Head of events jobs in newcastle, newry, mourne and down
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This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
This is a new role within the Bereavement Support Service proactively engaging bereaved families with the support service, respond to bereavement support digital enquiries, working in a team to deliver and ensure anyone seeking advice and support on bereavement is given a high-quality service in a timely way.
The aim of this post is to provide consistent, high-quality emotional support via digital channels to bereaved families who seek support from the Lullaby Trust.
Main duties and responsibilities
1. Proactively engage bereaved families with the support service, respond to bereavement support digital enquiries, working in a team to deliver and ensure anyone seeking advice and support on bereavement is given a high-quality service in a timely way.
· Assist with the setting up of new digital channels to be used by the Lullaby Trust to answer and respond to bereaved families.
· To be the primary contact for the bereavement support digital services including WhatsApp, text, webchat and other social media channels.
· Proactively engage with bereaved families through social media and other online platforms.
· Ensure any safeguarding concerns are actioned in accordance with the organisations Safeguarding policy.
· Send materials to bereaved contacts, including bereavement packs and follow up emails and ensure all documents and databases are updated with each contact in line with the department guidelines, including Raiser’s Edge, Excel databases.
· Cover and answer the bereavement support helpline and online enquiries responding within the set guidelines and KPIs for the department.
· Ensure any messages on Bereavement Support Facebook Groups are monitored and advice is given via befrienders where appropriate.
· Attend face to face events for bereaved families including family days and memorial events when needed.
· Work with Income and Engagement Team around social media bereavement support content/posts.
2. Deliver and run live bereavement themed sessions on social media
· Run monthly live sessions on social media on bereavement topics/themes, responding to comments and messages during and after the sessions, ensuring anyone seeking ongoing support is responded to and referred to relevant services .
· Work with the Engagement Team to promote live session.
· Facilitate monthly remembrance sessions.
3. Ensure the bereavement support services are promoted to those bereaved and to professionals working with bereaved families
· Assist with the recruitment and facilitation of Bereaved Families’ Panel.
· Keep up to date with the bereavement support world including joining National Bereavement Alliance, Child Bereavement Network and research around grief and bereavement.
· Attend events as required to represent the Lullaby Trust’s bereavement support services.
4. Maintain accurate records throughout all services, complying with the organisation’s recording and reporting requirements
Maintain ongoing knowledge and training on the Lullaby Trust’s advice and the scientific knowledge behind this advice.
Collate statistics, as required on areas of work within the support services team.
Assist with the services’ evaluation and impact processes.
Provide other administrative support to the team as required.
Other:
Attend and participate with external supervision sessions, managerial supervision and team and organisational meetings.
Safer sleep for babies, Support for families

The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Role: Healthcare Partnerships Lead
Hours: 22.5hr hrs per week, (3 days)
Location: Homebased within the UK with a requirement to travel and support in person events, conferences and meetings
Reporting to: Director of Programmes and Partnerships
Benefits: Flexible working arrangements, 28 days of annual leave (FTE) + 1 day for your birthday, pension scheme
Key relationships: Managing external relationships with key healthcare professionals and partners and working closely with our Medical Advisor and Information and Research Manager
Salary: £38,000 per annum (FTE)
Essential: Access to own car and full clean driving licence
About The Role
Do you have experience in working collaboratively, establishing meaningful partnerships within the healthcare sector and are looking to make an impact at the world’s leading multiple sclerosis healthy lifestyle charity?
We’re looking for an experienced Healthcare Partnerships Lead to continue to steer the delivery of our Healthcare Engagement Strategy and build upon our Program expertise. With a strong focus on reducing health inequalities, you’ll lead, develop and deliver activities that meet our strategic ambition to ensure that as many people as possible understand that there is hope after an MS diagnosis.
We need to engage with healthcare professionals as, for many people with MS, this group are the first people they seek credible information from and will potentially have a life-long relationship with, given the incurable nature of the condition.
About Us
Overcoming MS is the world’s leading multiple sclerosis healthy lifestyle charity established in 2012. We are unique in our whole person approach and practical evidence-based focus upon self-management of MS, formulated as a holistic program. At Overcoming MS, we are here for everyone with MS who wants to take control of their health and wellbeing.
Although there is currently no cure for MS, we help people with MS to live well by making informed lifestyle choices. They have clear, practical actions to take, by following an evidence-based self-management program. This program uses substantial scientific evidence of how holistic self-care, alongside medical therapies, benefits people’s physical and mental health. Knowing people can change their risk of deterioration through lifestyle choices gives hope to us all.
Our vision is that people with MS feels empowered to take control of their health, are making informed lifestyle choices and living a full and healthy life.
Overcoming MS Strategy
Our strategy for 2024 to 2026 establishes five key objectives:
Raise awareness within the global MS community of the importance of healthy lifestyle and the Overcoming MS Program.
Deliver world class information, tools and support to the Overcoming MS community, empowering them with the confidence and knowledge to follow, understand and share the Program, wherever they start.
Build the authority of Overcoming MS through developing team expertise, communicating the existing evidence base, building new evidence, and through influencing and working in partnerships.
Grow a collaborative, knowledgeable, passionate and sustainable team of staff, facilitators and volunteers.
Develop financial growth and independence through reducing our cost base, increasing fundraising via diversified activity, and generating income through other sources.
Job Description
The Healthcare Partnerships Lead will be responsible for the delivery of our Healthcare Engagement Strategy, through the development and delivery of projects and activities which embrace collaboration, raise the profile and credibility of both the Overcoming MS charity and Program, and extend supported self- management of MS within the health and social sector. We want to be the go-to charity for lifestyle and living well with MS and to demonstrate the added value we bring through education, resources, community and partnership working.
The past 12 months have seen the laying of a strong foundation for both increasing credibility and collaboration. This has included identifying barriers to supporting self-management in MS, developing education, piloting projects and resources to overcome some of those barriers in partnership with healthcare professionals. Honing datasets and presenting these meaningfully, has added credibility and demonstrated value. We want to see that foundation built on further, and shared more widely, taken forward by the new Healthcare Partnerships Lead.
Key Responsibilities
· The successful delivery of the Healthcare Engagement Strategy, identifying and prioritising engagement with our key audiences and stakeholders.
· Working closely with both our Medical Advisor, Information and Research Manager (new role) and with the existing HCP Advisory Group and wider engaged healthcare partners, to facilitate the development of the relationship, profile and reach between the charity and the health and social care sectors. Around information sharing, service design, and understanding of the role of lifestyle in holistic management of MS.
· Identifying and attending key healthcare events and conferences, building networks, partnerships and other resources to increase knowledge and awareness of how the charity and Overcoming MS Program, benefits people with MS and maximise opportunities for signposting.
· Building frameworks for data gathering and evaluation to effectively review benefit of collaborative interventions and report outcomes widely and meaningfully, in partnership with the Information and Research Manager.
