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About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Job title: Head of Co Production
Location: Working from home
SCIE Vision
We are committed to building a society which enables people who draw on social care to live fulfilling lives.
At the SCIE, we are driven by our values:
· Progressive – always learning and developing.
· Inclusive – working together for equality, diversity, and fairness.
· Credible – evidence-based, robust, and reliable.
· Transparent – open and honest.
· Committed - focused on making a difference to people’s lives.
The role:
We’re looking for a senior leader to make co-production the way we work — not a project, not a principle, but embedded practice across the organisation.
This is a high-impact role shaping how lived experience drives strategy, design, delivery, and decision-making. You’ll lead a specialist team, but your influence will stretch internally and externally.
You’ll be responsible for turning ambition into action — building a clear roadmap, strengthening capability, and ensuring co-production is consistent, credible, and genuinely embedded into our work.
You’ll lead the development and delivery of new co-production products and partnerships, generating income and strengthening our position as a sector leader in co-production practice.
What we are looking for:
Example as below
• Embedding co-production across the organisation so it becomes business-as-usual.
• Developing and delivering co-production products internally and externally and generating new income streams.
• Leading a bold roadmap for culture change and continuous improvement
• Influencing partners across social care and beyond.
• Strengthening governance, accountability, and consistency of practice
If you can help shift co-production from aspiration to reality — we want to hear from you.
What we offer in return:
We offer excellent staff benefits including a competitive salary and homeworking allowance. We provide an employer pension contribution above the statutory minimum, an award-winning employee assistance programme, and an attractive holiday package which rises with length of service. Benefits of working for SCIE can be found here Work for the Social Care Institute for Excellence - SCIE
If you would like to access the application form in a different format or if would like any assistance that might help improve your experience while completing the application, please contact us.
We reserve the right to close the advert at any point we are actively reviewing applications.
ID: 1782 Operational Manager, Northeast
Service: Stockton on Tees Family Time, Stockton Family Outreach & Volunteer service and South Tees Perinatal service
Salary: Grade 4 Point 34-38: £42,562 – £46,703 FTE (£34,049.60 - £37,362.40 per annum, pro rata for 29.6 hours per week)
- Additionally, £480 home-based allowance FTE per annum
Location: Home based
Hours: Part-time (up to 29.6 hours per week)
We offer flexible working arrangements - please see below for more details.
Contract: Permanent
Family Action & the Role’s Impact:
At Family Action we support people through change, challenge or crisis. It’s what we’ve done for over 150 years. We protect children, support young people and adults and offer direct, practical help to families and communities.
We see first-hand the power of family to shape lives, for better or worse, so we speak up for the
importance of family in national and local policymaking, amplify family voices and represent the changing needs of families in the UK today.
This is an exciting opportunity to lead the operational delivery of services across Stockton on Tees and South Tees (Recar & Middlesbrough) area. The Operational Manager will provide strategic and operational management to our services in the Northeast and line management of 2 - 3 service managers.
Stockton services are delivered under our successful strategic partnership with Stockton Borough Council. This unique partnership was formed nearly 5 years ago with the aim of transforming service provision using a collaborative approach to service development and innovation. Our South Tees Perinatal service operates over Redcar and Middlesborough and are just entering a 3 year extension to our current contract.
Main Responsibilities:
· Provide leadership, management and supervision to operational services that provide Family Time sessions, Family Outreach support and Volunteering support, plus perinatal support to families.
· Ensure that services are delivered to a good quality standard in relation to practice and performance and that services can demonstrate their impact using evidence based outcomes tools.
Main Requirements (for details check the job description and person specification):
· Experience of providing effective management, leadership and safeguarding oversight of case work and group work based support services, which overall improve the lives of service users.
· Experience of setting up and/or managing innovative projects.
· Strong interpersonal skills, with the confidence and ability to present and communicate information effectively both in person and using a range of mediums to internal and external stakeholders, including children and young people, parents and carers, and funders.
· Appointments are subject to Family Action receiving a satisfactory disclosure from the Disclosure and Barring Service –Enhanced
Benefits:
- an annual paid leave entitlement that commences at 25 working days, rising each April by one day, subject to a maximum of 30 working days plus bank holiday pro rata
- up to 6% matched-pension contributions
- flexible working arrangements and new starters have the right to make flexible working requests from day one of employment
- enhanced paid sick leave and paid family leave provisions
- eye care and winter flu jabs vouchers
- cycle to work scheme
- investing in your professional development with ongoing quality training and career development opportunities
We are forward looking, ambitious and committed to continuous improvement. We are a people focused, can-do organisation, which strives for excellence in all we do and operates with mutual respect.
