Community volunteer volunteer roles in morningside, edinburgh

Information reviewers

We’re the MS Society – a community of people living with MS, scientists, campaigners, listeners, organisers, ambassadors and fundraisers. Our volunteers are a key part of achieving our goals and their support is vital. Join us.

About this opportunity
If you or a family member has MS,  we need your help in reviewing our information. 

Your ideas, your experiences and your feedback help make sure our info is clear, useful and appropriate for everyone living with MS. 

You’ll have an impact on the info we can provide online and in print.  

This is a great opportunity to get involved with a national charity. We need you to get involved and help make positive changes to the lives of people with MS.

About you
You’ll have MS or personal experience of supporting someone who has MS. You’ll want to share your thoughts on making information work better for people with MS. 

Apply 
- Read through the role description carefully

Fill out the application form

The MS Society is committed to promoting diversity. We can only offer roles to over 18s.

About Roots Academy

At Roots Academy, we’ve built a learning experience that’s changing the lives of the ummah’s future leaders, change-makers and visionaries.

Our vision is enabling university students to live God-centred lives, so we teach structured, engaging and transformative face-to-face foundational Islamic education to over 1,800 students across the UK.

Role Summary

As a Notion Specialist, you will play a key role in helping volunteers and teams effectively utilise Notion for their work. Your expertise will ensure that teams can optimise workflows, manage information efficiently, and collaborate seamlessly within the platform. You will provide training, manage permissions, and support teams in structuring Notion workspaces tailored to their needs.

Key tasks

1. Training & Support
   • Conduct training sessions for volunteers on how to use Notion.
   • Develop and maintain training materials (e.g., guides, videos, FAQs) to support ongoing learning.
   • Provide one-on-one or group support to answer Notion-related queries.
2. Workspace Optimisation
   • Help teams structure their Notion workspaces to suit their workflows and case scenarios.
   • Assist in building and refining dashboards, databases, templates, and automations.
   • Provide recommendations on best practices for using Notion efficiently.
3. Permissions & Access Management
   • Set up and manage permissions to ensure appropriate access levels for different roles.
   • Regularly review and update access permissions to maintain security and efficiency.
4. Process Improvement & Documentation
   • Identify opportunities to improve organisational efficiency using Notion.
   • Document standard operating procedures (SOPs) and best practices within Notion.
   • Support teams in integrating Notion with other tools where relevant.
5. Ongoing Support & Troubleshooting
   • Act as the go-to person for troubleshooting Notion-related issues.
   • Stay updated on new Notion features and advise the team on potential improvements.
   • Gather feedback from users to continuously enhance Notion use across the organisation.

What we’re looking for

• Strong experience using Notion, with the ability to teach others effectively.
• Understanding of database structures, workflows, and automations within Notion.
• Excellent communication and training skills.
• Ability to troubleshoot and provide creative solutions to Notion-related challenges.
• Organised, proactive, and able to work independently.
• Experience with integrating Notion with other tools (desirable but not essential).

What we have to offer

• Be part of a dedicated team of 90+ volunteers across the UK.
• Contribute to a growing organisation that educates and empowers the Muslim community.
• Access to in-house tarbiyah sessions to develop your deen.
• Receive continuous rewards for facilitating Islamic education through Roots Academy.

Please note: This is an unpaid volunteer position. Volunteers can claim expenses for food, travel, and equipment in line with the Expenses Policy.

Do you have a great idea to benefit people living with MS? At the MS Society, we campaign on a range of issues like welfare, treatments, care and support that people with MS need. We want to do more locally and want to support your ideas on making change happen. Together we can do more.

Perhaps you’ve spotted there are no blue badge spaces at your local supermarket? Or maybe your neighbourhood has no kerbs easy for wheelchairs to use? In this volunteer role, you’ll help drive change for people with MS in your community and develop your networking and influencing skills along the way.

As a campaigner you’ll bring your own ideas, local knowledge and personal experience to your campaigns. You’ll make decisions about your own campaign activities and collaborate with other campaigners in your area.