· Maintaining understanding of policy and priorities of healthcare agencies to ensure mutual or aligned priorities from both, in addition to people living with MS, are all factors taken into consideration when developing plans and pathways.
· Identifying opportunities for collaboration and partnership working through engagement with HCP professionals and organisations.
· Lead on healthcare education through our existing partnership with the British Society of Lifestyle Medicine, marketing the education widely, evaluating its benefit to HCPs and strategically reviewing the format, vehicle and content as appropriate.
· Providing clear, responsive and consistent educational content around the importance of lifestyle choices and behaviours to healthcare professionals based on the current evidence-base and the Overcoming MS Program, working closely with the Information & Research Manager to ensure up-to-date and validated content.
Other Responsibilities
· Creating meaningful engagement with the MS community and healthcare professional partners, widening our reach to support more people with MS.
· Mapping local assets and services to target and test appropriate resources and support to MS clinics, to help HCPs share information and support their patients to self-manage, tracking success.
· Empowering people affected by MS and their healthcare professionals to discuss lifestyle modification and the Overcoming MS Program with confidence, improving self-management and health outcomes.
· Engaging new HCP audiences, reducing barriers and perceptions of lifestyle modification in the treatment of MS.
· Leading on the delivery, monitoring and evaluation of key programmes, considering key insight, collecting and analysing data to measure impact against project and charity targets.
· Supporting the delivery of key products, services and events both in person and online that reach multiple audiences and budgeting accordingly.
· Identifying opportunities for accessing funding streams, working with Fundraising colleagues to diversify our income base.
· Raising our profile within the healthcare environment so that they recommend the charity and will advocate on our behalf.
· As we are a small, busy charity, all staff help with the general running of the organisation in addition to their specific role activities.
About you
Education or experience in a related field e.g. healthcare management, public health, you’ll have a strong understanding of the NHS, Public Health and the UK health care policy landscape. Knowledge of the global health care landscape would be an advantage but not essential.
You’ll have previous experience as a senior healthcare lead or similar role for example within the NHS or similar medical field or will have experience leading community or public health related engagement programmes.
With excellent communication, presentation and influencing skills, including working with stakeholders at very senior and professional levels, you’ll have strategic analytical skills, able to frame problems and solutions in a logical fashion and demonstrate a high degree of empathy and compassion for health-related issues.
You’ll have intellectual flexibility, able to embrace and deal with ambiguity, complexity and to be open to creativity in leading and bringing about effective change.
You are comfortable working remotely and attending events during evenings and weekends, with a full UK driving licence and access to a car.
What can we offer you?
Our staff benefits include:
• 28 days annual leave (FTE) plus a day off for your birthday and bank holidays
• Flexible working
• Remote working
• Pension
• Employee Assistance Programme
How to apply
Please send your CV and a covering letter by midnight on Sunday 8th June.
In your covering letter, please let us know:
-
Your motivation for applying for the role
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Why you feel your skills are suitable for the role
-
Your notice period
-
Your current location.
Please respond ASAP, as we will start screening candidates as soon as we receive applications.
First stage interviews will be held online on Tuesday 17th June.
Second stage interviews will be held online on Friday 20th June.
We are an equal opportunities employer, committed to diversity and inclusion in the workplace. We make hiring decisions based on merit. If you fill most or all the requirements, please apply.
No agency contact, please.
We're here for everyone with MS who wants to take control of their health and wellbeing.


The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The eoa exists to grow and strengthen employee ownership as a force for powering fairer livelihoods, stronger businesses, and a more resilient economy. With 800+ member businesses and a community of thousands of employee owners, we are the national voice for employee ownership in the UK.
Our refreshed strategy is focused on accelerating impact through people powered growth. We’re here to make employee ownership a mainstream business model choice—by expanding the sector, setting the standard for excellence, and building a connected, values-led ecosystem. We do this through sharp insight, high-impact advocacy, and a thriving member experience.
For founders and business owners exploring employee ownership, or for leaders and managers building Great EO businesses, the eoa offers tools, knowledge, experience and connection. We facilitate powerful peer learning, codify what works, and champion the stories that inspire others to choose EO.
Together with our members, we’re creating the conditions for employee ownership to thrive—seizing the political, cultural, and digital opportunities ahead. and this is where you come in.
As Director of Partnerships and Growth, you’ll be the driving force behind the eoa’s external influence and reach. you’ll lead our advocacy and external affairs strategy, build meaningful partnerships, and deliver powerful events programmes that accelerate adoption of Great EO. You’ll also shape the narrative—ensuring our insights, policy recommendations and thought leadership land with impact.
This is a high-profile, senior leadership role at a pivotal time for the EO community. It calls for someone with a track record in advocacy or external affairs, strong commercial acumen, and the ability to lead high-performing teams. It also needs a big-picture thinker - someone who can champion EO, influence change, and help us build a more inclusive, resilient economy.
If you’re excited about the opportunity to grow an economy that puts people at the heart of business, we’d love to hear from you.
Role Details
At the heart of this Director of Parnterships & Growth role is the opportunity to shape the external environment for employee ownership, champion the voice of our members, and lead high-impact strategies that grow both our reach and the sector itself.
You’ll lead on policy, advocacy, external affairs and events—crafting compelling narratives, building powerful partnerships, and delivering programmes that drive commercial sustainability and sector-wide change.
From shaping relationships with key stakeholders and securing strategic sponsorships, to overseeing the delivery of thought leadership, content, and events, you’ll ensure that the eoa is not just part of the national conversation—but leading it.
Your ability to influence, convene, and inspire will be critical to removing barriers to employee ownership and unlocking the potential of our £1.7m organisation to deliver even greater impact.
Join us on this exciting journey where your leadership will shape policy, grow influence, and contribute to our mission of unlocking the potential of people, businesses, and the economy through employee ownership.
This role is remote, however regular travel to our HQ in Brough and across the UK is expected.
Key Responsibilities
- Lead external affairs, collaborating with stakeholders to shape policy, advocacy and best practice that removes barriers and expands EO.
- Establish relationships and secure commercial partnerships and sponsorships, generating revenue to support advocacy, events, and sector growth initiatives.
- Engage key stakeholders to co-produce content that positively influence EO practice and policy and amplify the eoa’s voice in public affairs.
- Oversee delivery of an effective content strategy that delivers our commercial objectives and positions the eoa as the leading EO authority.
- Oversee events programmes, ensuring they drive knowledge-sharing, sector development, and commercial sustainability.
- Represent the eoa at industry forums, policy roundtables, and public affairs events, championing the employee ownership model.
- Collaborate with the Director of Membership & Operations to align advocacy efforts with member needs and engagement.
- Lead and develop high-performing teams, fostering innovation and delivering measurable impact across advocacy, policy, event activities.
Success in this role
Success in this role means having a positive impact on the growth rate, influence and adoption of great EO across the employee ownership sector. Strengthening and expanding stakeholder relationships, driving advocacy impact and securing commercial sustainability through a diverse mix of sponsorships, partnerships will also be indicators of success.
