Upload your CV
Save time when you spot your dream job. Upload your CV with ease.
Save time when you spot your dream job. Upload your CV with ease.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About us
The Maypole Project supports children and young people with complex medical needs and their families, providing emotional, practical and social support. We are a small, values-driven charity making a meaningful and lasting difference to the families we work with.
About the role
We are looking for an experienced and motivated Business Development & Fundraising Manager to play a central role in strengthening and growing our income.
This is an opportunity to lead the development of a strategic and sustainable approach to fundraising, while continuing to deliver hands-on income across a diverse portfolio.
You will work closely with the CEO and colleagues across the organisation to identify new opportunities, develop partnerships, and build on existing income streams.
The role would suit someone who enjoys working in a small organisation where you can shape direction, take ownership, and see the direct impact of your work.
What you’ll be doing
· Lead the development and delivery of a multi-year fundraising and income strategy
· Grow and diversify income across corporate partnerships, community fundraising, events, individual giving and digital activity
· Identify, develop and secure new funding opportunities, including partnerships and collaborative projects
· Build and manage strong relationships with funders, partners and supporters
· Work with the CEO to explore and develop cross-sector opportunities (e.g. NHS, local authorities, voluntary sector partners)
· Line manage a part-time Fundraising Officer and support volunteers to maximise impact
· Strengthen systems, pipeline management and performance monitoring to support sustainable income growth
About you
We are looking for someone who can combine strategic thinking with practical delivery in a small charity environment.
You will bring:
· Experience of securing meaningful income and developing funding opportunities (e.g. five-figure grants or partnerships)
· A track record of building effective external relationships
· Confidence identifying new opportunities and turning them into tangible outcomes
· Strong communication skills, with the ability to create compelling cases for support
· The ability to manage multiple priorities and work both independently and collaboratively
· You may already be working at manager level, or ready to step up into a broader role with greater ownership and scope.
Why join us?
Play a key role in shaping the charity’s future sustainability and growth
Work closely with senior leadership and influence organisational direction
Be part of a supportive, collaborative and purpose-driven team
See the direct impact of your work on children and families
Flexible working arrangements
If you are looking for a role where you can take ownership, develop new ideas and make a meaningful difference, we would love to hear from you.
Shortlisted applicants will be required to complete our application form.
We support children and young people with complex medical needs and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Friendly Trust is seeking a committed and experienced Trust Officer to join our team. This role offers an opportunity to make a tangible difference by supporting vulnerable people to manage their financial affairs and access their rights.
The postholder will manage a varied caseload, providing advice, financial administration, and ongoing support to Service Users and their families. This includes working with welfare benefits, budgeting, and acting as a DWP corporate appointee where appropriate.
Key responsibilities include:
About you
You will bring:
The client requests no contact from agencies or media sales.
About HCPT
HCPT is a UK-based Catholic charity that provides life-changing pilgrimage experiences to Lourdes for children and adults with disabilities, complex medical needs, and social challenges of all faiths, and none. Every Easter and Summer, HCPT brings together thousands of volunteers, medical professionals, and chaplains to support pilgrims in a joyful, inclusive, and faith-filled environment. Our work is rooted in Christian values, community, and the belief that every person is uniquely gifted and loved.
We are ambitious. We are growing. And we are looking for exceptional people to help us get there.
Role Overview
This is a rare chance to join HCPT at a pivotal moment in our new strategy. As Fundraising & Events Manager, you will work closely with the Fundraising & Communications Director to build new income streams, develop compelling funding applications, and deliver high-impact fundraising events that bring HCPT's mission to life.
We are looking for someone who is energised by growth; someone who sees a blank canvas as an opportunity, who thrives on building relationships, and who measures success by outcomes rather than activity. Attitude and ambition matter as much as experience here. We want someone who wants to be sector-leading, not just sector-present.
In the early stages of this role, your focus will be predominantly business development and event cultivation. As income grows and the team expands, you'll help shape what a sector-leading fundraising function at HCPT looks like, and play a central role within it.
HCPT is a volunteer-based charity helping children and adults with varying needs experience a pilgrimage holiday to Lourdes in small, caring groups.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
About Designability
Designability is a national innovation charity advancing inclusive design across the UK.
The world is full of barriers for disabled people because society is not designed with everyone in mind. For disabled people, those barriers can take away things that everyone deserves: freedom, confidence, and opportunity.
But it doesn’t have to be that way — not if we design and build differently. And that’s where we come in.
