriate. Attendance will be required at weekend and evening events, for which TOIL will be given.
Skills and Competencies
Our ideal candidate would be proactive team player, with:
- A willingness to get stuck in, eagerness to learn and strong sense of personal accountability.
- First class relationship management skills, with an ability to build rapport and to choose the right method at the right time in order to inspire a range of audiences through great stewardship and storytelling.
- Great written and oral communication skills, and an ability to present PCR’s work confidently in front of an audience.
- Strong event and project management skills, including end-to-end planning, budgeting & results tracking.
- The ability to see opportunities and drive progress within existing activity – and finding our next successful ones!
- Excellent organisational skills and the ability to juggle competing priorities, identifying the most valuable use of your time.
- An ability to oversee others’ work, to delegate effectively, and to give constructive feedback aligned with goals.
- Good attention to detail and IT Skills, with the ability to use relevant tools and a CRM database (training will be provided).
- A good understanding (or ideally experience) of community fundraising or similar peer-to-peer fundraising activity.
- A strong belief in the work we do at PCR, and a commitment to our values and mission.
How To Apply
Please apply by submitting your CV and a short supporting statement (maximum 600 words) outlining why you would like the role and why you think you’d be a good fit, giving examples of previous experience.
There will be a one two-stage interview process. The first interview will be online, and the second will be an in-person interview at our office in London.
For more information about the role, please contact our hiring team at the email provided in the full job description for an informal chat.
For more information about our organisation, visit the Prostate Cancer Research website, the Prostate Progress webpage and the PCR online patient resource, The Infopool.
PCR is an equal opportunity employer committed to diversity and inclusion. We welcome applications from all qualified individuals regardless of their race, gender, disability, religion/belief, sexual orientation, or age.
Registered Charity
21 - 50
Transforming Research. Transforming lives.
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Sue Ryder supports people at the most difficult times of their lives
Are you an experienced fundraising compliance professional with a proven track record in developing and implementing strategic plans, along with creating supporting policies, processes, and training programs?
The Role
Reporting to the Head of Commercial Support and Governance, the role works alongside the Fundraising Supporter Services and Standards Manager, Retail Operations Manager and Retail Support & Projects Manager.
The Commercial Directorate incorporates Fundraising and Retail Operations alongside other Commercial activities such as the International Learning Academy at Sue Ryder. The role will focus predominantly on fundraising operations compliance and provide leadership and assurance guidance for other commercial operations.
You will lead the development and implementation of a compliance framework across all fundraising operations at Sue Ryder which includes, maintaining awareness of external legal and regulatory requirements, engaging stakeholders to review and update policies, work with subject matter experts to create compliance processes and training.
You will also build and maintain reporting and other mechanisms which clearly identify where assurance is available or where not, providing leaders with data to focus on improving compliance.
Key Responsibilities:
- Develop and implement the compliance framework, which includes creating an audit and assurance program for Fundraising, leading on audits where applicable.
- Review and update all compliance policies and procedures, recommending and gaining agreement with subject matter experts for appropriate review periods.
- Ensure adequate training resources are available for compliance related matters and ensure regular reporting to monitor compliance and inform managers.
- Collaborate with stakeholders, including the Junior Data Protection Officer, to update data protection processes. Regularly review consent statements ensuring these are appropriate and standardised, managing third-party consent documentation.
- Review, advise and agree sign off with subject matter experts on fundraising materials sent out across Sue Ryder.
Essential Criteria:
- Expert knowledge of the CAP code, General Data Protection Regulation, Privacy and Electronic Communications Regulations (PECR), Code of Fundraising Practice and other charity requirements set by the ICO, the Fundraising Regulator, Gambling Commission’s Licence Conditions and Code of Practice and HMRC Gift Aid Standards.
- Proven experience of creating and reviewing policies and guidance in a fundraising or retail environment.
- Experienced in implementing reporting mechanisms (SLA/KPIs) using multiple data sources and systems and internal and external audit processes and risk management.
- Understand and have experience of project management processes.
- Excellent teamwork, emotional intelligence, and leadership skills.
- Capable of managing competing priorities to meet business need, balancing risk and commercial benefit
- Able to manage time, plans, projects, and tasks effectively.
Desirable Criteria
- Able to develop a network of relationships across the organisation to deliver objectives as a skilled negotiator able to influence and motivate others
- Proficient with various computer and communication software relating to fundraising, retail and/or learning and development environments.
Competitive Benefits Package
- 27 days holiday rising to 33 with length of service plus bank holidays (pro rata if part-time)
- Company pension scheme
- Staff discount with thousands of retailers
- Refer a Friend scheme - £250 payment
- Enhanced maternity, paternity and adoption pay
- Enhanced sick pay
- Electric Vehicle Scheme
- Healthcare Cash plan, to claim back costs of routine healthcare
- Death in Service benefit
- Staff discount of 10% on new goods online
- Structured induction programme and learning and development opportunities.
- Access to Employee support programme
- and lots more. Please visit our careers website for the full list.
Closing date: 11th Aug
Interviewing on a rolling basis - virtual interview plus a online skills test
**We reserve the right to close this advert prior to the closing date should we feel we have a sufficient number of suitable applications.
If you want more than just a job, we want you.
Join the team and be there when it matters.
Our commitment to equity, diversity and inclusion
At Sue Ryder, we recognise that a diverse workforce allows us to provide the best care and support. We are committed to encouraging equity, diversity and inclusion among our workforce, and eliminating unlawful discrimination.
We welcome applications from people from Black, Asian and Minority Ethnic communities, LGBTQ+ individuals, those from lower socio-economic backgrounds, and those living with disabilities.
As a Disability Confident Committed employer, we’re proud to support the ‘Offer an Interview’ scheme. This means we will offer an interview to all disabled applicants who best meet the minimum essential criteria for the role.
We use inclusive recruitment practices including sharing interview themes or questions in advance, offering remote interviews where needed, and other accessibility support.
Once in post you’ll have access to staff and volunteer networks for LGBTQ+ colleagues, ethnic diversity and equity, people with disabilities, and women and non-binary individuals, plus an Inclusion Passport to record and carry your workplace adjustments.
Join us in creating a culture where everyone feels respected, valued, and able to thrive.
Sue Ryder is here to make sure everyone approaching the end of their life or living with grief can access the support they need. There is no one size fits all when it comes to how we cope and the help we need, but with our support, no one has to face dying or grief alone. We are there when it matters.