Key outcomes for the role
- Growth of the employee ownership sector. Measured by increased number of EO businesses, heightened sector awareness
- Strengthened corporate engagement. Measured by growth in strategic partnerships, corporate and government engagement
- Strong Commercial Sustainability. Measured by increased sponsorship revenue, secured long-term commercial partnerships
- Increased policy influence. Measured by policy recommendations adopted, increased government engagement
- Enhanced sector insight and intelligence. Measured by utilisation of high-quality data and insights for regular sector related content outputs.
- Development and adoption of best practice. Measured by creation, adoption and promotion of best practice across the EO network.
- Successful events programmes. Measured by iIncreased participation, sponsorship growth, positive feedback.
About you
- Proven expertise in advocacy, public affairs, or policy leadership, ideally within a business, trade body, or membership association.
- Strong stakeholder engagement skills, with experience influencing government, media, and corporate partners.
- Demonstrated ability to drive sectoral or policy change, leading successful advocacy initiatives.
- Strong commercial acumen, with experience in sponsorship acquisition, revenue generation, and developing financially sustainable initiatives.
- Exceptional strategic communication and storytelling skills, able to engage and mobilise diverse audiences.
- Experience in event programme development, ensuring high engagement and sector impact.
- Passion for employee ownership and economic models that promote shared prosperity.
- Innovative, creative, and proactive in problem-solving and strategy execution.
- A confident and transparent leader who fosters collaboration and inclusivity through teamwork.
- Self-aware with emotional intelligence, resilience, and integrity.
Role Summary
- Contract: Permanent
- Hours: Full time, 37.5 hours per week
- Location: Remote, with regular travel to eoa offices and national events
- Salary & Benefits: £65,000 p/a + 7% Pensions. 30 Days leave + Bank Holidays.
- Reports to: CEO
- Management: TBC
We exist to grow and strengthen employee ownership as a force for powering fairer livelihoods, stronger businesses, and a more resilient economy.





The client requests no contact from agencies or media sales.
The Charity and The Vision.
Scotty’s Little Soldiers is a UK-based charity dedicated to supporting military children and young people (0 to 25 years) who have experienced the death of a parent who served in the British Armed Forces. Founded in 2010 by Nikki Scott following the death of her husband, Corporal Lee Scott, the charity offers a unique blend of emotional, practical, and educational support to over 700 young people, and we have big ambitions to support over 1,000 children annually by 2030.
We are proud of our vibrant, non-traditional culture, which puts the needs of bereaved children and young people at the heart of everything we do. We embrace innovative approaches, are committed to creating smiles and believe in the power of community, resilience, and connection.
Scotty’s is seeking an experienced bereavement counsellor to join our small but effective team. The role involves supporting children and young people affected by bereavement, which may include death in service, illness, or suicide.
We want every bereaved military child and young person to have:
- Access to the very best emotional health and wellbeing support.
- Outstanding development opportunities.
- The chance to smile again.
We call these our Promises. Our promises align with our three programmes: SMILES, STRIDES and SUPPORT.
· The SMILES Programme provides children with the chance to smile again
· The STRIDES Programme provides children with outstanding development opportunities
· The SUPPORT Programme provides the very best emotional health and wellbeing support to children who are struggling to cope following a bereavement.
Our Bereavement Counsellor will be a valuable member of the SUPPORT Programme, delivering online 1:1 and group support to those who need it most. But all three programmes work closely together (we call this the Families team).
Role Mission:
The Scotty’s Bereavement Counsellor will work with our families who are struggling with their grief to help them understand their feelings, develop coping skills and build their new life.
This role will be accountable for:
Providing emotional support, counselling and therapeutic interventions to individuals and families coping with grief and loss. The role involves working compassionately and ethically with families affected by bereavement, helping them process their emotions and find ways to adjust to life after a loss.
The Bereavement Counsellor will work collaboratively with the SUPPORT team and the wider Families team to ensure that all work undertaken by Scotty’s is delivered in a supportive and sensitive manner and that Scotty families receive exemplary care.
What are the 3-month goals for this role:
· Within three months the Counsellor will have developed their knowledge of the range of services that Scotty’s offers to our families so that they can advise and support families in their case load.
· Will have begun to learn and understand the Scotty Values and the Scotty Way (we do things a little differently and our culture is very important to us and our families!).
· Would have begun supporting the families assigned to their caseload by the Head of SUPPORT. This will predominantly if not entirely be online 1:1 delivery.
· Will have completed all necessary safeguarding training and be part of the Scotty’s Safeguarding team.
· Begun attending peer supervision sessions with the SUPPORT team.
What are the 6-month goals for this role:
· Will have established a caseload as assigned by the Head of SUPPORT which is likely to include 1:1 online sessions, and may also include online group sessions, drop ins or workshops.
· Will have begun to support the wider Families team by attending Scotty events. At Scotty events, a SUPPORT team member often attends to provide support to any families in distress (this may require occasional weekend or evening work).
· Will be working cohesively with the Families team and the wider Scotty team to share your knowledge and skills. Scotty’s values a culture of learning and strives to ensure team members can learn from one another’s expertise.
· Will be contributing to peer supervision sessions to ensure all SUPPORT team members are able to give the best support to families.
· Regularly meeting with your selected external supervisor.
What are the 9-month goals for this role:
· Will be supporting a caseload as assigned by the Head of SUPPORT, with emerging impact data showing the success of your support. Scotty’s uses the Child Bereavement Service Questionnaire (CBSQ) developed by the CBN to monitor the impact of 1:1 support and the Strengths and Difficulties Questionnaire (SDQ) for pre-bereavement support.
· Will be a valuable member of the SUPPORT programme, Families and wider Scotty team. Providing first rate bereavement counselling and support directly to families but also indirectly helping families by working collaboratively with other team members.
What are the key responsibilities of this role:
· Managing a caseload and delivering one to one counselling sessions as assigned by the Head of SUPPORT. This will predominantly be online delivery using Teams video calling but also other formats as needed by families.
· Facilitate group therapy or support groups when appropriate.
· Conduct initial assessment to determine clients’ needs and suitability for counselling.
· Maintaining accurate and confidential case notes in a timely fashion using our Salesforce based system in accordance with data protection and organisational policies.
· Adhering to all safeguarding requirements and operating as part of the Scotty Safeguarding team to maintain the highest standards across the charity.
· Supporting the development of resources and materials as needed.
· Working collaboratively within the SUPPORT team, including peer supervision.
· Working collaboratively and effectively within the Families team to ensure that families are directed to the appropriate services in a timely fashion. This could include directing families you are working with towards our educational grants, our respite breaks, our events, our school support or our advocacy.
· Liaise with healthcare and mental health professionals such as GPs, CAMHS and social workers or other professionals where appropriate to ensure holistic care and management of risk.
· Attending at least six (mandatory) face to face team days, normally located in the East of England.
· Participate in regular clinical supervision and continuing professional development.
