Family support services manager jobs in great wyrley, staffordshire

Summary

The Education and Growing Faith department is looking to hire a Senior Programme Officer to support the church schools and the wider education sector. Working in the Operations Team, you'll be directly supporting the Head of Operations with project work and the wider NSE with system and process support. The role will offer the post-holder the opportunity to work across a range of areas such as communications, HR, grant management, reporting and governance. There will be a mix of longer strategic project work, and shorter task-based work.

About the Department/Role

The National Society for Education (NSE) is both an NCI and a Royal-charter charity. It's aims are to support Church schools and the wider education sector by developing leaders, shaping policy and growing faith.

The NSE leads the Church of England's national work in education in partnership with 41 Diocesan Boards of Education and approximately 4,700 Church of England schools. We also support the national education work of the Church in Wales, which includes around 150 schools. Our presence extends to work with community schools and academy trusts, as well as higher and further education through numerous chaplaincies, providing spiritual support and guidance to children and young people, and to adults.

We are a dynamic team, working remotely from our homes around the country. We gather regularly online, and fairly regularly in person.

What you'll be doing

The purpose of this role is to:

• Support the Head of Operations with policy development and reviews.
• Take responsibility for the continued development and management of the online Office Manual.
• Support the Head of Operations with due diligence tasks around new areas of work, taking ownership of discrete projects.
• Project manage areas of work as delegated by the Head of Operations, creating work plans, managing stakeholders, providing project reports regularly.
• Take responsibility for certain HR policy implementation such as designing and rolling out appropriate induction processes.
• Alongside the marketing staff, support the Head of Operations with the management of our internal and external comms.
• Lead the development of Asana (an online project management tool) use across the Operations Team.
• Provide Executive level support to the CEO, including diary management with high profile external stakeholders.
• Manage internal team days and residentials with the Events Manager.
• Work with the Head of Operations to manage the annual planning and reporting cycle.

About You

The Church of England is for everyone and we want to reflect the diversity of the community the Church serves across the whole country. Therefore, while of course we welcome all applications from interested and suitably experienced people, we would particularly welcome applicants from UK Minoritised Ethnicities (UKME)/Global Majority Heritage (GMH) and other under-represented groups. As a Disability Confident employer, we are committed to recruiting disabled people. We offer interviews to disabled people who meet the minimum criteria for the role.

Essential

Knowledge/Experience

• Experience of working within multi-faceted and complex projects
• Experience of summarising and reporting on data to stakeholders.
• Experience of organising and storing information securely and systematically.
• Experience of writing training manuals to simply communicate policy and process.

Skills & Abilities:

• Strong analytical skills.
• Customer service skills and able to take responsibility for progressing stakeholder queries.
• Strong verbal and written communication skills
• Strong time management and organisation skills, ability to keep track of key priorities
• Proactive and able to work under own initiative to suggest solutions to problems.
• Strong sense of ownership and ability to solve problems.
• High proficiency with Microsoft Office, including Excel, Word, and PowerPoint
• Key Attributes: Takes personal Responsibility, Organised methodical approach, Pride and commitment to high standards, Collaboration and team support.

Desirable

• Experience of project management of complex projects from start to end
• Experience of co-ordinating virtual events
• Advanced statistical analysis and Excel skills
• Proficiency in using survey technology, for example, Form Assembly
• Experience in using Project Management Software (Eg. Asana)
• Experience in marketing and comms work

Circumstances

Whilst this is a remote role, the post-holder will need to travel for the following reasons:

• National Society Team Days (3 per year)
• National Society Residential (2 days, including 1 overnight stay in the autumn)
• Ops Team Days (approx 3 per year)
• Other events where support is required

Please refer to the Job Description for more information about the role and person specification.

What we offer

Your Salary

• A salary of £40,572 per annum, plus age-related pension contributions between 8-15% of salary. We will also match any pension contributions you make up to an additional 3% of your salary.

Your Benefits

• 25 days annual leave (increasing to 30 days within 5 years) plus eight bank holidays and three additional days (pro-rated if working part-time).
• We welcome all flexible working arrangement requests. This is looked at in a case-by-case scenario and if this fits within the department's needs. We try to be as flexible as we can in your work pattern to support you with other commitments, and to give a good work-life balance.
• We offer many services and initiatives under our Family Friendly Programme, some of these include enhanced Maternity Leave initiative, Adoption Leave, Paternity Leave, & Shared Parental Leave. Structured induction programme and access to a range of development opportunities including apprenticeships.

• Automatic enrolment and access to Medicash (one of the UK's leading health cash plan providers), providing you with many services including reimbursements of routine dental treatment, optical, specialist consultations, and therapy treatments. Unlimited access to virtual GP & Private prescription service and health & Stress related helplines.

• Access to Occupational Health, and an Employee Assistance Programme 
• Access to the Department of Education Restaurant and Westminster Abbey with a plus-one guest.
• Apply for eligibility for an Eyecare voucher.
• Opportunity to join the Civil Service Sports & Social Club, and get involved in a range of staff networks, groups and societies.

About Twins Trust

Twins Trust is at the heart of the multiples’ community, supporting families with twins or triplets, influencing the healthcare system and campaigning on behalf of our community.

Multiple birth families face unique challenges and we’re there for them, every step of the way. With over 40 years’ experience, we tailor our services to our families’ needs. 

Twins Trust has over 15,000 members who access our amazing community, information and courses and exclusive discounts.

