Enquiries And Grants Officer Jobs in Bristol, City Of Bristol
We are seeking a passionate and committed Chief Executive Officer who will help us unite the global Prader-Willi syndrome (PWS) community to collectively find solutions to the challenges of the syndrome. Our vision is to create a world where people with PWS receive the services and supports they need to fulfil their potential and achieve their goals. PWS is a complex genetic disorder characterised by low muscle tone and failure to thrive at birth, and later evidence of short stature, intellectual disabilities, behavioural and psychiatric challenges and impaired satiety.
IPWSO is the international umbrella body for PWS associations around the world with 47 full paying country members and contacts in over 120 countries. We are committed to supporting people with PWS and their families whatever their needs and wherever they live.
What we do
We build communities between people with Prader-Willi syndrome, their families and the professionals who support them to share knowledge and expertise and improve outcomes for people with Prader-Willi syndrome and their families everywhere.
We want everyone with Prader-Willi syndrome to get equal access to diagnosis and treatment no matter where in the world they live. We want to ensure better, more consistent outcomes for people with the syndrome and their families.
We work to ensure research into the condition works for everyone and reflects the diverse experiences and environments of those living with the syndrome around the world today.
Main purpose and scope of role
Working closely with the President and the Board of Trustees, the CEO will provide strategic vision and leadership and will strive to ensure that IPWSO delivers its charitable purposes and remains successful and sustainable.
Duties and Responsibilities (to include but not limited to)
Leadership
· Strive to ensure that the charitable purposes of IPWSO are followed and that it delivers the public benefit set out in its governing document.
· Take overall responsibility for the management and administration of IPWSO.
· Provide support and information to the Board of Trustees to enable trustees to fulfil their roles and legal responsibilities.
· Pursue close cooperation with, and accountability to, IPWSO’s members.
· Act as an ambassador for IPWSO by representing IPWSO at events and networking to build new strategic relationships.
· Keep abreast of relevant new research, treatment recommendations and service developments for people with Prader-Willi syndrome.
Governance
· Strive to ensure that IPWSO has governance systems in place that enable it to consistently fulfil its legal, statutory and regulatory responsibilities.
· Maintain awareness of risks and changes in the external environment that could affect IPWSO and advise the Board of Trustees accordingly.
· Together with the President manage complaints (including from whistle-blowers) and recommend actions to the Board of Trustees
Finance and Fundraising
· Work with the Treasurer and the Finance Committee to ensure the overall financial health and sustainability of IPWSO.
· Work with the Treasurer and the Finance Committee to prepare budgets for review by the Board of Trustees and to enable IPWSO to operate within its financial means.
· Seek to ensure that appropriate financial reports are submitted to the Charity Commission and other entities as required.
· Support the work of the Fundraising Committee and strive to ensure a sustainable income from both IPWSO members and individual, corporate, philanthropic and government donors.
· Build relationships with potential donors and prepare funding proposals.
· Seek to provide high quality support to existing donors, by means including the preparation of regular reports and updates.
· Seek out and build new income streams.
Staff, Trustee and Volunteer and Committee Support
· Provide support to staff, trustees and volunteers to enable them to carry out their duties.
· Deputise for other staff members during periods of leave.
· Conduct annual reviews with staff.
· Participate in the recruitment of new staff as required.
· Provide support and advice to IPWSO committees and conference organisers.
Project Support
· Seek to ensure that all IPWSO projects are designed and implemented in accordance with IPWSO’s mission and objectives.
· Support IPWSO’s Project Managers and others who lead IPWSO projects and, if necessary, manage projects directly.
Person specification
Experience, Knowledge and Skills
Essential
Proficiency in English.
Experience of working in a leadership role in the charitable sector either as a CEO or as part of a wider Senior Management Team.
Ability to articulate a compelling vision to inspire others
Broad understanding of global development issues, geopolitical dynamics, and cultural nuances and able to take into account the diverse contexts in which IPWSO operates.
Strategic Thinking: experience of leading and or contributing towards strategic development as well as experience of organizational management and supporting change.
Collaborative approach: outstanding interpersonal and communication skills, with the ability to build and maintain positive relationships, based on mutual respect and shared goals.
Experience of managing budgets, financial planning, preparation of funding applications and report writing.
Experience of working with volunteers.
Desirable
Fluency in another language.
Experience of working in a leadership role in an international organisation within health or disability either as a CEO or as part of a wider Senior Management Team.
Knowledge / experience of PWS.
Willingness to travel internationally as needed to support IPWSO’s priorities.
