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This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.
Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!
Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.
You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.
Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist welfare rights advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Discretionary £1,000 increase after successful completion of probationary period
Application Instructions
Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026
Initial screening chats will take place on Thursday 14th May 2026
Interviews will be week commencing 25th May 2026
Interviews will be held over Microsoft Teams
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
Job Description
Job Title: Parent Adviser – SEND
Responsible To: Senior Parent Adviser - SEND
Team Membership: Helpline/IAS- (Information, Advice and Family Support Directorate)
Hours: 28 hours a week (4 days)
Salary:
Scale 26
£ 36,242.00 - FTE
£ 28,993.60 – actual salary including inner London weighting
Contract:
Fixed term – until 31 March 2027
Location:
Central London – Office N1 7EU.
(Hybrid working, 1 day working in office). Another working day in the office, will be needed during the induction and training period.
Job Purpose:
The post’s primary focus is to provide specialist education advice primarily by telephone and email, to parent carers with disabled children in the UK. The post holder will be working on the Contact national helpline service. Service hours are Monday to Friday 9.30am to 5pm.
Main Duties:
To respond professionally and with empathy to incoming calls, emails, web form and social media enquiries on SEND and related education issues.
To deal effectively with enquiries by offering specialist education advice, information and relevant signposting.
To provide, information and signposting on the wider concerns of families with disabled children including health and social care.
To build positive working relationships with colleagues, contributing to a culture of mutual respect, trust, and shared responsibility.
To work collaboratively as part of a team, sharing and supporting colleagues to deliver a reliable and responsive helpline service.
To respect diverse experiences and perspectives within the team and contribute constructively to problem‑solving and decision‑making.
To enter accurate enquiry data on the Contact database in a timely manner ensuring appropriate follow up actions to calls and accurate written notes.
To keep up to date on law and guidance relevant to education in England and to be aware of education law relating to Wales, Scotland, and Northern Ireland.
To communicate, be flexible and responsive, with team members, to ensure coverage of the helpline rota.
To ensure the helpline operates in accordance with confidentiality, safeguarding, privacy and data-protection policies and procedures.
To provide a high-quality service, with commitment to ongoing service development, improvement and good practice.
General duties
In common with all Contact staff, the post holder will be expected to work in accordance with the aims of Contact and to observe the policy and procedures set out by the directors of the charity.
The post holder will be expected to assist with any reasonable duty at the request of the line manager for the post.
Staff will be expected to attend and participate in Contact staff meetings and the staff annual conference.
Staff will be expected to attend training events relevant to their specific responsibilities.
Staff will be offered supervision, support and annual appraisal incorporating their training needs.
The client requests no contact from agencies or media sales.
Hybrid or remote (London / Belfast / Edinburgh / Cardiff)
£51,441 (London based) or £46,669 (non-London based) FTE + excellent benefits
The Royal College of Speech and Language Therapists (RCSLT) is seeking a Membership Operations Manager to coordinate high‑quality membership processes, ensuring accurate membership data and subscription collections and support operational improvements.
Who we are
The RCSLT is the professional body for speech and language therapists across the UK. The RCSLT has over 24,000 members and employs around 70 staff predominately based in a London office. The RCSLT also has offices in Belfast, Edinburgh, and Cardiff.
Our mission is to improve the lives of people with communication and swallowing needs by facilitating and promoting research, producing guidance, holding events, and influencing government. We aim to promote better education and training for speech and language therapists and provide information to our members and the public about speech and language therapy.
The role
The Royal College of Speech and Language Therapists (RCSLT) is seeking a proactive and detail-oriented Membership Operations Manager to play a key role in delivering an excellent member experience and supporting organisational sustainability.
Reporting to the Head of Membership, this role is central to ensuring high-quality membership operations, including accurate data management, subscription collection, and continuous process improvement. Working collaboratively across Finance, Digital, Content, and Communications, the postholder will help maintain smooth day-to-day operations while contributing valuable operational insight to future planning and development.