Fundraising Officer

This is an exciting opportunity to join an ambitious and talented fundraising team

We are looking for an experienced Fundraising Officer to join our small and friendly fundraising team. You will support the High Value Partnerships Manager and Community Fundraising Manager, both of which are already well-established income streams with lots of great potential. It’s a great opportunity to work across varied income streams including Corporate, Trusts & Grants, Community, Fundraising Events and Individual/Regular Giving.

Contract: Permanent
Hours:  37 hours per week (negotiable for the right candidate)
Flexibility: We are a flexible employer and most of our staff are juggling things (including caring for multiples!) We are great at making jobs work around life.
Salary: £24,000 - £27,000
Reports to: Community Fundraising Manager  
Work location: Hybrid/remote. Office space in London Bridge, although entirely remote option is fine. Travel to partner meetings/events will also be required.
Closing date: Sunday 8th June
Interview dates: First-round interviews will be virtual and take place in mid June

Purpose of the role

• Reporting to the High Value Partnerships Manager you will provide support across our two priority Fundraising streams – Community Fundraising (Community, Events and Individual/Regular Giving) and High Value Partnerships (Trusts, Grants, Corporate and Sponsorship).
• Conducting prospect research (Corporate and Trusts/Grants) creating a pipeline of targeted opportunities, and submitting applications for lower level funding
• Providing excellent relationship management to those in our community who fundraise for us, whether that’s as a Regular Giver or Marathon runner
• Providing support to the Manager planning Fundraising Events, recruiting participants, attending and cheering on our fundraisers and thanking our supporters
• Accountable for delivering our annual raffle and ongoing Lottery programme
• Support the wider Development team with admin relating to Fundraising

Ideal candidate

The ideal candidate will have experience either in supporting the delivery of High Value partnerships or Community Fundraising. They will be able to demonstrate how they have researched partnerships and/or submitted funding applications, providing excellent stewardship and creating meaningful partnerships that lead to long term support for the charity.

Person specification

Essential

• Experience of donor stewardship
• Excellent relationship building skills
• Ability to research and find vision aligned funders
• Ability to project manage the delivery of partnerships and/or events
• Excellent writing, communication skills and attention to detail
• Able to collaborate with a team of various disciplines or work independently as required
• Ability to multi-task and manage several different priorities at once
• Enthusiasm for the issues we work on

Desirable

• Working understanding of admin processes relating to fundraising
• An understanding of GDPR in relation to fundraising
• Experience working in a CRM (Microsoft Dynamics experience a plus)

This is an exciting opportunity for a skilled and thoughtful communicator to lead our communications and advocacy work during a period of maternity cover. 

At Martin James Foundation, we work alongside a network of committed partners who lead change for children and families in their contexts. Our role is to contribute where we can, granting funds, sharing learning, supporting campaigns, influencing systems and amplifying the good work already happening. You’ll lead on implementing our communications and advocacy strategy, manage key partnerships, and strengthen our presence across digital platforms. You’ll also support internal communications projects.

This role is central to how we tell our story, build meaningful collaboration, influence change and ensure the voices of those with lived experience are prioritised, listened to and able to lead change.

About Martin James Foundation

The Martin James Foundation (MJF) is a global network of charitable organisations working with a shared vision: a world in which children grow up and thrive in safe and loving families.

The Foundation is made up of:

· MJF Global – our programmes team, which uses the Foundation’s technical and financial resources to support locally rooted partner organisations around the world. Together, we work to strengthen families and reduce reliance on orphanages, contributing to global efforts to reform children’s care.

· Key Assets – a group of independent, non-profit fostering agencies operating in Australia, Canada and New Zealand. With over 30 years’ experience, they provide foster care, family strengthening, and support for people with disabilities. Their trauma-informed approach is built on strong partnerships and a commitment to meeting the unique needs of those they serve.

The Need

Millions of children are separated from their families, not because they have no one to care for them, but because of poverty, crisis, or a lack of support. Many end up in orphanages, yet removing a child from a struggling family does not solve poverty. It can deepen harm, sever vital family bonds, and leave children more vulnerable to instability, trafficking, and lifelong inequality. Our mission is to reduce the reliance on institutional care by supporting proven alternatives and advocating for systemic change.

What You’ll Do

 Advocacy & Policy Influence

• Lead the delivery of advocacy strategies to raise awareness about the benefits of family-based care and the harms of institutions, including orphanages
• Manage MJF Global’s advocacy partnerships, supporting joint campaigns and influencing initiatives
• Oversee project-based public affairs and PR efforts, coordinating with agencies, consultants and media stakeholders where needed
• Represent MJF Global in key coalitions, working groups, and sector events as required
• Strategic communications

Implement the communications strategy that aligns with our organisational goals

• Manage our editorial calendar across digital and offline channels, highlighting awareness days, partner updates and sector milestones
• Write and curate content for social media, newsletters, campaigns, and reports
• Oversee relationships with our design and web partners, ensuring consistency and quality

Stakeholder Engagement & Partnerships

• Support MJF’s global marketing working group by co-coordinating with marketing leads across Key Assets
• Strengthen relationships with internal teams and external collaborators, ensuring alignment on messaging and values
• Provide guidance to global partners, as requested/required, developing and implementing their own communications plans

Operational Comms & Tools

• Manage CRM platforms (e.g., MailChimp), website updates (WordPress), and file sharing (SharePoint and Google Drive)
• Use project management tools to track campaign and content workflows
• Lead quarterly reporting on communications and advocacy performance

What We’re Looking For

We’re seeking someone who is not only an excellent communicator but also a values-led leader, someone who can work with sensitivity across contexts and cultures, while keeping an eye on strategy and detail.

