Jobs for the Disability sector

The Programme Officer will play an integral role in the Impact team within the broader Directorate of Impact and External Affairs. This is a pivotal time for Fight for Sight as we begin to implement our Impact Framework enabling us to communicate the impact of our extensive portfolio of current and past funded research projects to our internal and external audiences.

The role is diverse and varied, offering the successful candidate the opportunity to build their exposure to a complement of grant management activities across our research and social change funding programmes. They will be instrumental in the delivery of our grant funding processes, will work closely with our Grant Assessment Panels and key partners to ensure we achieve the exciting ambitions laid out in our Research Strategy. They will also be expected to track contribute to capturing the Impact of our funding programmes.

• Salary: £28,000 - 30,000 FTE pro rata / £22,400–£24,000 PTE actual (dependent on skills and experience)
• Working hours and contract: 28 hours per week (0.8 FTE) over four days, Permanent
• Location: Hybrid, minimum 2 days per week in our central London based office, one of these days to be a Wednesday, and at external meetings and events as required. 
• Important note: All applicants must have the Right to Work in the UK. 

How to Apply                                                                 

• Application deadline:  Monday, 1 June 2026, 9am
• Interview dates:  w/c Monday 8th June 2026 (TBC)
• Interview venue: E1 8HQ – NB: if high numbers, there may be a preliminary online interview 

Please submit your CV and a cover letter/supporting statement of no more than two pages which evidences the specification in the job description and answers the following questions:

1. Why are you interested in working at Fight for Sight?
2. Why are you interested in this role?
3. What experience will make you the ideal candidate for this role?

Role Responsibilities

Please see the attached job description for full details.

The Katie Piper Foundation is seeking an experienced Finance and Business Manager to join our small, dedicated team in this newly created role, central to supporting our growth over the next three years.

You will lead all aspects of financial management, working closely with the CEO on budgeting, planning, and resource allocation. Responsibilities include overseeing day-to-day finances, producing management accounts, reporting to the Board, and ensuring strong financial controls and compliance.

In addition, you will help strengthen the charity’s wider operations, improving systems across IT, data, and reporting, as well as supporting risk management, policy development and measuring and communicating our impact.

This will be varied and evolvingrole suited to someone confident working across both strategic and operational areas, and comfortable driving organisational improvement.

We are a fully remote team. The role is home-based and part-time (28 hours a week, FTE 35 hours), and we are open to flexible working arrangements.

We are looking for a proactive professional with strong financial expertise and a broader business mindset. If you are ready to take on a pivotal role in a small team supporting a life-changing cause, we would love to hear from you.

To learn more about the role and how to apply, please view the full job pack here:
https://lnkd.in/dXjWSVwV

Specialist Behavioural Support Worker

We're looking for a kind, compassionate and resilient Specialist Support Worker to join our Learning Disabilities Care Service in Newham. No personal care or experience required, just the right values.

£31,117.00 per annum, working 40 hours per week.

Want to feel valued? You'll feel at home here.

Our benefits include:

• Annual leave increasing up to 30 days with length of service
• Free DBS
• Exclusive discounts and cashback via Reward Gateway® and opportunity to buy a Blue Light Card

All applicants must be legally eligible to work in the UK by the start of employment as Look Ahead are not able to offer sponsorship.

Specialist Support Workers within Look Ahead are required to have either an extra dimension of experience or a higher qualification level as determined relevant for the particular post.

What you'll do:

This is not an exhaustive list of all the duties and responsibilities that may be required from time to time and is subject to change in accordance with the needs of Look Ahead .

• Building supportive, trusting relationships with customers and creating a positive atmosphere
• Carrying out holistic assessments of new customers which incorporate relevant statutory referral information
• Conducting regular key work sessions that are innovative and engaging in order to achieve Support Plan goals
• Create support plans for providing appropriate services based on on-going assessment and reflecting the services and resources available to enable customer to progress in their recovery
• Ensuring ongoing assessment and management of risks associated with customers within an attitude of 'positive risk taking

About you:

• Enjoys social interaction and the company of others, joins in local activities to encourage customer involvement
• Exudes a warm friendly presence and open behaviour * Prefers working as part of a group or team
• Is fundamentally calm and resilient, does not let emotion adversely affect them or obscure their judgement

Essential:

• NVQ Level 2/3 or equivalent with some or equivalent sector work experience

Desirable:

• Other relevant professional memberships and/or specialist qualifications and languages

About us:

Look Ahead is a leading, not-for-profit care and support provider in London and the South East. Our vision is to build better lives through social care and housing in local communities.

