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We are looking for an experienced and compassionate Support Services Manager to lead BBS UK’s support services for children, adults and families living with Bardet-Biedl syndrome (BBS).
BBS UK is a national charity supporting people affected by this rare genetic condition. We work closely with NHS specialist clinics and other services to help individuals and families access the support they need and navigate health, education, social care and welfare systems.
This is an exciting opportunity to lead a small, dedicated team providing practical support, advocacy and guidance to people living with BBS and their families.
The role includes team leadership, safeguarding responsibility and service development. You will help ensure people receive safe, responsive and person-centred support while continuing to improve and strengthen our services.
About the Role
As Support Services Manager, you will oversee BBS UK’s clinics support and advice services. Working closely with the CEO, NHS clinics and partner organisations, you will:
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Lead and support a small remote-working team
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Provide supervision and safeguarding leadership to Patient Liaison Officers and Advice Workers
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Act as Designated Safeguarding Lead (DSL) for the organisation
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Oversee caseloads, service quality and risk management
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Support staff wellbeing, learning and development
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Build positive relationships with NHS and external partners
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Help develop and improve BBS UK’s support services
This is a home-based role with travel to specialist clinics in London and Birmingham, plus occasional meetings and events. Travel expenses will be reimbursed in line with BBS UK policies.
About You
We are looking for someone who:
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Has experience managing a team within health, social care, welfare or voluntary sector services
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Has experience providing leadership, supervision or safeguarding oversight within a support service setting
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Has strong safeguarding knowledge and can make sound decisions in complex situations
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Communicates well and builds positive working relationships
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Can manage competing priorities and support a busy team
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Is organised, practical and calm under pressure
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Is reflective, approachable and supportive
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Shares our commitment to inclusive, person-centred support
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Wants to make a meaningful difference to people living with BBS
Why Join BBS UK?
BBS UK is a small, supportive charity making a real difference to the lives of people affected by Bardet-Biedl Syndrome. By joining us, you will:
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Make a direct and meaningful difference to children, adults and families living with BBS
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Be part of a supportive and values-driven team
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Work flexibly from home while contributing to a nationally recognised rare disease support service
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Receive ongoing training, supervision and professional development
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Help shape the future of support services for people living with BBS
Additional Information
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An enhanced DBS check is required for this role
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Some evening or weekend work may occasionally be required, with time off in lieu provided
If you’re ready to use your skills and experience to make a meaningful impact, we’d love to hear from you. If you would like to discuss the role before applying, details can be found in the application pack.
Application Deadline: Sunday 7th June 2026 (midnight)
Interviews: Expected to take place in London on 16th and 18th June 2026
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.

The client requests no contact from agencies or media sales.
Information Officer
Salary:
- Actual salary for 28 hours per week is £26,574.40 plus London Weighting £2,400 or Home Allowance £450 pa.
- Actual salary for 21 hours per week is £19,930.80 plus London Weighting £1,800 or Home allowance £450.
Hours: Part-time 28 or 21 hours per week
Benefits: • Flexible working • 30 days annual leave plus recognised bank holidays (pro-rata for part-time staff) • Contributory pension scheme • Healthcare cash plan covering dental, optical, 24/7 GP service •Employee assistance programme • Opportunities for learning and development
Cystic Fibrosis Trust is the only UK-wide charity dedicated to uniting for a life unlimited for everyone affected by cystic fibrosis (CF). We're working towards a brighter future for everyone with CF by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.
We are looking for an Information Officer to join our busy and supportive team at an exciting time of rapid change in cystic fibrosis and the information landscape. Changes in clinical care, treatments and the experiences and needs of people with CF have led to a dramatic increase in the breadth and volume of information we need to create, at a time when trusted information is more important than ever.
To navigate this, you’ll need solid editorial expertise and a commitment to engaging with and empowering the cystic fibrosis community through the development of high quality, engaging, accessible information, in print and digital formats.
You will develop and maintain our extensive offer of health and other information, including factsheets, booklets, clinical guidelines, web content and videos aimed at people affected by cystic fibrosis and clinical teams. You will make sure that our resources meet the needs of our target audiences through sensitive and meaningful involvement with people with CF and healthcare professionals.
You will have experience of producing high quality, comprehensive information for people with health conditions from concept through to publication and a knack for making complex health information easy to understand. An understanding of and commitment to the criteria of the Patient Information Forum quality kitemark (the PIF TICK) is integral to the role.
This position will involve working on multiple projects concurrently, juggling priorities, being proactive in your approach and creating reactive information to address emerging issues. Strong organisational and time-management skills are needed, as is the ability to work autonomously, and also collaboratively with colleagues in the team and wider organisation, and a range of external stakeholders.
* If London office-based, you will be required to attend London Head Office 40% of weekly working hours. If home-based, you will be required to attend the London Head Office for business needs as required. Please note this is a UK-based role and candidates will need to be based in the UK.