Essential

• An enhanced Disclosure and Barring Service (DBS) or your country equivalent certificate (can be obtained upon appointment)
• Experience leading and implementing communications and/or advocacy strategies in the charity, NGO, or development sectors
• Strong understanding of care reform, family strengthening, or children’s rights issues
• Ability to manage relationships and partnerships, particularly in advocacy, policy or public affairs work
• Excellent communication skills across formats including written, verbal and visual. Fluency in English is required.
• A collaborative, curious and proactive mindset, with the ability to work independently and across cultures
• Commitment to equity, anti-racism, and decolonising approaches in communication and advocacy

Desirable

• Experience working in or with organisations in the Global South
• Familiarity with digital tools like Canva, WordPress, MailChimp, or Adobe Suite
• Experience in journalism, media relations, or public policy advocacy
• Confidence using communications to support locally led, ethical storytelling and systems change

What We Offer

• Fully remote working with flexible scheduling
• 25 days annual leave plus bank holidays
• Meaningful work with a passionate, globally distributed team
• Opportunity to contribute to a mission-driven organisation that centres lived experience and ethical partnership

The Martin James Foundation strives to enable a diverse range of participation and contributions, and we welcome applications from all ages and backgrounds. People with lived experience of alternative care, and from people outside of the UK are encouraged to apply.

Assistant Director of Network Development and Impact
Reporting To: Director of Network Development and Impact
Manages: Head of Volunteering, Head of Practice and Learning (vacant role, managing Learning and Development Manager and 2x Practice Leads in interim) and Head of Design and Impact (new role, managing Data Analyst in interim)
Location: Remote (occasional travel to Leicester office & other UK locations as necessary)
Contract: Permanent
Salary: £58,000 per annum
Hours: Full time (36 hours per week)

About Home-Start UK

Home-Start is a federated charity consisting of a central national office – Home-Start UK - and over 170 geographically dispersed local Home-Start organisations, all working together under the same identity.

We recognise that being a parent has never been easy. Every Home-Start volunteer is trained to work alongside parents to overcome the challenges they are facing. We work with parents to build on their strengths and give them the support that they tell us they need. We offer no judgement – just compassionate, confidential help and expert support. This peer-to-peer support is key to the difference Home-Start makes and often our volunteers have lived experience of the challenges their families are facing themselves.

About The Role

The Assistant Director of Network Development and Impact leads our strategic programme of work to enable sustainability, growth, inclusion and impact across the Home-Start federation. With a deep understanding of programme and service development, and a commitment to insight-led decision-making, the postholder will lead a more strategic, data-informed approach to how we grow and strengthen our network’s collective impact.

As a member of our senior leadership team, they will provide inspiring, strong and supportive leadership to teams delivering ongoing activities and planned projects, and to foster cohesion and alignment across Home-Start UK and the Home-Start network. They will work across the organisation and with partners to ensure our programmes of work evolve to meet emerging needs and to deliver meaningful, measurable change over time.

This senior leadership role has oversight of teams who are leading work to:

• Harness the brilliant leadership, expertise and innovation that exists across our network so that we are working collaboratively to grow our reach and impact nationally.
• Enable strong leadership, governance and relationships across the network, so that we can make the most of the strengths and opportunities of our federated model.
• Build a culture of inclusion, strengthen diversity and representation across our teams, ensure accessibility and equity throughout our work, and grow our voice for equity, equality and anti-racism.
• Designing and driving forward major programmes and initiatives to deliver our strategic ambitions for growth, voice, inclusion and impact.
• Deliver evidence-led and policy-informed portfolio of practice development and quality improvement, which is responsive to the needs of local Home-Starts and the children, families and communities they are supporting.
• Support and enable accessible, inclusive, high quality and rewarding volunteering experiences across the network, to grow volunteering numbers as part of wider supporter engagement.
• Establish a high-quality, federation-wide learning and development offer, embedding a culture where individuals and organisations can learn and grow.
• Better understand and demonstrate our impact for children and families, and ensure our programme of network and practice development is informed by evidence, data and insights.

This is a new role leading a growing team, and there will be a strong focus on working collaboratively with colleagues across Home-Start UK and the Home-Start network to develop the programmes and partnerships needed to achieve our vision for children and families.

Closing date for applications is Wednesday 11th June at 4pm.

Interviews will take place virtually on Tuesday 24th June.

Second interviews will be held in-person on Wednesday 2nd July (location: Leicester).

Interested?

If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.

Home-Start UK is committed to Equality of Opportunity and Diversity. We wish to encourage applications from all parts of the community irrespective of gender, race, colour, age, sexual orientation or disability. Appointments will be based on merit, following an open and clear selection process.

No agencies please.

Working closely with the Awareness Programme Manager, Senior Volunteer Development Manager, and colleagues in our Community Services Engagement team, the senior Awareness Programme Officer will be responsible for the delivery of our awareness talk programme across the UK. This includes the recruitment, coordination, support and training of volunteers in line with Bowel Cancer UK's volunteering strategy and the awareness programme plans.

You will be a team player with excellent communication and people skills and you must be proactive, resilient and capable of organising and managing a busy workload.

Support Coordinator

This is an exciting opportunity to work with stroke survivors and their families to support them following stroke. We are looking for an innovative, passionate and professional individual with excellent interpersonal and organisational skills to join a Stroke Recovery Service based in East Kent.

Position: S11278 Stroke Support Coordinator

Location: Home based, Thanet, East Kent, however, regular travel will be required as part of this role within the service area (may include other travel in London and nationally to include team meetings or other work-related meetings). 

Salary: circa £16,461 per annum

Hours: 21 hours per week

Contract: Permanent. Services are contracted and there is currently funding for this contract until 31 March 2026.