We have a strong social purpose and we live and work by our values.

We reserve the right to close this advert early if we are able to appoint to the vacancy before the advertised closed date.

The Role
We are looking for a Supporter Acquisition Fundraiser to help us reach every deaf child by raising vital funds through recruiting new regular giving supporters. 

What you'll do
 

• Manage relationships with direct dialogue recruitment agencies that recruit thousands or tens of thousands of new supporters
• Actively manage campaigns to ensure continuous improvement
• Report on campaign progress to stakeholders
• Ensure high standards of compliance, quality and supporter experience in our recruitment activity

 
What you'll need
 

• Strong marketing and/or fundraising experience
• Experience managing supplier relationships
• A great understanding of how charity fundraising works and the role of direct dialogue recruitment
• Strong digital skills and a sound understanding of agile values & principles.
• A criminal record check / DBS disclosure (if offered the position).

What you'll get

• Home-based working with flexible hours.
• 25 days holiday - plus an additional 3 days at Christmas (& bank holidays).
• Pension (5.5% employer contribution).
• Healthcare Cashplan.
• Annual performance-based salary increase.
• Employee Assistance & Wellbeing Programmes.

 
What we do
 
The National Deaf Children's Society are the leading charity for deaf children. We give expert support on childhood deafness, raise awareness and campaign for deaf children's rights, so they have the same opportunities as everyone else.

Pre-employment checks
As part of our commitment to creating a safe and trusted environment for the children, young people and families we support, all offers of employment are subject to background checks. These include Right to Work verification, Criminal Record Disclosure, and ID and address verification.
 
To complete an online Right to Work check, you will need a valid UK or Irish passport, or a government share code if you are not a British citizen. If an online check is not possible, we’ll need to verify your documents in person at our London office. Please be aware that travel time and expenses for this appointment cannot be reimbursed.
Disability Confidence
 
We are a Disability Confident Employer and committed to offering interviews to candidates who request to be considered under the disability confident scheme and meet the minimum requirements of the person specification. Please contact us at [email protected] with any accessibility or reasonable adjustment enquiries.
 
The National Deaf Children’s Society is a registered charity in England and Wales no. 1016532 and in Scotland no. SC040779.

Senior Individual Giving Officer

Hybrid (with 2-3 days per week in our Alton office)

Individual Giving Manager

Permanent, 35 hours per week

£30-35k per annum, dependant on experience

(plus pension & generous annual leave)

 

About Kidney Care UK

3.5 million people in the UK have chronic kidney disease (CKD), a diagnosis that can turn your world upside down.

For 50 years, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by this lifelong condition. We provide practical, emotional, and financial support for individuals and their families, while also working with healthcare professionals to improve care services and campaign for change.

Kidney disease can affect anyone and there is no cure. We are here for the young and the old, for those struggling to make ends meet, for families and loved ones. We fight tirelessly, giving our total support, to improve the lives of kidney patients and their families.

We’ve grown significantly over recent years. But this is just the start – we want to grow our income significantly in the next five years as part of our ambitious new strategy to ensure that the charity is fully sustainable so that we can support the 1000s of patients who need us every year. We’ve been making quite a splash recently – our ‘Bloody Amazing Kidneys’ campaign has seen more than 200,000 people successfully complete our online kidney checker so they can understand their risk of kidney disease.

Will you join us and help ensure that no one faces kidney disease alone?

 

The role

The Individual Giving team is responsible for driving growth and income sustainability across Individual Giving (one-off donations, Regular Giving, Lottery) In Memory Giving, Legacy Giving and Major Giving. This is an exciting role and it will suit somebody who enjoys working across our different fundraising products, with particular focus on one-off donations, Regular Giving and In Memory Giving. The role will focus on the acquisition and stewardship of donors, maintaining a fantastic donor journey for longer term engagement. The role holder will need to own and manage their workstreams, drawing on the expertise of other in-house teams from Marketing to Finance. The need for accuracy in data and administrative work requires the role holder to have a keen eye for detail and a respect for processes and regulations.

