Family support services manager jobs in milton keynes, england

Support Coordinator

This is an exciting opportunity to work with stroke survivors and their families to support them following stroke. We are looking for an innovative, passionate and professional individual with excellent interpersonal and organisational skills to join a Stroke Recovery Service based in East Kent.

Position: S11278 Stroke Support Coordinator

Location: Home based, Thanet, East Kent, however, regular travel will be required as part of this role within the service area (may include other travel in London and nationally to include team meetings or other work-related meetings). 

Salary: circa £16,461 per annum

Hours: 21 hours per week

Contract: Permanent. Services are contracted and there is currently funding for this contract until 31 March 2026.

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 1 June 2025. We reserve the right to close this vacancy early if we receive sufficient applications for the role.

Interview Date: 9 June 2025

Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

The service aims to identify and address the needs of stroke survivors and carers across the stroke pathway, by providing a range of innovative support solutions, supporting them to meet their desired outcomes. A key part of the role will be to support service users and the delivery of the service.

Reporting to the Service Delivery Coach, the Stroke Support Coordinator will:

• Support new stroke survivors and their carers from hospital discharge into the community.
• Provide personalised information, advice and support.
• Support clients to make informed lifestyle changes which will help them to prevent further strokes
• Be accountable for volunteers, so experience of recruiting, training and managing volunteers would be an advantage.

About You

You will have:

• Excellent IT skills and demonstrate a flexible approach to your role.
• A caring profession ideally with experience of supporting people with disabilities.
• Setting up and running virtual groups.

This role is home based, but extensive travel is required across the local area and occasionally further afield. The use of a car with business use cover and the ability to drive is essential to be able to fulfil the requirements of the role.

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

When you click to apply, you will be able to see the full responsibilities and person specification for further information on the role.

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.

If you are applying under the Disability Confident scheme, please indicate this in your supporting statement.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Care Coordinator, Stroke Support, Stroke, Care, Care Worker, Support Worker, Carer, Care Team Leader, Support Team Leader, Volunteering Manager, Volunteer Coordinator, Support Group, Support and Advice, Social Care, Carer Support, Support Service. #INDNFP

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

Working closely with the Awareness Programme Manager, Senior Volunteer Development Manager, and colleagues in our Community Services Engagement team, the senior Awareness Programme Officer will be responsible for the delivery of our awareness talk programme across the UK. This includes the recruitment, coordination, support and training of volunteers in line with Bowel Cancer UK's volunteering strategy and the awareness programme plans.

You will be a team player with excellent communication and people skills and you must be proactive, resilient and capable of organising and managing a busy workload.

This is an exciting opportunity for a skilled and thoughtful communicator to lead our communications and advocacy work during a period of maternity cover. 

At Martin James Foundation, we work alongside a network of committed partners who lead change for children and families in their contexts. Our role is to contribute where we can, granting funds, sharing learning, supporting campaigns, influencing systems and amplifying the good work already happening. You’ll lead on implementing our communications and advocacy strategy, manage key partnerships, and strengthen our presence across digital platforms. You’ll also support internal communications projects.

This role is central to how we tell our story, build meaningful collaboration, influence change and ensure the voices of those with lived experience are prioritised, listened to and able to lead change.

About Martin James Foundation

The Martin James Foundation (MJF) is a global network of charitable organisations working with a shared vision: a world in which children grow up and thrive in safe and loving families.

The Foundation is made up of:

· MJF Global – our programmes team, which uses the Foundation’s technical and financial resources to support locally rooted partner organisations around the world. Together, we work to strengthen families and reduce reliance on orphanages, contributing to global efforts to reform children’s care.

· Key Assets – a group of independent, non-profit fostering agencies operating in Australia, Canada and New Zealand. With over 30 years’ experience, they provide foster care, family strengthening, and support for people with disabilities. Their trauma-informed approach is built on strong partnerships and a commitment to meeting the unique needs of those they serve.

The Need

Millions of children are separated from their families, not because they have no one to care for them, but because of poverty, crisis, or a lack of support. Many end up in orphanages, yet removing a child from a struggling family does not solve poverty. It can deepen harm, sever vital family bonds, and leave children more vulnerable to instability, trafficking, and lifelong inequality. Our mission is to reduce the reliance on institutional care by supporting proven alternatives and advocating for systemic change.

What You’ll Do

 Advocacy & Policy Influence

• Lead the delivery of advocacy strategies to raise awareness about the benefits of family-based care and the harms of institutions, including orphanages
• Manage MJF Global’s advocacy partnerships, supporting joint campaigns and influencing initiatives
• Oversee project-based public affairs and PR efforts, coordinating with agencies, consultants and media stakeholders where needed
• Represent MJF Global in key coalitions, working groups, and sector events as required
• Strategic communications

Implement the communications strategy that aligns with our organisational goals

• Manage our editorial calendar across digital and offline channels, highlighting awareness days, partner updates and sector milestones
• Write and curate content for social media, newsletters, campaigns, and reports
• Oversee relationships with our design and web partners, ensuring consistency and quality

Stakeholder Engagement & Partnerships

• Support MJF’s global marketing working group by co-coordinating with marketing leads across Key Assets
• Strengthen relationships with internal teams and external collaborators, ensuring alignment on messaging and values
• Provide guidance to global partners, as requested/required, developing and implementing their own communications plans

Operational Comms & Tools

• Manage CRM platforms (e.g., MailChimp), website updates (WordPress), and file sharing (SharePoint and Google Drive)
• Use project management tools to track campaign and content workflows
• Lead quarterly reporting on communications and advocacy performance

What We’re Looking For

We’re seeking someone who is not only an excellent communicator but also a values-led leader, someone who can work with sensitivity across contexts and cultures, while keeping an eye on strategy and detail.