What we are looking for
The ideal candidate will be an experienced and highly organised operations professional with a strong background in membership or customer operations, ideally within a complex or high-volume environment. The successful candidate will bring a deep understanding of CRM systems (preferably Salesforce), payment processes, operational governance and data protection/GDPR, alongside proven experience of improving systems, workflows and cyclical operational processes.
With strong analytical skills, attention to detail and confidence using digital tools, they will be able to interpret data, identify opportunities for improvement and manage priorities effectively. A collaborative, proactive and solutions-focused approach is essential, along with a clear commitment to excellent member experience, equality and diversity and the charitable aims of the RCSLT.
Please see the job brochure with more information regarding the required experience and skillset needed for this role.
What we can offer you
How to apply
Should you wish to discuss the role in strict confidence, or for more details about the role, please contact the HR Team by email.
For more information and details of how to apply, please visit our vacancies page.
Closing date: 9.00am on Tuesday, 5 May 2026.
Interview date: w/c 11 May 2026 (Teams).
There will be a task to complete as part of the interview process, which will be sent to you in advance.
Please note, we can only accept applications from those who have working rights in the UK, we cannot offer sponsorship for this role.
We are committed to a fair, transparent, and inclusive recruitment process. All applications are handled with strict confidentiality to protect your privacy and encourage openness throughout the process.
The RCSLT is committed to fostering an inclusive and equitable workplace where everyone feels valued and a sense of belonging. We aim to embed equity, diversity, and belonging practices throughout our recruitment and selection procedures. We strive to ensure everyone is valued equally for their contribution, experience, knowledge, and skills. We welcome applications from candidates of all different backgrounds.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Role Overview
You will be part of Shine’s specialist Health Team, providing condition-specific health advice and support to people of all ages living with spina bifida, hydrocephalus, Normal Pressure Hydrocephalus (NPH) or Idiopathic Intracranial Hypertension (IIH). You will support delivery of, delivering an established, evidence-based programme, promoting good self-management and care, and enabling our members to live in optimum health.
You will deliver high-quality, person-centred physiotherapy assessments, treatment, and advice to children, young people and adults with a wide range of physical needs, enabling them to maximise independence, function, and quality of life.
The role is home or hybrid based; member contact is predominantly via phone and video calls.
This job role is an exciting opportunity to join our specialised service delivering spinal stimulation. You will be attending a 2-day physiotherapy clinic once a month. Clinics take place on a rolling programme of one location per month, current locations include Birmingham, Bristol, Leicester, Leeds and Oxford but these may vary.
There will be occasional travel required across wider areas and nationally including attendance at conferences and meetings at our head office in Peterborough.
Benefits to working at Shine
Competitive salary: Review due April 2027
Regular working hours, and no shift work (some occasional weekends or evenings)
3% pension contribution
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
Additional annual leave awarded for ‘long service’
Opportunity to purchase additional annual leave
Broadband allowance for home-based roles
Life insurance after 12 months’ employment
Access to our Employee Support Programme and Mental Health First Aiders
Reimbursement for HCPC registration
Support to learn and develop including specialist training for Spinal Stimulation and ongoing mentoring and clinal supervision.
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role in more detail or have any questions, please contact Lindsey Reid, Head of Health.
To apply please submit your CV and supporting statement*, which should outline your interest and explain how you meet the role criteria
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 18th May at 11pm
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Interviews (virtual): Thursday 28th May 2026
Please see full details of the job description and person specification below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
Ruils is run by, and for, Disabled people. We exist to remove the barriers that prevent Disabled people from living independent lives. Our vision is a society where all individuals have choice and control to live independently. We provide information, advice, advocacy, befriending and activities to our clients and their families.
We are working with partners to deliver Health in Your Hands, a programme focused on preventing long-term conditions and reducing health inequalities. This is a unique and rewarding opportunity for you to work one-to-one with clients to effect change whilst also having a positive impact on the wider system.
