Head of data science jobs in bristol

This is a brand new role with Action Duchenne, leading our Support team.

Applications close at 9am on Monday 7th July 2025, with interviews likely to take place on 18th July and in the week commencing 21st July 2025. To apply, please click 'Apply', where you will be redirected to our application form.

Action Duchenne is committed to having a team that is made up of diverse skills and experiences. We encourage applicants from all sectors of the community and are especially keen to encourage candidates with relevant lived experiences and those from under-represented groups to apply.

Main Purpose of the Role:

To lead the Support Team to provide emotional and practical support to families and individuals living with Duchenne muscular dystrophy. It includes leading the support team to provide 1-2-1 and group support provided in person or virtually, and creating and growing support networks for the wider Duchenne community which includes Duchenne parents/caregivers; young people and adults living with Duchenne; extended family and friends; and professionals in environments such as schools, local authorities and clinics. 

Specific Tasks:

The focus areas and key deliverables of this role are as follows:

• Develop a clear process for identifying case loads and capacity for the Support Team.

• Identify opportunities, alongside the team, for cross team working - including residentials; family events; Science Educations workshops with regional meetups and education visits to schools and local authorities.

• Obtain, decipher and provide training to the Support Team on new updates relevant to Duchenne families, such as DLA, EHCP and more.

• Work closely with your team, to ensure that each family receives the best support possible, and that long-term support is provided.

• Lead on the development and delivery of monthly reporting of engagement and support contact, which will feed into the wider All Through Support journey. 

• To work with the Head of Operations and Events to contribute to Agenda topics and speakers from the community; assign roles for the conference to the Support Team.

• Establish a database for external stakeholders also supporting those living with Duchenne on a national basis, fed in to from the Support Team.

• To develop a triaging and caseload process for the Support Team, and how best to regularly monitor this.

• Be involved in the recruitment, selection, and induction of volunteers appropriate to your area of work.

• To maintain the contact database, keeping it up to date and accurate.

• Coordinate cover for the Support Team when there is sickness or leave.

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Person Specification Criteria (essential, except those noted specifically as desirable) 

Education and Qualifications

• Experience leading a team (either through line management or mentoring)

Knowledge and Experience

• A proven track record of providing support to those in need in a professional setting. 

• Experience of safeguarding reporting.

• Experience of reporting on services and development of monitoring dashboards.

• Knowledge of current legislation around either accessibility, equal opportunities, Disability Living Allowance, or Education Health Care Plan.

• Knowledge of networks and signposting for those living with a life-limiting condition.

• An understanding of and commitment to Equal Opportunities and the ability to promote this in the day-to-day work of the post.

• Experience working in the health sector or at a patient-led charity. [Desirable]

• Experience of a CRM system. [Desirable]

Skills and Aptitude

• Passionate about improving the lives of young people, adults and their families living with Duchenne.

• Ability to communicate effectively, both in writing and verbally.

• Excellent organisational and time management skills, ability to work as part of a team and work on own initiative and to deadlines.

• Ability to be assertive but also have empathy and the ability to be sensitive with the families and young adults we support.

• Interest in networking and continued learning about new areas of support for those living with Duchenne. 

We have an exciting new opportunity to join Icebreaker One as a Senior Administrator

About Icebreaker One

We are a diverse collection of like minded people whose expertise spans policy and science, finance and engineering, data and systems—working together to tackle one of the greatest challenges of our time. We need your help.

Our mission is to make data work harder to deliver net-zero outcomes. 

The role

Reporting

You will be a member of the PMO team, working closely with Icebreaker One’s project managers. You will be responsible for supporting the successful delivery of projects and secretariat functions as directed by the Programme Director, Head of Project Management and the Programme and Policy Manager. 

