Challenge events fundraiser jobs in liverpool

Job Title: Community Fundraising Assistant

Reporting To: Running & Challenge Manager

Salary: £26,066 - £30,523

Hours: 37.5 hours per week*

Location: Alder Hey Children’s Charity, based within Alder Hey Children’s NHS Foundation Trust, Liverpool. Due to the nature and requirements of the role, the post holder will need to work onsite with occasional flexible working dependant on team capacity.

About us:

Alder Hey Children’s Charity raises vital funds to help make Alder Hey Children’s Hospital a truly world-class, patient-friendly hospital for the 450,000 patients and families we care for every year. 

The charity helps to fund a range of activities and projects that are designed to enhance and improve the lives of our amazing young patients. This includes the funding of specialist medical equipment to ensure our brilliant surgeons and clinical staff have the most up to date and cutting edge technology available and funding hi-tech distraction equipment designed and proven to reduce pain and anxiety in our patients. We also fund a range of programmes and special projects such as our ward musicians, our on-site magician and the play specialists we have on every ward.

Job Purpose:

This role calls for an enthusiastic, highly motivated and organised person who shares our values. The role will play a vital part in supporting the day-to-day activity of the Community Fundraising Team in undertaking a wide variety of fundraising activities.

Main Duties and Tasks:

Administration

• Support the Community Fundraising Team with the administration of bespoke, third party and donor led events. Including (but not limited to) sending packs and resources out, communication of event information and appropriate thanking.
• Manage the Community Fundraising email inbox.
• Diarise Community Fundraising team meetings, take appropriate minutes and distribute actions.
• Manage the Community Fundraising shared drive and filing system.
• Work with the Community Fundraiser to identify potential Young Ambassadors and create Ambassador Packs.
• Manage the stock control of Community Event Resources.
• Audit and monitor the Charity collection boxes.
• Manage community contacts within the Charity CRM (Salesforce) ensuring they have up to date information.

Stewardship

• Be the first point of contact for on-line giving donors and monitor the online giving platforms including JustGiving and ensure that each donor has relevant communications.
• Manage the donor led event diary, providing appropriate resources where required.

Reporting

• Produce regular financial and fundraising reports on various Community Fundraising Income streams using the Charity CRM (Salesforce).
• Monitor Community Fundraising income and check it’s appropriately coded on Salesforce.

Communication

• Ensure that relevant members of the Community Fundraising Team are aware of on-line fundraising activity.
• Work alongside the Operations and Finance Teams to monitor income.

Other Duties

• Attendance at community fundraising events.
• Be an outstanding advocate for Alder Hey Children’s Charity in line with the core values of the organisation.
• Be an active and supportive member of the Alder Hey Children’s Charity team, contributing to the team’s development and working collaboratively with colleagues and volunteers.
• Gain and maintain in-depth knowledge and understanding of the Charity’s work, priorities and future plans and act as a spokesperson for the Charity when required, including representing at external events as appropriate.
• Support the Operations Team when in the office by answering phones and serving on the front desk when the office is busy.
• Any other reasonable duties as required by your line manager.

Please note, the role may at times include lifting and manual handling.

Our Values

Here at Alder Hey Children’s Charity, our values guide the way in which we work. By being courageous, working together, being passionate about our work, and making sure that we are creative in what we do, helps us to deliver the support necessary so that our Hospital can continue to deliver the very best care for our young patients and their families. Our values are:

• Courage: we try new things and take risks to innovate and drive forward new ideas. We have the courage to speak up and take a stance. We are accountable, responsive and responsible. We are unstoppable.
• Together: we work together as one team, sharing our knowledge and learning. We work in partnership with patients, families, supporters and colleagues. We are respectful, celebrate diversity and empower each other to achieve our aims.
• Passion: we are passionate about what we do and why we do it.  We work together to share and grow. We inspire others.
• Magical: we are fun, creative and child led. We create special moments, provide little extras and go further for our brave young patients.  

*In April 2025, the charity adopted a four-day working week policy, meaning staff previously working 37.5 hours a week are now working 30 hours a week to enable a four-day working week. We are confident that by embracing a more flexible and balanced approach to work, we can continue to create a thriving and fulfilling work environment while driving growth and success for our charity.

Note: This job description is intended to outline the general nature and level of work performed by employees within this role. It is not exhaustive and may be subject to change or modification as required by the needs of Alder Hey Children's Charity.