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 1 June 2025. We reserve the right to close this vacancy early if we receive sufficient applications for the role.

Interview Date: 9 June 2025

Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

The service aims to identify and address the needs of stroke survivors and carers across the stroke pathway, by providing a range of innovative support solutions, supporting them to meet their desired outcomes. A key part of the role will be to support service users and the delivery of the service.

Reporting to the Service Delivery Coach, the Stroke Support Coordinator will:

• Support new stroke survivors and their carers from hospital discharge into the community.
• Provide personalised information, advice and support.
• Support clients to make informed lifestyle changes which will help them to prevent further strokes
• Be accountable for volunteers, so experience of recruiting, training and managing volunteers would be an advantage.

About You

You will have:

• Excellent IT skills and demonstrate a flexible approach to your role.
• A caring profession ideally with experience of supporting people with disabilities.
• Setting up and running virtual groups.

This role is home based, but extensive travel is required across the local area and occasionally further afield. The use of a car with business use cover and the ability to drive is essential to be able to fulfil the requirements of the role.

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

When you click to apply, you will be able to see the full responsibilities and person specification for further information on the role.

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.

If you are applying under the Disability Confident scheme, please indicate this in your supporting statement.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Care Coordinator, Stroke Support, Stroke, Care, Care Worker, Support Worker, Carer, Care Team Leader, Support Team Leader, Volunteering Manager, Volunteer Coordinator, Support Group, Support and Advice, Social Care, Carer Support, Support Service. #INDNFP

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

Support Coordinator

We’re looking for an innovative, passionate and professional individual with excellent communication and organisational skills to join our Stroke Recovery Services based in either the Liverpool, Rochdale or Oldham area.

Position: S11280 Stroke Support Coordinator – 3 posts

Location: Homebased, Liverpool, Rochdale or Oldham, however, regular travel will be required as part of this role within the service area (may include other travel in London and nationally to include team meetings or other work-related meetings). 

Salary: circa £27,400 per annum for 35 hours per week, pro rata for less hours

3 vacancies available:

1 x Liverpool – 35 hours per week

1 x Oldham – 28 hours per week

1 x Rochdale – 24 hours per week

Hours: 24 - 35 hours per week

Contract: Permanent.

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 1 June 2025. We reserve the right to close this vacancy early if we receive sufficient applications for the role.

Interview Date: W/C 16 June 2025

Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

This is an exciting opportunity to work with stroke survivors and their families to support them following a stroke.

The service aims to identify and address the needs of stroke survivors and carers across the stroke pathway, by providing a range of innovative support solutions, supporting them to meet their desired outcomes.

The Stroke Association Support Coordinator will:

• Support new stroke survivors and their carers from hospital discharge into the community.
• Provide personalised information, advice and support.
• Support stroke survivors to make informed lifestyle changes which will help them to prevent further strokes.
• Work collaboratively with NHS colleagues and other areas of the community to make a difference in the lives of people affected by stroke.

This role requires the post holder to travel across the locality to visit people at home and in community settings. Candidates must be able to demonstrate how they can meet this requirement of the role.

About You

You will have:

• Excellent IT skills and demonstrate a flexible approach to your role.
• A caring profession ideally with experience of supporting people with disabilities.
• Setting up and running virtual groups.

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

When you click to apply, you will be able to see the full responsibilities and person specification for further information on the role.

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.

If you are applying under the Disability Confident scheme, please indicate this in your supporting statement.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Care Coordinator, Stroke Support, Stroke, Care, Care Worker, Support Worker, Carer, Care Team Leader, Support Team Leader, Volunteering Manager, Volunteer Coordinator, Support Group, Support and Advice, Social Care, Carer Support, Support Service. #INDNFP

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

Job Title: Part-time Co-production Coordinator - Adults
Salary: £30,000 FTE
Hours: 18 hours per week. To be worked 3 days a week (6 hours per day)
Contract: 1-year, fixed term
Location: Mainly home based with regular meetings in the London Borough Hammersmith & Fulham

Parent/Carer Co-production Coordinator to empower and support parents of young adults with SEND.

Are you passionate about making health and social care systems work for families who have young adults with SEND?

Do you enjoy developing relationships, collaborating and contributing to better outcomes for the people that most need joined up support?

Do you have lived experience of using health and social care services as a parent or carer?

Parentsactive CIC is the parent/carer forum for Hammersmith and Fulham and works to empower parent/carers of children and young people with special educational needs and disabilities (SEND) from birth through to adults.

We are delighted to be recruiting a Co-production Coordinator to work alongside our parents and carers of young disabled adults to ensure they have meaningful opportunities to inform and influence strategic and operational developments across Hammersmith and Fulham that will lead to a better future for them and their young person.

The Co-production Coordinator will support the coordination of a range of activities designed to increase coproduction across the borough’s health, education and social care systems.

The successful candidate will be passionate about coproduction and ensuring the voice of people with lived experience is heard. They will have strong skills in working collaboratively with a wide range of people including families, statutory and third sector partners. The person will be a good listener, compassionate and understanding of the issues related to supporting a disabled adult to live their best life and have the confidence to challenge when necessary.

Last date to receive applications: 13th June 2025 6 pm

Interview date: 2nd July 2025

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

No agencies please.

Today, 12 children and young people will be diagnosed with cancer. We’ll stop at nothing to make sure they get the right care and support at the right time.  