By collaborating with disabled people, we dismantle unfair barriers and turn lived experience into practical, creative solutions that unlock everyday independence. From prototypes to sketches, and from problems to solutions, we engineer products and services that make the inaccessible accessible — and we help brands, other charities and designers do the same.
We are at an exciting point in our nearly 60-year history. We have launched our biggest ever research project — The Unfair Index — exploring everyday barriers disabled people face. We will be launching a new international award winning, world-first product — The Accessible Pushchair. And we continue to deliver our flagship service, the Wizzybug Scheme, providing free powered wheelchairs to very young disabled children across the UK.
The Role
We are seeking a highly organised individual to support the day-to-day administrative functions across finance and operations. This is a varied role suited to someone who is detail-oriented, commercially aware, and confident managing multiple priorities in a busy environment.
Key tasks
Finance
· Control and monitoring of the finance inbox
· Manage the purchase and sales ledgers, accurately processing all associated transactions
· Processing incoming donations from various sources and accurately maintaining records
· Support and assist with month and year end processes
· Monitoring and maintaining data and records
· Ensuring strict adherence to financial controls, processes, and internal procedures
Operations
· Manage and keep up to date the operations annual calendar of activities and compliance requirements
· Liaise with and co-ordinate all external contractors, including utility companies and RUH Estates, to ensure Designability meets all legal requirements and premises remain fully operational and compliant
· Support the staff member responsible for IT, including IT asset and software tracking and administration
· Support the relevant team member with GDPR compliance, including tracking data held
· Assistance with operations administration as required
General
· To conduct such other duties as may be required by the organisation from time to time
· Willing and able to undertake work outside normal hours and to travel as required
· Supporting and collaborating with colleagues across the organisation to achieve our charitable purpose
· Prepared to take on a range of tasks as needed to support the organisation’s work
About you
The successful candidate will have a natural aptitude for numbers, strong organisational skills, and the ability to work collaboratively across different areas of the business. This role requires a high degree of accuracy and attention to detail, helping to ensure that Designability remains compliant. You will be driven by achieving excellence in your work, underpinned by demonstrating Designability behaviours every day: Reflective, Tenacious, Collaborative, Curious and Honest.
If you enjoy variety, take ownership of your work, and can confidently support both financial and operational activities, this could be the new job for you.
Terms of Employment
All applicants must be willing to undergo safeguarding checks, including checks with the Disclosure and Barring Service and employment references.
All applicants must have a legal right to work in the United Kingdom without the need for visa sponsorship - Designability is not able to provide visa sponsorship at this time.
Benefits that come with working for Designability
Looking after its employees is important to Designability. To find out what benefits we currently offer to our team, please visit our website.
Designability is a Real Living Wage and Disability Confident Employer. We are committed to recruiting the best person for the job, based solely on their ability and individual merit as measured against the criteria for individual roles; through a process that is fair, open, consistent and free from bias and discrimination.
All applicants will receive consideration for employment without regard to race, colour, national origin, religion, sexual orientation, gender, gender identity, age, disability status or length of time spent unemployed. As a Disability Confident Employer, we are committed to making reasonable adjustments.
‘Offer an Interview’ Scheme
Designability welcomes applications from disabled applicants and is committed to offering an interview to disabled applicants who meet the essential criteria for the role, as set out in the job description. If you wish your application to be considered under the ‘Offer an interview’ scheme’, please indicate this in your covering letter
Recruitment Timeline
1. Applications open: 19th May 2026
2. Applications close: 9th June 2026
3. Interviews will be held online and/or in person at our Bath office at a mutually convenient time.
To create equity of opportunity for disabled people by removing barriers to independence.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Purpose of job
To lead and develop BucksVision’s approach to volunteer involvement across Buckinghamshire and Milton Keynes, ensuring volunteers are recruited, trained, supported and retained to help deliver high-quality services for people with sight loss.
The Volunteer Manager provides guidance and support to staff, volunteers and local groups, helping BucksVision maintain a safe, confident and sustainable volunteer base.
Impact
BucksVision relies on over 280 volunteers to support people with sight loss across Buckinghamshire and Milton Keynes. Volunteers are central to the charity’s ability to maintain existing services, respond to local need and develop new opportunities.
The Volunteer Manager plays a key role in ensuring BucksVision has a safe, effective and sustainable volunteer base. This includes improving recruitment, supporting retention, strengthening volunteer practice and helping staff and volunteer leaders to manage volunteer involvement confidently and consistently.
Decision making responsibility
The Volunteer Manager is the organisational lead for volunteer involvement and is expected to make day-to-day decisions relating to volunteer recruitment, onboarding, training, support, retention and safe practice.
