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Page 1 of 1
London, Greater London (Hybrid)
£63,654 per year
Full-time
Permanent
Job description

Parkinson’s UK is the UK’s leading charity for people with Parkinson’s.  We're a growing organisation with 605 employees, 4000 volunteers and a projected income of £50m+. Our proud history dates back nearly 60 years, but now we’re on a mission to be fit for the future, ensuring we have the infrastructure, culture, and operating model to drive even more impact for people with Parkinson’s, both now and in the future. 

The Operations team plays a key role in driving that mission. Over the coming years we’ll be modernising our systems and processes to ensure they’re fit for now, as well as in the future. Much of this work is already underway, and we’re now ready to start our exciting new chapter.

We’ve been working to get ourselves in the best shape to deliver that progress over the next few years, and we’re now looking for ambitious, driven, and purpose-led people to join our team of ‘relentless doers’.  To hear more about these exciting new changes and how you can play your part in our story, click to hear from Ben Clarkson, Chief Finance and Operating Officer.

About the role

You’ll play a vital role in ensuring Parkinson's UK is compliant with regulatory standards, charity law, and data protection legislation,

You'll oversee the charity's Risk Management Framework and manage the internal audit contract and delivery plan. You will also support the Chief Finance and Operating Officer and work closely with the Company Secretary to ensure efficient governance and provide expert advice on compliance to support the charity's strategic development and growth. 

As the designated Data Protection Officer for Parkinson’s UK, this role will work with heads of department and the Executive Leadership Team to ensure that staff and volunteers are supported in how to comply with the legislation.

What you'll do

  • Offer guidance on risk, governance, data protection, and compliance to Parkinson’s UK, enhancing awareness and developing a compliance culture across the organisation.

  • Lead the Risk and Assurance team, including the governance support and compliance functions.

  • Manage and improve the Data Protection and Information Governance environment, collaborating with technology teams to ensure infrastructure and tools are compliant, while staying updated on legal changes.

  • Lead the internal audit function (outsourced)

  • Lead the development of our Risk Management Framework, with clear definition of strategic and operational risks. Report to ELT and trustees on risk management. Ensure appropriate mitigations are in place, including appropriate insurance coverage.

What you'll bring

  • Significant experience of advising on charity and data protection law. 

  • Experience of advising on data protection in a fundraising charity context 

  • Experience of working with regulators such as the ICO, Charity Commission, and Fundraising Regulator

  • Experience of creating and implementing organisational policies 

  • Experience of developing, implementing and managing a Risk Management Framework 

  • Experience of engaging with internal audit providers on developing, delivery and completion of internal audit 

If this opportunity sounds like you, we’d love to hear from you! 

To apply, please submit a CV and a supporting statement that demonstrates how you meet the essential criteria (marked with an 'A') in the 'what you'll bring' section of the job description.

The in person/office attendance expectation for this role will be a minimum of 2 days per week.

Anyone can get Parkinson’s. It’s vital that the people who work for Parkinson’s UK are representative of our diverse community. We actively encourage people from all sections of the community to apply, regardless of race, ethnicity, gender identity, age, disability, sexual orientation, or religion.

Posted by
Parkinson's UK View profile Organisation type Registered Charity Company size 101 - 500

We exist to make every day better, for everybody living with Parkinson’s. Right now.

Parkinson's UK logo Play
Posted on: 19 November 2025
Closing date: 10 December 2025 at 09:00
Tags: Advice / Information, Fundraising, IT, Policy, Legal / Law, Operations, Compliance / Quality, Data Analysis, Risk Management, Strategy, Governance / Management