• Salary: £30,753 FTE
• Hours: 35
• Contract type: Permanent
• Location: Homebased within West Midlands & North Wales area (see below postcodes)
• Closing date: Sunday 25th May 2025
• Phone interviews: w/c Tuesday 27th May 2025
• Panel interviews: Monday 2nd, Thursday 4th, Friday 5th June 2025

Change lives in a life-changing career

When a child or young person is diagnosed with cancer, their whole world can feel like it’s falling apart. Independence is taken and confidence is stolen. Stability no longer exists. The future suddenly feels uncertain.

The impact of cancer on young lives is more than medical. That’s why we exist. Our specialist social workers help children and young people with cancer and their families navigate the emotional and practical impact of cancer. We remove barriers, solve problems and prioritise wellbeing. And we stop at nothing to make sure they get the right care and support at the right time.

We challenge the systems and policies that surround children and young people, we highlight gaps and campaign for change. Because we know what a better future could look like. And we know what we need to do to make that future a reality. We need to push harder, reach further and work smarter. And we need the right people on our team to help us get there. People like you.

About the role

We’re looking for a Fundraising Engagement Manager with great personality and team ethic to join our Regional Fundraising team.

This is a role of variety, opportunity and innovation, and we are looking for someone who embraces change and constantly strives to achieve more.

You will maximise income for Young Live vs Cancer by coaching our supporters to reach their goals, whilst seeking out new fundraising opportunities for your geographical area. This role sits within the ‘Regional Engagement’ team and we need someone with natural customer service skills who wants to deliver a legendary experience to all of their supporters. Your team of supporters will range from volunteers and individuals, to groups and local corporates.

The West Midlands and North Wales regions are areas filled with some of our most committed supporters, but there is still so much opportunity to grow corporate support across the counties. Our Social Workers support families from Birmingham hospitals and out in the community in North Wales, so building relationships with these teams are a must.

Candidates should live within West Midlands and North Wales regions, in one of the following Postcodes: Worcestershire: WR postcodes, Birmingham area: B, DY1-11, DY13, Warwickshire: CV postcodes, Staffordshire: DE13-14, ST, WS, WV Shropshire: DY12, DY14, SY1-4, SY6-9, SY11-13, TF, WV15-16, Walsall: WS1-2, WS8-10, North Wales: SY10, LL and CH4-8

Candidates who live outside of these areas should highlight an intention to relocate to the area in their covering letter for their application to be considered. If you don’t live in one of these postcodes and don’t have plans to relocate, your application will not be taken forward. 

This role is subject to a criminal record check. In the event of a successful application a basic criminal record check will be completed. 

What will I be doing?

No two days are the same at Young Lives vs Cancer. So, summarising your ‘day to day’ isn’t easy. Here are some of the main things you’ll be doing, but you’ll find more details in the job description.

• To plan, monitor and report on your budgeted income with a constant eye on contingency planning to ensure annual targets are achieved;
• To steward our most committed supporters and deliver legendary supporter experience;
• To be a key, valued member of your regional team and UK wide team;
• To identify, cultivate and secure partnerships and donations within your area;
• To work with your local service team/s to build and maintain strong and effective working relationships;
• To be the first point of contact for service user families, to offer opportunities to them and their networks to engage with the wider charity as they would like I.e. fundraising, volunteering, sharing their story

What do I need? 

• A proven track record of delivering amazing customer experiences
• Experience of relationship management in either a charity or corporate setting
• Ability to work within a financial target-based setting, and experience of reaching/exceeding set targets
• Demonstrable experience of winning new business
• Experience of managing own workload
• Proven ability to manage/complete projects
• Able to ‘make the ask’ for support and to influence/negotiate
• Have a full UK driving licence and access to a car (including business insurance)
• Have a sufficient Broadband connection

Diverse perspectives and unique skillsets are at the heart of Young Lives vs Cancer. If you're passionate about making a positive impact and eager to learn, we encourage you to apply, even if you don't meet the criteria and person specification fully. Your potential is what matters most to us, and we’re committed to fostering an inclusive and supportive work environment to help you develop.

The key skills we’re looking for in this role are:

• Natural storyteller
• Strong prioritisation skills
• Great communicator
• Great at spotting opportunities
• Influencing/Negotiating
• Compassion
• Integrity
• Team Player

What will I gain?

For people to reach their full potential, they need the right environment. As a member of Team Young Lives, you’ll be made to feel supported, valued and appreciated. Here’s how we do it:

• Flexible working: we’re open to working hours outside of 9 - 5 and we can talk through your flexibility requirements at interview stage
• Wellbeing days: four days a year to do what works for you – from catching up on training to going for a walk
• Generous annual leave allowance
• Great family/caring leave entitlements
• Enhanced pension
• Access to our employee savings scheme

To find out more about our benefits package, have a look on our website via the apply button.

Our commitment to Diversity, Equity, Inclusion and Belonging

At Young Lives vs Cancer, we recognise that opportunities for too many people remain a condition of their sex, ethnicity, class, gender identity, disability, sexual orientation – or a combination. This has never been acceptable to us as an organisation. We don’t just accept difference, we value it, celebrate it, nurture it and we thrive because of it.

We’re on a journey to be reflective of the diverse children, young people and families we support. We know we aren’t there yet, and we’re passionately committed to taking actions and making changes to be a truly diverse, inclusive and equitable organisation. This includes taking anti-oppressive action and removing barriers in our recruitment practices. We particularly welcome applications from members of minoritised communities. Our Diversity, Inclusion, Equity and Belonging strategy will tell you more.

We operate an anonymised shortlisting process in our commitment to diversity, equity, inclusion and belonging. CVs can be uploaded, but we won't be able to view them until we invite you for an interview. Instead, we ask you to fully complete the work history sections of the online application form for us to be able to assess you quickly, fairly and objectively.

