Fundraising and Communications Manager

About Us

 We’re IPWSO, the international umbrella body for Prader-Willi syndrome (PWS) associations around the world. 

We build communities between people with Prader-Willi syndrome, their families and the professionals who support them to share knowledge and expertise and improve outcomes for people with Prader-Willi syndrome and their families everywhere.

We want everyone with Prader-Willi syndrome to get equal access to diagnosis and treatment no matter where in the world they live and to ensure better, more consistent outcomes for people with the syndrome and their families.

We work to ensure research into the condition works for everyone and reflects the diverse experiences and environments of those living with the syndrome around the world today.

Our membership comprises PWS associations in 45 countries and we support individual families and professionals in over 70 other countries. We have a staff team of four who work in conjunction with dedicated volunteers from around the world.

 

Job Purpose

 We’re looking for a talented and motivated Fundraising and Communications Manager who can effectively convey the life-changing impact of our work, motivate our community to donate and fundraise to support our work, and ensure that the information and educational resources we provide reach those who need them most.

 

Key Responsibilities

 Fundraising

·       Develop communications content that will invigorate our existing donors and inspire new ones leading to increased giving by individuals to IPWSO.

·       Focusing in particular on our website and social media channels, communicate our achievements, impacts and needs with a view to influencing IPWSO’s online supporters to make donations and engage in fundraising initiatives.

·       Provide outstanding donor care to encourage a high level of retention and repeat donations.

·       Working with IPWSO’s Fundraising Committee, lead on a new collaborative global fundraising initiative to be rolled out with IPWSO’s members in 2024.

·       Act as the organisational lead for IPWSO’s CRM (Donorfy) and utilise it to improve the donor journey.

·       Develop a robust pipeline of case studies for use in our fundraising campaigns.

 

 Communications

·       Act as the first point of contact for IPWSO’s public email address and social media channels and ensure that timely and appropriate replies are issued.

·       Manage IPWSO’s social media channels, creating original and engaging posts, and actively engaging with our audiences.

·       Manage Google Ad Grant campaigns with an emphasis on growing our supporter base and increasing individual giving.

·       Keep up to date with emerging trends in digital communications and social media, and recommend potential new channels for fundraising and audience engagement.

·       Maintain and develop the IPWSO website ensuring its security and that it functions both as an effective supporter acquisition tool and a means by which people can easily access information about PWS.

·       Produce compelling monthly newsletters and an Annual Report.

·       Review and update IPWSO’s Communications Strategy in line with its new Strategic Plan, which will be published in January 2024.

·       Uphold and showcase the IPWSO mission and brand.

·       Working with IPWSO’s Publications and Communication Committee, oversee the production and design of a range of educational resources for families and professionals.

·       Oversee copywriting and proofreading within IPWSO.

·       Support IPWSO’s members and liaise with its stakeholders internationally in support of our shared goals.

 

General

·       Champion the vision, mission and values of IPWSO internally and externally.

·       Comply with all relevant charity and other legislation.

·       Uphold IPWSO’s internal policies.

·       Act as IPWSO’s Data Manager, ensuring our continued compliance with the Data Protection Act.

·       Undertake other reasonable duties requested by the CEO.

 

Person Specification

 Essential

Significant fundraising experience including planning and delivering successful online fundraising campaigns

A track record of securing donations from individuals

Experience of donor stewardship

Excellent presentation, writing and storytelling skills across a wide range of applications and for varied audiences

Excellent proofreading and editing skills

Understanding of organisational branding

Experience managing websites and social media platforms

Excellent organisational skills with the ability to work under pressure and to strict deadlines

Outstanding interpersonal and communication skills, with the ability to build and maintain positive relationships

 

Desirable

Experience using Donorfy or another CRM

Experience using Google Analytics and WordPress

Experience managing Google Ad Grant campaigns

Experience working remotely

Experience working with volunteers

Experience working as part of a small team

Experience working for an international nonprofit organisation

Understanding of challenges facing people with disabilities

Design skills, including proficiency in software such as Canva

 

Essential Personal Attributes

Enthusiasm for IPWSO’s work and commitment to its vision, mission and values

Confidence and ability to work well with people from different backgrounds from around the world

Highly self-motivated and able to work on own initiative as well as part of a team

Enthusiastic and positive attitude to work and willingness to learn new skills and support colleagues as needed