Essential

• An enhanced Disclosure and Barring Service (DBS) or your country equivalent certificate (can be obtained upon appointment)
• Experience leading and implementing communications and/or advocacy strategies in the charity, NGO, or development sectors
• Strong understanding of care reform, family strengthening, or children’s rights issues
• Ability to manage relationships and partnerships, particularly in advocacy, policy or public affairs work
• Excellent communication skills across formats including written, verbal and visual. Fluency in English is required.
• A collaborative, curious and proactive mindset, with the ability to work independently and across cultures
• Commitment to equity, anti-racism, and decolonising approaches in communication and advocacy

Desirable

• Experience working in or with organisations in the Global South
• Familiarity with digital tools like Canva, WordPress, MailChimp, or Adobe Suite
• Experience in journalism, media relations, or public policy advocacy
• Confidence using communications to support locally led, ethical storytelling and systems change

What We Offer

• Fully remote working with flexible scheduling
• 25 days annual leave plus bank holidays
• Meaningful work with a passionate, globally distributed team
• Opportunity to contribute to a mission-driven organisation that centres lived experience and ethical partnership

The Martin James Foundation strives to enable a diverse range of participation and contributions, and we welcome applications from all ages and backgrounds. People with lived experience of alternative care, and from people outside of the UK are encouraged to apply.

Support Coordinator

We’re looking for an innovative, passionate and professional individual with excellent communication and organisational skills to join our Stroke Recovery Services based in either the Liverpool, Rochdale or Oldham area.

Position: S11280 Stroke Support Coordinator – 3 posts

Location: Homebased, Liverpool, Rochdale or Oldham, however, regular travel will be required as part of this role within the service area (may include other travel in London and nationally to include team meetings or other work-related meetings). 

Salary: circa £27,400 per annum for 35 hours per week, pro rata for less hours

3 vacancies available:

1 x Liverpool – 35 hours per week

1 x Oldham – 28 hours per week

1 x Rochdale – 24 hours per week

Hours: 24 - 35 hours per week

Contract: Permanent.

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 1 June 2025. We reserve the right to close this vacancy early if we receive sufficient applications for the role.

Interview Date: W/C 16 June 2025

Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

This is an exciting opportunity to work with stroke survivors and their families to support them following a stroke.

The service aims to identify and address the needs of stroke survivors and carers across the stroke pathway, by providing a range of innovative support solutions, supporting them to meet their desired outcomes.

The Stroke Association Support Coordinator will:

• Support new stroke survivors and their carers from hospital discharge into the community.
• Provide personalised information, advice and support.
• Support stroke survivors to make informed lifestyle changes which will help them to prevent further strokes.
• Work collaboratively with NHS colleagues and other areas of the community to make a difference in the lives of people affected by stroke.

This role requires the post holder to travel across the locality to visit people at home and in community settings. Candidates must be able to demonstrate how they can meet this requirement of the role.

About You

You will have:

• Excellent IT skills and demonstrate a flexible approach to your role.
• A caring profession ideally with experience of supporting people with disabilities.
• Setting up and running virtual groups.

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

When you click to apply, you will be able to see the full responsibilities and person specification for further information on the role.

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.

If you are applying under the Disability Confident scheme, please indicate this in your supporting statement.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Care Coordinator, Stroke Support, Stroke, Care, Care Worker, Support Worker, Carer, Care Team Leader, Support Team Leader, Volunteering Manager, Volunteer Coordinator, Support Group, Support and Advice, Social Care, Carer Support, Support Service. #INDNFP

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

Job Title: Part-time Co-production Coordinator - Adults
Salary: £30,000 FTE
Hours: 18 hours per week. To be worked 3 days a week (6 hours per day)
Contract: 1-year, fixed term
Location: Mainly home based with regular meetings in the London Borough Hammersmith & Fulham

Parent/Carer Co-production Coordinator to empower and support parents of young adults with SEND.

Are you passionate about making health and social care systems work for families who have young adults with SEND?

Do you enjoy developing relationships, collaborating and contributing to better outcomes for the people that most need joined up support?

Do you have lived experience of using health and social care services as a parent or carer?

Parentsactive CIC is the parent/carer forum for Hammersmith and Fulham and works to empower parent/carers of children and young people with special educational needs and disabilities (SEND) from birth through to adults.

We are delighted to be recruiting a Co-production Coordinator to work alongside our parents and carers of young disabled adults to ensure they have meaningful opportunities to inform and influence strategic and operational developments across Hammersmith and Fulham that will lead to a better future for them and their young person.

The Co-production Coordinator will support the coordination of a range of activities designed to increase coproduction across the borough’s health, education and social care systems.

The successful candidate will be passionate about coproduction and ensuring the voice of people with lived experience is heard. They will have strong skills in working collaboratively with a wide range of people including families, statutory and third sector partners. The person will be a good listener, compassionate and understanding of the issues related to supporting a disabled adult to live their best life and have the confidence to challenge when necessary.

Last date to receive applications: 13th June 2025 6 pm

Interview date: 2nd July 2025

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

No agencies please.

Today, 12 children and young people will be diagnosed with cancer. We’ll stop at nothing to make sure they get the right care and support at the right time.  

• Salary: £30,753 FTE
• Hours: 35
• Contract type: Permanent
• Location: Homebased within West Midlands & North Wales area (see below postcodes)
• Closing date: Sunday 25th May 2025
• Phone interviews: w/c Tuesday 27th May 2025
• Panel interviews: Monday 2nd, Thursday 4th, Friday 5th June 2025

Change lives in a life-changing career

When a child or young person is diagnosed with cancer, their whole world can feel like it’s falling apart. Independence is taken and confidence is stolen. Stability no longer exists. The future suddenly feels uncertain.

