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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 2 days ago Apply Now
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Create. Inspire. Engage. Help shape our brand through compelling content that connects with diverse audiences.
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£38,000 - £42,000 per year
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Cats Protection, Remote
Up to £45,999.12 per annum plus excellent benefits
Communications and Stewardship Manager
Posted 2 days ago
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£30,000 - £35,000 per year, depending on experience
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Closing in 6 days
Prospectus, Remote
£40,000 per annum
Posted 2 days ago
Rainbow Trust Children's Charity, Basildon, Essex (Hybrid)
£29,000 pa + Company Car (with an approx. retail value of £23,000-26,000, taxable benefit in kind of £6-£8k) and other excellent benefits
Posted 2 days ago
The Royal British Legion, Remote
£29,170 per year
Posted 2 days ago
Closing in 7 days
Brightside, Remote
£30,600 - £40,300 per year
Seeking an experienced Data & Insights Manager to lead analysis and evaluation of mentoring programmes at Brightside
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Charity People, Romford (Hybrid)
£80,000 - £100,000 per annum
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Steamship Shieldhall Charity, Remote
£40,000 per year
Posted 3 days ago
Page 5 of 18
Tonbridge, Kent (Hybrid) 16.62 miles
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

Edzard session.jpggroup photo.jpgENU2022.jpgBES 2022 Jo Talking.jpg
Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.