This role is flexible and aims to fit around you. Time commitments for this role may vary depending on your activities and the campaigning you’d like to do. This is an ongoing role.

Apply 

1. Read through the role description carefully (available via file attached on the right hand side)

2. Apply online, and have a welcome chat with your support staff member

This is an exciting time in our growth as we look to grow our governance systems, build on our successes and ensure we are a radical, dynamic organisation rooted in our anti-racist and anti-oppressive values.  We are looking for a new Chair for our Trustee board, to join us and help lead and shape the future of the organisation. 

Overview:

The Vice-Chair will provide governance and strategic support, ensuring strong board engagement and external advocacy. This role focuses on maintaining board effectiveness, stakeholder relationships, and operational oversight while assisting with non-financial fundraising initiatives.

Key Responsibilities:

Governance & Board Leadership:

• Work closely with the Chair to oversee governance and compliance.

• Ensure trustees are engaged, informed, and fulfilling their roles effectively.

• Chair board meetings in the Chair’s absence and ensure inclusive decision-making.

Fundraising & Stakeholder Engagement:

• Assist in developing and executing fundraising strategies.

• Represent CWV at external meetings, networking events, and with donors.

• Support the development of partnerships with businesses and local organisations.

• Encourage board members to contribute actively to fundraising efforts.

Operational & Team Support:

• Monitor team morale and performance, ensuring an efficient work environment.

• Assist in volunteer recruitment and structuring their roles effectively.

• Support the Operations Manager and Coordinator in streamlining organisational processes.

Qualifications & Skills:

• Experience in governance, strategic planning, or nonprofit leadership.

• Strong communication, organisational, and problem-solving skills.

• Background in fundraising, stakeholder engagement, or nonprofit operations preferred.

• Passion for community work and empowering young people.

About Us

My Black Dog is a charity that offers anonymous, peer to peer mental health support through our web-chat service. We are committed to making a positive impact on mental health in the UK as we tackle an epidemic that millions of people face.

We were founded on the motto "talk to someone who gets it". We want to connect people who share lived experiences to provide an empathetic, non-judgmental space where everybody understands how it feels to experience mental health struggles.

Position Overview

Our web-chat service is run by our Volunteer Pack, each of whom have their own lived experience of mental health challenges. In addition, each shift has a 'Leader' and a 'Mentor'. These are Volunteers who carry out specific roles during the shift and, together, ensure its success:

• Leaders - Managers of the shift. There to ensure the shift runs as it should. They support and guide Volunteers through chats and follow safeguarding processes when an alert is raised. They are also the first point of contact for the shift’s Designated Safeguarding Lead.
• Mentors - There to support and guide Volunteers through chats. Will take over from the Leader if there are safeguarding issues that need the Leader's attention and/or if the Leader needs a break.

As My Black Dog looks to expand our opening hours, we are looking to recruit additional Leaders and Mentors who can run shifts and cover additional shifts as necessary.

Leaders and Mentors will be assigned a shift based on your availability and preference. The expectation is that Leaders and Mentors will form a ‘pair’ and, together, will do one shift at the same time each week. This is to provide stability, predictability and to encourage community-building between Volunteers. Shifts are usually 3 hours long. We may ask you to cover another shift when we are short, but you will never do more than 6 hours per week.

Training will be provided and you will be supported on shift by a Designated Safeguarding Lead, who will manage all safeguarding issues.

The work you will do as Leaders and Mentors will ensure we provide the best possible service to our Guests. You will also be helping our Volunteer Pack to do what we do best: helping those in need by speaking to someone who 'gets it'.

