Chief Executive Officer

IPWSO

Remote

£42,000 pro rata (£28,000 - 25 hour week)

Part-time (25 hours per week)

Contract (2-years)

Actively Interviewing

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Job description

The International Prader-Willi Syndrome Organisation (IPWSO) is seeking a talented and motivated CEO who will deliver our organisational strategy which aims to improve the lives of all those affected by a rare genetically determined disorder called Prader-Willi syndrome (PWS).

The role of CEO at IPWSO is both challenging and rewarding. You can help deliver change for people affected by PWS from across the globe by helping us build solidarity, promoting scientific reasoning and research, helping to foster new relationships, supporting our members, and striving for equality for everyone affected by the syndrome.

You will work alongside passionate volunteers and experts in PWS from across all continents and with a skilled and small staff team based in the UK. We are all dedicated to making a tangible difference!

For the full person specification and the JD, please refer to the attachment below.

#CEO #Chief Executive #Chief Executive Officer

Application resources

IPWSO CEO Application Pack

1.56 MB

Application Instructions

Please see the application pack for the full Job Description and Person Specification.
Apply on the Charity Job website and submit a copy of your CV with a covering letter of no more than two A4 pages, describing how you meet the requirements of the role and the criteria outlined in the Person Specification. Include in your covering letter the names, position, organisation, email, and telephone contact of two referees, one of whom should be your current/most recent employer. References will only be sought once your express permission has been granted.

We will be reviewing applications and interviewing applicants on a rolling basis. We encourage you to apply early, as the advertisement may close before the 19 February 2026.

Organisation