Care project manager jobs in Birmingham

We are looking for an experienced and compassionate Support Services Manager to lead BBS UK’s support services for children, adults and families living with Bardet-Biedl syndrome (BBS). 

BBS UK is a national charity supporting people affected by this rare genetic condition. We work closely with NHS specialist clinics and other services to help individuals and families access the support they need and navigate health, education, social care and welfare systems. 

This is an exciting opportunity to lead a small, dedicated team providing practical support, advocacy and guidance to people living with BBS and their families. 

The role includes team leadership, safeguarding responsibility and service development. You will help ensure people receive safe, responsive and person-centred support while continuing to improve and strengthen our services. 

About the Role 

As Support Services Manager, you will oversee BBS UK’s clinics support and advice services. Working closely with the CEO, NHS clinics and partner organisations, you will: 

• Lead and support a small remote-working team

• Provide supervision and safeguarding leadership to Patient Liaison Officers and Advice Workers

• Act as Designated Safeguarding Lead (DSL) for the organisation

• Oversee caseloads, service quality and risk management

• Support staff wellbeing, learning and development

• Build positive relationships with NHS and external partners

• Help develop and improve BBS UK’s support services

This is a home-based role with travel to specialist clinics in London and Birmingham, plus occasional meetings and events. Travel expenses will be reimbursed in line with BBS UK policies. 

About You 

We are looking for someone who: 

• Has experience managing a team within health, social care, welfare or voluntary sector services 

• Has experience providing leadership, supervision or safeguarding oversight within a support service setting 

• Has strong safeguarding knowledge and can make sound decisions in complex situations

• Communicates well and builds positive working relationships

• Can manage competing priorities and support a busy team

• Is organised, practical and calm under pressure

• Is reflective, approachable and supportive

• Shares our commitment to inclusive, person-centred support

• Wants to make a meaningful difference to people living with BBS

Why Join BBS UK? 

BBS UK is a small, supportive charity making a real difference to the lives of people affected by Bardet-Biedl Syndrome. By joining us, you will: 

• Make a direct and meaningful difference to children, adults and families living with BBS

• Be part of a supportive and values-driven team

• Work flexibly from home while contributing to a nationally recognised rare disease support service

• Receive ongoing training, supervision and professional development

• Help shape the future of support services for people living with BBS 

Additional Information 

• An enhanced DBS check is required for this role

• Some evening or weekend work may occasionally be required, with time off in lieu provided

If you’re ready to use your skills and experience to make a meaningful impact, we’d love to hear from you. If you would like to discuss the role before applying, details can be found in the application pack. 

Application Deadline: Sunday 7th June 2026 (midnight) 

Interviews: Expected to take place in London on 16th and 18th June 2026 

Team: Estates and Construction 

Location: Remote with regular travel in London and the South-East 

Work pattern: 35 hours per week, Mon-Fri 

Salary: Up to £53,736.33 per year 

Contract: Permanent 

We are the UK’s largest cat welfare charity. All over the country, our passionate employees, volunteers and supporters are using their kindness and expertise to make life better for millions of cats and the people who care for them. 

Responsibilities of our Surveyor: 

- Manage a designated portfolio of properties, delivering repairs and maintenance as required

- Be a property expert for colleagues across the estate, giving high levels of service and support.   

- Oversee property works in alignment with retail and operations managers within agreed SLAs 

- Assess property issues and take appropriate action 

- Maintain accurate records across estate/FM databases and cloud-based systems

- Provide advice on retail/commercial lease acquisitions and disposals 

- Liaise with agents, landlords, neighboring occupiers, solicitors and local authorities 

- Procure and manage contractors, ensuring they are vetted and all work meets H&S legislation 

About the Estates and Construction team: 

The Estates and Construction team manage a wide-ranging and diverse portfolio that reflects the breadth of the estate. Within the region covered, the portfolio includes purpose-built cat adoption and homing centres (both freehold and leasehold), a network of leasehold charity shops, multi-pen sites, and a small number of residential properties. Occasionally, surveying expertise is also required for matters relating to legacy properties. 