Who We Are Looking For

We are looking for people who have experienced their own journey with mental health and are in a strong position to support others. We ask that our Leaders and Mentors:

• Are strongly committed to helping others
• Have experienced mental health issues in order to relate to those seeking help
• Are collaborative and enjoy working with others
• Are encouraging and supportive
• Are organised and can monitor several things at once
• Can remain calm and focused during busy times and when safeguarding alerts are raised
• Are 18 years and over 
• Can commit the time to a regular weekly shift

We are particularly interested in hearing from people who are available during the following hours:

• Monday to Sunday, 5pm-7pm
• Friday and Saturday, 7pm-10pm

Role Responsibilities

1. Supervise and support Volunteers whilst on shift with general enquiries, positive feedback and signposting.
2. Assist with general volunteering enquiries whilst on shift. Provide time for guidance, instruction and de-briefing for Volunteers if required.
3. Follow Leaders & Mentors processes including unexpected absence reporting, Volunteer check-in and check-out, and completing Shift Handovers.
4. Monitor web-chat conversations and ensure all chats are tagged.
5. Maintain ability to listen, remain calm and provide intervention if necessary.
6. Be able to have difficult and often complex conversations about mental health, including Guests experiencing crisis and first-stage intervention support.
7. If a Leader, work alongside the Designated Safeguarding Lead (DSL) when safeguarding risks are identified and, if a Mentor, take over responsibility for shifts when Leader and DSL have to address a safeguarding crisis.
8. Exercise discretion in handling confidential situations and information, conveying sensitive information in a timely manner to necessary individuals.
9. Provide written follow up of shifts via handover, ensuring all necessary information is handed over at the end of the shift.
10. Adhere to all standards, policies and procedures of My Black Dog.

Please note: An Enhanced DBS Certificate is required for this role. If you do not have one, My Black Dog will arrange the DBS Check for you.

Barefoot and Free are looking for a creative volunteers who have fresh ideas with the expertise and passion to make them a reality.

What will you be doing?

A wonderful opportunity for vibrant creative individuals to come up with new fundraising ideas and put them into practice.

We would love to hear from anyone who is passionate about fundraising and loves organising events, from cake sales to fun runs. If you feel you are someone who can motivate others, steer new supporters to sign up and support them, to organise their fundraising events and organise our own fundraising charity events then get in touch..... we need your help.

This fundraiser role is an important role, it will help bring in much needed funds to support what we do.

What are we looking for?

We’d love people who are passionate about supporting the families we serve, someone who is creative and can put a plan in action, someone who has had experience in successful fundraising activities, events or online success or individuals that may not have experience but have the drive to succeed in the role. Commitment and professionalism is a must.

What difference will you make?

We are a small charity fighting hard to support our families, as we grow, we need to bring in more funding, could you be the person to support us? Are you creative with vibrant ideas that could work boost our fundraising?

Your support will help us to grow and support more families, our families are extremely important to us, we support amazing children and young people fighting big issues due to neurodiversity or trauma resulting in mental health issues, we work hard as a team to fund staycations so our families can breathe and take a break so they can recuperate to face the challenges they so unfairly face. You will have the chance to make a huge difference to the lives of the vulnerable families we support at Barefoot and Free.

We can’t wait to see what you can do! Please get in touch.

The Student Publication Association (SPA) is recruiting charity trustees to assist its work in advancing the education of student journalists across the United Kingdom and the Republic of Ireland.

As a small, student-led charity, we support more than 330 member publications around the UK and Republic of Ireland, offering advice, training, and recognition at both our regional and national awards.

Our trustee board plays a vital role in our governance, ensuring that we remain within the boundaries of charity law, protecting the charity’s long-term stability, and supporting our student executives.

For this round of applications, we are particularly keen to hear from applicants with expertise relevant to the journalism industry.

No previous experience in journalism or as a charity trustee is required — but we do ask that you share our commitment to the advancement of student journalism.

We strongly encourage candidates from diverse backgrounds to apply. This includes, but isn’t limited to BAME, LGBTQI+, disabled, and care-experienced communities.

About The Role

As a small volunteer-run charity, we anticipate the role would take up an average of 1-2 hours a week, although this may increase during busier periods for the SPA, such as around our annual national conference (SPANC).

