Chief Operating Officer

Cerebra is the national charity dedicated to improving the lives of children with neurological conditions and their families. We provide vital research, support, and practical solutions that empower families facing complex challenges.

With an annual income of £3 million and a headcount of 68 employees, we have ambitious plans to double our income between 2025 and 2027, ensuring we can extend our impact, reach more families, and drive real change. To achieve this, we are investing in fundraising innovation, income generating ventures, and strategic partnerships, alongside enhancing our brand to increase our national recognition.

Our work is underpinned by our values ensuring that everything we do aligns with our mission to create a better world for children with neurological conditions.

This is an incredibly exciting time to join Cerebra, as we are preparing to launch our new strategy and brand. The COO is a vital leadership role that will support the drive towards even greater impact for children and families across the UK.

Our Services

Sleep Advice Service

Cerebra understands that if you have a child that doesn’t sleep, the whole family suffers. Many children with neurological conditions suffer from disrupted sleep. Our sleep advice service provides bespoke advice and support so that everyone can get a good night’s sleep.

Legal Rights Service

Our Legal Rights Service provides help and support to families of children with neurological conditions when they are faced with barriers and difficulties in accessing statutory support services they are entitled to. The service provides information on their legal entitlements.

Book and Toy Library Service

Our specialist postal lending library contains a wide range of books for both adults and children, plus a selection of sensory toys specifically chosen for children with a neurological condition.

Innovation and Product Design Service

Our Innovation Service designs and builds bespoke products that cater to the specific needs of children with neurological conditions. The aim of the service is to make products that are desirable and exciting, therefore promoting social inclusion, peer acceptance and enabling children to participate in everyday activities that are so often close to them.

Information Products

Cerebra publishes different information products to help families with a child with a neurological condition. Our information products offer comprehensive, up-to-date support and research-driven strategies to assist families with a wide range of issues.

Buzgi and Toy Adaptation Service

Cerebra designs and builds bespoke assistive equipment for disabled children, this includes creating custom mobility aids, switch‑adapted toys, and other innovative solutions to help children access play, learning, and independence.

The Bugzi - a mini powered wheelchair for children offers many children their first experience of independent mobility. It uses either a joystick or switches and adaptable seating for complex needs, and helps develop spatial awareness, confidence, and early mobility skills. The Bugzi is available through a national loan scheme.

Additionally, we operate commercial services (including a web shop) to supplement our income to support children and their families.

Our services are provided to families free of charge.

Job Title:

Chief Operating Officer

Reports To:

Chief Executive Officer

Direct reports:

3 senior managers (Finance (headcount of 3), HR (headcount of 1), IT (headcount of 5))

Purpose of the Role:

The Chief Operating Officer will play a vital role in supporting the Chief Executive Officer, Board and Leadership Team to deliver Cerebra’s vision and ambitious strategic aims. The Chief Operating Officer will provide strategic leadership and operational management across key areas within Cerebra including:

• Operational Systems
• Governance
• Compliance
• Finance and Growth

This is a pivotal executive leadership role, responsible for driving organisational performance, sustainability and growth. The COO will translate Cerebra’s strategic ambitions into effective operational delivery, ensuring robust governance, financial stewardship and a high-performing, values-led culture.

As a trusted advisor to the CEO and Board, the COO will lead core operational services and commercial activity, enabling the charity to maximise impact and generate sustainable income in support of its charitable objectives.

Key Responsibilities

Strategic & Executive Leadership

• Partner with the CEO and Board to deliver strategic priorities, growth and long-term sustainability
• Collaboration with the Director’s Group to ensure strategic alignment across the charity. The Director’s Group consists of:

            Chief Executive Officer

            Chief Operating Officer

            Director of Fundraising, Marketing and Communications

            Director of Research and Support Services

• Provide expert advice on finance, operations, commercial performance and organisational risk
• Lead organisational planning, business continuity, and operational resilience
• Foster a culture of continuous improvement, accountability and inclusion

Finance, Commercial & Sustainability

• Lead financial strategy, planning and performance, ensuring long-term sustainability
• Oversee budgeting, forecasting, cashflow and financial controls
• Lead and develop Cerebra’s strategy for commercial income , ensuring alignment with charitable objectives
• Support funding growth through strong financial insight and business case development
• Ensure robust financial governance, audit and compliance

Operations & Infrastructure

• Lead and strengthen operational functions including HR, IT, governance and administration
• Ensure effective systems, processes and infrastructure that enable growth, efficiency and impact
• Oversee procurement, contracts, facilities, and organisational compliance
• Drive innovation and value for money across operations

People & Culture

• Champion a positive, inclusive and high-performing organisational culture
• Oversee HR strategy, workforce planning and leadership development
• Ensure compliance with employment law and best practice
• Promote wellbeing, engagement and organisational effectiveness

Digital & Technology

• Provide strategic oversight of IT, data and digital development
• Ensure systems are secure, resilient and aligned to organisational needs
• Leverage data and technology to improve insight, decision-making and organisational impact

Governance, Risk & Compliance

• Ensure effective governance frameworks, risk management and regulatory compliance
• Support the CEO and Board with high-quality reporting and strategic insight
• Lead safeguarding, data protection and organisational risk strategy
• Drive a strong culture of accountability and ethical practice

Leadership & Management

• Lead and develop a small senior team across finance, HR and IT
• Build capability, strengthen performance, and embed a collaborative culture
• Model Cerebra’s values and leadership behaviours

Key Attributes

• Strategic and commercially minded leader with strong operational delivery experience
• Strong financial leadership and business acumen
• Proven track record of driving income growth, sustainability and organisational performance
• Skilled in governance, risk and stakeholder engagement

Please see attached job description for the Person Specification.