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This is a new role within the Bereavement Support Service proactively engaging bereaved families with the support service, respond to bereavement support digital enquiries, working in a team to deliver and ensure anyone seeking advice and support on bereavement is given a high-quality service in a timely way.
The aim of this post is to provide consistent, high-quality emotional support via digital channels to bereaved families who seek support from the Lullaby Trust.
Main duties and responsibilities
1. Proactively engage bereaved families with the support service, respond to bereavement support digital enquiries, working in a team to deliver and ensure anyone seeking advice and support on bereavement is given a high-quality service in a timely way.
· Assist with the setting up of new digital channels to be used by the Lullaby Trust to answer and respond to bereaved families.
· To be the primary contact for the bereavement support digital services including WhatsApp, text, webchat and other social media channels.
· Proactively engage with bereaved families through social media and other online platforms.
· Ensure any safeguarding concerns are actioned in accordance with the organisations Safeguarding policy.
· Send materials to bereaved contacts, including bereavement packs and follow up emails and ensure all documents and databases are updated with each contact in line with the department guidelines, including Raiser’s Edge, Excel databases.
· Cover and answer the bereavement support helpline and online enquiries responding within the set guidelines and KPIs for the department.
· Ensure any messages on Bereavement Support Facebook Groups are monitored and advice is given via befrienders where appropriate.
· Attend face to face events for bereaved families including family days and memorial events when needed.
· Work with Income and Engagement Team around social media bereavement support content/posts.
2. Deliver and run live bereavement themed sessions on social media
· Run monthly live sessions on social media on bereavement topics/themes, responding to comments and messages during and after the sessions, ensuring anyone seeking ongoing support is responded to and referred to relevant services .
· Work with the Engagement Team to promote live session.
· Facilitate monthly remembrance sessions.
3. Ensure the bereavement support services are promoted to those bereaved and to professionals working with bereaved families
· Assist with the recruitment and facilitation of Bereaved Families’ Panel.
· Keep up to date with the bereavement support world including joining National Bereavement Alliance, Child Bereavement Network and research around grief and bereavement.
· Attend events as required to represent the Lullaby Trust’s bereavement support services.
4. Maintain accurate records throughout all services, complying with the organisation’s recording and reporting requirements
Maintain ongoing knowledge and training on the Lullaby Trust’s advice and the scientific knowledge behind this advice.
Collate statistics, as required on areas of work within the support services team.
Assist with the services’ evaluation and impact processes.
Provide other administrative support to the team as required.
Other:
Attend and participate with external supervision sessions, managerial supervision and team and organisational meetings.
Safer sleep for babies, Support for families

The client requests no contact from agencies or media sales.
Beneficiary Events Officer
We are looking for a passionate and ambitious Beneficiary Events Officer who will curate and promote the charity’s revered events programme, which includes regular online webinars and support groups delivered by diagnosis, a growing portfolio of volunteer-led face-to-face meet-ups across the UK, and an annual in-person conference.
This role is pivotal in creating a safe, supportive, engaging, enabling and energising environment for the people that need to be better connected, better informed and more confident on their individual journeys.
Location: Remote (home-based), Leeds office, or hybrid
Salary: £26,000 – £28,000 (pro-rata to 24 hours/week)
Hours: Part-time – 3 days per week (24 hours)
Contract: Permanent
Closing Date: Friday 25th July 2025, 5:00 PM
The Role
We’re looking for a creative and organised Beneficiary Events Officer to join our dedicated team and take the lead in developing and delivering our impactful programme of events for people living with a brain tumour and their caregivers.
This is a unique opportunity to shape and grow a varied calendar of webinars, peer support groups, meetups, and an annual conference that helps our community feel less alone, more informed, and more in control. Working closely with our Support Specialists and communications team, you’ll manage every aspect of event planning from concept to delivery, ensuring sessions are supportive, inclusive and engaging.
If you’re passionate about community-building, have a flair for logistics, and are driven by purpose, this is your chance to make a lasting difference.
About You
To be successful in the role of Beneficiary Events Officer, you’ll need:
- Proven experience in event planning and delivery, ideally in a healthcare, nonprofit, or community support context
- Excellent organisation and time management skills
- Confidence with virtual event platforms and digital tools
- Strong written and verbal communication skills
- A sensitive and empathetic approach to working with people affected by health conditions
- Experience managing and supporting volunteers
We also value experience in patient-facing roles or coaching, as well as an understanding of the charity or healthcare sectors. While the role can be fully remote, being based in or near Leeds is desirable.
About the organisation:
This is a leading national charity that supports people with brain tumours and their families. With our unique coach-led support we help people navigate the complex care, offer emotional and practical support, and drive campaigns and awareness.
The employer aims to be an equal opportunities organisation and welcomes applications from all sections of the community.
Other roles you may have experience of could include: Events Coordinator, Support Services Officer, Volunteer Manager, Community Engagement Officer, Patient Support Coordinator, Health Events Officer, Outreach and Engagement Officer, Charity Events Manager, Caregiver Support Officer, Wellbeing Events Coordinator, Programme Delivery Officer, Virtual Events Coordinator, Community Support Officer, etc….
PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.