Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.
Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.
If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.
As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
About Dravet Syndrome UK
Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.
What you will bring
Essential
· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.
· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.
· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)
· Demonstrable experience of working in charity, patient advocacy or healthcare sectors
· Ability to deal with people at all levels with empathy, tact and credibility
· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences
· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website
· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively
· Strong organisational and project management skills, with the ability to prioritise
· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)
Desirable
· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development
Why join Dravet Syndrome UK?
Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.
The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.
Our commitment to diversity
As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The Talent Set are delighted to partner with The Talent Foundry in their search for a Head of Fundraising role. The Talent Foundry is dedicated to helping young people from under-served communities unlock their potential and prepare for the world of work or higher education.They are looking to increase unrestricted income from fundraising outside of corporate partnerships. This senior position involves leading strategic fundraising efforts to secure vital income, leading a small team across fundraising and marketing.
Key Responsibilities
- Responsible for all of fundraising income and to develop structure of fundraising to diversify income streams
- Design and implement effective fundraising strategies
- Cultivate and maintain relationships with current and prospective donors and partners
- Lead and support fundraising and marketing teams, fostering an inclusive and collaborative environment
- Plan, coordinate, and deliver fundraising campaigns and events
- Track, analyse, and report on fundraising performance metrics
- Identify new funding opportunities and stay updated on sector trends
- Represent the organisation at external engagements to build awareness and support
Person Specification
- Experience in leading successful fundraising programmes within the charity sector with experience from one of the following areas: Trust and Foundations, Major Gifts, Corporate Partnership
- Ability to be strategic and also hands as fundraising on to meet the needs of a smaller charity
- Would suit an ambitious experienced manager looking to develop their career
- Strong relationship-building skills with diverse stakeholder groups
- Strategic thinker with excellent organisational abilities
- Effective communicator capable of engaging a wide audience
- Leadership qualities to motivate teams and volunteers
- Analytical and results-focused with attention to detail
- Budget management and resource allocation skills
What’s on Offer
Salary: £45,000
Role is home based but with commitment to travel to London for meetings 1-3 times a month.
Part time options available
How to Apply
To apply, please submit your CV demonstrating your suitability for this role by clicking the 'apply now' button (please do not apply via email). We aim to get back to all successful candidates within 48 working hours.
Interviews to be held via teams on the 22nd/23rd September with 2nd stage in person on the 6th October.
Commitment to Diversity
The Talent Set are committed to diverse and inclusive recruitment practices, ensuring equal opportunities for all applicants regardless of race, sexual orientation, disability, age, or gender. We actively encourage applications from a wide range of backgrounds and are always happy to make reasonable adjustments to ensure a fair recruitment process.
Registered Charity
11 - 20
Talent is everywhere, opportunity is not. The Talent Foundry, a UK education charity, bridges this gap and improves social mobility for young people.
Thank you!
Job title: Senior Supporter Engagement Officer
Responsible to: Fundraising Operations Manager
Salary: £30,900 FTE pro rata (£20,085 actual)
Hours of work: Part time (0.65FTE/22.75 hours per week). Exact days/times to be agreed upon appointment. We consider flexible working requests
Annual leave: 30 days with 8 additional Bank Holidays pro rata
Location: Remote - location is flexible with option to be home based anywhere in the UK. Hybrid/office based also available (head office is in Bristol)
Closing date: 15th September - midday
About Action for ME
Action for ME is the only charity in the UK providing support, including healthcare, to people of all ages affected by ME. The charity was founded by Sue Finlay in 1987 and since then has been taking holistic approach so we can make an impact on multiple fronts - from amplifying the voices of people affected by ME in Government and leading on breakthrough research, to providing "lifeline" support and unique healthcare services on a daily basis.
Myalgic Encephalomyelitis (ME), sometimes referred to and diagnosed as Chronic Fatigue Syndrome (CFS), is a chronic, fluctuating disease, causing symptoms such as post-exertional malaise (PEM), sleep problems, problems with thinking and memory (brain fog), pain and crushing fatigue. There are an estimated 1.3 million people living with ME or ME-like symptoms, including PEM, in the UK alone.
Even in its so-called mildest form, ME can have a significant impact on an individual’s life, and not just on their health. A lack of understanding and awareness about ME means patients can experience disbelief, and even discrimination, from friends, family, health and social care professionals, employers and teachers.
For the first time there is an increased awareness of post viral illness because of the Covid -19 pandemic. After decades of neglect this offers Action for ME an opportunity to accelerate our work for people with ME in a way we have never been able to do before. The intent of everything we do is to pursue positive impact for the lives, rights, and futures of people affected by ME.
Job purpose
This role will deliver an exceptional supporter experience to our donors, building and maintaining strong relationships with our supporters. Working closely with other members of the fundraising and communications teams, you will deliver our supporter journey, maintain regular communication with donors and be an integral part of our fundraising campaigns and appeals.
Key duties
- Work with the Fundraising Operations Manager to deliver our supporter journey, engaging current and prospective donors with our work and giving them an excellent experience of supporting Action for ME.
- Be responsible for creating the methods that ensure each supporter relationship is maximised, increasing retention rates for a growing supporter base. As such you will be required to engage with supporters so that they feel valued, and relationships can be developed further for the benefit of the charity.
- Lead on thanking donors, including making phone calls to donors as part of stewardship.
- Work closely with the Fundraising Operations Manager and the team to support the growth of income streams, including but not limited to, individual giving, Gift Aid, legacies, trading, community fundraising and membership.
- Work with the communications team on the delivery of digital communications, including social media and e-communications for a diverse range of audiences.
- Play a key role in fundraising appeals and campaigns including our yearly Big Give Christmas Challenge, Summer Appeal, Thanking Campaign and any other fundraising initiative or project as directed by the Fundraising Operations Manager or Director of Fundraising.
- Ensure excellent supporter care and maintenance of accurate database records.
- Create inspiring donor communications, including stories and impact from our wider work (support & healthcare services, research and policy work)
- Work closely with the Philanthropy Manager to identify potential major donors.
- Develop innovative and creative ways of widening our supporter base and increasing donations.
Other duties
- To attend and contribute constructively to team meetings and other meetings as required.
- Supervise fundraising volunteers as required.
- Occasional attendance at fundraising events.
- To positively promote the work and activities of Action for ME at all times.
- To contribute to the team’s overall strategy, ongoing workplan and annual planning.
- To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Fundraising Operations Manager, Director of Fundraising or the Chief Executive.
- Act as an advocate for the Charity and its work.
Person specification
Experience and knowledge
- Minimum 2 years previous fundraising experience
- Demonstrable skills in stewarding supporters and donors.
- Experience using Microsoft Excel for work, including basic excel functions, basic formulas and list tools.
- Experience of using a CRM database, preferably Raiser’s Edge
- Proven experience of effective donor stewardship approaches
Skills and Behaviours
- Excellent written and verbal communication skills including creating engaging donor communications
- Ability to work methodically, managing and prioritising a varied workload.
- Ability to use own initiative, work independently and to work well in a remote team.
- An understanding of data protection including UK GDPR related to fundraising
- An understanding of ME, the impact on people affected by it and associated current political, health, policy and social issues (desirable).
Attitudes and values
- Enthusiasm
- Integrity
- Resilient
Key competencies
- Effective communicator
- Results driven
- Attention to detail
Registered Charity
21 - 50
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.