As a trustee, you will be a collaborative and supportive team player who will:

• Attend monthly oversight meetings with the executive committee and other trustees;
• Attend other meetings and 1-2-1s as needed on an ad hoc basis;
• Offer guidance and support to the executive committee throughout the year to help them achieve their goals, particularly in your area of expertise;
• Ensure that the charity is carrying out its core purpose, that resources are managed responsibly, and that activities comply with our governing documents;
• Support the delivery of our national conference, including attendance at the weekend itself during the Easter university holidays;
• Where possible, attend our induction day, for new executive members each year.

This is a volunteer role, but all reasonable expenses will be covered. The term for these appointments will be three years.

You will be part of a trustee board of ten people; four elected trustees, four appointed trustees, and two ex-officio trustees from our student-led executive committee.

Our focus as an organisation supporting refugees are three-fold:

Frontline evacuations, where conflicts are at their their most precarious

Emergency humanitarian aid deliveries in the most hard-to-reach areas in Ukraine, Syria and Turkey, as well as Greece and France.

 Self-reliance projects such as an education centre in Jordan, or upskilling adult refugees into work abroad and in the UK via our "Vintage Emporium" charity shops.

You will gain invaluable experience as a senior marketeer, working directly with the Managing Director, spanning traditional and digital channels in disaster relief in an agile organisation that punches well above its weight, committing to saving the lives of people who otherwise wouldn't be saved. We are small - your voice will be heard and your creativity welcomed!

Your focus will be on marketing our AID SHOP, a groundbreaking humanitarian aid delivery system that allows the general public to turn their empathy for new crises (Gaza, Turkey & Syria earthquake etc) into effective immediate action.

When disaster strikes, or the season changes - survival items for escalating conflicts or disasters are changed and added to our website. You will communicate these updates via email campaigns and social media posts, the items are then 'purchased' by our supporters, with the shopping lists collated internally by you, then sent to our partners or volunteers on the ground who can purchase the physical items and deliver the survival items to vulnerable people in the most precarious and volatile regions, sometimes within minutes! 

We also save greatly shipping and storage costs, and there is next to zero chance for unforseen delays at customs.

It is the most efficient way we know of giving in a crises - and is very efffective when marketed right (following either our set formulas, or bringing your own to experiment with). The best part? People know exactly where their money is going, so are justifiably much more generous!

So we need a volunteer (you!) to manage our marketing and communication efforts, ideally 2 days per week to:

*Post on social media (1 x reel / story per week, using a template to communicate the most needed survivial item of the week available for purchase in our "aid shop". 1 x Faceboo photo or video post)

*Update website as required

*Write 1 x compelling press release per week

*Update marketing / fundraising collateral

*Assist charity shops with creating leaflets and posters ad-hoc

*Organising our photos & videos by devising a tagging system 

Requirements:

*Please note - if you only have experience in one of the areas needed (e.g. you have worked in copywriting and press roles, but not social media) then please still contact us, as the role can be shared!

2 years' experience in marketing and press roles preferred

Experieince using Canva

An adaptable and compelling copywriter essential

Impeccable grammar 

Good attention to detail 

Creative, flexible, adaptable

Some knowledge of refugee topics would be very useful but not essential

In return, you’ll work as part of a fun, flexible team of people with shared motivations and interests, and have full visibilty of the fruits of your actions, directly impacting and saving lives within hours of marketing to our database. 

Please apply via the prompts here on CharityJobs by 28th February - we are actively interviewing so we may close the opportunity earlier.

We can't wait to hear from you!

About Roots Academy

At Roots Academy, we’ve built a learning experience that’s changing the lives of the ummah’s future leaders, change-makers and visionaries.

Our vision is enabling university students to live God-centred lives, so we teach structured, engaging and transformative face-to-face foundational Islamic education to over 1,800 students across the UK.