What we’re looking for in our Surveyor: 

- Level 6 or higher professional surveying qualification

- Current membership of a professional institution such as RICS, RIBA, CIBSE, CIOB, IWFM 

- Post qualification experience of surveying in a property or facilities management environment 

- A full UK driving licence and access to your own vehicle

- Working Knowledge of retail/commercial leases, acquisitions and disposals 

- Multi-site and use property management and compliance experience 

- Experience of working on and managing small building or maintenance projects up to £500k, including financial controls as EA or CA and contractor management 

- Ability to work within a small team and externally with professionals and third parties

- Strong Microsoft Office skills 

What we can offer you: 

- range of health benefits 

- 26 days’ annual leave plus bank holidays, increasing with length of service 

- Salary Finance, which empowers you to take control of your financial wellbeing 

- and much more, which you can learn about

Application closing date: 8th June 2026 

Virtual interview date: 29th June 2026 

Second stage: in person 9th July at the UK Cat Centre, RH17 7TT 

Applications may close before the deadline, so please apply early to avoid disappointment. 

If successful, your recruitment journey will include: 

1. Anonymised application form 

2. Video screening 

3. Virtual interview and assessment/presentation

4. Meet the team 

Please email us if you require any adjustments to be made for you to complete your application or to participate in the recruitment journey 

At United for Global Mental Health, we are working towards a world where mental health support is accessible to everyone, everywhere – free from stigma and without restriction.

We are a small but highly influential organisation of around 20 passionate, diverse and expert individuals, and have a culture of creating the space and opportunities for them to lead their areas of expertise. Our strength lies in collaboration, internally and externally, and in our ability to turn insight into action. Kindness is our unofficial ethos.

The CEO is responsible for the overall leadership, management and performance of UnitedGMH. Reporting to the boards of UnitedGMH and the American Friends of United for Global Mental Health (AFUGMH), the CEO will set strategic direction, oversee delivery, and act as the organisation’s primary ambassador.

Key responsibilities include:

Strategic Leadership

• Lead in conjunction with the organisation’s senior staff the refinement and delivery of our global organisational strategy 2027-2030.
• Guide the organisation through periods of change, including strategy refresh and transformation.
• Draw on sector insight to ensure UnitedGMH remains at the forefront of global mental health advocacy.

Governance & Board Relationship

• Work closely with the boards of UnitedGMH and AFUGMH to ensure effective governance and decision-making.
• Oversee the preparation and sign-off of board papers; present regularly to the boards. 
• Identify, recommend and support the recruitment of new members of both boards. 
• Advise the boards on significant strategic decisions, including potential partnerships and organisational change.

Organisational Leadership

• Lead, support and inspire a high-performing and global team of approximately 20 staff.
• Where needed, oversee and support the delivery of multiple projects and programmes aligned with strategic priorities, in conjunction with the project leads.
• Foster a collaborative, kind, inclusive and values-driven culture that walks the talk on mental health.

External Engagement & Influence

• Represent the organisation with external partners, funders, policymakers and the wider sector. 
• Build and manage relationships with key donors.
• Strengthen and expand strategic partnerships globally.
• Champion the organisation’s mission and influence key stakeholders in different regions across the world.
• Act as the organisation’s global spokesperson and support staff in building their profile as spokespeople for the organisation.

Finance & Organisational Planning

• Identify and agree organisational objectives, develop strategic and operational plans, and lead their implementation with a high level of autonomy, while reporting to the boards. 
• Oversee organisational planning, budgeting, prioritisation and resource allocation to ensure delivery against strategic goals. 
• Ensure the organisation has sufficient and sustainable funding to deliver against agreed budgets and strategic priorities. 
• Maintain strong financial oversight and accountability, ensuring the organisation operates within budget and delivers across all agreed objectives. 
• Monitor organisational performance against agreed deliverables, evaluating outcomes and adjusting plans where necessary to mitigate risk or adverse consequences. 
• Ensure robust financial management, operational planning, and effective use of organisational resources across multiple programmes and projects. 
• Bring together and oversee complex, cross-organisational initiatives, ensuring projects are delivered effectively and on time. 
• Delegate effectively through senior leadership and management structures, maintaining a medium- and long-term strategic focus. 

