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Shine is recruiting a Shine Nurse Specialist

Full Time

Permanent

Shine Nurse Specialist (Adult Nursing/ Registered General Nurse)

Location: Home based - within a commutable distance of London as there will be a requirement for fortnightly travel to the Chelsea & Westminster Clinic and with additional occasional travel across England, Wales and Northern Ireland. 

Shine’s Health Team 

Shine’s Health Team provides condition-specific health advice and support to people of all ages with spina bifida, hydrocephalus, NPH or IIH, promoting good self-management and enabling our members to live in optimum health.  The Team also aims to reduce the numbers of pregnancies affected by spina bifida and anencephaly through education around supplementation and fortification with folic acid, and other measures. 

Purpose of Job 

The Shine Nurse Specialist will deliver services and create resources to improve the health of Shine’s members, by informing members, their carers and professionals 

Principal Duties 

• To provide ad hoc advice to Shine’s members, their carers  and professionals on complex health issues, and signpost to NHS services 

• To attend and represent Shine at the Chelsea & Westminster Spina Bifida Clinic

• To collect information, statistics and research from a variety of sources to inform Shine’s health projects 

• To create resources to inform and support members’ health 

• To develop training/information resources for professionals 

• To plan and deliver projects, events, presentations and information sessions for members and professionals 

• To provide an information resource for Shine staff 

• To form and engage with networks of health professionals 

• To represent Shine at events and meetings 

• To work closely with the Health Research & Information Coordinator to produce and disseminate health information to Shine members and the general public 

Skills and Experience 

Essential 

• Professional/Registered Health Qualification, for example:

  • Adult Nursing 

  • Registered General Nurse 

• Experience of searching scientific and medical literature, collating information and writing reports 

• Excellent communication skills, written and verbal 

• Ability to work effectively alone and as part of a team 

• Ability to plan and deliver projects 

• Good presentation skills 

Desirable 

• Knowledge of the physical aspects of spina bifida and hydrocephalus 

In return, Shine will offer you: 

• A competitive salary

• 3% pension contribution 

• Life Assurance cover from 12 months service 

• 25 days holiday plus bank holidays + additional discretionary leave between Christmas and New Year (pro-rata for part-time hours) 

• Opportunity to purchase additional annual leave 

• Additional annual leave due to length of service  

• Broadband allowance 

• Support to learn and develop 

If you would like to have a chat about the role in more detail or have any questions, please contact Gill Yaz, Head of Health.

Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job. 

To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria. 

*Please note applications without a supporting statement will not be accepted* 

Closing date: Saturday 7th June 2025 at 11pm

Interview (virtual): Tuesday 17th June 2025

Early application is encouraged as we will review applications throughout the advertising period and reserve the right to close the advert early. 

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases. 

The National Lottery Community Fund has two exciting opportunities available—we are looking to recruit one Public Affairs and Policy Manager each for Northern Ireland and England to join our newly restructured communications function.  

Please be clear which role you are applying for when writing your supporting statement.

• Public Affairs and Policy Manager (Northern Ireland)
• Public Affairs and Policy Manager (England)

This role is part of our ambitious transformation as we implement a significant pivot in our communications approach – building on our support for grant-making to demonstrate the powerful impact communities have in strengthening society and improving lives.

This role offers an exceptional opportunity to shape our political engagement during a time of exciting change. You will build the Fund's influence with government and political stakeholders, advancing community priorities through evidence-based advocacy and public affairs that demonstrates how our funding strengthens communities and delivers policy objectives.

Your insight into the political landscape will help shape both regional funding decisions and national policy positions, as you drive engagement with elected representatives, ministers, and officials. By providing timely intelligence and analysis of policy developments affecting our work, you will position the Fund as an authoritative voice on social change. Your understanding of devolved politics will be crucial in helping colleagues navigate distinct policy contexts while maintaining a coherent UK-wide approach.

Working with colleagues across communications and funding teams, you will identify and act upon opportunities to demonstrate the impact of our funding on communities and how it aligns with government priorities.

The ideal candidate will bring strong political analysis skills combined with practical experience of public affairs and stakeholder engagement. You should have a solid understanding of parliamentary processes and government structures in either Northern Ireland or England and be able to translate complex policy into actionable communications strategies. Your background might include roles in public affairs, policy analysis, or government relations, ideally with exposure to the voluntary, community and social enterprise sector. You should excel at building relationships with diverse stakeholders and be adept at navigating complex political environments.