Accessibility

We’re committed to providing reasonable adjustments throughout our recruitment process and we’ll always aim to be as accommodating as possible.Please let us know in your application form of any adjustments or access requirements we could make to help you with the application process and interview.

Role: Young Person Advocate and Bereavement Support Practitioner
Hours: 35 hours per week
Rate: £31,500 per annum (plus £2k London Weighting if London based)
Reporting to: Bereavement Support Service Lead
Base: Flexible hybrid working between home and one of Child Bereavement UK’s Centres in Widnes, Birmingham, High Wycombe, London or Glasgow

About Us

Child Bereavement UK helps families to rebuild their lives when a child grieves or when a child dies.

We support children and young people (up to the age of 25) when someone important to them has died or is not expected to live, and parents and the wider family when a baby or child of any age dies or is dying.

We provide training to professionals in health and social care, education, and the voluntary and corporate sectors, equipping them to provide the best possible care to bereaved families.

About the Role

Child Bereavement UK has an exciting new opportunity for a Young Person Advocate and Bereavement Support Practitioner. This is a split post working primarily as a Young Person Advocate. The post holder will lead on the development and delivery of support for young people and the professionals that work with them by ensuring that young people have a voice and influence in the development of Child Bereavement UK’s Services across the UK.

In addition, as a Bereavement Support Practitioner, the post holder will be providing bereavement support to individuals, couples, families and in group settings, when a baby or child of any age has died or is dying, or where children or young people up to the age of 25 are bereaved.

Child Bereavement UK offers a generous package of benefits including an employee assistance programme, 5% pension contribution and life assurance scheme.

Applicants should have a recognised, health, social care, or counselling qualification, experience in working with children, young people and families, excellent communication skills and be passionate about supporting bereaved families and those whose roles bring them into contact with these families.

The successful candidate will be required to complete a DBS check.

Closing date: Monday 2 June 2025
Interviews: Wednesday 11 June 2025
First interviews will be held on Teams or Zoom.
Those candidates that are selected for a second interview will be required to attend an in person interview.

Applications will be reviewed, and interviews offered, on an on-going basis. We reserve the right to close the role prior to the closing date, should a suitable applicant be found, so please submit your application as soon as possible.

Interested?

If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.

The Charity is committed to creating a safe and welcoming atmosphere for everyone, and one that challenges all forms of oppression or discrimination including those based on age, gender or gender reassignment, marital or civil partnership status, pregnancy or maternity leave, disability, race (which includes nationality, citizenship, ethnic or national origins), religion/faith or belief, sexual orientation (collectively known in law as the ‘protected characteristics’), as well as any oppression or discrimination based on other physical characteristics or impairments, occupation, income, wealth, or unrelated criminal convictions.

No agencies please.

The Vacancy

Islamic Relief Worldwide (IRW) is a faith-based humanitarian relief and development organisation working to save and transform the lives of some of the world’s most vulnerable people.  Established in 1984, with an active presence in over 45 countries, we strive to make the world a better and fairer place for those affected by poverty, conflict and natural disasters. 

IRW’s Office of the General Counsel Division is recruiting for the position of ‘Policy Coordinator’ to join its dynamic team. The organisation is currently operating a hybrid working model.

Job purpose:

With increasing accountability to our regulators, partners, institutional and community donors, it is essential that we have robust and effective policies and processes in place that are regularly reviewed and demonstrate the learning and growth of the organisation and holding ourselves to account both internally and externally. Our policies and internal protocols must reflect good practice within the INGO sector, adapt to advances in technology and frequent changes to legislation and regulatory requirements. Our commitment to developing our internal policies, protocols and processes illustrates how our organisation proactively manages and oversees the potential risks and requirements we must address on a daily basis in a structured way.  Our aim is to foster an environment of consistency in our working practices that increases confidence in the way we manage our operations and workforce.

This post will provide leadership for the highest possible quality and consistency of Operational Policy and Guideline Documents meeting rigorous international sector-relevant and ethical standards to help achieve our vision, mission, global strategy and year-to-year objectives.

The role will support the Policy and Compliance Manager by co-ordinating and leading in the development and improvement of our current internal processes to ensure the timely review, development and approval of our policy documents and providing appropriate technical and operational support to internal stakeholders and wider IR family.

The role will provide technical and administrative support to the Policy Review Committee and help maintain internal record keeping and associated resources.

The successful candidate must have:

• A degree or equivalent in English or relevant area
• Experience of writing and communicating effectively to internal and external stakeholders.
• Experience of producing written materials for internal and external audience
• Experience and working knowledge within a humanitarian/INGO setting
• Experience in report writing and presentation of data/information
• Experience of working with senior managers and executive to agree effective outcomes
• Research skills
• Experience in monitoring and evaluating the effectiveness of policy compliance and implementation
• Ability to work autonomously and use initiative
• Experience of identifying and mitigating risks to the organisation  
• Excellent MS Office skills
• Ability to convey complex and technical information persuasively and with clarity to a diverse audience
• Ability to contribute to the review of policies and processes
• Process mapping
• Strong communication and representation skills
• Ability to manage workload independently and efficiently
• Good eye for detail - proof reading and editing documents
• Excellent organisational and record keeping skills
• Ability to synthesise data and information effectively
• Report writing skills in English
• Strong inter-personal skills
• Ability to establish and maintain strong working relationships
• Excellent analytical skills
• Good oral presentation skills
• Working calmly under pressure and meeting strict deadlines
• Ability to work independently and excellent time management skills
• Innovative thinker, able to develop and translate strategy into tactical action plans and deliverables

For more information, please click on the Documents tab above to view the full Job Description.

