Head of Registry Operations

Cystic Fibrosis Trust is the only UK-wide charity dedicated to uniting for a life unlimited for everyone affected by cystic fibrosis. We're working towards a brighter future for everyone with cystic fibrosis (CF) by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.

This is an exciting leadership opportunity to lead and manage a highly motivated and passionate team within the Research and Healthcare Data Directorate and be part of the internationally recognised UK CF Registry

You will be proven leader, with experience of working with large datasets in a healthcare or equivalent setting, with a good understanding of data governance and security. 

You will be leading and implementing projects to maintain and develop the quality, integrity, and effectiveness of the UK CF Registry, and supporting the delivery of external  projects which maximise the impact of the Registry data to improve care and health outcomes for all people with CF in the UK.

As the Registry enters a period of strategic evolution, you will play a critical role in managing relationships across a range of stakeholders, including clinical teams and some commercial partners, all of which are essential to the ongoing success of the UK CF Registry, and the delivery of high-quality programmes of work which benefit people with CF.

* If London office based, you will be required to attend London Head Office 40% of weekly working hours. If home based, you will be required to attend the London Head Office for business needs as required. 

Please note this is a UK-based role and candidates will need to be based in the UK. This role will require some travel across the UK and occasional international travel.

This role requires a satisfactory Basic DBS check prior to commencing employment with us.

In addition, you will need to have the Right to Work in the UK before starting work with us and we will check this. We do not hold a Home Office Sponsorship Licence and therefore cannot offer visa sponsorship for our roles.

We offer a range of employee benefits including:

• Flexible working
• 30 days annual leave plus recognised bank holidays (pro-rata for part time staff)
• Contributory pension scheme
• Healthcare cash plan covering dental, optical, 24/7 GP service 
• Employee assistance programme
• Opportunities for learning and development

Closing date and interview date

Closing date for completed applications is 11:59pm on Monday 20 July 2026. 

First interviews will be held Thursday 30 July 2026. 

Second interviews will be held week commencing 10th or 17th August and preferably in person at our London office.

We reserve the right to bring forward the closing date or extend if necessary. Therefore, if you are interested in this role, please submit your application as early as possible.

How to apply

Before applying, please ensure you read the job description (which also contains the person specification) for more information about the role. 

Applications should be made through our recruitment portal Hireful and to apply, please select ‘Apply Now.’

No agencies or media please.


Our commitment to an inclusive workplace

Cystic Fibrosis Trust aims to be an inclusive workplace where everyone belongs, can be themselves and achieve their full potential. We want to attract, develop, and retain staff with diverse backgrounds, experiences, and perspectives; particularly people who have cystic fibrosis, people who identify as being from an ethnic minority group, as LGBTQ and people with disabilities. 

It is our policy not to discriminate against any person because of their age, gender reassignment, being married or in a civil partnership, being pregnant or on maternity leave, disability (physical and mental), race including colour, nationality, ethnic or national origin, religion or belief (including lack of belief), sex, sexual orientation or union membership.

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