To Apply:
· Click the “Apply Now” link below and fill out our digital application form
· Closing Date: Sunday 10th May 2026 at 23:59
Interviews are scheduled to take place on: 20th May 2026
For direct queries or if you would like to discuss any aspect of the selection process or flexible working requests, please email: Claire Meek (email address available on advert document).
Our commitment to Equality, Diversity & Inclusion:
We are happy to consider any reasonable adjustments that candidates may need during the recruitment process and you will be asked whether you require any adjustments if shortlisted for interview. We also make reasonable adjustments on the job, where required.
We are committed to Equality, Diversity & Inclusion in all that we do and welcome applications from all sections of the community. Intersectionality is important to us and we particularly welcome applications from ethnically diverse communities, LGBTQIA+ candidates and disabled candidates because we are committed to increasing the representation of these groups at Family Action. We know that greater diversity will lead to even greater results for families and children and strive for our workforce to be truly representative of the diverse communities we support.
All candidates with a disability are welcome to apply under the Disability Confident Scheme and request priority consideration for an interview, provided they meet the essential criteria for the role.
To help remove financial barriers to working with us, we will reimburse reasonable travel costs if you are invited to attend an interview in person.
*Ordinarily Family Action appoints new starters at the starting point of the salary scale (with subsequent annual pay progression), unless you have experience that would justify appointment further up the salary scale or there are any other exceptional reasons.
Family Action is an award-winning national charity working from the heart of local communities across England and Wales.



The role
Cruse Bereavement Support is the UK's leading bereavement charity, offering free support to people affected by grief. As we expand our national volunteering team, we are recruiting a National Volunteer Administrator to provide accurate, timely, and well-organised administrative support across the full volunteer lifecycle.
This is a newly created role and a key part of building a more robust national volunteering infrastructure. You will be responsible for maintaining volunteer records, processing applications and compliance documentation, supporting training administration, and providing general coordination support to the team.
You will work as part of a small, close-knit national team and will need to manage competing priorities with confidence. Attention to detail, strong written communication skills, and the ability to handle sensitive information appropriately are central to the role. Prior experience in an administrative role in the third sector or a similar regulated environment would be an advantage.
How to apply
Your application must consist of a CV and covering letter, which outlines your suitability for the role with reference to the Job Description and Person Specification and should be no longer than two pages. If your application CV does not have a CV and covering letter, it may not be considered.
The closing date for applications is 11th May 2026.
Please be advised that if you do not hear from us by 25th May 2026, unfortunately on this occasion you have not been shortlisted.
Cruse welcomes and encourages applications from all protected groups as defined by the Equality Act 2010. Appointment will be made on merit.
Criminal Record Checks
All staff are required to complete a Criminal Record check. Staff working directly with clients will be required to complete an enhanced check. We comply with the relevant codes of practice and they can be viewed online:
· Applicants in England and Wales: DBS Code of Practice
· Applicants in Northern Ireland: AccessNI Code of Practice
Previous convictions will not prevent full consideration of your application to work with Cruse. Our Recruitment of Ex-offenders' Policy & Handling Criminal Record Check Data Policy are available on request by email.
We comply with all relevant data protection legislation and process your data fairly.
The client requests no contact from agencies or media sales.
Job Title: Communications Manager
Location: Remote
Salary: £38,000 per annum
Reporting to: Head of Fundraising and Communications
Responsible for: Marketing and Communications Coordinator
Hours: 35 hours per week
Contract: Full time, permanent
GFS is seeking a strategic, proactive and values-led Communications Manager to lead the delivery of our communications function and elevate our profile across audiences and platforms. The role will support the shaping and delivery of a communications strategy that amplifies our voice, showcases our impact, and builds trust and engagement with our community. You’ll work across all areas of the organisation to coordinate messaging, manage risk and lead communications activity that reflects our feminist values and purpose.
The Communications Manager will oversee digital content, media relations, marketing and digital fundraising campaigns, working in close collaboration with the CEO, Leadership team and wider team. You will line-manage the Marketing and Communications Coordinator, ensuring high-quality content, storytelling and messaging are delivered consistently across all channels.
Please see the attached documents for more information and details on how to apply.
Timeline
How to apply
To apply for this role, please submit the following documents:
Please send all documents by midnight on Sunday 26 April 2026
Your personal statement should address the following three questions:
The client requests no contact from agencies or media sales.
The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.


