Jobs for the Disability sector
Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
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Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
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Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
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Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
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Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
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Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources.
Specific Tasks:
1. Proactive Family Support
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Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
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Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear
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Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
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Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Advanced and End-of-Life Care Support
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Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care.
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Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources.
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Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing.
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Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making.
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Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations.
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Offer signposting to bereavement support and follow-up services for families after loss.
3. Wellbeing Tracking and Outcome Measurement
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Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
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Collaborate with families to co-create action plans and track progress
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Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
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Organise and deliver regional meetups (minimum one per quarter)
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Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)
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Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
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Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne
5. Stakeholder Collaboration
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Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
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Represent Action Duchenne in across your regions and build relationships with local networks
6. Administration and Reporting
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Maintain accurate records of all interactions and support provided
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Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
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Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
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New contact acknowledgement email: within 3 working days
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New contact follow-up call: within 7–10 working days
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Families contacted per week: 12–15 hours of direct contact
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Regional meetups: 1 per quarter
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Support groups delivered: 9–12 per year
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CRM data entry: within the same day of interaction
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Family outcomes tracked: via wellbeing questionnaire and action plan
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Number of families receiving end-of-life care guidance or resources per quarter.
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Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request.
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Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services.
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Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find the job specification, including required skills and qualifications below.
Application deadline: 22nd December at 9am GMT.
Registered Charity
11 - 20
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.
The client requests no contact from agencies or media sales.
Thank you!
Join an amazing charity that makes a difference for the 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.
We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.
Main purpose of role
Main purpose of role The Helpline and Support Officer role sits within the Services and Support Directorate and provides tailored advice and practical support to individuals and families living with muscle wasting and weakening conditions from the point of diagnosis and beyond.
The Helpline and Support Officer will support people to navigate the UK’s Job description health, social care and welfare systems, enabling access to the services, benefits and equipment they are entitled to.
The role also involves informal advocacy, helping service users communicate their needs to overcome barriers; while ensuring they receive high-quality and ongoing support throughout their journey.
About us:
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 110,000 children and adults in the UK.
We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.
Benefits:
We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We also offer a range of benefits including pension, life assurance, discount in high street shops and gym membership, cycle scheme, health cash plan, financial wellbeing and an employee assistance programme.
Location: Head Office, London SE1 (at least one day a week in Head Office, with flexibility for hybrid and homeworking
Closing date: Tuesday 9th December
Interview dates: 16th and 17th of December
Please download the job description to see full role responsibilities
Registered Charity
51 - 100
We connect a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions and people around them.
The client requests no contact from agencies or media sales.
Thank you!
RNID Near You Coordinator Leicester City
Remote working in or near Leicester City
£25,708 pa plus excellent benefits
35 hours per week
Maternity Cover - Fixed, ending 31st December 2026
As a Coordinator for our RNID Near You community service in Leicester City, you will focus and lead on developing and delivering our community service across the area through drop-ins offering:
- practical hearing aid support
- information on hearing loss and tinnitus
- hearing checks
You will be responsible for co-ordinating up to 15 drop-in sessions and be able to recruit, train and manage a team of up to 30 volunteers to deliver the service across Leicester City. You will have responsibility for the set up and running of these sessions and have good local knowledge of the area and seek new opportunities for delivery of the RNID Near You services.
We are looking to appoint a motivated person with a keen interest in supporting people with their hearing loss. While you will be home based, there will be regular travel to all venues where we will provide drop-in sessions in community and care settings.
You want to make a difference in people’s lives and love to interact with various audiences, including volunteers, health & care professionals and people we support. You have experience managing people or volunteers and events, your own workload and are able to work evenings/ weekends if required. You are able to physically assist clients with hearing aids sensitively, giving clear guidance and taking into account individual wishes and health needs.
You are ready to work for a home-working organisation and have good IT skills, particularly with Microsoft Office applications including Outlook, Excel, Word.
We are RNID: Together we’ll make life more inclusive for deaf people and those with hearing loss or tinnitus. Our charity has been through a complete transformation, while building on the best of our past. We’ve returned to our former, much-loved name, become wholly remote working, and established a new strategy, focused on reaching the 18 million people in the UK who are deaf, have hearing loss or tinnitus.
We are creating a radically different culture which is externally focused, curious, evidence-based, deliberate, agile, and future orientated.Our values are at the heart of what we do.
We strive to be and continue to connected to our communities, insightful and confident in what we do and who we are, curious in everything we do and passionate about our purpose.
We champion the value of difference and equality and celebrate our diverse and inclusive workforce. We actively encourage applications from eligible candidates from BAME backgrounds or who are deaf or hard of hearing. With almost 20% of our employees having a disability we proudly hold Disability Confident Leader status and guarantee an interview for disabled applicants meeting the minimum essential criteria.
Closing date: 21 December 2025.
Interviews: w/c 5 January 2026.
Registered Charity
501 - 1000
Supporting people who are deaf, have hearing loss or tinnitus
Thank you!
Join us!
Contact is a national charity for families with disabled children. We provide information, advice and support, and bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society.
Your role:
To support the development of the new Co-Production project in Ealing in partnership with Ealing Mencap and the EPCF
To provide organisational and administrative support to the project and SG meetings
· To communicate with parents and parent volunteers supporting the project
·To facilitate and manage the new Co-Production Steering Group with partners and professionals from the LA
·To communicate on a regular basis with partners and LA services
·To act as first point of contact for queries about the project from parents and partners
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Join us at a pivotal moment as we transform 100 years of sight loss support for the digital age. You'll be the reassuring first voice for people navigating technology challenges, helping them discover independence they didn't know was possible.
This isn't your typical customer service role. At BWBF, you'll support people with sight loss as they explore technology, and connect with the digital world. Every call matters - from helping someone hear their first audiobook to guiding them through video-calling their grandchildren.
Working with our distributed team across the UK, you'll handle enquiries with empathy and efficiency, knowing that your patience might be the difference between someone giving up on technology or discovering new freedom. You'll collaborate with our Service Delivery team to ensure every person gets the right support at the right time.
We need someone who combines natural warmth with practical problem-solving, who finds satisfaction in small victories, and who understands that behind every technical query is a person seeking independence.
In return, you'll gain skills in assistive technology, work flexibly with a supportive team, and go home knowing you've genuinely improved lives. This is meaningful work with tangible impact.
The client requests no contact from agencies or media sales.