Skillset and Experiences Required:
Essential
· Member of the British Association for Counselling and Psychotherapy (BACP) or United Kingdom Council for Psychotherapy (UKCP). We may consider applications from practitioners with HCPC or NCS membership too.
· Level 4 Counselling / Psychotherapy Diploma or above.
· Significant experience (post qualification) providing bereavement counselling, to children or young people (0-25yrs).
· Experience and training with NICE-approved talking therapies.
· Demonstrated knowledge of issues surrounding bereavement.
· Ability to manage caseload effectively.
· Willingness to work flexible hours to accommodate children’s needs (this may include evening work to avoid school hours at times).
· Excellent computer literacy.
· Ability to develop good therapeutic relationships with families.
· Ability to engage with peer supervision and Scotty’s funded external supervision effectively.
· Ability to engage with a culture of continuous learning and support the learning of others.
· Ability to work flexibly as part of a team and independently to meet the needs of the service.
· Commitment to professional standards and ethical practice.
Desirable
· Accredited member of BACP.
· Knowledge or experience of or with the military community.
· Experience of online counselling.
· Experience (post qualification) providing pre-bereavement counselling or support.
· Experience of supporting those bereaved by suicide.
· Knowledge of or experience using assessment tools such as SDQs or CBSQs.
· Knowledge of statutory mental health provision and systems including CAMHS and EHCPs.
· Experience of providing counselling or support to young people with SEND or additional needs.
· Ability to drive with access to own transport is an advantage as some team meetings can take place away from public transport routes.
· Experience working within a hospice, NHS or charitable setting.
Additional Information
- The role may require evening or weekend work
- Enhanced DBS check required
- Travel will be required to events and team training days
The Scotty’s Way
At Scotty’s, our personal performance is only 50% of what success looks like. Our culture is equally important. When you join our team, you sign up to The Scotty’s Way, rooted in our four core values:
1. Families Come First
2. Everyone a Supporter, Every Supporter a VIP
3. Love What You Do
4. Remember, Every Day
Our values are further supported by our four non-negotiable behaviours of Show Respect, Speak Up, Embrace Change and Actively Collaborate. We are looking for an individual who embodies these values and behaviours.
Thank you for your interest in joining our team, we are an equal opportunities employer, we are committed to creating a diverse and inclusive workplace where all employees are treated with respect and given equal opportunities for employment and advancement.
We do not discriminate on the basis of race, colour, religion, gender, sexual orientation, age, disability or any other protected characteristic.
We encourage all qualified individuals to apply for employment within our charity, and we are dedicated to providing a fair and inclusive recruitment process for all candidates.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The role
The children and young people’s bereavement programme in Wales is looking to increase and improve its current services. We are looking for people to take this team forward over the next few years. Working closely with the rest of the Wales team and line managed by the Head of Wales, this is an exciting opportunity for people with empathy, motivation and team working. Please note this role will require travel across North Wales.
How to apply
Your application must consist of a CV and covering letter, which outlines your suitability for the role with reference to the Job Description and Person Specification and should be no longer than two pages.
Closing date for applications is 9am on 2 June 2025. We reserve the right to close the advert early, as interviews will be held as suitable candidates apply.
Please be advised that we will only contact success applicants for interview. If you do not hear from us, unfortunately on this occasion you have not been shortlisted.
Cruse welcomes and encourages applications from all protected groups as defined by the Equality Act 2010. Appointment will be made on merit.
Criminal Record Checks
All staff are required to complete a Criminal Record check. Staff working directly with clients will be required to complete an enhanced check. We comply with the relevant codes of practice and they can be viewed online:
· Applicants in England and Wales: DBS Code of Practice
· Applicants in Northern Ireland: AccessNI Code of Practice
Previous convictions will not prevent full consideration of your application to work with Cruse. Our Recruitment of Ex-offenders' Policy & Handling Criminal Record Check Data Policy are available on request by email.
We comply with all relevant data protection legislation and process your data fairly.
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Y rôl
Mae’r rhaglen brofedigaeth plant a phobl ifanc yng Nghymru eisiau cynyddu a gwella ei gwasanaethau presennol. Mae’n adeg gyffrous i newid a datblygu. Rydym yn chwilio am ddau unigolyn i ddatblygu’r tîm hwn yn ystod y blynyddoedd nesaf. Bydd yr unigolion hyn yn gweithio’n agos â gweddill y tîm yng Nghymru ac yn cael eu rheoli gan Bennaeth Cymru. Mae hwn yn gyfle cyffrous i bobl ag empathi a phenderfyniad sy’n mwynhau gweithio mewn tîm.
Sut i wneud cais
Mae rhaid i’ch cais gynnwys CV a llythyr eglurhaol yn amlinellu eich addasrwydd ar gyfer y swydd ac yn cyfeirio at y Swydd-ddisgrifiad a Manyleb y Person. Ni ddylai fod yn fwy na dwy dudalen o hyd.
Y dyddiad cau ar gyfer ceisiadau yw 9am ar 2 Mehefin 2025. Rydym yn cadw’r hawl i gau’r hysbyseb yn fuan gan y byddwn yn cynnal cyfweliadau wrth i ymgeiswyr addas gyflwyno cais.
Noder: byddwn ond yn cysylltu ag ymgeiswyr llwyddiannus i drefnu cyfweliad. Os na fyddwch yn clywed gennym, yn anffodus nid ydych wedi cyrraedd y rhestr fer y tro hwn.
Mae Cruse yn croesawu ac yn annog ceisiadau gan bob grŵp gwarchodedig fel y diffinnir gan Ddeddf Cydraddoldeb 2010. Byddwn yn penodi ar sail teilyngdod.
Gwiriadau Cofnod Troseddol
Disgwylir i’r holl staff gwblhau gwiriad Cofnod Troseddol. Bydd angen i staff sy’n gweithio’n uniongyrchol â chleientiaid gwblhau gwiriad manylach. Rydym yn cydymffurfio â’r codau ymarfer perthnasol. Gellir eu gweld ar-lein:
· Ymgeiswyr yng Nghymru a Lloegr: Cod Ymarfer DBS
· Ymgeiswyr yng Ngogledd Iwerddon: Cod Ymarfer AccessNI
Ni fydd euogfarnau blaenorol yn atal eich cais i weithio gyda Cruse rhag cael ei ystyried yn llawn. Mae ein Polisi Recriwtio Cyn-droseddwyr a’n Polisi Trin Data Gwirio Cofnodion Troseddol ar gael ar gais trwy e-bost.
Rydym yn cydymffurfio â’r holl ddeddfwriaeth diogelu data berthnasol ac yn prosesu eich data’n deg.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?
Brain Tumour Research is seeking an experienced and motivated Community Development Manager to join our team and lead the West team of Community Fundraisers to reach ambitious goals and grow our presence with our West region.