Fundraising & External Income Generation

• Lead and support organisational fundraising strategy to secure sustainable and diversified income streams. 
• Build and maintain strong relationships with funders, donors, strategic partners and philanthropic stakeholders. 
• Successfully secure and oversee fundraising contributions to meet a target set annually with the boards. 
• Work with the boards and senior leadership team to identify new funding opportunities and strengthen long-term financial sustainability. 
• Ensure fundraising activities align with the organisation’s mission, values and strategic priorities. 
• Represent the organisation externally to enhance visibility, influence and support for UnitedGMH’s work globally. 

Risk, Compliance & Accountability

• Ensure strong organisational governance, compliance and risk management. 
• Proactively identify and escalate policy breaches or serious incidents. 
• Oversee finance, HR and operations functions in accordance with UK employment policies, and UK and US charity regulations.
• Act as the primary point of accountability to the boards and relevant regulatory bodies (including the Charity Commission and US authorities). 
• Take responsibility for organisational risks, decisions and outcomes.

Our Dream CEO

As a team, we came together to discuss what qualities we are hoping for in a new CEO and leader. We’d love applications from candidates who see themselves in the team’s descriptions below.

Our dream CEO…

• shows kindness towards all partners regardless of seniority, institution or country.

• continues to uphold and protect the organisational transparency the team values.

• is a heart- and mind-led fundraiser – treating donors like people and not merely a source of income.

• provides space for team members to lead in their areas, but also supports / acts as a sounding board when needed.

• knows how to strategically place mental health in uncommon spaces.

• is happy to be approached by, and communicate with, team members from all seniority levels across the team.

• is someone who understands what it is to manage a remote organisation, and is interested in making UnitedGMH the best workplace it can be.

• is someone who can think a few steps ahead, identify trends, and interpret these for what this means for the organisation.

• has a solid understanding of, and proven experience in, managing the ´backbone´ functions of an organisation (budgeting, risk management, governance etc).

• has an understanding of UN systems, global health and international development.

• appreciates and champions the value that lived experience and people from the global majority bring to the mental health advocacy space.

Please download and review the Job Pack for full details of the role. 

Unfortunately, we are not able to recruit team members in the following countries/regions: Afghanistan, Belarus, Central African Republic, Cuba, Democratic Republic of the Congo, Iran, Iraq, Libya, Myanmar (Burma), North Korea, Russia, Somalia, South Sudan, Sudan, Syria, Ukraine (specifically the occupied regions of Crimea, Donetsk, Kherson, Luhansk, and Zaporizhzhya), Venezuela, Yemen, and Zimbabwe.

For non-UK candidates: Please note that you would be hired via Deel as an Employer of Record.

How to apply:

To apply, please submit your cover letter, outlining how you meet the responsibilities and candidate profile, and a CV, via the Charity Job site. Please note, we can only accept applications via Charity Job.

Interviews:

Interviews will take place remotely. There will be 2 interview rounds, and candidates shortlisted for the second interview will be invited to meet members of our wider team.

We are looking for a warm, organised and proactive Membership and Individual Giving Manager to help us deepen relationships with our members and supporters.

EDS UK is the leading UK charity dedicated to supporting people living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We provide trusted information, community connection and advocacy, for better recognition, diagnosis and care. Our members and supporters are at the heart of everything we do.

This role is central to building a sustainable income base that allows EDS UK to continue providing vital support, information and advocacy for people living with EDS and HSD.

As part of a small team, you’ll enjoy a varied role that blends hands-on delivery with strategic thinking. You’ll lead our membership scheme, grow regular giving, and ensure every supporter feels valued, understood and connected to our mission. You’ll bring empathy, clarity and creativity to supporter communications, recognising the diverse needs of our community.

This is a fantastic opportunity for someone who wants to make a tangible difference every day and help shape the future of EDS UK’s supporter experience.

The Senior Evidence & Evaluation Manager will sit within the Impact & Evidence directorate at the heart of Youth Futures Foundation.

Working with three Heads of Evaluation, the Deputy Director and the Director, you will help ensure our evaluations are designed to generate credible evidence of what works.

You will:

• lead the design, commissioning and management of impact evaluations, including RCTs and QEDs. This will include feasibility or developmental work where interventions are not yet ready for full impact evaluation.

