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About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



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What does it take to lead the national voice for special schools at a time of real change?
Chief Executive Officer (CEO) – National Association of Special Schools (NASS)
National – home-based, with regular travel across England and Wales, particularly London
£90,000–£110,000 per annum
Full-time, permanent.
About NASS
The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.
We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.
This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.
As our next Chief Executive, you will:
Why NASS?
Application
For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.
Closing date for applications: 9am, Monday 8th June 2026
As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.
Lloyds Bank Foundation
Strategic Lead for Systems Change
Starting Salary: £59,098 (if London-based); £55,587 (if not London-based)
Contract: Full-time, 2-year Fixed-Term Contract (we are open to conversations about flexibility - so please ask)
Location: Remote role - can be based anywhere in England or Wales with an expectation of regular travel across England and Wales including overnight trips to London
About Lloyds Bank Foundation
Lloyds Bank Foundation for England and Wales is an independent charitable foundation, backed by Lloyds Banking Group and the people within it. We want everyone to be in a good place - personally, in a home that’s a good place to live, and in a community that’s a good place to belong.
We play our role by connecting and catalysing community-led change, providing the money, time, tools and connections that build organisations’ capacity and capability, to make people’s lives better and their communities stronger.
We back people and communities across England and Wales, to make that happen, because when you back brilliant people, brilliant things happen. Our communities are full of ambitious, energetic and determined people stepping up to make their neighbours’ lives better and their communities grow stronger. Day in, day out.
About the Role
This is a key role strengthening the Foundation’s ability to work confidently within complex local systems and to support systems change across England and Wales. You will play a central role in shaping and developing our systems change approach, ensuring it is practical, consistent and embedded across our work in places.
You will work closely with regional teams and partners to support effective collaboration within local systems, ensuring our work is well-informed by context and lived experience. A key part of the role is enabling others - building confidence, capability and practical understanding of systems change across the organisation.
This is not a delivery-heavy role. Instead, you will focus on enabling, coaching and strengthening practice so that colleagues and partners are better equipped to work within complexity and drive meaningful change.
About You
We are looking for someone with strong, practical experience of working within systems change, place-based work or complex multi-stakeholder environments. You will bring confidence in working across boundaries and supporting others to navigate complexity.
You will be skilled in coaching, facilitation and capability building, with the ability to translate systems thinking into practical approaches others can use. Strong relationship-building skills and the ability to work credibly with a wide range of stakeholders will be essential.
A commitment to equity, diversity, inclusion and belonging is essential.
How to Apply
Please click ‘Apply’ to be redirected to our website, where you can download the Candidate Information Pack and find details of how to apply.
For an informal conversation about the role and application process, please contact our recruitment partner, Atkinson HR via the information available in the Candidate pack.
Our Commitment to Diversity, Equity and Inclusion
We hold Disability Confident Employer status (Level 2) and are working towards full status by 2027. If you are a disabled applicant and your CV and application answers clearly demonstrate that you meet the essential criteria, we will invite you to interview.
We are committed to building a diverse team that reflects the communities we work with. We actively welcome applications from people under-represented in the charity sector, including Black, Asian and minoritised ethnic communities, disabled people, and those with lived experience of the issues our funded charities address.
Key Dates
Closing Date: Midday, Monday 8th June 2026
Optional Q&A Session: Wednesday 6th May 2026 at 09:00-10:00
First Interview: Wednesday 17th June 2026
Second Interview: Friday 26th June 2026
We support small, local and specialist charities across England and Wales.


The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.