The postholder will use professional judgement to resolve volunteer-related issues, advise colleagues, identify risks and escalate safeguarding, performance or conduct concerns where appropriate.
Main accountabilities
To work in partnership with the Chief Executive and Operations Manager to lead and develop volunteer involvement across BucksVision, ensuring recruitment, onboarding, training, support, retention are delivered in line with BucksVision’s strategic outcomes.
This includes:
The client requests no contact from agencies or media sales.
Senior Individual Giving Officer
Hybrid (with 2 days per week in our Alton office)
Individual Giving Manager
Permanent, 35 hours per week
£30-35k per annum, dependant on experience
(plus pension & generous annual leave)
About Kidney Care UK
3.5 million people in the UK have chronic kidney disease (CKD), a diagnosis that can turn your world upside down.
For 50 years, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by this lifelong condition. We provide practical, emotional, and financial support for individuals and their families, while also working with healthcare professionals to improve care services and campaign for change.
Kidney disease can affect anyone and there is no cure. We are here for the young and the old, for those struggling to make ends meet, for families and loved ones. We fight tirelessly, giving our total support, to improve the lives of kidney patients and their families.
We’ve grown significantly over recent years. But this is just the start – we want to grow our income significantly in the next five years as part of our ambitious new strategy to ensure that the charity is fully sustainable so that we can support the 1000s of patients who need us every year. We’ve been making quite a splash recently – our ‘Bloody Amazing Kidneys’ campaign has seen more than 200,000 people successfully complete our online kidney checker so they can understand their risk of kidney disease.
Will you join us and help ensure that no one faces kidney disease alone?
The role
The Individual Giving team is responsible for driving growth and income sustainability across Individual Giving (one-off donations, Regular Giving, Lottery) In Memory Giving, Legacy Giving and Major Giving. This is an exciting role and it will suit somebody who enjoys working across our different fundraising products, with particular focus on one-off donations, Regular Giving and In Memory Giving. The role will focus on the acquisition and stewardship of donors, maintaining a fantastic donor journey for longer term engagement. The role holder will need to own and manage their workstreams, drawing on the expertise of other in-house teams from Marketing to Finance. The need for accuracy in data and administrative work requires the role holder to have a keen eye for detail and a respect for processes and regulations.
What we offer
Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:
We are the UK's leading kidney patient support charity



Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Money & Energy Advice Service Lead
Pro rata salary: £39,825 (35 hour week)
Home-based, with travel as required
Up to 35 hours per week with occasional evenings and / or weekend work will be required
Permanent (subject to external funding)
Responsible for: 2.0 FTE Money & Energy Advisers
About the role
This is an exciting opportunity for an experienced welfare benefits practitioner with a passion for sharing knowledge and enabling teams to deliver above and beyond.
With around 4 in 10 beneficiaries, we support seeking help with financial difficulties, this is a pivotal role for Kidney Care UK.
We are seeking a knowledgeable and confident specialist income maximisation activities for a role with three key parts: to lead a small team delivering benefits and energy advice and support directly to clients; to play a key role in upskilling and supporting our outstanding Patient Support team across the country; and to be the subject matter expert within Kidney Care UK.
Our external partners – British Gas Energy Trust have committed to fund our Money and Energy Service until March 2027. We are advertising this position as ‘permanent’ – we anticipate confirmation by December 2026 whether funding will be extended beyond March 2027.
This role is made possible thanks to the support of British Gas Energy Trust.
About Kidney Care UK
Around 3.5 million people in the UK live with chronic kidney disease, and one million of them don’t know that they do.
Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease.
About the Money & Energy Advice Service
The Money & Energy Advice Service (MEAS) provides information and support for welfare benefits and income maximisation and promotes awareness of efficient energy use. Working closely with Patient Support officers, MEAS provides specialist knowledge and directly supports clients to achieve sustainable financial outcomes. The service was established in 2023 with the support of British Gas Energy Trust and is embedded as a valued element of the many ways Kidney Care UK supports people affected by kidney failure.
What we offer
Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:
We are the UK's leading kidney patient support charity



The client requests no contact from agencies or media sales.
Do you want to work with a leading advocacy charity organisation supporting those in need?
Do you have experience of working or volunteering in welfare, support or health and social care and are looking for a new challenge?
Are you keen to make a difference to people who want to be heard?
Then come and join us here at VoiceAbility.
We are looking for an Advocate to join our team in the Lambeth, (Greater London) area. We are seeking applicants who have transferable skills, a willingness to learn and a desire to help those in need of support.