• work closely with independent evaluators and delivery partners and colleagues in our Programmes & Grants and Policy & Communications directorates to assess the evaluability of interventions, and lead the design and delivery of large-scale, complex impact evaluations.

• contribute to strengthening our ‘evaluation architecture’, leading projects that enhance data infrastructure and access to administrative datasets, and set standards for methodological rigour in the sector.

In addition, you will lead other aspects of the team’s commissioning. This may include developing policies and processes, supporting the Heads of Evaluation to strengthen commissioning practice.

This role can be based at our Birmingham, Leeds or London hub. We currently operate a hybrid model of two-days per week in the office and three-days from home.

For more information on this role, please download our job recruitment pack.

Due to receiving high volumes of interest in our opportunities, this vacancy may close earlier than the advertised deadline. To ensure your application is considered, please submit it as soon as possible.

Purpose of Role:

Success looks like:

• Healthwatch Bucks delivers a balanced portfolio of projects that engage effectively with service users and communities and reflect its agreed priorities and lead to improvements in the delivery of health and social care
• Healthwatch Bucks projects are effectively managed and deliver to time, cost and quality in line with Healthwatch Bucks project management processes
• Healthwatch Bucks projects are recognised by health and social care service users and other stakeholders as supporting improved outcomes for health and social care

About the Giving Directorate and Net Zero Carbon Programme
The Church of England ministers to every community in England, and our mission and ministry is sustained and expanded through a culture of generous giving.

The Giving Directorate plays a vital role in equipping dioceses, parishes, and clergy with the tools and confidence to encourage generosity. Through strategic leadership, innovative resources, and collaborative partnerships, we aim to inspire giving that enables the Church to flourish in every community. We lead major funded projects that strengthen giving across the Church, ensuring that generosity is central to mission and ministry.

The Giving Directorate has four teams: Innovation & Insight (leading on innovations, the parish share project, data analysis and marketing); Parish Giving Scheme (giving mechanisms and technology); NZC Fundraising (including policy, philanthropy and gifts in wills) and Learning & Development (delivering training, mentoring, and equipping clergy and diocesan giving advisors, national and regional conferences, and developing online learning resources for parishes).
You will sit within the Net Zero Carbon Fundraising team which leads the strategy to coordinate and support the plans being developed by our dioceses, churches, cathedrals, schools, and departments to secure the significant additional funding needed to decarbonise the Church of England.

What you'll be doing
Legacies have historically played a transformative role for the Church of England - sustaining parish ministry, helping deliver the 30,000+ community projects run by parishes every year, conserving historic buildings and enabling important work for the future, including Net Zero Carbon projects. There is significant untapped potential for legacy giving to make an even bigger difference to our work, but awareness is uneven, and local church leaders often lack the training and resources to talk confidently about gifts in wills.

As the Gifts in Wills Manager, you will lead an ambitious new legacy programme to significantly expand the support and resources available for all parts of the Church of England to effectively encourage legacy giving. This will include creating new legacy giving resources that can be used by parishes, cathedrals and Dioceses as well as new training for local parish volunteers, clergy and senior leaders.

Gifts in wills have the potential for significantly enhancing the work of the church in caring for God's creation, being the culmination of a person's lifetime of commitment and care for the church and God's creation. The role will include specifically looking to develop NZC cases for support as a way to encourage gifts in wills, through linking the ongoing and perpetual care of God's creation with the long term impact of gifts in wills.
Through your work you will create a culture shift where legacy giving is demystified to become a natural part of Christian discipleship. The increased number and generosity of legacy gifts pledged and received will make a long-lasting impact on the financial ability of parishes, cathedrals, and dioceses to fund their ministry and social impact in the communities they serve.

Key Relationships: Head of Net Zero Carbon Fundraising, Deputy Director (Learning and Development), Regional Giving Advisors, Head of Resources & Insights, Diocesan Giving Advisors, NCIs Legal Team, Farewill, Christian Aid.

This is a fixed-term contract role for three years, and interviews will take place on 08 June 2026.

A fantastic opportunity has arisen within our award-winning fundraising team, to join us in an exciting new role of Legacy and In Memory Manager (Lead).