Role Summary

As a Governance Officer, you will work closely with the Governance Lead to ensure strong governance practices across Roots Academy. Your role will focus on supporting governance frameworks, policies, and compliance measures to align with charity governance requirements and relevant regulations. You will also play a key role in embedding a culture of governance across the organisation.

Key tasks

▪ Trustee Support

○ Assist trustees with governance-related tasks and ensure they have access to relevant policies, guidelines, and resources.

○ Direct trustees to appropriate regulatory frameworks, best practices, and governance training materials.

▪ Governance & Compliance Support

○ Support the onboarding process for new trustees, ensuring all necessary documentation is collected and securely stored.

○ Assist in coordinating trustee meetings, including preparation of agendas, accurate minute-taking, and document distribution.

○ Maintain key governance registers, such as the register of interests, policy register, and risk register, ensuring timely updates and compliance.

▪ Policy & Risk Management

○ Support the Governance Lead in developing and reviewing governance policies, including Conflict of Interest, Risk Management, and Whistleblowing Policies.

○ Assist team leads in ensuring policies are implemented effectively and aligned with best practices.

○ Help monitor compliance with Charity Commission regulations and the Fundraising Code of Conduct.

▪ Embedding a Governance Culture

○ Assist in raising awareness of governance principles across the organisation.

○ Support the Governance Lead in organising training sessions or briefings on governance best practices.

○ Help integrate governance principles into the organisation’s operations and decision-making processes.

What we’re looking for

▪ Interest or experience in charity governance, risk management, or compliance.

▪ Strong attention to detail and ability to maintain accurate records.

▪ Excellent organisation and communication skills.

▪ Ability to work independently while collaborating with different teams.

▪ Familiarity with Charity Commission Regulations and governance best practices (desirable but not essential).

What we have to offer

▪ Be part of a dedicated team of 90+ volunteers across the UK.

▪ Contribute to a growing organisation that educates and empowers the Muslim community.

▪ Access to in-house tarbiyah sessions to develop your deen.

▪ Receive continuous rewards for facilitating Islamic education through Roots Academy.

Please note: This is an unpaid volunteer position. Volunteers can claim expenses for food, travel, and equipment in line with the Expenses Policy.

About Roots Academy

At Roots Academy, we’ve built a learning experience that’s changing the lives of the ummah’s future leaders, change-makers and visionaries.

Our vision is enabling university students to live God-centred lives, so we teach structured, engaging and transformative face-to-face foundational Islamic education to over 1,800 students across the UK.

Role Summary

As a Data Protection Officer (DPO), you will be responsible for ensuring that Roots Academy complies with data protection laws and best practices. You will oversee data security policies, advise on compliance matters, and support teams in handling personal data responsibly. Your role is key in ensuring the organisation meets legal requirements and protects sensitive information.

Key tasks

• Compliance & Advisory
  • Ensure compliance with data protection regulations, including GDPR and other relevant laws.
  • Advise the Governance Lead and wider team on data protection policies and best practices.
  • Serve as the main point of contact for data protection queries and external regulators if required.
• Policy & Process Development
  • Develop and maintain data protection policies, privacy notices, and consent forms.
  • Ensure policies align with legal requirements and organisational needs.
  • Regularly review and update policies in response to regulatory changes.
• Training & Awareness
  • Provide training sessions for staff and volunteers on data protection principles and responsibilities.
  • Raise awareness about data security risks and how to mitigate them.
  • Develop guidance materials for teams handling personal data.
• Data Security & Risk Management
  • Support the organisation in identifying and mitigating data protection risks.
  • Conduct regular audits to assess data handling processes and compliance.
  • Assist teams in responding to data breaches, ensuring proper reporting and corrective actions.
• Record-Keeping & Documentation
  • Maintain records of data processing activities and ensure they are up to date.
  • Assist with data subject requests (e.g., access, rectification, and deletion requests).
  • Work with relevant teams to ensure secure data storage and handling.
• Third-Party Management
  • Assess and monitor the data protection practices of suppliers, contractors, and external partners.
  • Review contracts with third-party vendors to ensure appropriate data processing clauses and agreements are in place.
  • Work with legal and procurement teams to ensure compliance with GDPR and organisational policies when engaging external providers.