Position: Community Development Manager (West)
Location: Home-based, within our West region which includes South West England, West Midlands, Wales, Gloucestershire, Bristol, Hampshire, Berkshire, Dorset and Oxfordshire.
Salary: Circa £43K per annum
Hours: Full time, 35 hours per week
Benefits: Holiday entitlement, 25 days per annum, excluding UK Public Holidays, access to an Employee Assistance Programme, personal safety app, and option to join our healthcare scheme.
Closing Date: Friday 30th May. Early applications will be considered as they are received and, as a result, the closing date may be brought forward.
About the Role
Brain Tumour Research is a growing charity with a diverse range of exciting and fast-paced campaigns and activities. Our Community Fundraisers are at the heart of everything we do, and responsible for income generated through Regional Workplace Fundraising, Challenge Events, Fundraise your Way (including schools, individuals and community groups), Fundraising Groups and our flagship campaigns which are Walk of Hope and Wear A Hat Day.
The Community Development Manager will lead of team of Community Fundraisers across the West of England and Wales, stewarding supporters to generate and grow income in order to achieve a regional team target of approximately £1 million. You will work within an innovative and supportive fundraising team, who are passionate about our cause as well as cross-functionally with teams such as PR and Comms, and the Research, Policy and Fundraising departments.
About Brain Tumour Research
Brain Tumour Research is an exciting, innovative and ambitious charity. You will play a crucial role in helping the charity meet its strategic plans and objectives, which include campaigning to increase the national investment in brain tumour research to £35 million per year, while fundraising to create a network of seven sustainable Brain Tumour Research Centres of Excellence across the UK.
We are invested in our employees and are proud to be accredited by Investors in People.
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.
We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process. Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.
To apply: Please send your CV via our Application System. See attached for a copy of the JD.
To find a cure for all types of brain tumours To increase the UK investment in brain tumour research

The client requests no contact from agencies or media sales.
We’re looking for someone who enjoys variety and takes pride in their work to join our flexible, remotely-based team as our new Communications Officer.
Hearing the challenges that the individuals we support are facing keeps us focused. As Communications Officer, you’ll play a key role in communicating the support our charity offers the engineering community, while also engaging our supporters by bringing our community’s stories to life.
We’re redefining relationships with long-standing communications partners, building new relationships, and building our presence across new platforms and communities.
As Communications Officer, you'll be pivotal in making sure our voice is heard through regular communications, and delivering our impact report and annual report.
We find creative ways of working as a team and look to showcase the individual talents and personalities that people bring to their role. At Foothold, you’ll have the opportunity to showcase and develop your skills across digital design, video and copy.
We encourage our team to be all-
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
About VODG
The Voluntary Organisations Disability Group (VODG) represents over 130 organisations within the voluntary sector whose work is focused on enabling disabled people of all ages to live the lives they choose. VODG believes that an ambitious, reliable and vibrant voluntary sector that works together is critical to achieving this aim.
VODG’s mission is focused on two key areas – enabling our members to be the best they can and improving the environment in which its members operate. VODG believes that our membership approach and operations should centre around the views of disabled people and be influenced by professional expertise.
Introduction to the role
Reporting to the Head of Membership and Operations, the Business Development and Partnership Manager will play a crucial role in driving sustainable growth and cultivating strategic partnerships that align with the organisation's core mission and values. This newly created position aims to strengthen our expansion efforts and help us adapt to the changing landscape of care and support for disabled people.
We are seeking a dynamic and results-oriented Business Development and Partnership Manager who will lead initiatives to identify, develop, and manage partnerships that can drive significant growth and enhance our market presence. This role will also focus on existing revenue streams and explore new areas for development and growth. The position requires exceptional relationship-building skills and a deep understanding of partnership management. It also requires a strategic approach that blends attention to detail and results-oriented delivery.
The ideal candidate will have strong communication skills to effectively engage with stakeholders at all levels, along with a proven track record of successful partnership management and revenue growth. As we continue with our growth plans, this role will be essential in advancing our organisational goals and objectives while fostering an environment both internally and externally that draws in expertise and insight from beyond our membership.
Purpose of role
The role will:
· Formulate and nurture strategic partnerships with corporate partners and non-profit organisations.
· Enhance the visibility and reputation of VODG among key stakeholders.
· Identify and pursue new business opportunities aligning with VODG’s mission and vision.
· Manage relationships with a diverse range of stakeholders.
· Foster collaboration and create synergetic relationships for mutual benefits.
· Assess partnership effectiveness through detailed metrics and feedback.
· Negotiate corporate partnerships and secure commercial sponsorships.
· Build long-term relationships that promote shared goals and lead to the development of new business opportunities.
· Focus on exploring new areas for development and growth.
· Support internal colleagues, as necessary, on partnership grants and awards.
· Coordinate with colleagues for alignment of activities with organisational goals.
Specific responsibilities and duties
Business Development Strategy and Implementation
· Develop and implement comprehensive business development strategies to identify and secure partnership opportunities.
· Identify and explore innovative areas for development and growth.
· Set clear goals and objectives to measure the success of business development efforts. Analyse market trends and the competitive landscape to inform partnership strategies.
Partnership Development and Relationship Management
· Identify and engage potential partners while building and maintaining strong relationships with existing stakeholders.
· Serve as the main point of contact for key partners, ensuring their needs are met and expectations exceeded.
Opportunity Identification and Market Research
· Identify and evaluate new business opportunities and partnerships that align with organisational goals, including new membership opportunities.
· Conduct market research to recognise trends, opportunities, and challenges in the sector, analysing competitor activities to inform strategies.
· Deliver on existing opportunities and identify new ones, including sponsorship activities for events, projects, programmes, work, events and conferences, and smaller strategic roundtables.
Negotiation and Contract Management
· Lead detailed negotiations for partnership agreements, ensuring favourable terms for both parties, and oversee contract management to ensure compliance and performance monitoring.
Collaboration and Project Management
· Work closely with internal colleagues to align partnership initiatives with business objectives, managing execution to ensure initiatives align with organisational priorities.
· Collaborate with internal teams to coordinate campaigns and promotional events effectively.
Performance Tracking and Financial Management
· Monitor and analyse partnership performance, using data to refine strategies and maximise impact. Prepare regular updates on business development activities and partnership outcomes.
· Prepare budgets and financial forecasts related to business development activities, monitoring and reporting on the financial performance of initiatives and partnerships.
Networking and Representation
· Represent the organisation at industry conferences, trade shows, and networking events to promote business development initiatives and cultivate a strong professional network for future partnerships.
·Engage in community outreach and represent the organisation in public forums to expand its network and promote its mission
Our vision is for an ambitious, trusted and vibrant voluntary sector that works together to enable disabled people to live the lives they choose.



The client requests no contact from agencies or media sales.