Duties and responsibilities
We are looking for someone who has:
What we can offer you:
For further information, to download the full job description and person specification and to apply, please visit our website via the Apply button.
Closing date: 30th April 2026, with face-to-face interviews taking place during the week commencing 11th May 2026.
We operate a Guaranteed Interview Scheme; we will guarantee an interview to all Disabled applicants who meet the essential criteria for the post. Please state in a cover email if you wish us to consider you for this Guaranteed Interview Scheme.
Our mission is to provide a range of services and activities to enable individuals to be independent and to live life to the full.
21 hours per week
£16,800-£18,000 per year (£28,000-£30,000 full time equivalent)
Remote, occasional travel
Fixed term 12 month post
We're looking for an organised and confident professional to join RNIB's Supporter Experience team. This is a varied role where you'll support our fundraising activity and help make sure our supporters have a great experience every time they engage with us.
You'll be comfortable working with data, have a strong eye for detail and stay calm when things get busy. You'll also be a clear and helpful communicator, responding to supporter queries and working with colleagues across the charity.
No two days will be the same. You might be raising purchase orders, checking data, supporting fundraising campaigns, improving supporter journeys or helping to plan and deliver events. You'll work independently from home, so you'll need to be well organised, able to juggle priorities and motivated to manage your own workload.
This is a great opportunity to make a real impact in a small, supportive team that values collaboration, improvement and putting supporters first.
What we offer
RNIB prides itself on being a great place to work with a positive, progressive culture. We offer a wide range of benefits including 27 days of holiday per year (plus bank holidays) which rises with service, enhanced family friendly benefits, a contributory pension scheme with an employer contribution of up to 11% and a rewards platform with employee discounts across over 800 retailers.
For more information on our available benefits, please visit our .
How to Apply
If you'd like to apply for this opportunity, please apply online, uploading your CV and supporting statement, telling us how you meet the essential criteria in the person specification.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Shine supports a community of over 15,000 members living with spina bifida and/or hydrocephalus, including 5,000 children and young people (0–25).
You will be delivering high-quality support and creating opportunities for children and young people living with spina bifida and/or hydrocephalus and their families/carers. Supporting Shine members to lead healthy, independent, and fulfilling lives by improving condition management and fostering connections within the Shine community.
This role will focus on children and young people (0–25), you will be primarily working within the Children, Young People and Families team. However, there will be occasions when you will work across age groups to ensure the best outcomes for our members.
The role is home-based but you will be required to attend regular clinics in London including GOSH (Great Ormond Street Hospital). Other travel across Southern England including Bristol, Devon and Hampshire may be required. There will be occasional travel required across wider areas and nationally including attendance at events, conferences and meetings at our head office in Peterborough.
Benefits:
Competitive salary: Review due April 2027
Regular working hours, and no shift work (some very occasional weekends or evenings)
3% pension contribution
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
Additional annual leave awarded for ‘long service’
Opportunity to purchase additional annual leave
Broadband allowance for home-based roles
Life insurance after 12 months’ employment
Access to our Employee Support Programme and Mental Health First Aiders
Support to learn and develop
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role please email Gill Valentine, Deputy CEO, to arrange a convenient time for a call.
To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria.
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 17th May 2026 at 11pm
Interviews: Tuesday 26th May 2026 (Virtual)
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Please see full details on the Job Description and Person Specification document below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
About Us
West Sussex Parent Carer Forum (WSPCF) is an independent organisation for the parent carers of children and young people aged 0-25 with special educational needs and/or disabilities (SEND). We support parent carers by providing information, signposting, and training that equips them in their lifelong caring role and empowers them to participate in shaping services for their children and young people. WSPCF is hosted by local Sussex based charity Amaze.
About the job
This is a great opportunity for a proactive and passionate person who lives in the mid/north of the county to empower and amplify the voices of parent carers across West Sussex. You will help deliver events and activities, encourage parent carers to get involved, especially those whose voices are less often heard, and provide friendly, accessible information and signposting to families. You will be a ‘people-person’ with excellent interpersonal and communication skills, and able to plan and prioritise your own work.