At Birmingham Women’s and Children’s Hospital Charity, we believe there’s always more we can do for our sick kids and women, and that’s why we will always strive to do more for our patients and families. It’s our mission to raise the vital funds needed to make a real difference to all who use our hospitals, and to make our hospital feel just like home. 

This role requires someone with experience in legacy administration and promotion and/or in memory fundraising, as well as excellent communication skills and a strategic mindset. We need someone with previous experience in relationship management and income generation - ideally within a legacy and/or in memory setting - who is able to lead and inspire our supporters and staff in order to generate long term income and awareness for the charity.

To be successful in this role you will: 

• Lead the development and delivery of legacy marketing and in-memory fundraising strategies to drive sustained income growth and supporter retention
• Be self-motivated, independent and target-driven
• Act as the subject matter expert on legacy administration and in-memory giving, providing guidance, training, and mentoring while promoting a strong culture of philanthropy
• Manage all aspects of legacy casework, including complex and contentious cases, ensuring effective stakeholder relationships and full compliance with legal, regulatory, and best practice standards
• Oversee data management, reporting, and analysis to generate insights, improve processes, and support accurate forecasting and long-term financial planning
• Collaborate across teams to maximise fundraising opportunities, enhance donor engagement across channels, and deliver impactful events and integrated giving initiatives
• Posses a natural confidence in talking to people with high emotional intelligence and resilience due to the sensitive nature of the role, with excellent communication and relationship building skills.

What we offer: 

• Flexible and hybrid working to support work-life balance 

• Generous annual leave entitlement with additional leave for long service  

• Enhanced sick pay 

• Enhanced Maternity Pay 
• Employee Assistance Program and Lifestyle Savings

• Free flu jabs 

• Cycle to work scheme 

• Charity events throughout the year 

• Employer enhanced auto-enrolment pension scheme with 8% employer contribution 

• Ongoing commitment to education and professional development 

The Charity is committed to equal opportunities and welcomes applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, sexual orientation or age.  

Successful candidates will have access to vulnerable beneficiaries therefore the role is subject to Disclosure and Barring Service (DBS) clearance.  

If you think you have the qualities we are looking for and the desire to contribute, please download the Job Vacancy Pack and then send us a CV and covering letter explaining how you meet the criteria for the role and making clear why you would like to be considered for it. 

PLEASE NOTE: Within our organisation, this role is titled Legacy and In Memory Lead. This reflects our internal structure and does not change the scope or responsibilities described in this advert.

We will conduct interviews as suitable candidates apply and we're ready to hire if we find the right person before the job ad closes.

If you’re passionate about safer communities and want a role where your work has a direct and lasting impact, this could be the perfect opportunity. As Crimestoppers’ Regional Manager for the South of England (Devon & Cornwall, Avon & Somerset), you’ll play a pivotal part in helping protect the public, empowering local people, and supporting the agencies working to prevent and solve crime.

We’re looking for an enthusiastic and motivated Regional Manager to represent Crimestoppers across the area. You’ll work closely with law enforcement and community partners to design and deliver meaningful crime‑prevention campaigns, while also coordinating cross‑border and national initiatives with organisations such as ROCUs and the NCA. You’ll empower local volunteer committees to thrive, act as a spokespeople for Crimestoppers in local and regional media, and drive funding opportunities that help expand our impact.

This role variety, and the chance to genuinely make a difference. We’re seeking someone with strong project and budget management skills, confidence under pressure, and the ability to build strategic relationships. Experience in or significant knowledge of the voluntary sector, media campaigning, or policing practice would be an advantage. If you’re committed to community safety and excited by the challenge of influencing real change, we’d love to hear from you.

Money & Energy Advice Service Lead

Pro rata salary: £39,825 (35 hour week)

Home-based, with travel as required

Up to 35 hours per week with occasional evenings and / or weekend work will be required

Permanent (subject to external funding)

Responsible for: 2.0 FTE Money & Energy Advisers

About the role

This is an exciting opportunity for an experienced welfare benefits practitioner with a passion for sharing knowledge and enabling teams to deliver above and beyond.