The impact of cancer on young lives is more than medical. That’s why we exist. Our specialist social workers help children and young people with cancer and their families navigate the emotional and practical impact of cancer. We remove barriers, solve problems and prioritise wellbeing. And we stop at nothing to make sure they get the right care and support at the right time.

We challenge the systems and policies that surround children and young people, we highlight gaps and campaign for change. Because we know what a better future could look like. And we know what we need to do to make that future a reality. We need to push harder, reach further and work smarter. And we need the right people on our team to help us get there. People like you.

About the role

We’re looking for a Fundraising Engagement Manager with great personality and team ethic to join our Regional Fundraising team.

This is a role of variety, opportunity and innovation, and we are looking for someone who embraces change and constantly strives to achieve more.

You will maximise income for Young Live vs Cancer by coaching our supporters to reach their goals, whilst seeking out new fundraising opportunities for your geographical area. This role sits within the ‘Regional Engagement’ team and we need someone with natural customer service skills who wants to deliver a legendary experience to all of their supporters. Your team of supporters will range from volunteers and individuals, to groups and local corporates.

The West Midlands and North Wales regions are areas filled with some of our most committed supporters, but there is still so much opportunity to grow corporate support across the counties. Our Social Workers support families from Birmingham hospitals and out in the community in North Wales, so building relationships with these teams are a must.

Candidates should live within West Midlands and North Wales regions, in one of the following Postcodes: Worcestershire: WR postcodes, Birmingham area: B, DY1-11, DY13, Warwickshire: CV postcodes, Staffordshire: DE13-14, ST, WS, WV Shropshire: DY12, DY14, SY1-4, SY6-9, SY11-13, TF, WV15-16, Walsall: WS1-2, WS8-10, North Wales: SY10, LL and CH4-8

Candidates who live outside of these areas should highlight an intention to relocate to the area in their covering letter for their application to be considered. If you don’t live in one of these postcodes and don’t have plans to relocate, your application will not be taken forward. 

This role is subject to a criminal record check. In the event of a successful application a basic criminal record check will be completed. 

What will I be doing?

No two days are the same at Young Lives vs Cancer. So, summarising your ‘day to day’ isn’t easy. Here are some of the main things you’ll be doing, but you’ll find more details in the job description.

• To plan, monitor and report on your budgeted income with a constant eye on contingency planning to ensure annual targets are achieved;
• To steward our most committed supporters and deliver legendary supporter experience;
• To be a key, valued member of your regional team and UK wide team;
• To identify, cultivate and secure partnerships and donations within your area;
• To work with your local service team/s to build and maintain strong and effective working relationships;
• To be the first point of contact for service user families, to offer opportunities to them and their networks to engage with the wider charity as they would like I.e. fundraising, volunteering, sharing their story

What do I need? 

• A proven track record of delivering amazing customer experiences
• Experience of relationship management in either a charity or corporate setting
• Ability to work within a financial target-based setting, and experience of reaching/exceeding set targets
• Demonstrable experience of winning new business
• Experience of managing own workload
• Proven ability to manage/complete projects
• Able to ‘make the ask’ for support and to influence/negotiate
• Have a full UK driving licence and access to a car (including business insurance)
• Have a sufficient Broadband connection

Diverse perspectives and unique skillsets are at the heart of Young Lives vs Cancer. If you're passionate about making a positive impact and eager to learn, we encourage you to apply, even if you don't meet the criteria and person specification fully. Your potential is what matters most to us, and we’re committed to fostering an inclusive and supportive work environment to help you develop.

The key skills we’re looking for in this role are:

• Natural storyteller
• Strong prioritisation skills
• Great communicator
• Great at spotting opportunities
• Influencing/Negotiating
• Compassion
• Integrity
• Team Player

What will I gain?

For people to reach their full potential, they need the right environment. As a member of Team Young Lives, you’ll be made to feel supported, valued and appreciated. Here’s how we do it:

• Flexible working: we’re open to working hours outside of 9 - 5 and we can talk through your flexibility requirements at interview stage
• Wellbeing days: four days a year to do what works for you – from catching up on training to going for a walk
• Generous annual leave allowance
• Great family/caring leave entitlements
• Enhanced pension
• Access to our employee savings scheme

To find out more about our benefits package, have a look on our website via the apply button.

Our commitment to Diversity, Equity, Inclusion and Belonging

At Young Lives vs Cancer, we recognise that opportunities for too many people remain a condition of their sex, ethnicity, class, gender identity, disability, sexual orientation – or a combination. This has never been acceptable to us as an organisation. We don’t just accept difference, we value it, celebrate it, nurture it and we thrive because of it.

We’re on a journey to be reflective of the diverse children, young people and families we support. We know we aren’t there yet, and we’re passionately committed to taking actions and making changes to be a truly diverse, inclusive and equitable organisation. This includes taking anti-oppressive action and removing barriers in our recruitment practices. We particularly welcome applications from members of minoritised communities. Our Diversity, Inclusion, Equity and Belonging strategy will tell you more.

We operate an anonymised shortlisting process in our commitment to diversity, equity, inclusion and belonging. CVs can be uploaded, but we won't be able to view them until we invite you for an interview. Instead, we ask you to fully complete the work history sections of the online application form for us to be able to assess you quickly, fairly and objectively.