Responsibilities

• Project administration

  • Creating meeting templates, slide decks and documents 

  • Attend meetings to take meeting minutes

  • Proof-reading project documents and artefacts

  • Assisting the project manager with task management using the Jira tool and preparing meeting agendas

• Icebreaker One secretariat administration for Steering and Advisory Groups

  • Preparation: 

    • Oversee diary management, meeting planning and scheduling

    • Creating Zoom meetings

    • Logistics, and room bookings for in person meetings/events

    • managing and updating attendee tracking lists

    • Prepare, collate and distribute meeting materials well in advance to attendees

    • Creating voting forms for items needing endorsement 

    • Ensuring co-chairs are supported in meeting logistics 

  • Execution

    • Host / managing Zoom/Teams for online meetings

    • Attend meetings to take meeting minutes, and post-meeting cleaning up the notes afterwards (for easy reading) 

    • summarising outputs

    • Tracking voting form responses and, if required, following up with individual members to ensure quorate is reached 

  • Post-AG wash up

    • Writing, disseminating, and publishing Advisory and Steering Group minutes

    • Writing/summarising, coordinating and sending post-event follow up emails and voting summary reports

    • Updating the SG/AG action tracker log of actions, ensuring follow-up with action owners before each meeting.

• Inbox Management: Oversee the Secretariat mailbox to ensure effective communication, timely responses, and coordination of meetings, while maintaining organised records and distributing information as needed

• Public webinar and in person events administration

  • Coordinating panellists, preparing agenda and slide deck templates

  • Managing Eventbrite & calendar invitations, Zoom administration

  • Assisting with the coordination of onsite logistics

• Participating in weekly Show & Tell meetings

• Additional ad hoc administrative tasks as appropriate

Results 

• Ensuring the smooth running of IB1 projects, meetings and Steering and Advisory Groups

• Ensuring project managers and meeting participants have all the required information to carry out meetings and activities

Knowledge, Skills, Experience

Demonstrable experience of:

• Attention to detail and administrative skills

• Ability to understand and take real-time notes in complex meetings

• Working with and in support of a group of team members

• Highly organised and capable of managing time and tasks effectively and independently

• Familiar with using and applying Google Suite/Workspace, Slack, Zoom, social media and other tools for working remotely and in the open

• The ability to work in a collegiate, collaborative and open environment

• Experience in supporting, coaching and delegating to junior administrators

Desirable

• A working knowledge of the UK’s Net Zero landscape 

Our approach

Fundamental to the success of our programmes is that solutions are developed in collaboration with the sector, for the sector and by the sector. 

Our Icebreaking approach underpins all our work and feeds into continuous iterative development.

Research sits at the heart of our systems-based approach and spans climate, finance, policy and industrial sectors (e.g. energy, water, transportation, built world, agriculture). 

Our Data Services team deliver market-facing services, including Trust Frameworks 

Our Membership, Community and Communications teams develop strategies that allow us to work in open, transparent ways and continuously seek industry feedback. 

All work is delivered using an agile-based, modular and iterative approach that includes continuous feedback from research and open consultations. Feedback and documentation are published alongside responses and actions taken on our website. 

All outputs, reports, developments and deliverables undergo internal quality assurance. Early-stage research is presented in a weekly Show and Tell for internal, external and peer feedback; fortnightly heartbeat sessions with clients and funders, checks on direction of travel and shows work early; sharing draft materials for feedback is core to our process. 

Benefits of being an Icebreaker?

• Flexible working -  to help you work around your needs and commitments we operate a four-day week, and don’t have work or meetings booked on a Friday.

• Remote working - we may all be working remotely but it doesn't get in the way of us working closely.  Regardless of whether working remotely is by choice or by necessity - daily standups and regular work and non-work related hangouts mean you are connected to the team. 

• Supportive working - Bring and share what you know as you’ll be working with people willing to learn and share knowledge. Foster support in getting the most of the virtual/remote TX from using GoogleDocs/GSuite to Show & Tell sessions

Apply today

Email your cover letter and CV/links to pages that show us what you have done, and can do, to help us achieve our mission

Applications must be received by 0900 GMT 2025-07-03

As a team, we are committed to equality and creating an inclusive culture with diverse and balanced backgrounds. We actively encourage applications from everyone and will help to support you to reach your full potential and to be yourself in a working environment based on dignity, respect and mutual support. Before applying you will need to ensure you have the right to work in the UK and can provide documentary evidence of this. 

The role does require the applicant to be able to work within a UK time zone

Full details are avaialble on our website