Alder Hey Children’s Charity will make every endeavour to make any reasonable adjustments for applicants who require assistance in carrying out their duties due to a disability. Alder Hey Children’s Charity is committed to equal opportunities and positively welcomes applications from all sections of the community. Alder Hey Children’s Charity is committed to safeguarding children and vulnerable adults.

The post holder may be required to complete an enhanced DBS disclosure check.

Challenge Events Fundraiser 

30 hours / week 

Actual salary: £22,471 / year

Remote home working, occasional travel.

About Us

The Fire Fighters Charity offers specialist, lifelong support for members of the UK fire services community empowering individuals to achieve mental, physical, and social wellbeing throughout their lives. 

We are looking for a Challenge Events Fundraiser to join our national Regional Fundraising Team.

Arrangement of hours can be flexible and agreed with the successful candidate.

About the role

As a Challenge Events Fundraiser, you will support the Regional Fundraising Team to build a successful programme of challenge events that will raise funds and positively promote the Charity. 

This role will focus on a portfolio of mass participation and challenge events, as well as supporting national campaigns and community events delivered by programme scheduling, resource management, event marketing, participant recruitment and stewardship, financial reporting, database management and event evaluation.

You will produce and maintain the events calendar, research and recommend new events and work with our Supporter Care team to ensure support materials are provided as appropriate. You will ensure event performance, supporter engagement and income are recorded tracked and fed back to the Fundraising team.

You will ensure events are marketed and celebrated via established charity platforms, and participant numbers and income are increased through promotion to new and previous supporters. 

You will support participants through their journey, creating a memorable experience and positive impression of the charity, and will attend some events in person. 

Previous experience of event planning, participant recruitment and sponsor stewardship would be an asset to the successful candidate, who will also need experience of working with a CRM database and be competent at interpreting financial information and reports.

This role is subject to a Disclosure and Barring Service check. 

About you

You will need a good understanding of the events fundraising sector, it’s relevant law, procedures and techniques. 

You will be able to demonstrate an ability to research, plan and support a programme of events on a national scale and prioritise your workload to meet deadlines and KPIs agreed with your line manager. 

The Charity is an Equal Opportunities employer, and we welcome applications from all sections of the community. When recruiting our new team members, regardless of the role, we are looking for people who share our values to help us to achieve our strategic plan.

How to apply

Please submit a CV and covering letter via our online portal. If you require assistance, please contact us. 

We reserve the right to close this role early should we receive a sufficient number of applications. Due to the number of applications we receive, we are unable to contact applicants who are not shortlisted for interview. If you do not hear from us within two weeks of the closing date, please assume that your application was not successful this time. 

Community Fundraiser - London​

Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research? ​

Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within London.​

Key Responsibilities: ​​​

• Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects 
• Steward supporters to help drive the charity’s fundraising activities and growth 
• ​Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders ​
• Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research ​​

Requirements: ​​

• At least one year of fundraising experience, with a proven track record in income generation 
• Strong experience in supporter stewardship  
• Excellent communication skills, with the ability to engage and inspire supporters and partners alike ​
• Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure 

​

If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.​​

​For this role, the successful candidate must live in the London area.​​

​We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.

​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

Closing Date: 28th November 2025

​

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

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Community Fundraiser - Home Counties

​

Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research? ​

Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within Buckinghamshire, Bedfordshire, Hertfordshire, Northamptonshire and Essex. 

​​

Key Responsibilities: ​

• ​Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects 
• Steward supporters to help drive the charity’s fundraising activities and growth 
• ​Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders ​
• Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research ​

​

Requirements: ​​

• At least one year of fundraising experience, with a proven track record in income generation 
• Strong experience in supporter stewardship  
• Excellent communication skills, with the ability to engage and inspire supporters and partners alike ​
• Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure 

​

If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.

​

​

​We will give preference to those candidates living in the Bucks, Beds and Northants areas of this region.​​​

​We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

Closing Date: 14th December 2025

​

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

​

Who we are 

Not all young people have the same opportunities in life.

Caudwell Youth exists to level the playing field for young people at risk.

They may be care experienced, have mental health challenges, be neurodivergent or be at risk of exploitation or offending.

Caudwell Youth is a dynamic new charity which has just celebrated its third birthday.

What we do 

Caudwell Youth shapes young people’s futures by providing person-centred support to at risk 11 to 24-year-olds through volunteer-led mentoring for up to 18-months, alongside a targeted intervention programme.

Our vision is to help every young person at-risk in the UK. We give young people the time, trust and support they need to shape a positive future, no matter their starting point. 

Our mentoring service is designed to ensure every young person feels safe, heard and supported. Each young person gains a trusted adult (a trained volunteer) who meets with them once a week to support them as they take steps towards a more positive future.  

This year, we have supported more than 400 young people.

Our fundraising 

We have a compelling fundraising proposition. We were founded by billionaire philanthropist John Caudwell, who has pledged to match all donations and fundraising at 33%.

Our mentoring service is delivering exceptional outcomes for young people, and we are ambitious for the future.

This is a crucial time for Caudwell Youth’s fundraising function, as we are set to embark on a new strategy for national growth in the new year. For the financial year just gone, grant income accounted for around 28% of our fundraising revenue.

Our aim is to grow our charity sustainably, while continuing to meet the evolving needs of at-risk young people in ways that are effective and life-changing. This role will be a key part of that journey.

What we're looking for 

We are looking for an experienced grants, trusts and foundations fundraiser who can hit the ground running, both in solidifying and owning our valuable relationships with existing grant and trust fundrers and in exploring new opportunities.

You will also lead on the evaluation of our service impact across the organisation, gathering, analysing and presenting data to illustrate the valuable outcomes our services have for at-risk young people.

You will be a key team member in a dynamic and growing organisation and will help ensure the charity achieves its aims and objectives and fulfils its fundraising plan effectively.

More information about the role 

This role is home based, but you need to be able to meet with funders and our small but dynamic fundraising team.

These meetings may take place in London, or across our current operating regions (Hertfordshire, Buckinghamshire, Slough, Luton and Milton Keynes).

We are happy to consider compressed and flexible hours requests.

How to apply 

Please follow the link to our website to read the full recruitment pack and find the application form.

All applications must be submitted via our website application form. Thank you, and we look forward to hearing from you. 

Salary: circa £36,500 (including London weighting)
Contract: Permanent, Full-time (35 hours per week)
Location: Remote – must be based within London
Closing date: 28th November 2025 - with applications reviewed on a rolling basis
Benefits: Hybrid and flexible working, 25 days annual leave (rising to 30 days after 5 years’ service), pension scheme, Benenden Health access, electric car scheme, and more

We are thrilled to be working with Brain Tumour Research to recruit a London Community Fundraiser. Brain Tumour Research is a pioneering charity dedicated to finding a cure for all types of brain tumours. Through world-class research, impactful campaigning, and powerful awareness-raising, the charity is driving change and giving hope to thousands of families across the UK.

In this role, you will play a vital part in helping the charity meet its ambitious fundraising and campaigning goals. You’ll lead community fundraising efforts across London, contributing to a regional target of over £1.5 million. From supporting challenge event participants and Fundraising Groups to securing Charity of the Year partnerships, you’ll build and steward relationships that make a real difference.

To be successful in this role, you will need:

• Demonstrable experience in community fundraising and donor stewardship
• A track record of meeting financial targets in a similar role
• Excellent communication skills and empathy when engaging with supporters
• Strong organisational and time management skills
• A proactive, flexible approach and willingness to travel for key events

For an informal discussion, please contact Ashby Jenkins Recruitment and ask to speak to Heather.

Ashby Jenkins Recruitment is a specialist charity recruitment agency. We are committed to equity, diversity, and inclusion and take a relationship-led approach to recruitment in the sector. You can read more about our commitment to diversity on our website.

If enough applications are received, we reserve the right to close the application period early.
Please quote reference 2753HB when applying.

 

Our charity has grown rapidly over the last five years, with each year bringing new faces and new opportunities. This year, we’re excited to be welcoming a Fundraising Manager to join our team.

In this role, you’ll work closely with our CEO and operations team to deliver our annual fundraising targets, focusing on individual giving, trusts and foundations, and fundraising events/external opportunities. Partnerships are currently managed by the CEO and our Board of Trustees.

We have a fun, joyful working culture and work flexibly and mostly remotely, though you may occasionally need to attend meetings in London or travel for events. Our registered office is in Margate, so if you’re local or fancy a change of scene, you’re welcome to come and work by the sea.

As this is a new role for Not A Phase, we’re looking for someone confident, proactive and full of ideas. You’ll have the freedom to shape and implement your own systems and processes, with full support from the team.

It’s vital that you have an understanding of the issues currently faced by the trans+ community in the UK. We recently launched our new five-year strategy, Joy as an Act of Resistance, which will guide our mission in these challenging times. Your role will be key in helping us achieve it, if you'd like to check it out, you can read it in full over on our website.

We encourage applications from those with lived experience or a deep understanding of the topics we work within.

About You

• Experienced fundraiser, ideally with a background in individual giving.

• Skilled bid writer with a proven track record.

• Lived experience of, or strong understanding of, the challenges facing the trans+ community in the UK.

• Experience developing and managing fundraising events from start to finish.

• Passionate about giving supporters the best possible experience and skilled at building relationships to exceed targets.

• Confident communicator who can engage effectively with stakeholders at all levels.

• Creative, proactive problem-solver who thrives in a flexible environment.

Are you a strong marketer who can help us achieve our vision of making legacy giving a social norm across the UK?

At Remember A Charity, we're looking for a marketer with exceptional communication and planning skills, who will be inspired by the opportunity to play this key role in a small but dynamic team.

Remember A Charity (part of the Chartered Institute of Fundraising)

Hours: Full Time (35 hours per week). Requirement to work outside of regular office hours occasionally, as required, with time off in lieu.

Key benefits:

• Leave: 25 days per year (rising to 30 with service) + bank holidays.
• Pension scheme: After probation ends, we offer up to 7.5% employers’ contribution to our stakeholder pension scheme.
• Enhanced sick pay from day one.
• Great work/life balance through flexible and remote-first working.
• We also focus on staff wellbeing, training and development and support you with your volunteering.
• See our benefits list for all other details

Location: This is predominantly a home-based role, days in the office in Bermondsey, London will be agreed with the line manager. Occasional travel will be required to scheduled meetings/training/events.

The Chartered Institute is proud to be an equal-opportunity employer committed to a diverse and inclusive workplace where we can all be ourselves and succeed on merit. We particularly welcome applications from those who are significantly underrepresented in our sector, such as Black, Asian, people of colour, or from a specific minoritised ethnicity, neurodivergent, oppressed, or marginalised individuals or groups.

About us

Remember A Charity

Remember A Charity is a vibrant behaviour change campaign that aims to inspire the public to leave a charitable gift in their Will. Working collaboratively, the campaign’s mission is to do what no organisation can do alone, growing the legacy market and normalising charitable gifts in Wills.

Why grow legacy giving? Charitable gifts in Wills are one of the largest sources of voluntary income in the UK, raising £4.5 billion for good causes each year. As such, it’s a crucial source of income for thousands of charities, particularly in the current economic climate.

Established in 2000, Remember A Charity now represents almost 200 member charities, who work together to drive change through inspiring consumer campaigns, strategic partnerships with solicitors, Will-writers and professional advisers, and by lobbying government to enhance the wider legacy giving environment. The consortium encompasses a diverse range of charities, giving them the platform, resources and guidance to maximise their legacy fundraising. Remember A Charity works all year round to promote legacy giving, also running Remember A Charity Week each September as a central focal point for public awareness activity.

Our four key strategic pillars are:

• Inspiring the UK public to leave a charitable legacy
• Embedding legacy giving across Will-writing and estate planning
• Influencing government & decision-makers to protect and nurture the future of charitable legacies
• Equipping & enabling our members to maximise their legacy fundraising

Remember A Charity is part of the Chartered Institute of Fundraising and our goals align with its strategic priority of growing charitable giving.

Chartered Institute of Fundraising (CIOF)

The Chartered Institute of Fundraising is the UK's professional membership body for fundraisers, championing excellence, providing professional development and education, and fostering connections across the sector. We've launched a new ten-year strategy to tackle critical challenges like diminishing income, increasing demand for services, and issues such as fundraiser burnout and lack of investment that are impacting charities nationwide. We believe that every fundraiser should feel valued and nurtured.

This strategy focuses on four key pillars with clear five and ten-year targets: attracting, retaining, and nurturing fundraising talent to combat the "revolving door"; reframing the narrative to change perceptions of fundraising and drive investment; driving excellent fundraising practice, setting standards, ethics and guidance to build public trust; and fostering a culture that inspires more people to give to reverse declining donor numbers. Our ultimate aim is to double our impact in a decade, ensuring a sustainable future for both fundraisers and charities.

Role Background

This is a unique opportunity to use your creativity and marketing expertise to help charities across the UK grow their legacy giving and increase their resilience for the years ahead. The Marketing Manager will work within a small and talented staff team at Remember A Charity to expand its reach, grow its network and build engagement among its key audiences: charities, professional advisers and the giving public. The priorities for the Marketing Manager are to develop and deliver a marketing and communications plan in line with the campaign strategy.

Reporting Structure

Reports to: Lucinda Frostick, Director of Remember A Charity

Job Description

Job purpose: To lead and develop Remember A Charity’s marketing and communications programme, in line with our core mission of making legacy giving a social norm. This core focus of the role is on growing and engaging our audiences across the charity sector (members and non-members) and professional adviser communities (solicitors, Will-writers, wealth advisers).

The Marketing Manager will also contribute to the development of our consumer PR, marketing and digital programmes, led by the Director and Digital Communications Manager respectively.

This role would suit a confident and creative individual who is enthused by the opportunity of helping charities across the UK to grow and develop their long-term income. The successful candidate will work closely with the campaign’s members, professional advisers and, of course, colleagues within Remember A Charity and the wider CIOF.

Key Accountabilities:

• Lead the planning, delivery, and evaluation of marketing activities targeting charity sector and professional adviser audiences, aligned with organisational strategy and KPIs.
• Develop and deliver communications for charity members and Campaign Supporters.
• Collaborate with internal colleagues and external agencies to support the execution of consumer-facing marketing and PR campaigns.
• Create compelling assets and resources to support recruitment, engagement, and retention of members and professional partners.
• Ensure external communications and creative outputs are consistent with the Remember A Charity brand.
• Represent the organisation, exhibiting and/or presenting at relevant events or meetings.

​Responsibilities by area:

Charity sector

• Creation of promotional assets to support member acquisition and retention.
• Plan and deliver a dynamic member comms programme, including e-bulletins, impact reports and others.
• Help colleagues to coordinate and present at select member events.
• Manage sector-facing social media accounts (LinkedIn, X, and Bluesky).
• Support the Director with sector-facing editorial content.
• Gather and showcase member testimonials and case studies.
• Develop and promote guidance and resources to help members maximise their legacy fundraising.
• Enhance and develop the members’ area of the website, ensuring content is up to date and relevant.

Professional Advisers

• Responsibility for the marketing budget for professional advisers.
• Planning and delivery of marketing activity to grow our professional adviser network and maximise our impact, in line with our KPIs.
• Manage and grow the Campaign Supporter scheme for solicitors and Will-writers, delivering engaging communications and digital content that keeps charitable giving front of mind.
• Promote the importance of referencing the charitable option during Will-writing to professional advisers through events, direct marketing, social media, and advertising.
• Coordinate the campaign’s Legal Sector Advisory Group, organising quarterly meetings and fostering strong relationships with key stakeholders.
• Identify and pursue opportunities to engage wider professional audiences and influential groups within and beyond the legal sector, including but not limited to, wealth managers, Will-writing software providers, local government, regulatory and trade bodies (e.g. CILEX, CLC, NALP).
• Collaborate with CPD content providers to deliver training programmes on charitable Will-writing.
• Coordinate quarterly webinars for professional advisers on relevant Will-writing topics, working with internal and external partners.
• Create materials and promotional assets for professional advisers and campaign partners to equip them to advocate for legacies.

Consumers

• Contribute to the planning and delivery of consumer marketing and PR activity.
• Support members in making best use of the consumer-facing assets provided for them to use during Remember A Charity Week and beyond.
• Equip Campaign Supporters and Will-writing partners with resources to promote legacy giving during Remember A Charity Week and beyond.

All

• Collaborate with the team to review campaign activity and success measures against KPIs.
• Maintain and update website content for charity and professional adviser audiences.
• Uphold brand consistency across all external communications and creative outputs.