An understanding of charity operations and governance structures in the UK.
Personal Attributes
Essential
Enthusiasm for IPWSO’s work and commitment to its vision, mission and values including dedication to equity, diversity, and inclusion.
Empathy for disadvantaged people.
Cultural sensitivity and respect. Confidence and ability to work well with people from different backgrounds from around the world.
Highly self-motivated and able to work on own initiative as well as part of a team.
Adaptability and flexibility. Able to navigate change and uncertainty. Able to accommodate international time zones as well as GMT for UK based staff. 20% of time may be outside of normal working hours.
Ethical leadership.
Resilience and determination.
Desirable
Desire to empower and mentor staff and foster a culture of learning, growth, and innovation.
Please submit your CV with a covering letter of no more than 2 A4 pages, describing how you meet the requirements of the role and the criteria outlined in the person specification. Include in your covering letter the names, positions, organisations, email and telephone contact of two referees, one of whom should be your current most recent employer. References will only be sought once your express permission has been granted. Please send to nmcnairney@ipwso. org. The closing date for applications is 9.00 am (UK time) on 25 October, 2024.
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About Design for Good
Design for Good (DfG) builds, trains and focuses a passionate global creative community to design direct and lasting impact for the United Nations’ Sustainable Development Goals. On a breadth and scale only possible through cross-company collaboration.
Your role
We are seeking a Senior Fundraising Leader to secure funding from diverse sources to support our program and initiatives. The ideal candidate has senior-level fundraising experience at an NGO, organisation, or charity, a strong and established network of executive relationships in major foundations, and a proven track record of identifying and closing deals in the range of 1-5 million USD. The fundraising leader will develop relationships with potential donors, identify fundraising opportunities, and manage the grant application process.
We seek someone who aligns with the DfG mission, has a passion for fundraising and can strategise and deliver new initiatives. The fundraiser will collaborate with program staff, and senior management to develop leads, compelling proposals and reports. The working environment is informal, team-oriented, and encourages individual input and development. Thereby supporting the execution of DfG’s impact driven program to improve life through design. This position reports to the Managing Director of Design for Good.
Key Responsibilities
· Relationship Management: Build and nurture relationships with current and prospective donors, program officers, and key stakeholders, serving as the main point of contact for grant inquiries, reporting, and communications.
· Research: Identify and explore funding opportunities from individuals, corporations, foundations, and other potential donors whose interests align with our programs. Regularly monitor donor databases and other sources for announcements and opportunities.
· Applications & Fundraising Development: Lead the creation of high-quality grant proposals and letters of inquiry in collaboration with program staff, ensuring they are compelling, well-structured, and tailored to donor priorities.
· Compliance and Reporting: Ensure all grants meet donor regulations, reporting requirements, and deadlines. Prepare and submit timely, accurate reports highlighting achievements, challenges, and financial impact.
· Monitoring and Evaluation: Track the success of fundraising efforts, monitor progress toward revenue goals, and use data analysis to identify trends and inform strategy, providing regular updates and insights.
· Events, Networking, and Representation: Organize fundraising events and oversee volunteer and partner teams. Build strong relationships with key stakeholders to foster collaboration and boost resource mobilization.
Key requirements
- Passion for DfG's mission to improve life through design
- Proven relationship-building and pipeline management skills
- Exceptional communication skills in English (additional languages welcome)
- Ability to work independently, and motivate colleagues and partners
- Strong attention to detail, organisation and adherence to deadlines.
- Comfortable working remotely with colleagues worldwide
Preferred skills and qualifications
- Senior-level fundraising experience at an NGO, organisation, or charity.
- Strong network with major foundations and global organisations
- Proven track record of identifying and closing deals in the range of 1-5 million USD
- Fundraising certification or equivalent qualification
- Bachelor’s degree in communications, business, public relations, or a related field
- Experience in international culture, creativity, or sustainability fields
Compensation
Salary and performance-based payment is dependent on skill set, experience and education
Design for Good builds, trains and focuses a passionate global creative community to design direct and lasting impact for the United Nations’ SDGs.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are seeking an entusiastic and caring Operations Officer who will be responsible for the day-to-day operational activitites of the organisation focused on patient support and project delivery. The role will involve a close working relationship with our Fundraising and Events Officer, and our Board of Trustees, and will be a pivotal role within our small but mighty organisation. This is an exciting role working directly with multiple stakeholders including our beneficiaries, NHS and scientific collaborators and funders to deliver our values and benefit. You will be a driving force for the organisations mission and making a big difference!
The client requests no contact from agencies or media sales.