What we’re looking for

• Knowledge of data protection laws, particularly GDPR.
• Experience in data compliance, governance, or legal advisory roles.
• Strong organisational and problem-solving skills.
• Ability to communicate complex regulations in an accessible manner.
• Experience with risk management and security best practices (desirable but not essential).

What we have to offer

• Be part of a dedicated team of 90+ volunteers across the UK.
• Contribute to a growing organisation that educates and empowers the Muslim community.
• Access to in-house tarbiyah sessions to develop your deen.
• Receive continuous rewards for facilitating Islamic education through Roots Academy.

Please note: This is an unpaid volunteer position. Volunteers can claim expenses for food, travel, and equipment in line with the Expenses Policy.

As a Trustee, you will play a crucial role in the governance and strategic oversight of the charity, ensuring that we operate effectively, achieve our mission, and comply with all legal and regulatory requirements. Trustees are collectively responsible for safeguarding the charity’s assets, ensuring they are used exclusively to further our objectives, and overseeing the charity’s financial health, including budgets, financial controls, and reporting. Acting with integrity and in the charity’s best interests is at the heart of the role.

To strengthen our board and support the growth of our charity, we have identified three key areas where additional expertise is needed:

• Marketing
• Legal
• Fundraising

Each of these areas play a vital role in helping us achieve our mission, enhance our impact, and ensure the charity’s sustainability for years to come. In the attached Recruitment Pack, we have outlined individual role profiles for each of these specialisms.

We welcome candidates from diverse professional backgrounds who share our commitment to supporting those affected by Body Dysmorphic Disorder. If your current or previous skills or experience align with any of these profiles, we encourage you to apply and join us in driving meaningful change.

Lived Experience Sight Loss Trustee - Focus Birmingham – Empowering Lives and Shaping the Future

Focus Birmingham’s (Focus) Trustees are all volunteers, playing an essential role in overseeing the charity’s activities in partnership with the Board of Trustees. The CEO and Senior Leadership Team (SLT) manage the day-to-day running of the charity, but it is the Board of Trustees that holds ultimate responsibility for ensuring the charity continues to grow and delivers on its vision.

The purpose of this trustee role is to bring a ‘lived experience’ perspective to help shape the future of our organisation. You will ensure our services reflect the diverse needs of the people we support and help us advance our mission of improving lives by creating opportunities for people with care and support needs. This role will help them feel empowered to live life to the full and unlock their potential.
 

Key Responsibilities

• Co-production Strategy: Ensure the development and implementation of a co-production strategy in collaboration with the Board and Senior Leadership Team that promotes meaningful involvement of the people we support in decision-making processes.

• Engagement and Participation: Ensure that the Board and Senior Leadership Team champion the active engagement of the people we support in all aspects of the organisation, including programme design, service development, and policy formulation.

• Advisory Groups: Support the Senior Leadership Team in establishing and maintaining advisory groups or panels made up of the people we support, their families, and carers, ensuring their voices are heard, and their perspectives are considered.

• Training and Capacity Building: Provide advice on the development of a learning and development strategy that equips staff and volunteers with the skills to provide person-centred care.

• Feedback Mechanisms: Work with the Board and Senior Leadership Team to implement effective feedback mechanisms, surveys, and evaluation tools to gather input from individuals with care and support needs on the charity’s activities.

• Advocacy: Advocate for the rights and autonomy of the people we support both within Focus Birmingham and in the wider community. Raise awareness of the importance of co-production.

• Policy and Governance: Review, provide advice, and contribute to the development of policies and governance structures that ensure the people we support have a genuine and influential role in the organisation.

• Collaboration and Teamwork: Collaborate with fellow Trustees, staff, and volunteers to embed co-production principles across the organisation. Provide guidance and mentorship to staff involved in co-production activities.