This is a part‑time, flexible, hybrid role where lived experience really matters.
We are committed to supporting and promoting equality and diversity and to creating an inclusive working environment. We believe having a diverse workforce at all levels allows us to represent the communities we serve.
We want to employ staff who have lived experience of disability themselves and/or as a parent/carer of a child, young person or adult with special educational needs or disabilities (SEND), and have an excellent understanding of the issues faced by SEND families
We particularly welcome applicants from Black Asian and minoritised ethnic communities.
Our benefits
Some of the benefits of working for WSPCF, hosted by Amaze • Hybrid working out of WSPCF’s Pulborough office, with some homeworking • + 5% pension, pro-rata 26 days a year, + extra 3 days at Christmas + Public Holidays • Flexible, family and carer-friendly working • Support for staff health and wellbeing including an employee assistance programme • Commitment to learning and development • Access to charity worker discounts scheme • See full benefits policy
To support your application, please visit the Amaze website and read:
WSPCF Participation Officer Job Description
Staff benefits policy
Terms and conditions
Please visit the West Sussex Parent Carer Forum to read more about our work.
To apply
The closing date for applications is midnight 6th May 2026 and the provisional date for interviews is w/c 11th May 2026.
You are warmly encouraged to contact us for an information discussion about the role.
The client requests no contact from agencies or media sales.
About Us
The West Sussex Parent Carer Forum (WSPCF) is an independent organisation for the parent carers of children and young people aged 0-25 with special educational needs and/or disabilities (SEND). We support parent carers by providing information, signposting, and training that equips them in their lifelong caring role and empowers them to participate in shaping services for their children and young people.
About the job
This is a great opportunity for a proactive and passionate person who is committed to collaborating with education, health and care partners, to strengthen co production and drive service and system change in West Sussex. You will be an excellent, persuasive communicator and have had demonstrable success at partnership working. You will be confident in strategic leadership, skilled at amplifying parent carer voice and knowledgeable and organised in managing a wide brief which includes overseeing delivery. You will lead a dedicated team motivated by improving outcomes for children and young people with SEND and be supported by Amaze who host and provide back-office support to WSPCF. This is a part time, flexible, hybrid role where lived experience really matters.
Our benefits
Some of the benefits of working for WSPCF, hosted by Amaze • Hybrid working out of WSPCF’s Pulborough office, with some homeworking • + 5% pension, pro-rata 26 days a year, + extra 3 days at Christmas + Public Holidays • Flexible, family and carer-friendly working • Support for staff health and wellbeing including an employee assistance programme • Commitment to learning and development • Access to charity worker discounts scheme • See full benefits policy
Skills and experience required
• Parent carer of a child or young person aged 0-25 years old, living in West Sussex with a special educational need or disability (SEND) • Strong understanding of the SEND landscape, including the needs and experiences of parent carers and children/young people with SEND • Experience of overseeing delivery of multiple projects or workstreams • Experience using monitoring, evaluation and feedback to shape priorities, demonstrate outcomes and assess impact • Experience in strategic leadership • Experience of partnership working with senior leaders across local authorities, health, education, VCSE sectors • Excellent communication and interpersonal skills • Strong organisational skills • Confidence in IT and financial oversight • Commitment to equality, diversity and inclusion, and to empowering parent carers • Ability to lead staff and volunteers, including providing supervision and support • Creative, innovative and reflective approach to problem solving
To support your application, please visit the Amaze website and read: West Sussex Parent Carer Forum Strategic Lead Job Description, Staff benefits policy, Terms and conditions. Please visit the West Sussex Parent Carer Forum website to read more about them.
The closing date for applications is Wednesday 6th May 2026 and the provisional dates for interviews is w/c 18th May 2026. You are warmly encouraged to contact us for an information discussion about the role.
The client requests no contact from agencies or media sales.