About us
VoiceAbility is an independent charity and one of the UK’s largest providers of advocacy and involvement services. We deliver a wide range of service contracts funded by local authorities, health trusts and other voluntary and private sector organisations.
We’ve been supporting people to have their say in decisions about their health, care, and wellbeing for over 40 years. We make sure people are heard when it matters most. For more information on what Advocacy is and the services offered then please visit our website.
About the role
This is an exciting opportunity for Advocates to join and shape this service covering the Lambeth- Greater London area. Your role will require you to travel to locations such as clients’ homes, hospitals, care homes and within community settings across the area to meet with clients and professionals. You will be home based for administration; therefore the ability to confidently use public transport or drive and a suitable home internet connection is essential.
About you
Desirably you will have some experience of working in advocacy, or providing welfare, supporting, or caring for Adults who have support needs, ideally for those with a variety of communication needs, mental ill health, physical health issues, or barriers to accessing support.
You should have worked or volunteered in health, social care, welfare, support services, education or young person’s services, or advice and guidance.
How will you make a difference?
You will be responsible for ensuring the individual’s wishes, feelings, beliefs, needs, and values are met to create positive outcomes for the people you support.
You will support people to speak up for themselves and grow in confidence, equip them to understand and exercise their rights and options, and will assist them in the decision-making process relating to their care, treatment, and support.
You will work resourcefully and collaboratively with the individuals you support. You’ll be creative in your approach to empower our clients by ensuring you meaningfully explain people’s options and rights to them. You’ll support individuals to fully participate in decisions affecting them and will make sure they have their voices heard.
Benefits
28 days annual leave plus bank holidays (pro-rata for part-time colleagues) rising to 30 days upon 5 years’ service
5% employer pension & minimum 3% employee contribution
Salary sacrifices pension scheme
Separate Life Assurance Cover (equivalent of two times your annual salary)
Staff discount scheme including retail discounts, entertainment, holidays, gym membership etc
24/7 Employee Assistance programme
Access to remote counselling service
Paid Disability Leave
Paid compassionate Leave
Home Working Allowance
Support with continuous professional development
Personal Development Plans
How are staff supported to work remotely?
VoiceAbility has a small number of offices. Employees including Team Leaders are homebased for Administration and meetings will be held online as well as in person in the relevant community.
When you need to travel for work, expenses will be paid (mileage or public transport costs).
VoiceAbility offers the usual regular manager one to ones, Staff forums and communities of practice depending on role. Team meetings with a mix of virtual and in person approach.
Equality and Diversity
VoiceAbility believes in fostering an inclusive workplace which welcomes, values and celebrates the diversity of its staff and partners, treats all on a basis of equality and encourages all to meet their maximum potential.
VoiceAbility are a Disability Confident employer, any applicant that identifies themselves as having a disability and can demonstrate that they meet all the essential criteria for the role will be offered an interview. If you need to apply in a different way, please contact HR for further options.
How to apply
Please follow the link to the vacancy on our website for more details on how to apply.
Important Dates:
Closing date for applications; Midnight on 26th of May 2026, however, VoiceAbility reserve the right to withdraw this vacancy before this date.
Don’t forget to read the person specification so you can tell us about yourself and how your skills, abilities and experiences match the criteria outlined in the person specification.
Hint: you can use work, personal and/or voluntary experiences, and examples to tell us why you should be our next Advocate.
Want to know more about VoiceAbility and the role?
Please follow the link to the vacancy on our website for more details
We look forward to hearing from you.
The client requests no contact from agencies or media sales.
Join an amazing charity that makes a difference for more than 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.
We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.
As part of our safer recruitment and safeguarding responsibilities, this role requires a DBS check and professional/character references. We are committed to inclusion and will consider each application fairly.
About you:
The Information Manager is an exciting role at MDUK, that will sit within the Services and Support team.
You'll:
About us:
Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.
This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.
Values and behaviours:
Benefits:
We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We believe in supporting our people both professionally and personally.
Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offer range of benefits includes great pension contributions, life insurance, cycle scheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more...
Location: We operate a hybrid model (home and office, London SE1).
Closing date: Sunday, 24th May 2026
NB Interviews likely to be held on the W/C 10th June 2026
Please download the job description to see full role responsibilities
We connect a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions and people around them.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The Marketing Officer/Senior Marketing Officer (Retention) at CBM UK is an important role in making our life-changing work possible. Advertised at Officer or Senior Officer level (subject to experience), the role delivers direct and digital fundraising appeals to existing individual supporters, high value donors, and churches to drive donations and grow awareness, through creative and impactful fundraising communications.
