Policy and Public Affairs Manager

Cystic Fibrosis Trust is the only UK-wide charity dedicated to uniting for a life unlimited for everyone affected by cystic fibrosis. We're working towards a brighter future for everyone with cystic fibrosis (CF) by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.

If you are passionate about driving change through policy and influencing and you want to play a pivotal role in improving the lives of people with cystic fibrosis (CF) join us as our next Policy and Public Affairs Manager and help shape a future where everyone with CF can access the treatments and care they need.

In this impactful role, you will lead the delivery of our policy and public affairs work across a defined portfolio, with a strong focus on ensuring people with CF have access to life-changing treatments and improving standards of care across the UK for people with CF – both now and in the future.

Working closely with the Head of Policy and Public Affairs, you will turn strategic priorities into compelling influencing plans and high-quality policy outputs. You’ll ensure our voice is heard where it matters most – across government, healthcare systems, and key stakeholders – to drive meaningful improvements in outcomes for people living with CF.

In this role, you will take ownership of:

• Leading the development of robust, evidence-based policy positions
• Designing and delivering effective public affairs and influencing strategies
• Building and managing relationships with key stakeholders and decision-makers
• Ensuring our work is grounded in the lived experiences of people with cystic fibrosis

You will also line manage one Policy and Public Affairs Officer.

This is an opportunity to combine strategic thinking with hands-on delivery, using your expertise to influence real change in a highly respected health charity.

If you are an experienced policy and public affairs professional with a passion for making a difference, we’d love to hear from you.

We offer a range of benefits including flexible working, 30 days annual leave plus recognised bank holidays, contributory pension scheme, healthcare cash plan, shopping discounts club, enhanced maternity/adoption pay, free tea and coffee in the office, employee assistance programme and opportunities for learning and development.

This is a UK based role and offers a flexible location; however, if London office-based, a minimum of 40% working hours per week in the office is required. If home-based, travel to London office will be required in line with business needs.

Please note you will need to have the right to work in the UK before starting work with us and we will check this. We do not hold a Home Office Sponsorship Licence and therefore cannot offer visa sponsorship for our roles.

Closing date and interview date

Closing date for completed applications: 23:59 on Monday 27 April 2026

Interviews expected week commencing: Monday 4 May 2026 

We reserve the right to bring forward or extend the closing date if necessary.  Therefore, if you are interested in this role, please submit your application as early as possible.

How to apply

Before applying, please ensure you read the job description attached, for more information about the role. 

Applications should be made through our recruitment portal Hireful and to apply, please select ‘Apply Now’.

No media or agencies please.

Our commitment to an inclusive workplace

Cystic Fibrosis Trust aims to be an inclusive workplace where everyone belongs, can be themselves and achieve their full potential. We want to attract, develop, and retain staff with different backgrounds, experiences and perspectives; particularly people who have cystic fibrosis, people who identify as being from an ethnic minority group, as LGBTQ and people with disabilities. 

It is our policy not to discriminate against any person because of their age, gender reassignment, being married or in a civil partnership, being pregnant or on maternity leave, disability (physical and mental), race including colour, nationality, ethnic or national origin, religion or belief (including lack of belief), sex, sexual orientation or union membership.

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