Accessibility

We’re committed to providing reasonable adjustments throughout our recruitment process and we’ll always aim to be as accommodating as possible.Please let us know in your application form of any adjustments or access requirements we could make to help you with the application process and interview.

Summary

The Education and Growing Faith department is looking to hire a Senior Programme Officer to support the church schools and the wider education sector. Working in the Operations Team, you'll be directly supporting the Head of Operations with project work and the wider NSE with system and process support. The role will offer the post-holder the opportunity to work across a range of areas such as communications, HR, grant management, reporting and governance. There will be a mix of longer strategic project work, and shorter task-based work.

About the Department/Role

The National Society for Education (NSE) is both an NCI and a Royal-charter charity. It's aims are to support Church schools and the wider education sector by developing leaders, shaping policy and growing faith.

The NSE leads the Church of England's national work in education in partnership with 41 Diocesan Boards of Education and approximately 4,700 Church of England schools. We also support the national education work of the Church in Wales, which includes around 150 schools. Our presence extends to work with community schools and academy trusts, as well as higher and further education through numerous chaplaincies, providing spiritual support and guidance to children and young people, and to adults.

We are a dynamic team, working remotely from our homes around the country. We gather regularly online, and fairly regularly in person.

What you'll be doing

The purpose of this role is to:

• Support the Head of Operations with policy development and reviews.
• Take responsibility for the continued development and management of the online Office Manual.
• Support the Head of Operations with due diligence tasks around new areas of work, taking ownership of discrete projects.
• Project manage areas of work as delegated by the Head of Operations, creating work plans, managing stakeholders, providing project reports regularly.
• Take responsibility for certain HR policy implementation such as designing and rolling out appropriate induction processes.
• Alongside the marketing staff, support the Head of Operations with the management of our internal and external comms.
• Lead the development of Asana (an online project management tool) use across the Operations Team.
• Provide Executive level support to the CEO, including diary management with high profile external stakeholders.
• Manage internal team days and residentials with the Events Manager.
• Work with the Head of Operations to manage the annual planning and reporting cycle.

About You

The Church of England is for everyone and we want to reflect the diversity of the community the Church serves across the whole country. Therefore, while of course we welcome all applications from interested and suitably experienced people, we would particularly welcome applicants from UK Minoritised Ethnicities (UKME)/Global Majority Heritage (GMH) and other under-represented groups. As a Disability Confident employer, we are committed to recruiting disabled people. We offer interviews to disabled people who meet the minimum criteria for the role.

Essential

Knowledge/Experience

• Experience of working within multi-faceted and complex projects
• Experience of summarising and reporting on data to stakeholders.
• Experience of organising and storing information securely and systematically.
• Experience of writing training manuals to simply communicate policy and process.

Skills & Abilities:

• Strong analytical skills.
• Customer service skills and able to take responsibility for progressing stakeholder queries.
• Strong verbal and written communication skills
• Strong time management and organisation skills, ability to keep track of key priorities
• Proactive and able to work under own initiative to suggest solutions to problems.
• Strong sense of ownership and ability to solve problems.
• High proficiency with Microsoft Office, including Excel, Word, and PowerPoint
• Key Attributes: Takes personal Responsibility, Organised methodical approach, Pride and commitment to high standards, Collaboration and team support.

Desirable

• Experience of project management of complex projects from start to end
• Experience of co-ordinating virtual events
• Advanced statistical analysis and Excel skills
• Proficiency in using survey technology, for example, Form Assembly
• Experience in using Project Management Software (Eg. Asana)
• Experience in marketing and comms work

Circumstances

Whilst this is a remote role, the post-holder will need to travel for the following reasons:

• National Society Team Days (3 per year)
• National Society Residential (2 days, including 1 overnight stay in the autumn)
• Ops Team Days (approx 3 per year)
• Other events where support is required

Please refer to the Job Description for more information about the role and person specification.

What we offer

Your Salary

• A salary of £40,572 per annum, plus age-related pension contributions between 8-15% of salary. We will also match any pension contributions you make up to an additional 3% of your salary.

Your Benefits

• 25 days annual leave (increasing to 30 days within 5 years) plus eight bank holidays and three additional days (pro-rated if working part-time).
• We welcome all flexible working arrangement requests. This is looked at in a case-by-case scenario and if this fits within the department's needs. We try to be as flexible as we can in your work pattern to support you with other commitments, and to give a good work-life balance.
• We offer many services and initiatives under our Family Friendly Programme, some of these include enhanced Maternity Leave initiative, Adoption Leave, Paternity Leave, & Shared Parental Leave. Structured induction programme and access to a range of development opportunities including apprenticeships.

• Automatic enrolment and access to Medicash (one of the UK's leading health cash plan providers), providing you with many services including reimbursements of routine dental treatment, optical, specialist consultations, and therapy treatments. Unlimited access to virtual GP & Private prescription service and health & Stress related helplines.

• Access to Occupational Health, and an Employee Assistance Programme 
• Access to the Department of Education Restaurant and Westminster Abbey with a plus-one guest.
• Apply for eligibility for an Eyecare voucher.
• Opportunity to join the Civil Service Sports & Social Club, and get involved in a range of staff networks, groups and societies.

PRIMARY OUTPUTS

To contribute to raising funds through high-quality bid and application processes which includes supporting the development of funding applications, stakeholder engagement. Evaluation reports and research underpinned by excellent communication skills. 

To raise awareness of DMWS services through print, web and social media activity.

All the work must ensure that DMWS’ mission, values and aims are clearly articulated in a professional manner and that our vision for sustainability and growth to support our beneficiaries is successful.

To apply please submit a CV and covering letter explaining why you would be a good fit for the role. Please remember to click on ‘upload’ otherwise we may not receive your attachments.Applicants must hold a full UK Driving Licence and have access to a vehicle which may occasionally be required for this role.  Applications will be considered as they are submitted. DMWS reserve the right to close the application process early and feedback will only be provided to candidates who attend interviews.

Key Responsibilities 

• Contribute to the writing of consistently high-quality funding applications and bid documents which are accurate, substantiated, and contain compelling content.  Ensure these are submitted to deadline and in line with the funders criteria as well as DMWS aims. 

• Write, edit and submit evaluation reports as required by the funder – working with the Grant Manager and operational colleagues for support. 

• Develop, update, and maintain an electronic project bid library resource, including written templates and application responses. 

• Maintain an up to date register of all grant and trust fund providers applied to for projects, submission deadlines, and other relevant information, including timeframes for re-applying. 

• Research and assess potential opportunities to obtain funding from grant making trusts and foundations, organisations, in order to sustain and develop DMWS services against strategic aims. 

• Contribute to the development and updating of DMWS Website 

• Develop and promote content for DMWS Social Media channels and other communication mechanism including print and online. 

• Identify and build strong internal and external relationships. 
   

As and when required, attend at various meetings and events at headquarters or other locations. 

Work with other head office and operational colleagues to share intelligence and contribute to the delivery of DMWS Strategy and organisational sustainability. 

General Support Tasks 

• Promote the vision, mission and values of DMWS 

• Contribute creative thinking, ideas and support to colleagues to help facilitate the promotion of a positive organisational environment.

• Represent and promote DMWS and its services, working with and supporting other staff, maintaining a positive and professional approach with all contacts both internal and external. 

• Engage in, and undertake with enthusiasm, all opportunities for training and professional development in order to achieve additional skills as the role and organisation develops. 

• Adhere to the terms and conditions of employment working within the policies and procedures of DMWS. 

• Be responsible for own safety and others affected by your activities and to ensure adherence to DMWS’ policies and procedures regarding Health & Safety, GDPR, Data Protection, and confidentiality. 

• Develop and maintain effective communications within DMWS to optimise outcomes. 

• To establish and maintain links to other organisations relevant to the post, and to ensure that those links are shared as appropriate. 

• To be aware of, and work to, safeguarding principles, practice and procedures. 

The list of duties in the job description should not be regarded as exclusive or exhaustive. There will be other duties and requirements associated with the role and, in addition, as a term of employment you may be required to undertake various other duties as may reasonably be required 

Person Specification 

• Demonstrable experience of securing or involvement in funding through bid writing and funding applications. 

• Demonstrable ability to communicate compelling messages in written form. 

• Experience of coordinating and updating a knowledgebase system. 

• Experience in organising, prioritising, and managing your time effectively. 

• Creative instinct and ability to think laterally about new business opportunities. 

• Collaborative and adaptive working. 

• Experience of raising funds within the third sector. 

• Experience of research and data analysis. 

• Experience of working within the health, social care, wellbeing, or military third sector is desirable but not essential. 

• Experience of working within project delivery or project development is desirable but not essential. 

Skills 

• Strong interpersonal skills that enable you to communicate internally and externally, and the ability to engage clearly with people at all levels. 

• Excellent written and verbal communication skills. 

• Accuracy and management of deadlines. 

• Team working skills and the ability to work independently with little direction to prioritise work areas. 

• Excellent IT skills including use of Word, Excel and PowerPoint Packages. 

• Confident, self- motivated, target driven, strong team player. 

• Ability to work under pressure and to demanding deadlines, delivering objectives to agreed timescales. 

Personal Qualities 

• The ability to deal positively within deadlines and presenting information with accuracy 

• A flexible approach to work. 

• Willingness to travel to DMWS HQ and other locations as required, with some overnight stays, and occasional weekend work. 

• Proactive, committed, and forward thinking. 

• Engaging manner and personality with the ability to forge effective working relationships with a range of staff and other stakeholders. 

• Personal sensitivity, empathy, and flexibility to operate within the distinctive ethos and structure of DMWS. 

• Strong commitment to DMWS’ aims of providing medical welfare services to those in need.

BENEFITS

We offer employees the following benefits: -
• Annual Leave: We give employees 30 days a year annual leave plus Public Holidays (pro-rata'd for part-time employees).
• Pension: Auto enrolment onto DMWS workplace pension scheme – subject to eligibility. You will make a minimum contribution of 5% which DMWS will match. Contributions will be matched up to 6% by DMWS.
• Death in Service Scheme: Three times your annual salary to nominated beneficiaries - subject to eligibility.
• Flexible Working: All flexible working requests are considered - many of our staff work flexible hours and work wholly, or partly from home.
• Smart Health: Access to a 24/7 virtual GP service, with a counselling service and on-line help and support around health and well-being matters.
• Work-based Parking/Mileage: For those who pay to park at their work-base, fees are repaid through expenses. Mileage claims are reimbursed in line with HMRC guidelines.
• Enhanced Sick Pay: Enhanced sick pay scheme for all employees upon completion of their probationary period.
• Staff Recognition: Staff are regularly recognised for their work by the leadership team and their peers, via internal events, social media, and industry awards.
• Personal Development Programme: DMWS supports employee continuing professional development and training.
• Above all, being part of the DMWS team means that you are making a difference to the lives of those working on the frontline.
• Great training opportunities
• £25 contribution towards eye tests and a contribution of £50 towards glasses. (As long as they are only needed for DSE use and not otherwise needed on a standard prescription).
• Enhanced maternity / paternity / adoption family friendly benefits

Hope After Harm is an established charity, delivering a range of support services to those who are vulnerable or at risk of exclusion.  We want to see a society where everyone feels safe and can thrive, regardless of who they are and where they come from.

We enable adults and young people in their journey to recover from harm and trauma. Through support, advocacy and education we empower people to rebuild their lives and reclaim their future. We inspire others to do the same, creating safer, more inclusive communities.

Role Description

The Family Matters team provide support and information to the families of men under investigation for online paedophile crimes. They are often the hidden victims, facing multiple problems and isolated from help and support.

This Role will provide support to families of those who receive a custodial sentence, liaise with Police, Probation, Court staff and other relevant professionals while supporting service users attending Court Hearings.

Responsibilities

• To work as a member of the Family Matters Team to deliver outcomes for the Family Matters Programme as agreed with The National Lottery Community Fund.
• To provide information and support at a time of crisis to service users.
• To manage a caseload of complex adult client cases, providing client centred, practical and emotional support.
• To conduct risk assessments / case management.
• To offer information and support to family members regarding the Criminal Justice process during investigation, court hearings, sentencing and beyond. 
• To help family members remain informed regarding Child in Need and Child Protection processes.

Skills, Knowledge and Abilities

Essential

• Experience in direct support work with victims or other vulnerable people including providing emotional and practical support
• Excellent caseworker with good assessment, motivational and empowerment skills
• Organising, prioritising, risk management and problem-solving skills
• Experience of working cooperatively and effectively in a team
• Willingness to be able to work flexible hours when necessary
• Excellent communication and interpersonal skills including presentation skills
• PC literate (Word, Excel, PowerPoint, Outlook)
• Compassionate towards the individuals the service supports
• Sensitivity to cultural differences and the ability to work in diverse settings and with people with diverse needs.
• Good knowledge of a full range of civil, criminal and practical options available to service users.
• Good knowledge of restorative interventions or ability to learn and use them with appropriate service users.
• Knowledge and skills to operate within a trauma-informed approach.
• Ability to provide non-judgemental, non-directive and confidential support to service users in crisis
• A clear understanding of the gendered nature of some crime types and a clear understanding of how different crime types disproportionately affect different groups of people

Desirable

• Ability to determine strategies, outcomes and opportunities to develop the role
• Experience and knowledge of exploitation and modern-day slavery, sexual violence and other complex issues.
• Experience of working with diverse groups with multiple complex needs.
• Mental Health Awareness including the impact on an individual and the services available
• Knowledge of domestic abuse.

Other Essential Requirements

• Be able to travel as required
• Be free from any criminal conviction which would conflict with the responsibilities of the post
• Must have the right to work in the UK

Home after Hope is an equal opportunities employer; the aim of our policy is to ensure no job applicant is discriminated against either directly or indirectly on the grounds of race, colour, ethnic or national origin, religious belief, sex, marital status, sexual orientation, gender reassignment, age or disability.  We do not disbar applicants with criminal convictions and are mindful of the requirements of the Rehabilitation of Offenders Act, 1974

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases. 

The Charity and The Vision.  

Scotty’s Little Soldiers is a UK-based charity dedicated to supporting military children and young people (0 to 25 years) who have experienced the death of a parent who served in the British Armed Forces. Founded in 2010 by Nikki Scott following the death of her husband, Corporal Lee Scott, the charity offers a unique blend of emotional, practical, and educational support to over 700 young people, and we have big ambitions to support over 1,000 children annually by 2030.  

We are proud of our vibrant, non-traditional culture, which puts the needs of bereaved children and young people at the heart of everything we do. We embrace innovative approaches, are committed to creating smiles and believe in the power of community, resilience, and connection.  

Scotty’s is seeking an experienced bereavement counsellor to join our small but effective team. The role involves supporting children and young people affected by bereavement, which may include death in service, illness, or suicide.

We want every bereaved military child and young person to have:

• Access to the very best emotional health and wellbeing support.

• Outstanding development opportunities.

• The chance to smile again. 

We call these our Promises. Our promises align with our three programmes: SMILES, STRIDES and SUPPORT.

· The SMILES Programme provides children with the chance to smile again

· The STRIDES Programme provides children with outstanding development opportunities

· The SUPPORT Programme provides the very best emotional health and wellbeing support to children who are struggling to cope following a bereavement. 

Our Bereavement Counsellor will be a valuable member of the SUPPORT Programme, delivering online 1:1 and group support to those who need it most.  But all three programmes work closely together (we call this the Families team).

Role Mission:

The Scotty’s Bereavement Counsellor will work with our families who are struggling with their grief to help them understand their feelings, develop coping skills and build their new life.

This role will be accountable for:

Providing emotional support, counselling and therapeutic interventions to individuals and families coping with grief and loss. The role involves working compassionately and ethically with families affected by bereavement, helping them process their emotions and find ways to adjust to life after a loss.

The Bereavement Counsellor will work collaboratively with the SUPPORT team and the wider Families team to ensure that all work undertaken by Scotty’s is delivered in a supportive and sensitive manner and that Scotty families receive exemplary care.

What are the 3-month goals for this role:

· Within three months the Counsellor will have developed their knowledge of the range of services that Scotty’s offers to our families so that they can advise and support families in their case load.

· Will have begun to learn and understand the Scotty Values and the Scotty Way (we do things a little differently and our culture is very important to us and our families!).

· Would have begun supporting the families assigned to their caseload by the Head of SUPPORT.  This will predominantly if not entirely be online 1:1 delivery.

· Will have completed all necessary safeguarding training and be part of the Scotty’s Safeguarding team.

· Begun attending peer supervision sessions with the SUPPORT team.

What are the 6-month goals for this role:

· Will have established a caseload as assigned by the Head of SUPPORT which is likely to include 1:1 online sessions, and may also include online group sessions, drop ins or workshops.

· Will have begun to support the wider Families team by attending Scotty events.  At Scotty events, a SUPPORT team member often attends to provide support to any families in distress (this may require occasional weekend or evening work).

· Will be working cohesively with the Families team and the wider Scotty team to share your knowledge and skills.  Scotty’s values a culture of learning and strives to ensure team members can learn from one another’s expertise.

· Will be contributing to peer supervision sessions to ensure all SUPPORT team members are able to give the best support to families.

· Regularly meeting with your selected external supervisor.

What are the 9-month goals for this role:

· Will be supporting a caseload as assigned by the Head of SUPPORT, with emerging impact data showing the success of your support.  Scotty’s uses the Child Bereavement Service Questionnaire (CBSQ) developed by the CBN to monitor the impact of 1:1 support and the Strengths and Difficulties Questionnaire (SDQ) for pre-bereavement support.

· Will be a valuable member of the SUPPORT programme, Families and wider Scotty team. Providing first rate bereavement counselling and support directly to families but also indirectly helping families by working collaboratively with other team members.

What are the key responsibilities of this role:

· Managing a caseload and delivering one to one counselling sessions as assigned by the Head of SUPPORT. This will predominantly be online delivery using Teams video calling but also other formats as needed by families.

· Facilitate group therapy or support groups when appropriate.

· Conduct initial assessment to determine clients’ needs and suitability for counselling.

· Maintaining accurate and confidential case notes in a timely fashion using our Salesforce based system in accordance with data protection and organisational policies.

· Adhering to all safeguarding requirements and operating as part of the Scotty Safeguarding team to maintain the highest standards across the charity.

· Supporting the development of resources and materials as needed.

· Working collaboratively within the SUPPORT team, including peer supervision.

· Working collaboratively and effectively within the Families team to ensure that families are directed to the appropriate services in a timely fashion.  This could include directing families you are working with towards our educational grants, our respite breaks, our events, our school support or our advocacy.

· Liaise with healthcare and mental health professionals such as GPs, CAMHS and social workers or other professionals where appropriate to ensure holistic care and management of risk.

· Attending at least six (mandatory) face to face team days, normally located in the East of England.

· Participate in regular clinical supervision and continuing professional development.

Skillset and Experiences Required:

Essential

· Member of the British Association for Counselling and Psychotherapy (BACP) or United Kingdom Council for Psychotherapy (UKCP).  We may consider applications from practitioners with HCPC or NCS membership too.

· Level 4 Counselling / Psychotherapy Diploma or above.

· Significant experience (post qualification) providing bereavement counselling, to children or young people (0-25yrs).

· Experience and training with NICE-approved talking therapies.

· Demonstrated knowledge of issues surrounding bereavement.

· Ability to manage caseload effectively.

· Willingness to work flexible hours to accommodate children’s needs (this may include evening work to avoid school hours at times).

· Excellent computer literacy.

· Ability to develop good therapeutic relationships with families.

· Ability to engage with peer supervision and Scotty’s funded external supervision effectively.

· Ability to engage with a culture of continuous learning and support the learning of others.

· Ability to work flexibly as part of a team and independently to meet the needs of the service.

· Commitment to professional standards and ethical practice.

Desirable

· Accredited member of BACP.

· Knowledge or experience of or with the military community.

· Experience of online counselling.

· Experience (post qualification) providing pre-bereavement counselling or support.

· Experience of supporting those bereaved by suicide.

· Knowledge of or experience using assessment tools such as SDQs or CBSQs.

· Knowledge of statutory mental health provision and systems including CAMHS and EHCPs.

· Experience of providing counselling or support to young people with SEND or additional needs.

· Ability to drive with access to own transport is an advantage as some team meetings can take place away from public transport routes.

· Experience working within a hospice, NHS or charitable setting.

Additional Information

- The role may require evening or weekend work

- Enhanced DBS check required

- Travel will be required to events and team training days

The Scotty’s Way

At Scotty’s, our personal performance is only 50% of what success looks like. Our culture is equally important. When you join our team, you sign up to The Scotty’s Way, rooted in our four core values:

1. Families Come First

2. Everyone a Supporter, Every Supporter a VIP

3. Love What You Do

4. Remember, Every Day

Our values are further supported by our four non-negotiable behaviours of Show Respect, Speak Up, Embrace Change and Actively Collaborate. We are looking for an individual who embodies these values and behaviours.

Thank you for your interest in joining our team, we are an equal opportunities employer, we are committed to creating a diverse and inclusive workplace where all employees are treated with respect and given equal opportunities for employment and advancement.

We do not discriminate on the basis of race, colour, religion, gender, sexual orientation, age, disability or any other protected characteristic.

We encourage all qualified individuals to apply for employment within our charity, and we are dedicated to providing a fair and inclusive recruitment process for all candidates.

An exciting opportunity has arisen in our Equality, Inclusion. Diversity Team. We are looking for an experienced EDI business partner to work  across Barnardo's providing expert advice and guidance to help us meet our public sector equality duty. The successful applicant will have the opportunity to work on ambitious initiatives, contribute to our culture of belonging and support training and events to promote awareness of EDI.

Our EDI ambition is growing a culture where everyone belongs. EDI runs through everything we do and we work in a collaborative and enabling way across the whole organisation. Key areas of our work are compliance, culture, participation, cultivation of belonging, colleague journey, recruitment, progression and growth. Our data led insight enables us to measure impact and plan for the future. Our EDI objectives are fundamental to our work on our anti-racism, disability equality, LGBT+ strategy and gender equality.

As an EDI Business Partner, you will be responsible for ensuring that a proactive, high quality, professional and appropriate business focused EDI service is delivered by providing first class advice, guidance, information and support to colleagues, across all areas of the organisation to assist them in delivering Barnardo's Corporate Strategy.

You will be a subject matter expert in EDI and will be key to embedding EDI in decision making, ensuring we are compliant with legal requirements, delivering on our EDI objectives, anti-racism and disability equality commitments, key EDI projects, supporting colleagues with lived experience and contributing to a culture of belonging across the whole organisation. The role holder will be expected to have a knowledge of EDI legislation across the UK.

If this sounds like you, please apply today.

Please note due to the high volume of applications for some posts, this advert might close before the displayed closing date. We recommend that you apply for this role as soon as possible.

Pay & Reward Framework

We know that our colleagues go above and beyond in delivering our vital work, driven by their passion and commitment to Barnardo's values.  We also know that we can only realise our ambitions and achieve better outcomes for more children, thanks to the talent, hard work and creativity of our people. 

For all these reasons, we are committed to a new approach to pay and reward, to ensure it is fair, attractive and progressive, which was rolled out in April 2023. This is a positive change for the charity, and a part of our People & Culture Strategy. It will assist us in supporting colleagues to belong, thrive and grow in their colleague journey at Barnardo's and in time will offer clear routes of progression for colleagues in both their career and their pay. 

Whilst the full pay band and salary range is advertised, our approach to starting salaries is to appoint between the minimum to mid-point of the pay band – this ensures that pay steps are available to reward our colleagues annually based on their contribution to excellence and alignment to our values and behaviours.  More details on Barnardo's pay framework can be found upon application. 

Who are we?

Founded in 1996 as the Sleep Apnoea Trust Association, a charitable incorporated trust, we're a patient support charity run mainly by volunteer patients

Be a part of our mission in working to improve the lives of sleep apnoea patients, their partners and families

Key duties and reponsibilities:

Management Role

· Based on the policies of the charity as defined by the Trustees Board (created Oct 2022 AGM), manage the affairs of the charity with due respect for its heritage, status and independence.

· Within those defined policies, take decisions that allow the development of its business activities, liaising with other Trustees as necessary, and report to the Trustees on a regular basis.

· When necessary, liaise on allocation of duties to other Trustees on a cooperative basis.

· Represent the charity at occasional public events and meetings with collaborative partners and in negotiations, e.g. NICE, ARTP, Sleep Clinics.

· Act as main point of external contact and manage that contact as appropriate.

· Take purchasing decisions within the defined responsibility of the position.

· Modernise and develop the SATA business on as cost efficient basis as possible — goal is generally self-financing.

· Explore business opportunities as appropriate. 

· Identify risk, consult with other officers and recommend action for Board decision.

· Finalise move to paperless operation.

Administrative Duties

· Arrange Trustee Board Meetings.

· Manage Membership Database.

· Administer Membership Renewals.

· Register & acknowledge new memberships.

· Handle resignations, deaths and other membership issues with appropriate respect.

· Acknowledge Donations.

· Administer Gift Aid claim with Treasurer.

For the full job description and further information, please refer to the attachement below. 

Job Title: Policy & Research Officer
Location: Remote (with UK and international travel, candidate must be UK-based)
Hours: Full-time  
Salary: £30,000 - £33,000 
Reports to: Head of Insight & Advocacy 

About Us 

Metabolic Support UK is the leading organisation for people living with inherited metabolic disorders (IMDs) and their families. We provide expert support and advocacy, champion research, and work with health services and policy-makers to ensure people with IMDs and their families get the care they need and deserve. 

The Role 

We are looking for a curious and committed Research & Policy Officer to help us build the evidence base to improve the lives of people affected by IMDs. Reporting to the Head of Insight & Advocacy, you will play a key role in delivering our research projects, keeping tabs on relevant policy developments, and helping shape our responses to consultations. 

Key Responsibilities 

Research (under supervision of the Head of Insight & Advocacy): 

• Support the design, planning, and delivery of qualitative and quantitative research projects 

• Conduct literature reviews, stakeholder mapping, and data analysis 

• Contribute to survey development, focus groups, and interviews with people living with IMDs, families, clinicians and other stakeholders 

• Assist with analyses and write up findings in accessible and engaging ways for different audiences 

• Ensure all research is ethical, inclusive, and relevant to the needs of the IMD community 

Policy Monitoring and Response: 

• Track developments in policy relevant to rare diseases and inherited metabolic conditions 

• Summarise key policy updates for internal and external audiences 

• Support the drafting of consultation responses, position statements, and policy briefings 

• Contribute to campaigns, stakeholder engagement, and policy influencing activities 

• Help ensure the voice of the IMD community is reflected in national and local policy discussions 

About You 

We are looking for someone who is: 

• Organised, analytical, and enthusiastic about improving lives through research and policy 

• A strong communicator – able to write clearly and concisely for different audiences 

• Comfortable working with data, both qualitative and quantitative 

• Keen to learn, with some experience in research or policy (academic, charity, health, or public sector settings) 

• A team player who enjoys collaborating and supporting others 

Desirable experience: 

• Background in public health, health policy, social research, or similar 

• Experience working with or for people living with a disorder, carers, or people with rare or long-term conditions 

• Familiarity with the NHS, health inequalities, or rare disease policy 

What We Offer 

• A chance to make a meaningful difference in a growing, agile charity 

• A friendly and supportive team culture 

• Flexible working arrangements 

• Opportunities for learning and professional development