If you are talented, reliable, service-minded, resilient and a highly motivated professional looking for a meaningful career, with a strong commitment to IRW’s mission and values of sincerity, excellence, compassion, social justice and custodianship, please apply by completing our online application form.

For more information on the excellent company benefits we offer our employees, please visit our website.

PLEASE NOTE: Interviews are expected to take place on 16th June 2025.

Pre-employment Checks:

Any employment with Islamic Relief will be subject to the following checks:

• Screening clearance
• Proof of eligibility to live and work within the UK
• Receipt of satisfactory references

Please note, for UK-based roles, we are only able to accept applications from candidates who are eligible to work in the UK. We are unable to progress applications which would require sponsorship.

Our values and commitment to safeguarding

IRW is committed to preventing any type of unwanted behaviour at work including sexual harassment, exploitation and abuse, lack of integrity and financial misconduct; and committed to promoting the welfare of children, young people, adults and beneficiaries with whom IRW engages. IRW expects all staff and volunteers to share this commitment through our code of conduct. We place a high priority on ensuring that only those who share and demonstrate our values are recruited to work for us.

The post holder will undertake the appropriate level of training and is responsible for ensuring that they understand and work within the safeguarding policies of the organisation.

All offers of employment will be subject to satisfactory references and appropriate screening checks, which can include criminal records checks. IRW also participates in the Inter Agency Misconduct Disclosure Scheme.

In line with this Scheme, we will request information from job applicants’ previous employers about any findings of sexual exploitation, sexual abuse and/or sexual harassment during employment, or incidents under investigation when the applicant left employment.

By submitting an application, the job applicant confirms their understanding of these recruitment procedures.

Islamic Relief is an equal opportunities employer

PRIMARY OUTPUTS

To contribute to raising funds through high-quality bid and application processes which includes supporting the development of funding applications, stakeholder engagement. Evaluation reports and research underpinned by excellent communication skills. 

To raise awareness of DMWS services through print, web and social media activity.

All the work must ensure that DMWS’ mission, values and aims are clearly articulated in a professional manner and that our vision for sustainability and growth to support our beneficiaries is successful.

To apply please submit a CV and covering letter explaining why you would be a good fit for the role. Please remember to click on ‘upload’ otherwise we may not receive your attachments.Applicants must hold a full UK Driving Licence and have access to a vehicle which may occasionally be required for this role.  Applications will be considered as they are submitted. DMWS reserve the right to close the application process early and feedback will only be provided to candidates who attend interviews.

Key Responsibilities 

• Contribute to the writing of consistently high-quality funding applications and bid documents which are accurate, substantiated, and contain compelling content.  Ensure these are submitted to deadline and in line with the funders criteria as well as DMWS aims. 

• Write, edit and submit evaluation reports as required by the funder – working with the Grant Manager and operational colleagues for support. 

• Develop, update, and maintain an electronic project bid library resource, including written templates and application responses. 

• Maintain an up to date register of all grant and trust fund providers applied to for projects, submission deadlines, and other relevant information, including timeframes for re-applying. 

• Research and assess potential opportunities to obtain funding from grant making trusts and foundations, organisations, in order to sustain and develop DMWS services against strategic aims. 

• Contribute to the development and updating of DMWS Website 

• Develop and promote content for DMWS Social Media channels and other communication mechanism including print and online. 

• Identify and build strong internal and external relationships. 
   

As and when required, attend at various meetings and events at headquarters or other locations. 

Work with other head office and operational colleagues to share intelligence and contribute to the delivery of DMWS Strategy and organisational sustainability. 

General Support Tasks 

• Promote the vision, mission and values of DMWS 

• Contribute creative thinking, ideas and support to colleagues to help facilitate the promotion of a positive organisational environment.

• Represent and promote DMWS and its services, working with and supporting other staff, maintaining a positive and professional approach with all contacts both internal and external. 

• Engage in, and undertake with enthusiasm, all opportunities for training and professional development in order to achieve additional skills as the role and organisation develops. 

• Adhere to the terms and conditions of employment working within the policies and procedures of DMWS. 

• Be responsible for own safety and others affected by your activities and to ensure adherence to DMWS’ policies and procedures regarding Health & Safety, GDPR, Data Protection, and confidentiality. 

• Develop and maintain effective communications within DMWS to optimise outcomes. 

• To establish and maintain links to other organisations relevant to the post, and to ensure that those links are shared as appropriate. 

• To be aware of, and work to, safeguarding principles, practice and procedures. 

The list of duties in the job description should not be regarded as exclusive or exhaustive. There will be other duties and requirements associated with the role and, in addition, as a term of employment you may be required to undertake various other duties as may reasonably be required 

Person Specification 

• Demonstrable experience of securing or involvement in funding through bid writing and funding applications. 

• Demonstrable ability to communicate compelling messages in written form. 

• Experience of coordinating and updating a knowledgebase system. 

• Experience in organising, prioritising, and managing your time effectively. 

• Creative instinct and ability to think laterally about new business opportunities. 

• Collaborative and adaptive working. 

• Experience of raising funds within the third sector. 

• Experience of research and data analysis. 

• Experience of working within the health, social care, wellbeing, or military third sector is desirable but not essential. 

• Experience of working within project delivery or project development is desirable but not essential. 

Skills 

• Strong interpersonal skills that enable you to communicate internally and externally, and the ability to engage clearly with people at all levels. 

• Excellent written and verbal communication skills. 

• Accuracy and management of deadlines. 

• Team working skills and the ability to work independently with little direction to prioritise work areas. 