What we offer

Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:

• Flexi-time – we are flexible about start and finish times, and flexible about your location.
• Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
• Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
• Health cashback plan – ability to claim back a wide variety of routine medical treatments.
• Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
• Cycle2Work scheme

Money & Energy Advice Service Lead

Pro rata salary: £39,825 (35 hour week)

Home-based, with travel as required

Up to 35 hours per week with occasional evenings and / or weekend work will be required

Permanent (subject to external funding)

Responsible for: 2.0 FTE Money & Energy Advisers

About the role

This is an exciting opportunity for an experienced welfare benefits practitioner with a passion for sharing knowledge and enabling teams to deliver above and beyond.

With around 4 in 10 beneficiaries, we support seeking help with financial difficulties, this is a pivotal role for Kidney Care UK.

We are seeking a knowledgeable and confident specialist income maximisation activities for a role with three key parts: to lead a small team delivering benefits and energy advice and support directly to clients; to play a key role in upskilling and supporting our outstanding Patient Support team across the country; and to be the subject matter expert within Kidney Care UK.

Our external partners – British Gas Energy Trust have committed to fund our Money and Energy Service until March 2027. We are advertising this position as ‘permanent’ – we anticipate confirmation by December 2026 whether funding will be extended beyond March 2027.

This role is made possible thanks to the support of British Gas Energy Trust.

About Kidney Care UK

Around 3.5 million people in the UK live with chronic kidney disease, and one million of them don’t know that they do.

Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease. 

About the Money & Energy Advice Service

The Money & Energy Advice Service (MEAS) provides information and support for welfare benefits and income maximisation and promotes awareness of efficient energy use. Working closely with Patient Support officers, MEAS provides specialist knowledge and directly supports clients to achieve sustainable financial outcomes. The service was established in 2023 with the support of British Gas Energy Trust and is embedded as a valued element of the many ways Kidney Care UK supports people affected by kidney failure.

What we offer

Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:

• Flexi-time – we are flexible about start and finish times, and flexible about your location.
• Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
• Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
• Health cashback plan – ability to claim back a wide variety of routine medical treatments.
• Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
• Cycle2Work scheme

Part time EMPLOYMENT AND JOB SKILLS COACH/TUTOR

£15 per hour (£27,300 per annum)

Immediate start

Fixed contract - until 31 March 27  (with possibility to extend)

Employment Coach (Part-Time)

Organisation: Adanna Women’s Support Group
Location: East London (office-based)
Hours: 19.5 hours per week (Monday, Thursday, Friday – flexible, ideally 9:30am–4:30pm)
Contract: Fixed-term (with potential extension, subject to funding)

About Us

Adanna Women’s Support Group is dedicated to supporting women into employment and helping them thrive in the workplace. We deliver training in business skills, administration, IT, childcare, and employability, empowering women to build confidence, gain skills, and access meaningful opportunities.

About the Role

We are looking for an experienced, passionate and proactive Employment Coach to support women who are economically inactive and facing barriers to employment.

You will work with a small caseload of participants, providing tailored, one-to-one support to help them build skills, increase confidence, and move into sustainable employment, training, or volunteering.

A key part of the role will also involve engaging with employers—identifying opportunities, building relationships, and supporting inclusive recruitment practices to ensure roles are accessible to our clients.

Key Responsibilities

• Deliver personalised one-to-one coaching and action planning for unemployed women
• Support women to develop skills, confidence, and job readiness
• Assist with CV writing, applications, and interview preparation
• Design and deliver entry-level training (e.g. digital skills, confidence building, ESOL conversation sessions)
• Build and maintain relationships with local employers
• Source job, placement, and volunteering opportunities
• Support employers to make roles more inclusive and accessible
• Manage a varied workload and maintain accurate records

Minimum Criteria

• Understanding of the challenges faced by BAME women who are economically inactive or experiencing multiple barriers to employment
• 2 years Experience of providing one-to-one employment support, including action planning and goal setting
• Minimum 2 years’ experience in teaching, training, or assessing
• Ability to manage multiple tasks and build positive relationships with a range of stakeholders
• Experience delivering entry-level training (e.g. digital skills, confidence building, ESOL support)

What We’re Looking For

• A motivated and empathetic individual with a passion for supporting women
• Strong communication and relationship-building skills
• Ability to work independently and as part of a small team
• A practical, solution-focused approach

Additional Information

• This is an office-based role in East London
• An enhanced DBS check is required
• We are committed to safeguarding and promoting the welfare of our clients
• We are an equal opportunities employer and welcome applications from all sections of the community
• This role is open to women only under the Equality Act 2010

How to Apply

If this sounds like the right opportunity for you, we’d love to hear from you. Please send your CV  and a single A4 cover letter outlining how you meet the criteria to apply.