What Difference You Will Make and What You Will Achieve

This is an exciting opportunity to make a significant impact by ensuring that individuals with care and support needs are at the forefront of decision-making:

• Networking: Build connections with disability advocates, self-advocacy groups, and stakeholders.

• Professional Development: Gain valuable experience in not-for-profit governance and co-production practices.

• Personal Satisfaction: Contribute to a cause that empowers individuals with care and support needs, helping them exercise their agency and unlock their potential.

How to Apply

If you are committed to empowering individuals with care and support needs and promoting their active participation in shaping Focus Birmingham’s future, we invite you to apply for this trustee role. Your lived experience and expertise in co-production will be instrumental in helping us achieve our mission of improving lives by creating opportunities for people with care and support needs, so they can live life to the full and reach their full potential.

To apply, please submit a completed application form via CharityJob.

Additional details about the role can be found in the attached recruitment pack. If you require any reasonable adjustment to support your application for this role, please contact Focus Birmingham via the details in the recruitment pack.

Closing Date for Applications: 11/05/25

About the National Tremor Foundation: 

The National Tremor Foundation (NTF) is a leading charity dedicated to providing support and advocacy for individuals living with neurological tremor-related conditions, including Essential Tremor (ET) and other movement disorders. Our mission is to improve the lives of those affected by tremor through research, education, and the provision of vital services.

Position Overview: 

The National Tremor Foundation is seeking a passionate and dedicated individual to join our Board of Trustees

Trustees provide strategic leadership and governance, ensuring that the Foundation fulfils its mission and objectives while adhering to legal and regulatory requirements. This is an exciting opportunity to make a meaningful impact on the lives of people living with all kinds of neurological tremors.

Key Responsibilities: 

• Strategic Leadership: Work closely with the Chairperson and other trustees to provide strategic direction and oversee the implementation of the Foundation’s mission, vision, and values. 

• Governance and Oversight: Ensure that the Foundation complies with all legal and regulatory requirements and uphold the highest standards of governance. This includes financial oversight and reviewing organisational performance. 

• Fundraising and Advocacy: Support fundraising efforts by leveraging personal networks, helping raise the Foundation’s profile, and engaging with key stakeholders. Advocate for the needs of people living with all kinds of neurological tremor. 

• Policy and Program Development: Contribute to the development and review of policies and programs that meet the needs of those living with neurological tremors and their families and care giver. 

• Risk Management: Ensure that the Foundation is effectively managing risks and developing strategies to mitigate them. 

• Collaboration and Support: Engage with staff, volunteers, and the community to support the delivery of services and activities. 

Skills and Experience: 

• Experience in Governance: Previous experience in a trustee or non-profit governance role is highly desirable, although not essential. 

• Commitment to the Mission: A passion for improving the lives of individuals living with neurological tremors and a commitment to the mission of the National Tremor Foundation. 

• Skills in Leadership: Strong leadership, communication, and decision-making skills. The ability to build relationships and work effectively with diverse stakeholders. 

• Financial Acumen: Experience with financial oversight and the ability to understand budgets and financial statements. 

• Fundraising or Advocacy Experience: Experience in fundraising, marketing, or advocacy would be beneficial but is not essential. 

• Personal Qualities: A collaborative and solution-oriented approach, with a strong commitment to inclusion, diversity, and empathy for those affected by tremor conditions. 

• Medical Knowledge: Having a medical background would be advantageous for this role, especially someone that is aware of the current care pathways and treatment options for neurological tremors.

Time Commitment: 

Trustees are expected to attend at least four Board meetings per year (approximately 2 hours each), plus additional time for fundraising activities and events. Trustees will also be required to attend our annual conference and other ad-hoc meetings as necessary. Trustees are also expected to take on a portfolio lead and provide support to the General Manager to deliver on this. 

Term: 

Trustees are appointed for a three-year term, with the possibility of reappointment for a further term.