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Role Overview
This is an exciting opportunity to shape Shine’s strategic direction while managing the operational delivery of our services for children, young people, and families aged 0–25. Building on the success of our Little Stars/Ser Bach programme for members aged 0–12 and the development and extension of the FIRE (Friendship, Independence, Resilience, Empowerment) programme for those aged 13–25, you will play a key role in shaping the future of our support for children, young people and their families.
Working across England, Wales, and Northern Ireland, you will lead the delivery of an established, evidence-based programme that improves health, social, and emotional outcomes for those living with spina bifida, hydrocephalus, and associated conditions.
You’ll lead a passionate team and work closely with Shine’s Adult Services Team (25+), Health Team, Wales and Northern Ireland Managers and wider colleagues across the organisation to ensure work is coordinated, complementary, and beneficial to members. At the same time, you’ll forge strong partnerships with NHS professionals, statutory services, and voluntary organisations—driving collaboration that will support our vision of providing consistent, high-quality support for children, young people and families nationwide.
Key Responsibilities:
- Leadership & Team Management
- Programme Development & Delivery
- Monitoring, Evaluation & Reporting
- Member Support & Engagement
Please see the full Job Description & Person Specification below and on our website.
Benefits to working at Shine:
- Competitive salary: Review due April 2027
- Regular working hours, and no shift work (some very occasional weekends or evenings)
- 3% pension contribution
- 25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
- Additional annual leave awarded for ‘long service’
- Opportunity to purchase additional annual leave
- Broadband allowance for home-based roles
- Life insurance after 12 months’ employment
- Access to our Employee Support Programme and Mental Health First Aiders
- Support to learn and develop
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role with our Deputy CEO, Gill Valentine, please contact Shine to arrange a convenient time for a call.
To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria.
We understand that you may wish to use AI tools to help you with some aspects of your application but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
*Please note applications without a supporting statement will not be accepted*
Closing date: Thursday 16th April 2026 at 11pm
Interviews: Monday 27th April 2026
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
CEO
- Salary for FTE: £62,000 - £75,000 dependant on experience
- 38 hours a week over 5 days (flexibility for right candidate)
- Home-based with travel for events and meetings
Reporting into the Board of Trustees, we are seeking an inspirational CEO for the PDA Society, who can lead with humility and curiosity, empowering and supporting our staff along the journey. They will be responsible for the day-to-day management of the charity and its staff and volunteers, and will oversee the development of our training products, research and support services, whilst ensuring sustainable growth in impact and income.
This is a fantastic opportunity to join a trusted enterprise within the PDA community with a strong mission and a committed, values driven team. The successful candidate will be passionate about improving the lives of PDAers and their families. You will be energetic, creative and bring new ideas for enhancing the charity’s reputation, through nurturing existing relationships and developing new ones to achieve the charities goals. Our ideal candidate will have lived experience of autism, PDA or other neurodivergence although this is not essential.
Closing date for applications: Midnight on 22nd April 2026
Interviews with Trustees: April / May 2026
Our mission is to improve the lives of PDA children, PDA adults and their families. We are working hard to build awareness and understanding.
The client requests no contact from agencies or media sales.