• Excellent IT skills including use of Word, Excel and PowerPoint Packages. 

• Confident, self- motivated, target driven, strong team player. 

• Ability to work under pressure and to demanding deadlines, delivering objectives to agreed timescales. 

Personal Qualities 

• The ability to deal positively within deadlines and presenting information with accuracy 

• A flexible approach to work. 

• Willingness to travel to DMWS HQ and other locations as required, with some overnight stays, and occasional weekend work. 

• Proactive, committed, and forward thinking. 

• Engaging manner and personality with the ability to forge effective working relationships with a range of staff and other stakeholders. 

• Personal sensitivity, empathy, and flexibility to operate within the distinctive ethos and structure of DMWS. 

• Strong commitment to DMWS’ aims of providing medical welfare services to those in need.

BENEFITS

We offer employees the following benefits: -
• Annual Leave: We give employees 30 days a year annual leave plus Public Holidays (pro-rata'd for part-time employees).
• Pension: Auto enrolment onto DMWS workplace pension scheme – subject to eligibility. You will make a minimum contribution of 5% which DMWS will match. Contributions will be matched up to 6% by DMWS.
• Death in Service Scheme: Three times your annual salary to nominated beneficiaries - subject to eligibility.
• Flexible Working: All flexible working requests are considered - many of our staff work flexible hours and work wholly, or partly from home.
• Smart Health: Access to a 24/7 virtual GP service, with a counselling service and on-line help and support around health and well-being matters.
• Work-based Parking/Mileage: For those who pay to park at their work-base, fees are repaid through expenses. Mileage claims are reimbursed in line with HMRC guidelines.
• Enhanced Sick Pay: Enhanced sick pay scheme for all employees upon completion of their probationary period.
• Staff Recognition: Staff are regularly recognised for their work by the leadership team and their peers, via internal events, social media, and industry awards.
• Personal Development Programme: DMWS supports employee continuing professional development and training.
• Above all, being part of the DMWS team means that you are making a difference to the lives of those working on the frontline.
• Great training opportunities
• £25 contribution towards eye tests and a contribution of £50 towards glasses. (As long as they are only needed for DSE use and not otherwise needed on a standard prescription).
• Enhanced maternity / paternity / adoption family friendly benefits

This is an exciting opportunity to join St John and play a key role in helping to continue to rebuild our youth programmes post-Covid. The purpose of the role is to engage with new and diverse communities and take ownership of our strategy to increase membership to 20000 young people. The Project Development Officer will be responsible for driving work within these new communities, recruiting new adult volunteers into youth unit teams, promoting SJA youth programmes and building positive relationships with partners and local communities. This is an initial 11 month FTC with the possibility to extend subject to funding.

We pride ourselves in being a great place to work, providing a supportive culture with opportunities to grow and develop your career, achieve a healthy work life balance and to be recognised for the great work you do. The role benefits from a competitive salary, generous pension, hybrid, flexible working, 33 days holiday (inclusive of bank holidays) - increasing to 38 days over 5 years, options to buy and sell holiday, free first/mental aid first aider courses, Blue Light and NHS online shopping discounts, cycle to work scheme, life assurance, flu jab, eye care, mental health and wellbeing tools and volunteering days. 

Please see the job description for more detail (this can be viewed on our website or once you click apply)

About You:

• Experience of working with young people
• Experience of working with volunteers
• Experience of supporting teams of people to deliver agreed outcomes
• Experience of community development and evidence of working to engage diverse communities
• Experience of managing a project within a set geography and inputting into a project budget

About The Role:

• Supporting local volunteer teams to write and deliver project plans that promote successful and sustainable growth within their local areas
• Planning, facilitating and delivering forums and working groups ensuring engagement with young people and/or volunteers in all activities to ensure the effective delivery of the project
• Developing, maintaining and reviewing partnerships and networks within the target areas to identify and pursue opportunities for expanding St John Ambulance’s work with young people.
• Consulting with young people, internal and external to St John Ambulance, to promote youth voice at all levels of decision making
• Proactively seeking to recruit new adult volunteers and young people by undertaking recruitment activities including; holding welcome evenings, attending recruitment fairs, and supporting screening.

About Us:

This is a fantastic opportunity to join a team of over 1,700 employees and over 30,000 volunteers, united by our goal of saving lives through essential first aid services, training and campaigning.  As a charity with rich heritage and a long history of serving humanity, we are proud of our past and excited about creating a healthier, safer, more resilient future.

St John Ambulance works at the heart of communities, supporting and enabling them to access and receive physical and mental health first aid. We do this through developing and providing effective community response and outreach services (e.g. Ambulance response, Falls response, Night Time Economy and Homelessness outreach) and using our longstanding expertise to empower people with vital clinical skills and the confidence to use them (e.g. our Volunteers and Community Advocates, NHS Cadets and Young Responders programmes).

If you are a current St John Ambulance employee, please apply here: Click here

For all other candidates, or St John Ambulance volunteers wishing to apply: please apply below

St John Ambulance are committed to increasing the diversity of our team and making sure we best reflect the diversity of the communities we serve.At St John, everyone is valued and supported to thrive, we have several networks including Multi Culture, Disability and Accessibility, Pride, Family and Carers and Women’s groups.  We do not tolerate any form of discrimination and engender a sense of belonging for all, by creating an environment of mutual respect, where we value unique differences and demonstrate authentic allyship. We believe passionately in equality, diversity and inclusion.

Please note: St John does not accept speculative CVs and will only review CVs sent in application for an advertised vacancy.

Recruitment Agencies: We are not utilising the services of recruitment agencies for this vacancy and will accept direct applications only.

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases.