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Chief executive officer jobs in Manchester, greater manchester

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Prospectus, Remote
£70,000 per annum
Posted 1 day ago
The Belay Foundation, Remote
£55,000 FTE (0.4 FTE, £22,000 actual salary)
Posted 4 days ago
Peridot Partners, Remote
£80,000 for the duration of the contract (FTC 18 months)
Posted 1 week ago

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Abeer Macintyre Consultancy, Remote
£55,000 - £60,000 per year
Posted 1 week ago Apply Now
Closing in 2 days
Foxglove, Remote
£98,800 per annum pro rata
Experienced Exec Director with co-responsibility for Foxglove's strategy, impact, advocacy, operations, fundraising and public facing work.
Posted 1 week ago
The DBR Foundation, Remote
£55,000 - £60,000 per year (pro-rata)
Looking for an experienced, innovative Chief Executive Officer to deliver the charity’s long-term vision, mission, and strategic objectives
Posted 1 week ago Apply Now

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Prospectus
Remote
£70,000 per annum
Full-time
Permanent
Job description

Prospectus is delighted to be partnering with our client to recruit their next Chief Executive Officer.

The orgnisation is the UK's leading charity dedicated to improving the lives of people affected by Dravet Syndrome, a rare, severe and life-limiting neurological condition. Founded by parents in 2008, the charity has grown significantly and now supports hundreds of families across the UK through family support services, professional education, awareness raising and medical research.

As the charity enters its next phase of development, the organisation is seeking an ambitious and inspirational CEO to lead the organisation through its next stage of growth and impact.

Reporting to the Board of Trustees, you will provide strategic and operational leadership across the organisation, leading the delivery of the charity's future strategy while ensuring excellence in day-to-day operations. You will work closely with families, clinicians, researchers, industry partners, funders and policymakers, acting as a visible and credible ambassador for the charity across the sector.

This opportunity is ideally suited to a senior leader from a national charity or patient advocacy organisation who has successfully led organisational growth and transformation. You will bring experience of scaling services, income and organisational capacity, while retaining a strong understanding of hands-on leadership within a growing charity.

We are looking for a confident and influential leader with the presence and credibility to inspire supporters, stakeholders and partners, whether speaking at conferences, fundraising events or representing the charity nationally. Experience within a rare disease, neurological condition, disability, health or patient advocacy organisation would be highly advantageous, with direct rare disease experience particularly welcomed.

To be successful, you will bring:

  • Significant senior leadership experience within a national charity, health or patient advocacy organisation.
  • A proven track record of leading organisational growth and managing complexity through periods of change.
  • Strong strategic and operational leadership skills, with the ability to balance long-term vision and day-to-day delivery.
  • Outstanding relationship-building and stakeholder management capabilities.
  • The confidence and presence to act as an engaging external ambassador and public spokesperson.
  • A commitment to improving outcomes for individuals and families affected by complex health conditions.


This is a rare opportunity to lead a highly respected charity at an exciting time of progress and opportunity, including significant advances in rare disease research and treatment.
This role is home-based with regular UK travel and occasional international travel. Some evening and weekend work will be required.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process, then please contact Catherine Bunting at Prospectus.

Recruitment timeline:
First round interviews (via Zoom) - Friday 18th September
Final round interviews (London) - Monday 28th September

Organisation
Prospectus View profile Organisation type Recruitment Agency Company size 101 - 500
Posted on: 10 August 2026
Closing date: 08 September 2026 at 23:30
Job ref: 194736
Tags: Advice / Information, Policy, Education, Health / Medical, Research, Youth / Children