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About the Role

As Head of Data and Insight, you will lead the development and delivery of Muscular Dystrophy UK’s data, reporting and insight capabilities, ensuring data is used as a strategic asset to support decision-making and organisational performance.

You will be responsible for shaping and delivering the charity’s Data and Insight Strategy, overseeing data governance, organisational reporting, and performance monitoring. Working collaboratively across the organisation, you will provide meaningful insights that support strategic objectives, drive continuous improvement, and enable evidence-based decision making.

The role will also play a key part in developing automation and AI capabilities, helping the charity make the most of emerging technologies while promoting a culture of data-informed thinking and innovation. As a senior leader, you will champion best practice in data management and empower teams to use data and insight effectively to maximise impact for people living with muscle wasting and weakening conditions.

Main tasks and responsibilities

• Lead the development and delivery of Muscular Dystrophy UK’s Data and Insight Strategy, ensuring data supports organisational priorities and decision-making.

• Drive a culture of data ownership, evidence-based decisions and continuous improvement across the charity.

• Oversee data governance, quality, compliance and GDPR requirements, ensuring data is accurate, secure and well managed.

• Develop and enhance organisational reporting, dashboards and performance insights to support strategic and operational decisions.

• Lead the evolution of data systems, reporting platforms and integrations, including Dynamics, Microsoft Fabric and related technologies.

• Identify and implement opportunities to use automation and AI to improve efficiency, effectiveness and organisational insight.

• Build strong relationships across the organisation, helping leaders use data and insight to measure impact and improve performance.

• Lead and develop the Data team, managing resources, suppliers and budgets to deliver value and continuous improvement.

• Promote data literacy and capability across the charity through guidance, coaching and training.

• Act as the organisation’s subject matter expert on data, reporting, business intelligence and emerging technologies.

Please download the job description to see full role responsibilities

Working arrangements

• Permanent Contract
• Full time: Monday to Friday, 35hours/week
• Hybrid working arrangement
• All necessary equipment provided

About Us

Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So, everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.

This is an exciting time to join the charity. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.

We believe that by creating opportunities for all, we strengthen our impact and better support the communities we are committed to serve.

What we offer

At Muscular Dystrophy UK, you'll have the opportunity to do meaningful work that makes a real difference to the lives of people living with muscle wasting conditions. We are committed to creating an inclusive, supportive workplace where colleagues can thrive and enjoy a healthy work-life balance.

In return, we offer a competitive benefits package, including:

• 25 days' holiday (pro rata), increasing by one day each year after five years' service, up to 30 days, plus bank holidays.
• Time off in lieu for approved out of hours work.
• Employer contribution of 5% with a minimum employee contribution of 3%.
• Death in service cover from your first day of employment.

Health and wellbeing

• HSF Health Plan, including cashback on healthcare costs for you and your family.
• Employee Assistance Programme (EAP) offering free, confidential advice and support.
• Health and wellbeing resources, including Healthy Living support.
• Access to osteopathic treatment through the UCO Clinic Community Partnership.
• Discounted gym memberships.

Lifestyle benefits

• Employee discounts at a wide range of high street and online retailers.
• Interest-free season ticket loans.
• Cycle to Work scheme.
• Discounts on cinema tickets, live events and much more.

How to apply

Please complete our application and include:

• Your CV and Cover Letter (PDF or Word format).
• Responses to the application questions

Important information

• This role is open to candidates based in the UK who have the right to work in the UK.
• Applications that do not include all the requested information may not be considered.

Next steps

Application deadline: Thursday, 5th November 2026

Interviews: to be taken place Wednesday, 11th November and Thursday, 12th November

We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups, including people from ethnic minority backgrounds, LGBTQ+ individuals, previous convictions and those with lived experience of the conditions we represent.

We are committed to fair and inclusive recruitment, with disclosure only requested where relevant at the appropriate stage

If you require any reasonable adjustments or additional support at any stage of the recruitment process, please let us know. We will work with you to understand your needs and make the recruitment process as accessible as possible.