Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.
Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.
If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.
As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
About Dravet Syndrome UK
Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.
What you will bring
Essential
· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.
· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.
· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)
· Demonstrable experience of working in charity, patient advocacy or healthcare sectors
· Ability to deal with people at all levels with empathy, tact and credibility
· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences
· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website
· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively
· Strong organisational and project management skills, with the ability to prioritise
· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)
Desirable
· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development
Why join Dravet Syndrome UK?
Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.
The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.
Our commitment to diversity
As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The Talent Set are delighted to partner with The Talent Foundry in their search for a Head of Fundraising role. The Talent Foundry is dedicated to helping young people from under-served communities unlock their potential and prepare for the world of work or higher education.They are looking to increase unrestricted income from fundraising outside of corporate partnerships. This senior position involves leading strategic fundraising efforts to secure vital income, leading a small team across fundraising and marketing.
Key Responsibilities
- Responsible for all of fundraising income and to develop structure of fundraising to diversify income streams
- Design and implement effective fundraising strategies
- Cultivate and maintain relationships with current and prospective donors and partners
- Lead and support fundraising and marketing teams, fostering an inclusive and collaborative environment
- Plan, coordinate, and deliver fundraising campaigns and events
- Track, analyse, and report on fundraising performance metrics
- Identify new funding opportunities and stay updated on sector trends
- Represent the organisation at external engagements to build awareness and support
Person Specification
- Experience in leading successful fundraising programmes within the charity sector with experience from one of the following areas: Trust and Foundations, Major Gifts, Corporate Partnership
- Ability to be strategic and also hands as fundraising on to meet the needs of a smaller charity
- Would suit an ambitious experienced manager looking to develop their career
- Strong relationship-building skills with diverse stakeholder groups
- Strategic thinker with excellent organisational abilities
- Effective communicator capable of engaging a wide audience
- Leadership qualities to motivate teams and volunteers
- Analytical and results-focused with attention to detail
- Budget management and resource allocation skills
What’s on Offer
Salary: £45,000
Role is home based but with commitment to travel to London for meetings 1-3 times a month.
Part time options available
How to Apply
To apply, please submit your CV demonstrating your suitability for this role by clicking the 'apply now' button (please do not apply via email). We aim to get back to all successful candidates within 48 working hours.
Interviews to be held via teams on the 22nd/23rd September with 2nd stage in person on the 6th October.
Commitment to Diversity
The Talent Set are committed to diverse and inclusive recruitment practices, ensuring equal opportunities for all applicants regardless of race, sexual orientation, disability, age, or gender. We actively encourage applications from a wide range of backgrounds and are always happy to make reasonable adjustments to ensure a fair recruitment process.
Registered Charity
11 - 20
Talent is everywhere, opportunity is not. The Talent Foundry, a UK education charity, bridges this gap and improves social mobility for young people.
Thank you!
Senior Fundraising and Research Officer
We are looking for a motivated and detail-oriented Senior Fundraising and Research Officer to join the team at Right to Succeed, helping us build on the great work we’re already doing and achieve even more.
This is an exciting time to join the charity as we continue our journey to support children and young people in areas of high deprivation to succeed in life.
Position: Senior Fundraising and Research Officer
Location: Contractually based from one of our offices with flexibility to work from home, subject to business requirements and line manager approval.
Salary: £29,680 - £32,099 per annum
Hours: Full Time (37.5 hours per week, Monday–Friday)
Contract: Permanent
Closing Date: 9:00am, Monday 22nd September 2025
Interview Dates:
- First stage: Thursday 25th September 2025
- Second stage: Tuesday 30th September 2025
The Role
Working as part of a small but ambitious team, you will support fundraising and donor research for Right to Succeed, a fast-growing national charity delivering place-based and educational change in disadvantaged communities.
This role will see you:
- Undertake in-depth prospect donor research, using tools such as Funds Online, GrantNav 360 Giving, and CRM systems.
- Produce research briefings and present findings to support fundraising strategy.
- Provide high-quality administrative support, including meeting coordination, thank you letters, and CRM updates.
- Support the delivery of fundraising events and donor visits.
- Contribute to the writing of funding applications, bids, and monitoring reports.
- Lead on administrative support for the Individual Giving funding stream.
If you are passionate about collaboration, research, and supporting fundraising that helps children and young people overcome barriers to education, we would love to hear from you.
About You
We are seeking a proactive and detail-focused fundraiser with:
- Experience of writing for a range of audiences.
- Experience of maintaining relationships with a range of stakeholders.
- Strong research skills and experience with CRM or funding databases.
- A flexible and hands-on approach, with the ability to work independently and as part of a team.
- Strong organisational, planning, and time management skills.
- Excellent communication skills, both written and verbal.
Desirable experience includes:
- Knowledge of the voluntary/charity sector.
- Understanding of bid writing and monitoring for Trusts, Foundations, Statutory and Institutional funders.
- Experience of fundraising from regional sources.
Benefits Include:
- 5% employer pension contribution
- 27 days annual leave (plus bank holidays)
- Medicash health plan
- Group life assurance
- Flexible working
- Commitment to wellbeing and professional development
Please upload your CV and a covering letter outlining your interest in the role and how you meet the criteria of the role. The covering letter should be no more than 2 sides of A4.
About the Organisation
Right to Succeed works with communities in areas of high deprivation to remove barriers to education and create better outcomes for children and young people. Since launching in 2015, we’ve been working with schools, colleges, and local authorities across Blackpool, Rochdale, Birkenhead, and the Liverpool City Region to build inclusive education systems and improve literacy.
We are an equal opportunities employer and particularly welcome applications from those with lived experience of the challenges our programmes seek to address. As a Disability Confident employer, we will provide any support needed in the recruitment process.
Other roles you may have experience in could include: Fundraising Officer, Fundraising and Research Officer, Trusts & Foundations Officer, Grants Officer, Prospect Researcher, Individual Giving Officer, Fundraising Administrator, etc.
PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.