Closing date: Ongoing until a suitable candidate is found
Interviews: Held on a rolling basis

New Business Manager

£38,554 a year

London Office/Remote Worker

Job description

1 in 4 of us in the UK are disabled and we are a diverse, proud, and vibrant community. We’re here to create an equal future with all disabled people. We campaign to transform attitudes to disability, tackle injustice and inspire action. We are creating a powerful movement of disabled people, allies, organisations and businesses.

Together we will be unstoppable.

This is an important role in our New Partnerships team. You’ll help us build strong and exciting relationships with businesses that want to support Scope and make change happen.

Permanent, Full time (35 hours a week)

Location: Here East Press Centre, 14 East Bay Lane, London, E15 2GW and working from home.

The role

We are looking for someone who loves making connections and building partnerships. As our New Business Manager, you will help find new companies to work with us and support our goals.

You will help grow Scope’s income and impact by spotting great opportunities and helping us work with businesses who share our values.

You will:

· Find new business partners and share Scope’s story with them

· Build strong and trusting relationships with businesses

· Write inspiring proposals and ideas that show how we can work together

· Work with people across Scope to create exciting fundraising partnerships

· Track targets and report back on how we are doing

· Help us stay up to date with trends in fundraising and partnership work

· Make sure we follow the right rules and fundraising standards

For more information about the role’s responsibilities and the skills and experience required, please visit our website

Please include examples in your application that show how your skills, experience, and values match the person specification in the job description.

About you

We are looking for someone who is:

· Friendly, confident and great at building relationships

· Experienced in fundraising or sales

· Skilled in writing proposals or pitches that get results

· Organised and able to manage several tasks at once

· Full of ideas and energy to help us grow and improve

· Comfortable using systems to keep track of contacts and progress

It’s great (but not essential) if you also:

· Know about disability issues or have lived experience

· Understand the Social Model of Disability

· Have fundraising or marketing qualifications

· Know people in the corporate fundraising world

We welcome applications from people with lived experience of disability and from all backgrounds.

We also ask you to share how you support Scope’s values and contribute to our goal of creating a fair and equal future for disabled people.

Additional information

You must have the legal right to work in the UK to apply for this role. We cannot provide visa sponsorship.

Anonymised applications

We use an anonymised application process to support our commitment to equality, diversity and inclusion.

All applicants must submit an anonymised CV and complete a short online application form.

Our values

Pioneering, Courageous, Connected, Open, Fair.

We trust each other and give colleagues freedom to be creative, push boundaries, and change minds.

Our promise to disabled people

We are proud to be a charity that stands for disability equality. We welcome applications from disabled people and anyone with an impairment, condition, or access need. We want our team to reflect the communities we serve.

As a Disability Confident employer, we are committed to ensuring disabled applicants are treated fairly throughout the recruitment process.

If you meet all the essential requirements for this role and choose to apply under the Offer an Interview Scheme (previously known as the Guaranteed Interview Scheme), we will ensure that a fair and proportionate number of disabled applicants are offered an interview.

To opt in, simply tick the relevant box in the application form to let us know you would like to be considered under this scheme.

If you need any changes or support during the recruitment process, please email us via our website.

You can also find more details about asking for adjustments at interview on our website.

Equality, Diversity and Inclusion (EDI)

EDI is a priority at Scope. We welcome applications from people of colour and other underrepresented communities. We aim to create a culture where everyone feels they belong, treating all with dignity and respect. As a disability equality charity, accessibility and inclusion come first. We listen, learn and continuously improve.

You can find out more about our approach to Equality, Diversity and Inclusion on the Scope website.

Benefits

· 27 days holiday and bank holidays

· Flexible, hybrid, and remote working options

· Pay progression at 6 months and 2 years

· Company pension

· Excellent training and career development

· Strong colleague networks (disability, race, LGBTQ+, gender, social mobility, carers, young people)

· Discounted gym membership, cycle-to-work scheme, and more

How to apply

To apply please visit our website via the link and apply online.

Fundraising Manager
Cheshire | David Lewis | £35k–£40k  (dependant on experience)
Hybrid working options available

Help us grow something extraordinary.