With around 4 in 10 beneficiaries, we support seeking help with financial difficulties, this is a pivotal role for Kidney Care UK.

We are seeking a knowledgeable and confident specialist income maximisation activities for a role with three key parts: to lead a small team delivering benefits and energy advice and support directly to clients; to play a key role in upskilling and supporting our outstanding Patient Support team across the country; and to be the subject matter expert within Kidney Care UK.

Our external partners – British Gas Energy Trust have committed to fund our Money and Energy Service until March 2027. We are advertising this position as ‘permanent’ – we anticipate confirmation by December 2026 whether funding will be extended beyond March 2027.

This role is made possible thanks to the support of British Gas Energy Trust.

About Kidney Care UK

Around 3.5 million people in the UK live with chronic kidney disease, and one million of them don’t know that they do.

Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease. 

About the Money & Energy Advice Service

The Money & Energy Advice Service (MEAS) provides information and support for welfare benefits and income maximisation and promotes awareness of efficient energy use. Working closely with Patient Support officers, MEAS provides specialist knowledge and directly supports clients to achieve sustainable financial outcomes. The service was established in 2023 with the support of British Gas Energy Trust and is embedded as a valued element of the many ways Kidney Care UK supports people affected by kidney failure.

What we offer

Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:

• Flexi-time – we are flexible about start and finish times, and flexible about your location.
• Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
• Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
• Health cashback plan – ability to claim back a wide variety of routine medical treatments.
• Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
• Cycle2Work scheme

Relationship Manager (North and Scotland)

Full-time (37 hours) | permanent

c£36,000 depending on experience | Home-based | Hybrid

At the Bone Cancer Research Trust, we exist because families refused to accept a world where primary bone cancer had no hope, no answers and almost no research. Today, we’re the UK’s leading bone cancer charity and every supporter you engage helps push vital research forward and provides comfort to families who need us.

About the role

As Relationship Manager, you’ll build genuine, lasting connections with our Special Funds - our named funds created in honour or memory of someone affected by primary bone cancer, community supporters and local businesses. Your relationship-led approach will help create the family feel connections we’re known for, inspiring long-term support and raising vital income for people affected by primary bone cancer

You will:

• Grow and manage Special Funds, our named funds created in honour or memory of someone affected by primary bone cancer.
• Build strong, meaningful relationships with all our supporters, ensuring every person feels valued and connected.
• Secure and steward regional corporate partnerships
• Meet a regional income target of approx. £300,000
• Represent BCRT in your region, strengthening awareness and community connections at meetings and events.

About you:

• A natural relationship builder with 3+ years’ fundraising experience and a genuine passion for supporter care.
• Compassionate and professional, especially when working with families personally affected by primary bone cancer.
• Organised, proactive and confident working independently, able to balance a varied workload.
• A clear and engaging communicator, bringing warmth and positivity to every interaction.
• Able to travel across the region (car required).

Why you’ll love working with us

You’ll join a small team that works collaboratively and keeps our community at the centre of everything we do. We’re supportive, friendly and you’ll have the flexibility to manage your work while seeing the direct impact of the relationships you build.

What we offer

· Flexible approach to working hours

· 30 days annual leave per year plus bank holidays

· Private Health Insurance (following successful probation)

· 6% employer pension contributions

· Life Assurance of 4x annual salary

Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

Location: Home based- Please note that while the role is primarily remote, candidates must be based in the UK due to periodic travel requirements, including attendance at conferences and other in-person meetings. 

Hours: Part time - 18 hours 

Terms: One-year fixed term contract (with a possibility of extending the role funding allowing)

Salary: FTE £24,750 (actual £11,880)

Pension: NEST Scheme 

Annual Leave: 28 days pro rata (inclusive of bank holidays) 

Normal working week: 37.5 hours 

What we can offer you: 

• Flexible, remote working from home. 

• A positive and friendly staff culture. 

• Annual in-person meet-ups as a team. 

• Laptop and Phone as required. 

• Option to discuss and set your own regular working hours. 

• The opportunity to make a difference to a growing charity and a large, engaged 

community.