Winston’s Wish is a digital first organisation leading the way in Digital Transformation across the Bereavement sector. We have an exciting opportunity to join our ambitious Mass participation team as our Individual Giving Manager. This role plays a vital part in helping Winston’s Wish turn up the dial across our Individual Giving Fundraising. The Individual Giving Manager is responsible for creating, developing and delivering a fundraising plan to grow existing and new support for Winston’s Wish across our online and offline channels. This includes Direct Mails, Regular Giving, our Lottery, Legacies and In Memory giving income streams.
As the driving force behind our individual giving activity, you will help us to engage individuals across the country by bringing them closer to our work, encouraging them to stay longer, give more and become true ambassadors for our vital work with grieving children, young people and families. We’re looking for a highly creative individual who can help us to stay one-step ahead of the curve and excite new and existing audiences to get behind our vision of a society in which every child can get the help they need when someone close to them has died.
MAIN RESPONSIBILITIES
Strategy
- Lead on the development and implementation of our Individual Giving strategy, supported by the Head of Mass Participation and the Director of Fundraising & Marketing.
- Ensure all opportunities and future plans are in line with Winston’s Wish’s over-arching fundraising strategy to meet financial targets, organisational objectives and KPIs.
- Maintain an awareness of philanthropy trends, news, events and legislation in the UK to ensure that Winston’s Wish remains up to date on key changes which are likely to impact on individual giving.
Generating Individual Giving Income
- Lead on and deliver a plan to increase individual giving income from streams including, but not exclusive to, direct mail, regular giving, legacies, in-mem and our charity lottery
- Effective use of KPIs to ensure decisions are driven by evidence and real-time data.
- Continuously analyse our income and supporter data to measure effectiveness of activities and return on investment.
- Work alongside our design agencies and in-house marketing team to develop and manage direct mail campaigns, including segmentation to ensure campaigns will be carefully targeted and designed to maximise income.
- Explore and test new methods for donor recruitment and increasing donations.
- Seek every opportunity to increase awareness of legacy giving to Winston’s Wish and monitor the effectiveness of these activities over time.
- Manage a growing portfolio of legacy enquirers with appropriate contact and timely solicitation of prospective legators including hosting events and tailored stewardship.
- Manage the stewardship and development of our regular giving programme including uplift campaigns and solicitation of new donors to agreed targets.
- Work alongside the wider fundraising team to ensure effective cross-selling of individual giving products and vice-versa identify opportunities to introduce other fundraising products to our individual givers.
- Identify supporters who could provide compelling content which could be used by the wider Fundraising & Marketing team to inspire further support including suggesting key individuals who could feature in online and offline publications.
- Work with the Philanthropy & Partnerships Manager to ensure that potential major donors are identified and included in relevant activities.
Administration
- Diligently maintain records of all interactions with supporters on Salesforce.
- Ensure all activities comply with appropriate legal, regulatory and fundraising good practice and with Winston’s Wish policies and standards.
- Keep a close eye on incoming donations to ensure they are coded correctly and that supporter data is accurately recorded in accordance with GDPR.
- Effective management and control of expenditure across all projects and campaigns in line with agreed expenditure budgets.
All Staff
- Contribute to the vision and mission of Winston's Wish; working with colleagues in all teams to meet the objectives of Winston’s Wish.
- Work to objectives, targets and work plans agreed with your line manager.
- Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
- Take an active part in the one-to-one process and participate in training agreed with your line manager.
- Contribute to the wider charity sector and childhood bereavement sector by getting to know those working in the same space and actively contributing to sector-wide events.
- Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Winston’s Wish policy.
- Promote equality of opportunity and diversity in accordance with Winston’s Wish policy.
PERSON SPECIFICATION
Essential
- A sound understanding of the principles of fundraising across individual giving, in-memory fundraising, and legacies.
- Proven track record of preparing successful programmes of activity and business plans to recruit, engage, inspire, and retain supporters in a not-for-profit organisation, or similar transferable experience gained in the commercial sector.
- Specific experience of delivering an individual giving programme.
- Experience of budgets, including planning, forecasting, and analysing performance.
- Experience of high-level use of a customer relationship management system.
- Experience of managing direct mail campaigns.
- Strong organisational skills and keen attention to detail to plan and schedule multiple activities, respond flexibly to opportunities, handle conflicting demands and meet tight deadlines.
Desirable
- Understanding of childhood bereavement.
- Experience of using Salesforce CRM.
Recruitment Timetable
Application deadline: Wednesday 28th May 2025
Interview date: Friday 13th June 2025
Interview location: MS Teams
Winston’s Wish reserves the right to close the vacancy early if we receive a high number of applications for the role before the closing date.
Winston’s Wish is a charity that helps children, teenagers and young adults find their feet when their worlds are turned upside down.

The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
About VODG
The Voluntary Organisations Disability Group (VODG) represents over 130 organisations within the voluntary sector whose work is focused on enabling disabled people of all ages to live the lives they choose. VODG believes that an ambitious, reliable and vibrant voluntary sector that works together is critical to achieving this aim.
VODG’s mission is focused on two key areas – enabling our members to be the best they can and improving the environment in which our members operate.
VODG believes that our membership approach and operations should centre around the views of disabled people and be influenced by professional expertise.
Introduction to the role
The coordinator role is crucial in enhancing the productivity and efficiency of the leadership team within the organisation. Serving as a central point of contact, this position involves a diverse range of responsibilities, from managing executives' calendars and coordinating meetings to handling communications with professionalism and discretion. By implementing improvements to organisational processes and maintaining meticulous record-keeping, the coordinator role contributes significantly to the smooth operation of daily activities of the organisation.
Additionally, the role involves coordinating events, assisting with project administration, and supporting financial reporting, all while embodying the core values of the organisation.
This position not only demands strong organisational skills but also a proactive approach to achieving corporate objectives and fostering a collaborative work environment.
Purpose of role
The Operations Coordinator will:
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Act as a central point of contact, managing executive calendars, coordinating meetings, and facilitating effective communication while maintaining a high level of professionalism and discretion.
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Be responsible for improving organisational processes, ensuring meticulous record-keeping, and contributing to the seamless execution of daily activities.
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Coordinate events, project administration, and financial reporting, all aligned with the organisation's core values.
Specific responsibilities and duties
Administrative Support
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Assist with a variety of administrative tasks that enhance the productivity of the leadership team, such as scheduling and coordinating meetings, managing executives' calendars with attention to priorities, and organising files and documentation for easy access.
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Identify and implement improvements to existing organisational processes and procedures to boost efficiency, ensuring that the team can operate at maximum effectiveness.
Communications
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Act as a central point of contact for both internal team members and external stakeholders, handling communications with a professional demeanor.
Meetings
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Collaborate closely with the Business and Operations Manager to support the overall management of meetings, including preparing detailed agendas, taking comprehensive minutes during meetings, and circulating documents to all participants in a timely manner, ensuring that all follow-up actions are clearly outlined.
Event Coordination
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Coordinate a variety of events and meetings, supporting logistics such as venue selection, catering orders, accessability requirements and technical arrangements.
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Assist in the planning and scheduling of member events and meetings, ensuring all details are attended to, such as invitations, attendee confirmations, and venue preparations.