About You

Experience & Skills

• Experience of planning and delivering successful marketing programmes.
• Knowledge of the UK charity sector and/or legal market.
• Experience working in a customer-facing environment or dealing with a wide range of members and stakeholders.
• Effective presentation and networking skills.
• Familiarity updating webpages and using simple web-based design / delivery tools such as Canva and Mailchimp.
• Computer literacy (Word, Excel, PowerPoint etc.) and experience of using a CRM system,
• Budget management preferable but not essential

Attributes

• Confident and clear communicator, with strong writing skills and a creative solutions-driven approach.
• Excellent organisational skills, including the ability to work independently and prioritise, managing time effectively.
• Team player, but also a confident self-starter, able to work independently when necessary.
• A positive attitude, with the ability to keep calm when managing multiple projects.

Reflecting the CIOF’s values

Passionate: Takes immense pride in their work and is driven by a strong desire to achieve success for our mission.

Professional: Consistently champions and upholds the highest standards, operating with unwavering integrity and ethical conduct.

Enabling: Proactively supports others, feels empowered to take ownership, identifies effective solutions, makes sound decisions, and collaborates seamlessly across teams.

Enterprising: Demonstrates an openness to explore new solutions and is deeply committed to excelling in all areas of their work.

Respectful: Acts with honesty and fairness, consistently treating all individuals with consideration, dignity, and respect.

Circumstances

• Based in the UK.
• Able to work/travel outside office hours on occasions (i.e. attending conferences and meetings).

If you would like to discuss access requirements or have any questions about the role, please contact us directly.

About the role

You will be home based and will need to travel in the UK, Eire, Europe and further afield as the role develops. 

You will need some storage space available for Charity materials.

If you are self-driven, motivated, and want to help others achieve something amazing in support of Histiocytosis UK, we would love to hear from you.

You are likely to be in a similar role at another charity or have the right experience and transferable skills from another sector. You’ll be confident, enthusiastic, and an exceptional influencer with great customer care and communication skills.

There will be ample opportunity to shape the role, lead on specific projects and put your ideas into action.

The role will be mainly remote working so your experience and motivation will be key in this role so that we can achieve tangible results. 

Who we need?

You will be an excellent communicator, face to face, online, phone or email. You know the importance of listening, and you are the sort of person that brings focus and calm to difficult situations. Prioritising your workload is second nature. Perhaps most importantly of all, you’re energised and driven by a passion for learning and making life better for those with a long term and/or serious illness.

A degree is not essential, but a communication and fundraising skills qualification is desirable. It is important that you have a high standard of writing, and that you are on good terms with your computer, particularly MS office, email and maybe even Mailchimp, Zoom, Sage Accounting, Spreadsheets etc.

About us

Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, uniting patient voices to campaign for timely diagnosis, better care, and improved access to treatments.

We host Rare Disease UK (the national campaign for implementation of the UK Rare Diseases Framework) and SWAN UK (the only dedicated support network for families of children with undiagnosed genetic conditions) and we run the annual Rare Disease Day campaign. 

About the role

This is a creative and purpose-driven role at the heart of our charity’s communications. As Senior Communications Officer, you’ll help us tell powerful stories, share our impact, and build connections with our members, supporters and partners.

You’ll lead on producing engaging digital content, managing our social media and newsletters, and keeping our website fresh and accessible. You’ll also support light-touch fundraising campaigns, helping us grow our income and supporter base.

This is an ideal role for someone who enjoys combining creativity with strategy, you’ll use your writing, design and digital skills to make our work visible and compelling, while ensuring the voices of those living with rare conditions remain at the centre of everything we do.

You’ll work closely with the Head of Membership and Communications and our new Director of Engagement and Impact, contributing ideas that strengthen how we engage all our audiences.

About you

We’re looking for someone who is:

• A strong communicator with at least two years’ experience in a communications role.

• Skilled in producing visual and written content for websites, social media and newsletters.

• Confident using digital tools (e.g. Canva, Adobe suite, Wordpress/Drupal).

• Organised, creative, and comfortable working both independently and collaboratively.

• Motivated by making a difference for people affected by genetic, rare and undiagnosed conditions.

Experience in the health, social care or charity sector would be an advantage, but curiosity and empathy matter just as much as direct experience.

What we offer

• Generous pension (5% employer, 3% employee)

• 25 days annual leave (pro rata) plus bank holidays

• Full office closure over Christmas and New Year

• Flexible, home-based working with supportive team culture

Location: Home-based (UK) – occasional travel required

Salary: £29,705 (pro rata £23,764 for 0.8 FTE)
Contract: Permanent, 28 hours per week (0.8 FTE)
Closing date: 27 November 2025