Key responsibilities

• Build and manage relationships with elected representatives and political stakeholders in your country
• Develop effective influencing strategies to advance the Fund's aims through stakeholder mapping and coordinated political engagement
• Create policy and positioning papers tailored to your country's context that drive positive change
• Provide high-quality briefings and messaging for senior stakeholders
• Monitor policy and political developments, providing actionable insights to colleagues
• Lead consultation responses that articulate the Fund's positions effectively
• Organise events that promote our objectives and celebrate community power
• Manage relationships with external political monitoring and specialist agencies

Location: You will be expected to be based in the country you will be supporting. We have a hybrid approach to working with work pattern and exact location agreed with the successful candidate. Our offices are in Belfast, Birmingham, Cardiff, Exeter, Glasgow, Leeds, London, Manchester, Newcastle and Newtown.

Interview Date: Week commencing 23rd June - Virtual

On application, please be clear which role you are applying for and align your supporting statement to the criteria below

Essential criteria

• Significant experience working with elected representatives, officials and other public affairs activities
• Evidence of ability in political analysis with parliamentary and legislative knowledge
• Experience in analysing policy developments and horizon-scanning to identify relevant opportunities
• Excellent written and verbal communication skills that influence audiences
• Experience in writing public affairs and policy briefings for senior stakeholders  
• Demonstrable experience of project management
• Experience working in a matrix organisation with competing deadlines
• Evidence of continuous professional development

Desirable criteria

• Relevant professional qualification
• Understanding of VCSE sector in relation to public affairs
• Experience working in a devolved administration and/or with regional stakeholders
• People management experience 

Equity, Diversity and Inclusion  

Communities in the UK come in all shapes and sizes. National Lottery funding is for everyone – therefore, we are committed to equity, diversity and inclusion and we work hard to ensure our funding reaches where it is needed.  

We also believe our people should represent the communities, organisations and individuals we work with. That’s why The National Lottery Community Fund is committed to being an inclusive employer and a great place to work. We recognise and celebrate the fact that our people come from diverse backgrounds. We positively welcome applications from people from ethnic minority backgrounds, people with disabilities or longstanding health conditions, people who are LGBTQ+, and people from different socio-economic and educational backgrounds, as well as people of all ages. 

As a Disability Confident Employer, we take a proactive approach in making reasonable adjustments, if needed, throughout the recruitment process and during employment. (This can be related to a physical and mental health condition.) 

The National Lottery Community Fund is seeking a Senior Government Relationship Manager to lead our relationships with governments across the UK as part of our newly restructured communications function. This role represents a significant opportunity in our new function as we implement our ambitious communications strategy that shifts from traditional grant-making support to demonstrating the powerful impact that communities have across the UK.

As a senior member of the External Affairs team and a key part of our wider communications team, you will lead our relationship with DCMS as our sponsor department and build a coherent approach to government relations across the UK that recognises the needs of all of the devolved administrations.  You will build connections with relevant government departments, acting as the key coordinator and source of knowledge and insight for all government-related activity at the Fund.

Your role as a trusted advisor to senior leadership on government relations and building our reputation will be critical to our success. Your political insight will help the Fund maintain its identity as a champion of community-led change while providing senior counsel on engaging with ministers and officials.

You will work in close collaboration with communications and funding colleagues to anticipate and mitigate risks in a structured way, handling sensitive issues when they arise. Your strong understanding of the political landscape and ability to build strong relationships will support the Fund’s wider strategic objectives.

We're looking for a government relations professional with significant experience who can build influential relationships across all levels of government and who can provide expert analysis of policy developments. The ideal candidate will bring a sophisticated understanding of the UK political landscape and the workings of government. You will be politically astute with experience navigating complex stakeholder environments and balancing diverse priorities. Your background might include policy development, stakeholder or government relations or public affairs in a government department, a public body or a large mission-driven organisation.

Key responsibilities

• Design and deliver a consistent approach to government relations across the UK, maintaining systems and processes for ensuring effective delivery
• Lead our sponsor relationship with DCMS and build relationships and connections with relevant departments, managing and co-ordinating responses to departmental requirements and identifying opportunities to demonstrate our value.
• Provide strategic horizon scanning and expert policy analysis, disseminating information and advice to senior leaders
• Coordinate the Fund's interactions with governments across the UK
• Develop engagement plans for ministers and senior officials
• Create high-quality briefing materials for senior leadership for meetings with government ministers and senior officials, attending meetings as appropriate
• Lead on policy positioning papers on key issues
• Support Communications colleagues to ensure country and regional government relations are aligned

Location: We have a hybrid approach to working. Work pattern and location will be agreed with the successful candidate. The role can be based at any of our UK offices: Belfast, Birmingham, Cardiff, Exeter, Glasgow, Leeds, London, Newcastle and Newtown.