Project Administration
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Maintain comprehensive administrative records relevant to projects, ensuring that all documentation is current and easily accessible to project team members.
Record Keeping
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Establish and maintain accurate records, comprehensive databases, and organised documentation related to office operations and employee activities, including diligent management of the CRM system to ensure timely updates and accuracy of information.
Finance
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Assist with the preparation of financial statements and reports, maintaining accurate and organised accounting records, and supporting the reconciliation of accounts to ensure data integrity.
General
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Support the organisation to achieve its corporate objectives.
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Be a proactive and professional representative of VODG and its values at all times, including in relation to the prioritisation of your own responsibilities and professional development.
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Undertake such duties as may be deemed necessary by the CEO and/or the line manager that are commensurate with the level of this post.
Our vision is for an ambitious, trusted and vibrant voluntary sector that works together to enable disabled people to live the lives they choose.



The client requests no contact from agencies or media sales.
We are looking for an Engagement Manager (East of England) to join us on a fixed term contract, for 12-months, to cover maternity leave.
About the role
The key purpose of the Engagement Manager role is to deliver regional Sight Loss Councils across the East of England and to engage with blind and partially sighted people across the region. We currently have two Sight Loss Councils (SLCs) in this region, so the postholder will be expected to care-take and develop both SLCs, focusing on the retention of the volunteers engaged and making sure the projects and work they are involved in, continue with success. You will also be managing and developing stakeholder relationships across all the areas in which we work including transport and health sectors, as well with local authorities and arts and culture venues in the region.
About you
You will have the passion and ability to use your lived experience or experience to influence change, for the benefit of blind and partially sighted people. As an experienced volunteer manager, you will engage and lead Sight Loss Council members in the implementation of the region’s business plans to bring about change across transport, health and the built environment, as well as areas of local interest such as arts and culture or retail.
You will be a self-starter and work well on your own but will also enjoy being a part of a team of other Engagement Managers across the country, with whom you can learn from, as well as share good practice with.
About us
At Thomas Pocklington Trust, we’re promoting equality and inclusion blind and partially sighted people in every aspect of society. One of our many missions is to establish Sight Loss Councils across the UK, to tackle local issues and work with businesses and service providers to improve the accessibility of their services.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
This post will work across Wales as part of the Cruse Bereavement Support Cymru team and will work alongside four other regional administrators to ensure the smooth running of administration across Wales for adults.This post will be responsible for communicating with bereaved clients and volunteers and carrying out assessments and speaking to bereaved clients each day. We are looking for someone with empathy, experience in therapeutic work, exceptional client service as well as the character and strength to work within the field of bereavement. This role will require travel for meetings in North Wales.
How to apply
Your application must consist of a CV and covering letter, which outlines your suitability for the role with reference to the Job Description and Person Specification and should be no longer than two pages.
Closing date for applications is 9 am on 2 June 2025. We reserve the right to close the advert early, as interviews will be held as suitable candidates apply.
Please be advised that we will only contact successful applicants for interview. If you do not hear from us, unfortunately on this occasion you have not been shortlisted.
Cruse welcomes and encourages applications from all protected groups as defined by the Equality Act 2010. Appointment will be made on merit.
Criminal Record Checks
All staff are required to complete a Criminal Record check. Staff working directly with clients will be required to complete an enhanced check. We comply with the relevant codes of practice and they can be viewed online:
· Applicants in England and Wales: DBS Code of Practice
· Applicants in Northern Ireland: AccessNI Code of Practice
Previous convictions will not prevent full consideration of your application to work with Cruse. Our Recruitment of Ex-offenders' Policy & Handling Criminal Record Check Data Policy are available on request by email.
We comply with all relevant data protection legislation and process your data fairly.
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Y rôl
Bydd y swydd yn cynnwys gweithio ledled Cymru fel rhan o dîm Cymorth Profedigaeth Cruse Cymru. Bydd deiliad y swydd yn gweithio ochr yn ochr â phedwar gweinyddwr rhanbarth arall i sicrhau bod y gwasanaeth gweinyddol yn gweithredu’n ddidrafferth ledled Cymru. Bydd deiliad y swydd yn gyfrifol am gyfathrebu â chleientiaid sy’n galaru a gwirfoddolwyr, cynnal asesiadau a siarad â chleientiaid sy’n galaru bob dydd. Rydym yn chwilio am rywun ag empathi, sydd â phrofiad o waith therapiwteg, sgiliau gwasanaeth cleientiaid eithriadol yn ogystal â’r cymeriad a’r cryfder i weithio ym maes profedigaeth.
Sut i wneud cais
Mae rhaid i’ch cais gynnwys CV a llythyr eglurhaol yn amlinellu eich addasrwydd ar gyfer y swydd ac yn cyfeirio at y Swydd-ddisgrifiad a Manyleb y Person. Ni ddylai fod yn fwy na dwy dudalen o hyd.
Y dyddiad cau ar gyfer ceisiadau yw 9yb ar 2 Mehefin 2025. Rydym yn cadw’r hawl i gau’r hysbyseb yn fuan gan y byddwn yn cynnal cyfweliadau wrth i ymgeiswyr addas gyflwyno cais.
Noder: byddwn ond yn cysylltu ag ymgeiswyr llwyddiannus i drefnu cyfweliad. Os na fyddwch yn clywed gennym, yn anffodus nid ydych wedi cyrraedd y rhestr fer y tro hwn.
Mae Cruse yn croesawu ac yn annog ceisiadau gan bob grŵp gwarchodedig fel y diffinnir gan Ddeddf Cydraddoldeb 2010. Byddwn yn penodi ar sail teilyngdod.
Gwiriadau Cofnod Troseddol
Disgwylir i’r holl staff gwblhau gwiriad Cofnod Troseddol. Bydd angen i staff sy’n gweithio’n uniongyrchol â chleientiaid gwblhau gwiriad manylach. Rydym yn cydymffurfio â’r codau ymarfer perthnasol. Gellir eu gweld ar-lein:
· Ymgeiswyr yng Nghymru a Lloegr: Cod Ymarfer DBS
· Ymgeiswyr yng Ngogledd Iwerddon: Cod Ymarfer AccessNI
Ni fydd euogfarnau blaenorol yn atal eich cais i weithio gyda Cruse rhag cael ei ystyried yn llawn. Mae ein Polisi Recriwtio Cyn-droseddwyr a’n Polisi Trin Data Gwirio Cofnodion Troseddol ar gael ar gais trwy e-bost.
Rydym yn cydymffurfio â’r holl ddeddfwriaeth diogelu data berthnasol ac yn prosesu eich data’n deg.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Title: Community Engagement Officer
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead
Hours: Full-time
Salary: £26,000 - £28,000
Contract Type: Permanent
About Us
Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs.
We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.
Role Overview
MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.
