195

Communications volunteer volunteer roles in brent, bristol city

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Page 2 of 13
Newport, Newport (On-site)
Cardiff, Cardiff
Aberystwyth, Ceredigion
Haverfordwest, Pembrokeshire
Unpaid role, expenses paid
Voluntary

Actively Interviewing

This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!

Job description

Purpose of the role

To provide a positive, informative, sensitive and safe environment for those affected by EDS to share, learn and form a community.

What will you be doing? • Facilitating and hosting a minimum of 4 support group meetings in your local area every year, in a disabled friendly venue or virtually, using an allocated fund to cover the cost. • Checking your local social media regional group (Facebook) for messages and replying or signposting to the office or a local service. • Keeping up to date with training implemented by EDS UK and having guidance meetings as needed. • Giving facts and figures to your CM after each meeting • Checking your EDS UK email accounts at least once a week and responding to queries • Encouraging attendees to join The Ehlers-Danlos Support UK as a member • Signposting members to other support services • Liaising with fellow Area Coordinators in your region or in the UK

Skills and qualities needed Organised and self-motivated Good communication skills Compassionate and enthusiastic about helping others IT literate (email, Social media) A basic knowledge of EDS/HSD or understanding of chronic illness

Time commitment Quarterly support group meetings of 2/3 hours in length Checking in on the regional Facebook group a few times a week (30 mins per week) Checking and responding to emails as necessary (30 mins per week) Attending occasional Area Coordinator meetings (1 hour once a month) Some Area Coordinators run meetings more regularly, but there is no requirement to do so.

Mandatory Training Adult Safeguarding Fully enhanced DBS check

Benefits Helping others in need of support within the EDS community Making a difference to those around you Bi-annual Fragile Links magazines free of charge Training in relevant subjects Support from your allocated CM as well as from the charity Benefits guides if required Agreed expenses covered Develop your own management and facilitation skills Improve confidence

Support in the role • A full induction programme • We have a closed Facebook peer support group for Area Coordinators only to share experience and ask for information. • The CM’s and office staff will be there to support you within your role and can be in contact with you as much or as little as you need during office hours, and we encourage regular contact with us. We use the AC Facebook group and email to update all volunteers on any information we think they might find useful. • Monthly virtual Area Coordinator support group meeting on Zoom open to all volunteers. • Monthly Manager led AC meetings sharing information, best practice and taking feedback from volunteers. • A dedicated volunteer's website • Regional Messenger volunteer groups • Peer mentoring with an experienced Area Coordinator if requested

Application resources
Posted by
The Ehlers-Danlos Support UK View profile Organisation type Registered Charity Company size 6 - 10
Posted on: Monday, 9 June 2025
Closing date: 05 September 2025 at 10:00
Tags: Health / Medical

The client requests no contact from agencies or media sales.