Interview dates: Week commencing 30th June and 7th July

On application, please align your supporting statement to the criteria below

Essential criteria

• Significant experience in government relations, policy and public affairs, working with government departments, ministers and officials
• Understanding of DCMS and its broader universe, particularly related to VCSE sector
• Strong background in political analysis skills, parliamentary and legislative knowledge
• Demonstrable success in influencing policy outcomes
• Experience advising senior leadership
• Excellent written and oral communication skills, evidence of ability to turn complex policy into useful briefings at short notice
• Ability to engage diverse political and other stakeholder audiences
• Project and matrix management experience, particularly in complex organisations managing competing deadlines.

Desirable criteria

• Experience with devolved administrations
• Background in non-departmental or arms-length public bodies
• Relevant professional qualification

Equity, Diversity and Inclusion 

Communities in the UK come in all shapes and sizes. National Lottery funding is for everyone – therefore, we are committed to equity, diversity and inclusion and we work hard to ensure our funding reaches where it is needed. 

We also believe our people should represent the communities, organisations and individuals we work with. That’s why the National Lottery Community Fund is committed to being an inclusive employer and a great place to work. We recognise and celebrate the fact that our people come from diverse backgrounds. We positively welcome applications from people from ethnic minority backgrounds, people with disabilities or longstanding health conditions, people who are LGBTQ+, and people from different socio-economic and educational backgrounds, as well as people of all ages.

As a Disability Confident Employer, we take a proactive approach in making reasonable adjustments, if needed, throughout the recruitment process and during employment. (This can be related to a physical and mental health condition.)

About you

Do you have excellent communication, organisational and interpersonal skills? Do you enjoy interacting with supporters and building lasting relationships?   Want to use your skills to make it possible for people with myeloma, an incurable blood cancer, to live longer and better lives? 

Myeloma UK is looking for a driven and pro-active Events Fundraiser to join our growing Community and Events team.  You’ll be joining the team as we continue to refine and expand our mass participation events portfolio including London Paris Ride, Great North Run and 100 miles for myeloma. You will have experience in event delivery or project planning, delivering these activities within tight deadlines while successfully building effective relationships.

The role holder will have strong administration skills, attention to detail and work as part of a team.  You will be self-motivated and able to work remotely with little supervision, managing a wide range of tasks and having an interest in sporting and mass participation fundraising events.

Previous experience or knowledge of digital marketing, virtual fundraising events and using Raiser’s Edge or similar CRM system would be an advantage but not essential. 

About the role

As the Events Fundraiser you will be required to research, promote and deliver fundraising events, campaigns and activities, providing excellent stewardship to supporters, whilst working to help achieve monthly fundraising income targets.  You will work to deliver an annual calendar of runs, walks, challenge and sporting events across the UK as well increasing support through Myeloma UK virtual and Facebook events.

The role holder will work with the Senior Event Development Fundraiser to provide the highest quality of event delivery as well as developing relationships, securing support, marketing, delivering and monitoring the event ensuring post event evaluation and future recommendations are made.  They will also work closely with Community Fundraisers, supporting them as they identify opportunities to expand and diversify their fundraising portfolio.

You will work with other teams, develop materials required to support all marketing and promotion of events, ensuring organisational brand, style and key messages are adopted and ensure maximum use of database and other technology to increase operational efficiency within event fundraising.

About us

Myeloma UK is the only UK charity focused on myeloma and its related conditions.  We provide support and influence access to treatments, while researching a cure.  Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well.  Together, we support, so no one faces myeloma alone. 

We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.

Our culture

Wellbeing and staff engagement are at the heart of our culture.  We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.

How to apply

If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:

1. A cover letter telling us more about you and what you think makes you a good fit for this role

2. A CV that sets out your career history, with key responsibilities and achievements

Applications close on 15 June 2025 and interviews will be held w/c 23 June 2025.

Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:

· sex

· race

· disability

· age

· sexual orientation

· gender reassignment

· religion or belief

· marital status

· pregnancy and maternity

Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.

Do you share our dream of a UK where poverty is a thing of the past? 

Founded in 2019, the Poverty Truth Network believes that this can only happen when those most impacted by poverty are at the heart of the movement to end it. Our specific contribution brings together people experiencing poverty with those with responsibilities for alleviating it. “Nothing About Us Without Us Is For Us.” 

Thanks to funding from the National Lottery Community Fund, the PTN is recruiting a Partnerships Manager who will provide management and oversight of key partnerships essential to the delivery of the Network’s Strategic Plan, with a specific focus on the development and delivery of Regional Hubs.