We offer a range of benefits including:
- Flexible working
- 30 days annual leave plus recognised bank holidays (pro-rata for part time staff)
- Contributory pension scheme
- Healthcare cash plan covering dental, optical, 24/7 GP service
- Employee assistance programme
- Opportunities for learning and development
Please note you will need to have the right to work in the UK before starting work with us and we will check this. We do not hold a Home Office Sponsorship Licence and therefore cannot offer visa sponsorship for our roles.
Closing date for completed applications is 11:59pm on Monday 1 June, 2026.
First interviews will be held week commencing Monday 8 June, 2026. Second interviews will be held week commencing Monday 15 June, 2026.
We reserve the right to bring forward the closing date or extend if necessary. Therefore, if you are interested in this role, please submit your application as early as possible.
How to Apply
Before applying, please ensure you read the job description for more information about the role.
Applications should be made through our recruitment portal Hireful and to apply, please select ‘Apply Now.’
No agencies or media please.
Our commitment to an inclusive workplace
Cystic Fibrosis Trust aims to be an inclusive workplace where everyone belongs, can be themselves and achieve their full potential. We want to attract, develop, and retain staff with diverse backgrounds, experiences, and perspectives; particularly people who have cystic fibrosis, people who identify as being from an ethnic minority group, as LGBTQ and people with disabilities.
It is our policy not to discriminate against any person because of their age, gender reassignment, being married or in a civil partnership, being pregnant or on maternity leave, disability (physical and mental), race including colour, nationality, ethnic or national origin, religion or belief (including lack of belief), sex, sexual orientation or union membership.
REF-228 389
About us
SurvivorsUK exists for men, boys and non-binary people who have experienced any form of sexual violence.
We support – by providing services such as a helpline, counselling, ISVA and groupwork.
We challenge – by raising public awareness of the issue, and dispelling myths
We build – by creating and facilitating networks for better access to help
Role
Sexual violence in prisons has long been ignored, leaving men without adequate support. Over the past year we have been part of a committee with HM Prison Service, Metropolitan Police and NHS England to develop a Service Level Agreement on responding to serious sexual assaults within prisons in London.
This three-year NHS-funded pilot is designed to:
- Train prison staff to understand the impact of sexual violence on male, boy, and non-binary prisoners.
- Raise awareness of sexual violence within prisons and equip staff with the tools to respond appropriately.
- Establish and strengthen referral pathways for survivors in London prisons.
- Gather key insights to inform future service provision and systemic change.
As a Trainer on the Prison Project you will work alongside two dedicated therapists. By embedding trauma-informed approaches within the prison system, this role will empower staff, improve survivor outcomes, and lay the foundation for long-term change in how sexual violence in prison is addressed.
Main responsibilities include:
- Deliver comprehensive training sessions to prison staff, healthcare teams, mental health professionals, probation officers and other key stakeholders.
- Develop bespoke training materials, toolkits, and resources to support ongoing learning for prison staff.
- Facilitate reflective practice sessions (‘trauma clinics’) to help staff process and improve their responses to survivors.
- Work closely with prison leadership teams to embed best practices into their safeguarding policies and procedures.
- Liaise with the Young People’s Therapist and Adult Therapist to align training with the therapeutic support available in prisons.
- Gather insights from prison staff on barriers to disclosure and challenges in supporting survivors.
Please see attached Job Description and Personal Specification for more information.
Benefits of Working with Us
- We are a Disability Confident Employer
- Access to Employee Assistance Programme
- Access to Clinical Supervision, if relevant for your role
- Acces to gym at our Hackney Wick offices
- Commitment to your professional development
How to apply
To express an interest in the role and to be considered, please review our JD and Personal Spec and submit the following:
- An up-to-date CV.
- A supporting statement that addresses each requirement within the person specification and outlines your motivations for applying.
Closing date: Friday 22nd May at 11:30pm
Shortlisting for Interviews: Week beginning 26th May. Interview will be held remotely via Teams or Zoom.
We especially encourage applications from individuals who reflect the diversity of the communities we serve, including men, non-binary, Black and Asian, trans, disabled people, and those from other marginalised groups. We recognise and value the unique experiences that arise from the intersections of these identities, and we particularly welcome applications from people with lived experience or a strong understanding of the issues faced by our service users.
At SurvivorsUK, we are committed to creating an inclusive and supportive work environment where everyone is empowered to bring their full, authentic selves to work. We also understand the importance of work-life balance and are open to discussing flexible working arrangements, including job share opportunities, to support candidates with caregiving responsibilities or other needs.
If you require any adjustments during the recruitment process or have any accessibility needs, please let us know. We are here to provide any support necessary to ensure the process is inclusive for you.
Our vision is a society that acknowledges, supports, and advocates for men and non-binary people who have been affected by rape or sexual abuse
The client requests no contact from agencies or media sales.