Key responsibilities:
The position holder is responsible for developing fundraising campaigns for individual supporter audiences; supporting the development of the annual public fundraising plan; building supporter journeys and testing new channels and messages.
Working closely with the Head of Marketing and across the Fundraising & Communications team, the Marketing Officer/Senior Marketing Officer (Retention) is responsible for planning and delivering a significant marketing programme, carrying out fundraising campaigns to existing supporters across multiple channels, including direct mail, email, and telephone.
Cultivation appeals (60%)
a. Deliver regular and inspiring off-line direct marketing campaigns to existing supporters on time and within budget. The role holder will plan, co-ordinate and prepare fundraising appeals. This involves creating briefs, working alongside freelance copywriters and designers, and managing print and fulfilment suppliers.
High donor fundraising (20%)
New product testing (10%)
Planning and reporting (10%)
Other
Please download the recruitment pack for full details.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The Marketing Officer/Senior Marketing Officer (Acquisition) at CBM UK is an important role in making our life-changing work possible. Advertised at Officer or Senior Officer level (subject to experience), the role delivers direct and digital marketing communications to grow awareness, and recruit and engage with new long-term CBM supporters, through creative and impactful fundraising communications.
Key responsibilities:
The position holder is responsible for developing and delivering fundraising campaigns that will engage with CBM target individual audiences; supporting the development of the annual public fundraising plan; building supporter journeys and testing new channels and messages.
Working closely with the Head of Marketing and across the Fundraising & Communications team to plan, coordinate and deliver donor acquisition appeals to recruit new individual supporters, using a variety of direct and digital marketing channels.
Regular giving (mostly monthly Direct Debits) are a large part of CBMs donor acquisition activity, and as such, part of this acquisition role is the planning and co-ordination of regular giving conversion, recruitment, retention, and upgrade campaigns.
Donor Acquisition (30%)
Regular Giving (20%)
Legacy and In-Memoriam Giving (20%)
New product testing (20%)
a. Test and develop new fundraising ideas, channels and messages to engage with and raise funds from new and existing audiences.
b. Maintain an awareness and anticipation of charity sector trends relating to direct marketing and keep abreast of competitor activities to enable CBM to respond and adapt quickly where appropriate.
Planning and reporting (10%)
Other
For full details, please download the recruitment pack.
The client requests no contact from agencies or media sales.
Fundraising Manager — Thrive (Community Council for Somerset) £35,000–£40,000 | Hybrid / Somerset | Permanent | 35 hrs (flexible)
Thrive has been at the heart of Somerset's communities for 100 years. Village agents supporting isolated older people. Diverse communities programmes. Fuel poverty campaigns. Real, local, human work — delivered across every corner of the county.
This centenary year, Thrive is building its next chapter. A new chief executive has reset the strategic direction. Community energy is building. And the organisation has made a clear decision: it wants a sustainable fundraising base that isn't dependent on statutory contracts alone.
This role is the cornerstone of that ambition.
This isn't a maintenance hire. It's a builder's role.
The Fundraising Manager will lead across community fundraising, individual giving and trusts and foundations — with community and individual giving as the primary focus. The tools are in place. The mission is compelling. The stories are extraordinary. Thrive already has the reach, the relationships and the centenary momentum. What's missing is the right person to build the pipeline and turn that momentum into lasting income.
The target: 2,000 active supporters by year end, with a clear pathway to converting them into regular givers over time.
What you'll be doing:
What we're looking for:
What Thrive offers:
This role will suit you if:
You want to be a Head of Fundraising one day. You're frustrated by being siloed. You want breadth, autonomy and the chance to build something that matters — in a place where the mission is real and the communities are real.
This role is being recruited exclusively through Raise + Recruit, an independent not-for-profit executive search adviser. All enquiries are handled in complete confidence.
For a confidential conversation, contact John Austin — no obligation, no lengthy application process at this stage.
Review the full pack here https://thrive-candidate-brief.vercel.app/
The client requests no contact from agencies or media sales.
You'll support design and delivery of multi-channel creative, tell our incredible research stories, and work with storytellers to put their lived experience at the heart of everything we do. This is a varied and creative role, producing new social media and website content that resonates with our communities, works to optimise our digital channels to maximise engagement, and helps to deliver our new content strategy.
About you
If your knowledge, skills and experience include the following then we'd love to hear from you:
The client requests no contact from agencies or media sales.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.