At David Lewis, we support people with complex needs, epilepsy and learning disabilities to live life to the fullest.
 

Now we’e stepping into an exciting new chapter.
 

We’re launching an ambitious fundraising and capital appeal programme — and we’re looking for a driven, creative, relationship-building fundraiser to help make it happen.

This is where you come in.

The Opportunity:

We’re looking for a Fundraising Manager who thrives on building connections, spotting opportunities and turning great ideas into meaningful income for a cause that truly matters.

You’ll help grow and develop fundraising across:

• Community fundraising.
• Challenge and events fundraising.
• Corporate partnerships.
• Legacy and in-memory giving.

You’ll also play a key role in building the supporter pipeline that will power our capital appeal and future fundraising growth.
 

What You’ll Be Doing:

This is a hands-on, outward-facing role where you’ll:

• Build and nurture relationships with supporters and partner.
• Develop new community and corporate fundraising opportunities.
• Grow our challenge events and supporter engagement.
• Help develop our legacy and in-memory giving programmes.
• Managing the team, with one direct report at present.
• Play a key role in supporting our ambitious capital appeal.
• Bring new ideas, energy and creativity to the fundraising team.
• Externally facing.

Who We’re Looking For:

You might already be working in fundraising, or you might come from a business development, partnerships or relationship-building background.

What matters most is that you are:

• A natural relationship builder.
• Confident connecting with people and inspiring support.
• Organised and proactive.
• Someone with Fundraising experience.
• Motivated by purpose and impact.
• Someone with a proven track record in this field.
• Full of ideas and ready to make things happen.

Why David Lewis?

Because the work we do changes lives.

Every pound raised helps support people with complex needs to live richer, more independent lives.

And right now, we’re building something bigger than ever before.

You’ll join a small but ambitious fundraising team, with the chance to shape new initiatives, grow income streams, and make a genuine difference.

Join us and help power the next chapter of David Lewis.

1. Overview

Cerebral Palsy Sport (CP Sport) is recruiting three Regional Programme Delivery Officers to support the delivery of the “Together We Can” Young Ambassador Programme across England.

This is an exciting opportunity to work directly with young people with cerebral palsy (CP), supporting them to build confidence, develop leadership skills, and lead social action within their communities.

These roles will be central to delivering a national programme across eight regional hubs, working closely with young people, partners, and communities to create meaningful and lasting impact.

2. Contract Details

Salary: £30,000 per annum

Hours: Full-time (35 hours per week) – part-time considered

Contract: Fixed-term until March 31st 2027 (with potential for extension, subject to funding)

Location: Home-based with regular travel across your region

Regions: North / Midlands / South

3. Role Purpose

You will be responsible for delivering the Young Ambassador Programme within your region, supporting young people aged 10–20 with CP to take part in training, social action, and community-based activity.

You will work closely with Young Ambassadors to:

· Develop their confidence and leadership

· Support them to plan and deliver activities

· Build partnerships across schools, sport, and health sectors

4. Key Responsibilities

Programme Delivery

· Lead delivery of the Young Ambassador Programme within your region

· Support the recruitment, onboarding, and engagement of Young Ambassadors

· Deliver or facilitate training sessions and group activities

· Support young people to co-design and deliver social action projects

Supporting Young Ambassadors

· Provide ongoing support, guidance, and encouragement

· Create a safe, inclusive, and engaging environment

· Support young people to develop confidence and leadership skills

Activity and Events

Support delivery of:

· School visits

· Community engagement activities

· Regional multisport events

· Awareness campaigns (including World CP Day)

These activities form a core part of the programme’s impact and youth-led delivery model.

Partnerships and Engagement

Build relationships with:

· Schools and education providers

· Health and medical professionals

· Sports clubs and community organisations

Support partners to engage with the programme and Young Ambassadors

Planning and Coordination

· Plan and coordinate regional delivery in line with programme timelines

· Manage logistics for sessions and events

· Maintain regular communication with the national team

Monitoring and Reporting

· Track attendance, activity, and engagement

· Collect feedback and evidence from delivery

· Contribute to programme reporting, including the 6-month progress report

Safeguarding and Compliance

· Ensure all delivery follows safeguarding policies and procedures

· Complete risk assessments for activities

· Maintain safe and inclusive delivery environments

5. Personal Specification

Essential

· Experience working with young people in community, youth, or sport settings

· Strong communication and relationship-building skills

· Ability to plan and deliver activities or programmes

· Organised and able to manage multiple priorities

· Ability to work independently and as part of a team

· Commitment to inclusion and supporting young people

Desirable

· Experience working with disabled young people or inclusive programmes

· Understanding of cerebral palsy or disability inclusion

· Experience working with schools, health professionals, or community partners

· Experience delivering training or workshops

6. Working Pattern

You will receive:

· Full induction and programme training

· Ongoing support from CP Sport’s national team

· Regular check-ins and supervision

· Opportunities for professional development

7. Safeguarding

CP Sport is committed to safeguarding and promoting the welfare of children and young people.

All staff will be required to:

· Complete safeguarding training

· Undergo an enhanced DBS check

· Follow all safeguarding policies and procedures

8. Recruitment Process 

We are looking for candidates who can start as soon as possible.

· Applications will be reviewed on a rolling basis

· Interviews will be scheduled as suitable candidates are identified

We encourage early applications.

About Action Duchenne 
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

The Events Officer will embody these values in every aspect of planning, delivering and evaluating events. 

What we offer: 

• 24-hour confidential Employee Assistance helpline 

• Private health insurance 

• Flexible hours 

• 5% employer pension contribution 

Main Purpose of the Role 
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination. 

This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community. 

 Specific Tasks 

1. Event Coordination and Logistics 

• Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team. 

• Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules. 

• Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels). 

• Manage registration processes for all events and ensure attendees receive timely, accurate joining information. 

• Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place. 

2. Administration and Operational Delivery 

• Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms. 

• Track planned expenditure and ensure costs align with budgets, escalating issues where necessary. 

• Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency. 

• Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally. 

3. Stakeholder and Supplier Management 

• Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery. 

• Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams. 

• Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions. 

4. Community and Engagement Support 

• Collaborate with Support Team colleagues to ensure events reflect community needs and priorities. 

• Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates. 

• Encourage and support attendance from families, young people, professionals and community partners. 

5. Data Management, Monitoring and Evaluation 

• Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions. 

• Collect and analyse feedback, producing short evaluation summaries to inform future planning. 

• Track attendance, trends and logistical improvements, contributing to quarterly reporting. 

6. Risk, Compliance and Quality Assurance 

• Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance. 

• Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Key Performance Indicators (KPIs) 

• Event logistics prepared within agreed timelines 

• Accurate event information published and updated within required timeframes 

• Participant satisfaction and engagement measured through surveys 

• Conference and event attendance targets met 

• CRM data entry completed within 2 working days of events 

• Budget expenditure tracked monthly with minimal variance 

• Effective delivery of regional and online events aligned with pre-agreed schedule 

Person Specification 

Knowledge & Experience 

Essential

• Experience organising in person events from start to finish for over 300 attendees. 

• Experience liaising with suppliers, venues and speakers. 

• Experience with CRM/data entry, with close attention to detail. 

• Experience organising and hosting remote events. 

• Understanding of hybrid events. 

Desirable

• Experience in the charity sector. 

• Knowledge of Duchenne or similar life-limiting conditions. 

Skills & Abilities 

Essential

• Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners. 

• Understanding of the importance of safeguarding around events. 

• Exceptional communication skills. 

• Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines. 

• Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement. 

• Skilled in problem solving, with a proactive, solutions focused approach. 

• Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations. 

• Digital proficiency including Microsoft Office, CRM systems and digital communication tools. 

Attributes 

Essential

• Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism. 

• Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions. 

• Resilient and adaptable, able to navigate complexity. 

• Creative, dynamic and innovative, with the ability to take ideas from concept to delivery. 

• Demonstrable commitment to equity, diversity and inclusion. 

• Personally, and professionally, responsible with high standards of integrity and accountability. 

• A sense of humour and the ability to bring warmth and humanity to the role. 

Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June. 

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.

We are looking for an experienced youth worker to join our team and lead our Short Breaks project, which provides activities and support specifically for children and young people who have autism and have low to moderate support needs. Camp Mohawk is a woodland activity centre that provides support to children, young people and families from across the South of England.