• Organisation wide shut down at Christmas in addition to your holiday entitlement 

ABOUT US

PANS and PANDAS are complex neuro-psychiatric conditions which are frequently 

misunderstood and misdiagnosed. PANS PANDAS UK are the only charity in the UK 

working to improve outcomes and ensure brighter futures for people affected by PANS and PANDAS. 

We provide support and information to families, and work tirelessly to inform medical 

practice, raise awareness, engage with medical, social work and educational 

professionals, and much more. 

We are a small team based at home in various UK locations. We keep in touch frequently online and have a warm, supportive and positive culture. 

OVERALL PURPOSE 

The Education Training Development Manager will lead the operational development, and delivery of the national education training programme, ensuring it aligns with organisational priorities and emerging national guidance. The role is responsible for the coordination, growth and quality assurance of PANS PANDAS UK’s national CPD training offer for teachers and educational psychologists (EPs), supporting the development and delivery of high‑quality training modules and strengthening partnerships.

The role reports to and works in close collaboration with the PANS PANDAS UK Education Lead, who retains overall ownership, strategic responsibility and final decision‑making authority for the training programme and the wider education strategy.

Central to this role is working collaboratively with the PANS and PANDAS community and the Youth Advisory Board (YAB) to ensure all training is informed by lived experience.

Key Responsibilities

Programme & Content Development

• Jointly review, update and refine existing CPD materials with the Education Lead, informed by national guidance and emerging research, with the Education Lead holding overall responsibility
• Support development of new training modules and associated materials.
• Explore future delivery models to expand national reach and scalability.
• Identify opportunities for integration of PANS or PANDAS training/materials within University/Initial Teacher Training (ITT) and other relevant programmes.
• Work collaboratively with the PANS PANDAS community and Youth Advisory Board (YAB) to ensure training reflects lived experience.

Trainer Recruitment & Capacity Building

• Recruit and induct additional trainers.
• Support trainer development.
• Maintain consistent quality standards.
• Deliver priority or pilot training sessions when needed to help support programme growth and maintain delivery capacity.

Strategic Programme Oversight

• Provide leadership and direction for the development and delivery of the national education training programme within the strategic framework set by the Education Lead.
• Ensure training content and delivery models align with organisational priorities and upcoming national guidance.
• Lead long-term programme planning, sustainability and continuous improvement.

Partnership Development & Sector Engagement

• Build relationships with MATs, LAs, Universities and other national relevant organisations.
• Work with the charity Communications and Engagement Officer to promote the training models across social media and education networks.
• Attend and present at education sector events and networks to raise awareness of training opportunities.

Commissioning & Income Support

• Develop commissioning packages tailored to MATs, LA’s and other relevant organisations.
• Support pricing structures.
• Identify sustainable income opportunities for the charity via the training.

Quality Assurance & Evaluation

• Oversee monitoring and evaluation processes.
• Prepare reports for the charity as required.

Operational Coordination

• Coordinate scheduling, setup and delivery logistics for all training sessions.
• Manage bookings, confirmations, resource distribution, attendance recording and data collection
• Lead regular training team meetings to support planning and quality assurance.
• Support management and storage of training assets.
• Maintain regular communication with the Education Lead.

Working Environment & Culture

• Remote and flexible working within a digitally enabled national team.
• Supportive work–life balance, flexible leave arrangements and an organisational shutdown during part of December.
• Commitment to equality, diversity and inclusion, with lived experience valued.

Skills, Knowledge & Experience

Essential

• Relevant qualifications (teaching, SEND, adult learning, training design, project management).
• Ability to set priorities and align training with national guidance.
• Experience shaping or influencing SEND practice or programme development within an education context.
• Relationship building skills within the education sector.
• Strong organisational and project management skills.
• Excellent communication skills.
• Ability to work independently and as part of a team.
• Knowledge of the UK education sector.
• Familiarity with digital learning platforms.
• Willingness to gain an in depth understanding of PANS or PANDAS.
• Ability to work sensitively and confidently with the PANS and PANDAS community, including the YAB, creating safe and inclusive spaces.

Desirable

• Degree-level education or equivalent professional experience
• Experience contributing to strategic planning within education, a charity or Local Authority.
• Experience with CPD
• Experience leading multiagency or cross sector initiatives.
• Lived experience of PANS and PANDAS

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.