Key Responsibilities
Engagement & Social Media
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Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness
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Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces
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Identify themes and areas of interest to advocate internally for MSUK response to meeting community need
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Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead
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Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok)
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Develop content that resonates with patients, families, and supporters, amplifying community stories and voices
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Build and manage our lived experience co-production group ‘Metabolic Advisory Council’
Community Insight & Advocacy
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Functioning as the ‘internal expert’ on IMD communities for all MSUK team members
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Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required
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Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work
Events & Campaigns
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Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference)
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Collaborate with the team to deliver campaigns around awareness, fundraising, and education
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Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with
Relationship & Partnership Management
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Build and maintain relationships with other patient advocacy groups, charities, and health organisations
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Represent the charity at external events, meetings, and forums relevant to the rare disease space
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Seek opportunities for collaboration, knowledge sharing, and joint initiatives
Community Fundraising
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Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion
Person Specification
Essential
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Experience managing online communities and/or social media platforms in a professional or volunteer capacity
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Excellent written and verbal communication skills
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Strong organisational skills and event planning experience
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Empathetic and sensitive to the lived experiences of patients and carers
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Ability to work independently, from home, and as part of a small, dynamic team
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Confident, keen to travel and enjoys in-person events and networking
Desirable
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Personal or professional experience within the rare disease, health, or charity sectors
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Experience managing partnerships or external relationships
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Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar
What We Offer
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A supportive and flexible working environment.
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Opportunities for personal and professional growth.
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The chance to make a tangible impact in the lives of people affected by rare diseases.
This role will play a leadership role in delivering our ambitious policy influencing programme, helping to shape and implement influencing plans to bring about the changes needed to reduce, prevent and eventually end the need for food banks in the UK. It will provide management and oversight to some of our strategic projects.
Role responsibilities
· Developing and implementing Trussell’s influencing strategy
Working with teams across the organisation to ensure key groups, including our community of food banks, corporate partners, churches and church-related organisations have a clear role in our policy influencing approach.
· Planning and delivering impactful public affairs activity
Ensuring systems are in place to help plan, monitor and evaluate public affairs activity and maximise opportunities to engage with key audiences, including Parliamentarians, advisers, and UK Government Ministers; and support close working with colleagues in all UK nations and regions. Managing the development and delivery of public affairs activity to support high profile influencing campaigns.
· Building and managing strong relationships with key external stakeholders
Developing relationships, partnerships and networks to help raise the profile, credibility and influence of Trussell and our policy positions, particularly in the UK Parliament. Representing Trussell and promoting the organisation’s policy position to key audiences, including in meetings and events with Parliamentarians.
· Developing public affairs support to the food bank community
Working closely with a small team of Network Policy and Research Officers and the Organising and Local Mobilisation team to support our community of food banks to build and maintain strong relationships with their local MPs. Ensuring public affairs activity is well aligned to campaign strategies involving the food bank network.
· Embedding participatory approaches across our public affairs and wider influencing activity
Supporting further development of a participatory approach to policy influencing to ensure it is rooted in the lived experience of individuals affected by poverty. This includes ensuring an ethical approach in line with our values.
· Providing advice and line management
Have line management responsibility for individuals within the team, providing pastoral and development guidance along with task management on key projects. This includes regular 1:1s, objective setting and collaborative monitoring, and support with development needs.
Person Specification
Technical skills and minimum knowledge:
· Track record of successfully influencing politicians and key decision-makers to achieve strategic goals at different levels of government.
· Track record of delivering strategic public affairs activity based on robust evidence, from development to evaluation.
· Can explain components of effective policy influencing, including knowledge of the machinery and structure of government (UK, devolved, local) and experience of informing campaigns activity to mobilise support for policy change.
· Demonstrates a good understanding of policies that affect UK poverty and hunger. Can explain policy motivations of main political parties and can advise on how to influence them most effectively.
· Excellent written and oral communication skills, particularly in demonstrating enthusiasm and experience when communicating complex topics to non-specialist audiences.
· Experience of line managing, including dealing with performance issues and supporting team development.
Behaviours and competencies:
· Works collaboratively, managing challenges in a constructive manner
· Balances competing priorities and work to tight deadlines
· Demonstrates a dedication to the values of Trussell
· Demonstrates empathy for people from disadvantages, marginalised or socially excluded backgrounds
· Role models inclusive behaviour, values and leadership
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Shine is recruiting a Shine Nurse Specialist
Full Time
Permanent
Shine Nurse Specialist (Adult Nursing/ Registered General Nurse)
Location: Home based - within a commutable distance of London as there will be a requirement for fortnightly travel to the Chelsea & Westminster Clinic and with additional occasional travel across England, Wales and Northern Ireland.
Shine’s Health Team
Shine’s Health Team provides condition-specific health advice and support to people of all ages with spina bifida, hydrocephalus, NPH or IIH, promoting good self-management and enabling our members to live in optimum health. The Team also aims to reduce the numbers of pregnancies affected by spina bifida and anencephaly through education around supplementation and fortification with folic acid, and other measures.
Purpose of Job
The Shine Nurse Specialist will deliver services and create resources to improve the health of Shine’s members, by informing members, their carers and professionals
Principal Duties
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To provide ad hoc advice to Shine’s members, their carers and professionals on complex health issues, and signpost to NHS services
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To attend and represent Shine at the Chelsea & Westminster Spina Bifida Clinic
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To collect information, statistics and research from a variety of sources to inform Shine’s health projects
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To create resources to inform and support members’ health
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To develop training/information resources for professionals
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To plan and deliver projects, events, presentations and information sessions for members and professionals
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To provide an information resource for Shine staff
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To form and engage with networks of health professionals
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To represent Shine at events and meetings
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To work closely with the Health Research & Information Coordinator to produce and disseminate health information to Shine members and the general public
Skills and Experience
Essential
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Professional/Registered Health Qualification, for example:
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Adult Nursing
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Registered General Nurse
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Experience of searching scientific and medical literature, collating information and writing reports
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Excellent communication skills, written and verbal
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Ability to work effectively alone and as part of a team
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Ability to plan and deliver projects
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Good presentation skills
Desirable
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Knowledge of the physical aspects of spina bifida and hydrocephalus
In return, Shine will offer you:
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A competitive salary
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3% pension contribution
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Life Assurance cover from 12 months service
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25 days holiday plus bank holidays + additional discretionary leave between Christmas and New Year (pro-rata for part-time hours)
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Opportunity to purchase additional annual leave
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Additional annual leave due to length of service
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Broadband allowance
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Support to learn and develop
If you would like to have a chat about the role in more detail or have any questions, please contact Gill Yaz, Head of Health.
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria.
*Please note applications without a supporting statement will not be accepted*
Closing date: Saturday 7th June 2025 at 11pm
Interview (virtual): Tuesday 17th June 2025
Early application is encouraged as we will review applications throughout the advertising period and reserve the right to close the advert early.
To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria.
Providing specialist advice and support for spina bifida and hydrocephalus




The client requests no contact from agencies or media sales.