The children and young people (approximately 100 individuals) supported by the project are aged 8 to approximately 25 years and are largely independent in terms of their self care but have a variety of social, sensory and sometimes medical needs that mean it is very difficult for them to participate in mainstream activities. Our Short Breaks service offers after school activities (in 3 age groups) on Tuesdays and Thursdays in term time, as well as full days of activities once per week in school holidays. These activities give the young people essential social opportunities during which they are supported with things they find challenging, encouraged to express their natural personalities and explore and develop their interests. During these sessions they can receive support to develop their social skills if that is what they need, and can take part in fun activities with their peers. The groups generally cater for between 10 and 20 young people per session.

To be a good fit for this role, you will need to be an exceptional and dedicated childcare / youth worker who has proven experience of supporting and safeguarding children and young people, particularly those who have autism. You should have experience of planning inclusive activities, managing budgets and supervising teams of staff. The role is very much a ‘hands on’ role working directly with the project beneficiaries for the majority of the post hours - you must be able to commit to working the majority of Tuesday (16.00 - 19.30) and Thursday (18.30 - 22.00) evenings in term time, and at least one full day (09.00 - 17.30) per week during school holidays, with the exception of the Christmas holidays when the centre is closed. You will work 10 hours per month on project associated admin which can be undertaken remotely and largely at times that suit you. You must have a full UK driving license and access to a reliable vehicle that is insured for business use. Camp Mohawk is not easily accessible by public transport, whilst some Short Breaks activities take place at off site locations in Reading, Wokingham, Maidenhead, Bracknell, Slough and surrounding areas.

The current post holder also works in the role of Duty Manager for other school holiday days / term time weekend days. This aspect of the role, which will be an optional add on to the Short Breaks Coordinator role with negotiable hours, would be undertaken on a rotational basis with our 4 other Duty Managers. The role involves overseeing the daily delivery of general Family Sessions which support families who have children of all ages and who have a wide range of special needs and disabilities. In this role you will guide and supervise a team of support staff and volunteers through set up of the facilities at the start of the day, oversee the smooth and effective delivery of the service and support families during their visits, work effectively within our Safeguarding Lead Team, and supervise the cleaning and close down of facilities once the session has completed.

For full job description and person specification please see the attached application pack. Informal enquiries prior to application to discuss the role requirements, and applicant requirements in terms of hours and salary, are welcomed.

The successful applicant will be required to undergo all checks and training in accordance with our Safe Recruitment policy including enhanced DBS check, satisfactory references and Right to Work check.

Role Overview 

You will be part of Shine’s specialist Health Team, providing condition-specific health advice and support to people of all ages living with spina bifida, hydrocephalus, Normal Pressure Hydrocephalus (NPH) or Idiopathic Intracranial Hypertension (IIH). You will support delivery of, delivering an established, evidence-based programme, promoting good self-management and care, and enabling our members to live in optimum health. 

You will deliver high-quality, person-centred physiotherapy assessments, treatment, and advice to children, young people and adults with a wide range of physical needs, enabling them to maximise independence, function, and quality of life. 

The role is home or hybrid based; member contact is predominantly via phone and video calls. 

This job role is an exciting opportunity to join our specialised service delivering spinal stimulation. You will be attending a 2-day physiotherapy clinic once a month. Clinics take place on a rolling programme of one location per month, current locations include Birmingham, Bristol, Leicester, Leeds and Oxford but these may vary.

There will be occasional travel required across wider areas and nationally including attendance at conferences and meetings at our head office in Peterborough.

Benefits to working at Shine  

• Competitive salary: Review due April 2027  

• Regular working hours, and no shift work (some occasional weekends or evenings)    

• 3% pension contribution  

• 25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year   

• Additional annual leave awarded for ‘long service’  

• Opportunity to purchase additional annual leave  

• Broadband allowance for home-based roles  

• Life insurance after 12 months’ employment    

• Access to our Employee Support Programme and Mental Health First Aiders   

• Reimbursement for HCPC registration 

• Support to learn and develop including specialist training for Spinal Stimulation and ongoing mentoring and clinal supervision. 

How to apply   

Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.   

If you would like to discuss the role in more detail or have any questions, please contact Lindsey Reid, Head of Health.

To apply please submit your CV and supporting statement*, which should outline your interest and explain how you meet the role criteria

*Please note applications without a supporting statement will not be accepted*

We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications. 

Closing date: Monday 18th May at 11pm 

Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.    

Interviews (virtual): Thursday 28th May 2026 

Please see full details of the job description and person specification below and on our website.