You will have experience of establishing and delivering partnerships; dedicated to social justice; a commitment to collaborative working; and proven management experience.

Key Tasks

• To form part of the Core Leadership Team, providing overall strategic leadership across the Network 
• To manage the Partnership team, setting clear goals and objectives linked to the Strategic Plan 
• To lead on the development and support of Regional Hubs, including support with grant funding and income generation
• To act as the primary point of contact with Regional Hubs, for initial enquiries and ongoing relationships, including with staff and trustees
• To provide oversight of the Network’s Parliamentary work in Westminster and across the devolved administrations
• To oversee the Network’s Learning & Evaluation framework, offering insight and advice as appropriate, ensuring that agreed activities are delivered on time and in budget 
• To be the primary point of contact for partners working alongside the Network to deliver change in line with its Strategic Plan
• To recruit external partners to participate in the Mutual Mentoring programme
• To liaise closely with members of the Amplify Team in the development of national partnerships
• To develop and support work with creative partners to highlight the resilience of those struggling to overcome poverty
• To deputise for the Director as and when required
• To undertake other activities as needed dependent on jobholder’s knowledge, skills and experience

This role involves working from home with some travel.

Do you share our dream of a UK where poverty is a thing of the past? 

Founded in 2019, the Poverty Truth Network believes that this can only happen when those most impacted by poverty are at the heart of the movement to end it. Our specific contribution brings together people experiencing poverty with those with responsibilities for alleviating it. “Nothing About Us Without Us Is For Us.” 

Thanks to funding from the National Lottery Community Fund, we are recruiting for an Operations Manager who will be responsible for the day-to-day operations of the Poverty Truth Network, including the oversight of systems, staff performance and finances. 

You will be a highly motivated person with a clear leadership record; dedicated to social justice; with a proven track record of operational delivery, including financial, administrative and governance management.

Key tasks of the role:

• To form part of the Core Leadership Team, providing overall strategic leadership across the Network 
• To lead on the financial management of the Poverty Truth Network, including the delivery of Management Accounts and the production of an annual budget
• To manage the Operations Team, setting clear goals and objectives linked to the Strategic Plan
• To lead on and establish the appropriate processes to ensure high levels of staff performance and development, including appraisals and performance management 
• To develop, and where necessary implement, administrative systems which ensure effective, efficient and safe practice across the Network
• To ensure that the Network operates in line with its charitable purposes, overseeing changes to its constitution as and when necessary
• To regularly update the Charity’s policies and procedures, ensuring compliance with the relevant regulations / legislation, providing advice to the Director and trustees as appropriate 
• To oversee the production and sharing of papers for trustees in an organised and timeous manner
• To oversee the effective running of online and in-person meetings and events for the Network, liaising with other teams as appropriate
• To lead on the delivery of the Network’s Support Grant Programme
• To deputise for the Director as and when required
• Undertake other activities as needed dependent on jobholder’s knowledge, skills and experience

This role involves working from home with some travel.

The Bumblebee Conservation Trust (the Trust) is looking for a part-time, 28 hours per week, Marketing Communications Manager.

If you are looking to join a talented and creative team that is passionate about nature, then we would love to hear from you. Our vision is of a future where bumblebees are thriving and valued by everyone; marketing and communications is central to us achieving that.

Your role will be to lead the Marketing and Communications team to develop and deliver a Marketing and Communications Plan that inspires and enables people from all backgrounds to take action to support bumblebees. Actions may include donating/ fundraising, political advocacy, volunteering/ surveying, or creating bumblebee habitats (everything from a window box up!).

You will work with colleagues across the Trust to deliver both national and project level campaigns and strengthen the Trust’s brand, website, PR, and social media engagement.

You will be a self-motivated creative thinker with proven leadership and management skills and experience in delivering engaging campaigns across a variety of media channels.

Please refer to the job description and person specification for more details of the role.

This is a part-time post for 28 hours per week.  Some overtime work may be required and a flexitime system is in place.

This post will be employed on a permanent basis and can be based at the Trust’s office in Stirling, be home-based or be a hybrid between the Trust’s office in Stirling and home-working.

The Trust is an Equal Opportunities employer.  This means that whilst seeking employment or during such employment with the Trust, we will seek to ensure equality of treatment for all persons regardless of sex, race, age, marital or civil partnership status, disability, religion or belief, sexual orientation, gender reassignment, pregnancy or maternity status. At the Trust, we have a clear goal: to be the place where a diverse mix of talented people want to come, to stay and do their best work. We pride ourselves on reaching for our vision, through the hard work and dedication of our passionate and creative employees.